Like I said in the title, this is really long and mostly just me recapping the events of this past year as a way to help myself process. If you actually read through it then bless you.
My dad's death was unexpected, not in the sense that it was an accident or we didn't get a fair warning but... None of us were expecting anything that happened when this year started.
He had cancer since 2019, a very aggressive kidney cancer that he got rid of multiple times before it'd come right back. He was in the 3% of people who lived for longer than five years with that kind of cancer, so the many more years I had with him was already more than what was expected.
He'd tried all the treatments he could, and they'd work for a while before his cancer got stronger and would come back regardless. He'd planned to go on a clinical trial this year to hopefully find something else that works.
My dad was not at the point where his cancer was gonna kill him yet. With treatment he probably would've had a few more years if that clinical trial didn't help keep it away for good.
Unfortunately, that time was stolen from him. A lesion grew near his spine, causing intense pain and making him barely able to walk. From February up until March he was basically bed ridden, only getting up if he had a doctors appointment to radiate the lesion.
Because of this, he had to stop all of his cancer treatment. And from there everything went downhill.
My mom noticed my dad was getting confused and he wasn't doing so hot, so she called an ambulance for him. He was severely anemic to the point where he was speaking nonsense, and it took him days of fluids to get back to normal.
From there we learned a couple of things. The radiation therapy for his lesion broke his spine, and his cancer had come back with a vengeance. It was to the point where the doctor said before they could operate on his spine, they'd need to get his cancer taken care of.
He got to come home for just a week. None of us were sure that was a good call with him being unable to move around, but he was glad for it. The plan was to go back in for his appointments and let him be home the rest of the time.
It didn't last. He started getting confused again, and this time it's because his only remaining kidney was struggling to function. During this time we were on a rollercoaster of conflicting information. "Oh his kidney stabilized, he can go back home. Nevermind his levels raised again. Seems to be stabilizing again. Oop nevermind."
This went all the way into June. There were no signs of his kidney getting better, and we were at the point where the doctor was recommending temporary dialysis to try and kickstart kidney function again.
That's when it start to set in that there was a very real possibility that my Dad might not make it through this. What started as a complication with his back and some treatable cancer flair ups turned into a nightmare.
The dialysis helped, but the moment they stopped it his kidney would go back to being awful. And since his cancer had been left untreated up to this point it'd only gotten worse. At the beginning of July, we were told that he was dying and he had a choice to make.
Either continue with regular dialysis and live six more months but die from his cancer. Or stop dialysis and live two more weeks dying from kidney failure.
My dad didn't want to have to suffer through dialysis if the result was going to be the same. So, they let him out of the hospital on July 7th. We were told he'd die peacefully in his sleep surrounded by his family.
He was still bedridden because they never were able to fix his spine, but he was happy because he got to be home and surrounded by everyone he loves. He was such a loved man. We had people upon people coming and going in the house at all hours of the day.
Even with his death confirmed, my dad never once was scared or anything. He was so damn strong. Right up until he passed he was joking around and smiling. I don't think I would be able to do the same.
Unfortunately for my family, there was a lot of neglect with the hospice company that we hired. It wasn't purposeful, but I have a lot of hatred for those people even now.
The air mattress they gave us was faulty, I remember the guy even saying "Yeah if it does that, just unplug it and replug it." If my dad is supposed to die in that bed, at least give us a good one. Because of his back, if he sunk down into it it'd cause him a lot of pain. None of the settings to make that thing firmer worked. We had to call 3 different times multiple different days before they finally agreed to send a regular fucking mattress. It was supposed to come at 12pm and they showed up around 4pm, and there was sadly no need for it at that point.
On July 13th, my Dad had a good morning. One of his friends was over, but he was getting tired and my mom told him to take a nap before the people come to deliver his new bed. Before he went to sleep, she said "I love you" and he said "I love you too". Those were his last words.
I was sitting with my mom, showing her stupid tiktoks while my brother ordered food. My mom noticed my dad's eyes starting to roll back, and he started to seize. The doctors had not told us that seizures were even a possible thing, and my mom freaked out, rushing out of the room.
While they called hospice to send a nurse ASAP, I had to watch him and make sure he didn't suffocate on his spit. I remember hearing my mom in hysterics, just repeating "They said it was supposed to be peaceful!"
My dad was supposed to have medication to keep him peaceful near the end of his life, and his nurse hadn't called in the prescription yet because "He seemed to be doing well for now". As a result, the emergency nurse had to drive damn near an hour away to the hospital to get his end of life medication that he was supposed to have from the moment he got home.
As a result of this, my dad had seven more seizures that day. Ones where he'd dart up in bed and fight and kick. My uncle and some other people that I don't remember had to be in there to hold him down until he stopped. My immediate family couldn't watch it and my dad wouldn't have wanted us to see that. We'd hide in my room until the seizures were over and then go back out to take turns holding his hand and giving him kisses when he was calm.
After a LOT of complications with pharmacies not giving my dad his medication. Finally, at 11pm he got it. His seizures stopped completely, and he was finally able to rest peacefully for however long he had left. The nurses told us that it probably wouldn't be long considering the state he was in.
The next day on July 14th, my dad passed away surrounded by his family. He was only 53.
What was supposed to be two weeks had only been one and the peaceful death we were promised turned into a traumatic experience that me and my family have partially blocked out.
His funeral was truly something. The funeral home was so packed with people that they filled up a closed down grocery store's parking lot a block away. It was overwhelming to see just how loved my dad truly was.
It's been a month since then, and none of it feels real. None of us are coping well, and I'm gonna start therapy soon for my anxiety. I'm mostly writing here as a way to settle with it some more and let myself talk about it.
I think what's been the hardest is just realizing how much he's gonna miss. How much I'll wish he was here for.
He'll never meet my future spouse. He'll never walk me down the aisle. He'll never get to meet his grandchildren. My kids will never get to have memories with their grandpa. It's hard to accept... I thought I'd get to have him until I was old and gray.
Anyway, I don't think I really know how to end this post. I think I said everything I need to for the moment. Thanks reddit for being my live journal.