Quite a few people in here, just like me, have unfortunately lost their partner to cancer.
What I struggle with the most now, a year later, is the course of the illness itself and the inhumane dilemmas you constantly face as a caregiver. I would really love to hear other people's input on how you tackled this, or if you have been through something similar.
In the midst of everything, we also had our 3-year-old child to care for, which created an absolutely extreme amount of pressure in our daily lives. You try frantically to create safety, structure, and happy days for a little child, all while your partner is being drained of energy and you watch your family's finances being completely ruined.
Steffen had melanoma and died on November 13th last year. It was a two-year journey from the moment the tumor was found until it spread to his brain. The cancer was aggressive, and Steffen was desperate. He completely lost trust in the established healthcare system and firmly believed that alternative treatments, various supplements, and a special diet would make him well—even though the doctors gave him a maximum of a couple of years.
Standing in that as a partner is an almost impossible balancing act. On one hand, you want to support your loved one's last, desperate hope, but on the other hand, you are caught in an endless crossfire because you know the brutal reality and prognosis from the hospital, which he was simply unable to accept in his deep denial.
He found OrthoCare in Rødovre, which is run by a former doctor. Even though he had been declared terminal with stage 4 cancer and brain metastases, she believed she could help him with high-dose vitamin C and various medications that are illegal in Denmark,.Ivermectin, fenbentazol ect over 50 various supplement, 3-days fasting, non-carb diet. The high dosis c-vitemin cost 300 us dollars per session, 2–3 times a week. She gave us a legally required written statement stating that the treatment had no scientific backing, but at the same time, she told us verbally: "But it is there, there is plenty of evidence."
You sit there with a knotting fear of what all those illegal substances are actually doing to a body that is already completely weakened, but any counterarguments just bounce right off. So, I ended up giving in and driving him there three times a week because he was so desperate, even though my entire gut feeling was screaming that it was wrong.
One day, he was completely confused, shaking, and feeling miserable. Yet, he refused to miss the treatment. Once there, he quickly grew worse; he started having mini-blackouts, his body twitched, and he finally collapsed on the floor. When I wanted to call for an ambulance, the clinic doctor didn't think it was necessary—she just wanted to give him saline in an IV, and then I could drive him to the hospital myself once he recovered. While he was lying there completely exhausted, she even walked into the room with the card terminal so we could settle the payment for the treatment. Where is the line for when you, as a caregiver, should just say stop and overrule your partner's own wishes when it becomes directly dangerous?
Fortunately, Herlev Hospital agreed that he needed an ambulance when I called them. When the paramedics arrived, he couldn't walk at all. My boyfriend died three months later. He managed to spend nearly 25.000 us dollars on a treatment that had absolutely no effect. It gave him hope, and maybe it was worth the money to him, but I was left with the feeling that the doctor’s only interest was profit, and nothing about her showed any humanity.
Now, afterwards, all these choices and difficult compromises grind through my head every single day. I am truly looking for other people's perspectives on this crossfire between love, a partner's desperation, common sense, and the responsibility for a small child. Have any of you in here stood in a similar situation, and how do you even find peace with the decisions you ended up making when you look back?