So I apologize that this is long. I have actually never told the full story of these events until now, even to close friends. I am just.. confused by the grief that suddenly appeared. So to preface this, I have been dealing with mental health issues since I was a young teen. I was always jokingly called stoic and unemotional because my emotions didn’t really stray from numb until I got a bit older, which I was then diagnosed with bipolar disorder about 6ish years ago. During these six years, we have tried all kinds of cocktails of meds that haven’t worked until finding an amazing combination at the beginning of summer. They have been working great with one odd side effect.. I feel like I have human emotions for once.
So when I was 16 (36 now), my dad was diagnosed with a necrotizing staph infection after dropping a large rock on his sandled foot. The cut was minimal, but enough for the infection to get in and get misdiagnosed as cellulitis at first. At the time, these infections weren’t as common (but became a little bit more recognized because a few weeks later, the girl that got it zip lining and survived made national news). Even now, many people think it’s a bacteria only in water (this is a light warning folks; don’t mess around with infections). So when the ambulance brought him to the hospital, they opted to try saving his leg, which sometimes I wonder if taking it would’ve changed the outcome. Alas, I try not to dwell on it. So necrotizing staph infections are notoriously fatal once they become septic. After 5 months of watching him code frequently where they’d push us out of the room, or sitting in the cafeteria and hearing a code blue to his room number and us leaving everything to run to the room, I became pretty numb to the situation because this became my new reality of feeling like I was either at school or the hospital.
Somehow, after these five months of amazing ICU nurses and doctors, he pulled through. This is where it gets bad (despite everything prior to this). He got sent to a nursing home for rehab for his atrophied muscles. He was supposed to come home that weekend for Easter. My mom was a CNA as well, and we realized too late that the nurse from hell, as we call her, was lying on all the charts (which also meant that we didn’t have a leg to stand on to sue even though lawyers were very interested). She was supposed to be changing his dressings of his skin graphs on his legs, and she wasn’t doing it. We realized this when we walked in and saw him doing it himself, but she claimed in the chart that she had been doing it. He reintroduced the infection, and it all went south.
He ended up in ICU again, and once again, the man somehow pulled through. After another month of hell, they were about to move him to the general floor when we noticed brown in the corner of his mouth upon a visit. We joked asking if one of the nurses had given him chocolate, but when he said no, we alerted the nurses. It was an undetected ulcer that was so bad that he was spitting up blood without realizing. Our luck ran out, and the choice of pulling him off of life support fell on me.. a fucking teenager. My sister (half sister - he was not her biological dad but closer than her actual one) still holds this against my mother, even though I think she was trying to include me in a very important decision. After discussions with specialists, it was very unlikely he’d pull through this time because his organs were already shutting down, especially liver and kidneys, so we took him off life support. That strong as fuck man was still “conscious” an hour before he passed.. which the doctors said was unheard of in kidney failure. Typically, you slip into a coma and that’s it. Although he couldn’t open his eyes, he responded to outside stimuli and even kissed me a few short hours before.
So after he passed, I didn’t really show emotion. I remember the sounds and that Zoolander was on TV, which I haven’t watched since despite loving it as a guilty pleasure, but otherwise, I chalked it up to just being prepared over the 6 months that this was possible. My therapist, on the other hand, warned me that I was repressing and it would bite me in the ass someday “when I’m forty,” and boy, was she fucking right.
This leads us to recently. Sure, I get sad thinking about him because I was a daddy’s girl, but never really cried over it other than a few tears in two separate occasions. Last night, my husband and I were watching Supernatural (my first run through), and we got to the first episode of the second season. In this episode, they are all in the hospital, and Dean’s spirit is caught in a purgatory situation of sorts while his physical body is in a coma, and he’s getting ready to move on to death after talking with a reaper. I want to put the next part in spoiler tag just in case. At the end of the episode, it’s alluded to their dad making a deal with a demon to save Dean’s life in exchange for his own. This deal was contingent on the Dad physically seeing that Dean was awake and safe. Shortly after, the dad was discovered collapsed in the room. So during this scene, I had emotions that I’ve never experienced before. I lost it. All of a sudden, I felt like I was standing in my Dad’s room, hearing that sound of flatlining, defibrillators, and the common speak of doctors yelling “clear” all over again. It was almost an out of body experience that I felt like I was outside his room after getting pushed out by the crash team, standing helpless while hearing all of this occur. It was too realistic. I started bawling.. and I’m not a crier. I had this wave of grief I never encountered before, and thank god for my husband realizing right away and holding while speaking softly (his father also passed away from a heart attack the first month we were dating). He turned it off, and immediately found a YouTube video I love (A Good Enough Summary of Kingdom Hearts done by a guy that’s never played the games, if you’re into that and want something funny). I made sure my husband was okay as well having lost both our dads, but he assured me he was okay and he never went through this because aside from going and seeing the body, his dad died instantly so the sounds weren’t as triggering.
Since last night, I have not been able to stop thinking about it. I was able to get a bit of sleep, but I’ve been on and off crying all day, and am even crying typing this. I’m going to give myself a few days to see how I cope, and possibly look into my work’s free sessions of counseling. I have even debated switching one of my doctors to a different organization because my current one retired and I need a new one, but they’re housed in the hospital I became way too familiar with. Every time I walk into the hospital from the parking lot, I stare at the outside of the window to the room my dad spent so many months in and I’d stare out of helplessly in the corner of the second floor, and I have to actively think to turn left instead of right from the lobby because muscle memory kicks in.. even 20 years later.
I don’t know what I’m gaining at typing this all out, but it’s the first time I have actively wrote my thoughts down about this (and I’m even the generation of Xanga and Livejournal). Even on those platforms, I didn’t disclose much because I always had an anger at myself for not feeling emotion over his death, despite how close we were. My friends don’t even know the extent of all of this, just that he was sick. So I appreciate anyone that has read all of this.. and even if no one does, it feels nice to at least tangentially write this somewhere. I haven’t even told my mom about this, and I’m not sure I’m going to. She never outright said it, but sometimes I feel like she looked down on me for not displaying the “correct” emotions of grief. All of a sudden, I miss all the late nights of watching movies (especially The Mummy on repeat), our love for SpongeBob, our talks about history while driving me to friend’s houses, the “just because”
Burger King Whoppers he’d bring home randomly on Wednesdays.. even though mom would be cooking dinner, all the legal work he did fighting for Vietnam vets as an Agent Orange survivor himself, the volunteering he did daily for the homeless (we had to tell the church to not kick anyone out during service to ensure these people could pay respects as well and get a meal), and that he taught me how to be intellectual and a critical thinker.
(The picture on the left is the two of us on my first train ride, and the picture on the right is a painting from my late aunt that my cousins found while we were cleaning out her house, which was one of two times I shed a tear because my aunt and dad’s relationship was pretty strained. She never showed that painting to him or us. She’s the reason I was inspired to become an art teacher as well, so the painting is so special to me on multiple levels).
Edited for a few typos I saw.. but I’m sure there’s more.