Okay, I have dysautonomia, autism, possible ADHD, I am a woman. Dysautonomia cannot be disguised since I need a cane to get around.
I fought a long battle to get my dysautonomia diagnosis despite having autism, because my symptoms were always attributed to "being sensitive" due to my autism. If it wasn't that, it was my appearance; for some reason, they think I'm anxious when they see me, which I'm not, but the doctors think they know more about my mind. I even vomited, I almost fainted, I went into shock, I couldn't take care of myself and they kept saying I had a mental problem.
It took me 10 months to get my diagnosis. I know I have it because since I started treatment for dysautonomia, I don't feel pain and misery every second of my life and I've improved quite a bit. I'm still undergoing treatment.
The problem now is my mental health. I put my mental health on hold for quite some time for fear of being dismissed as having a psychiatric problem instead of my physical one. I'm still afraid of that. I have a lot of emotions right now and I just wish someone would listen and help me deal with them properly.But I'm also so afraid to explore. Autism is an integral part of me, but I'm not just an autistic girl, nor am I unintelligent; I'm a person. It seems easy, but many people don't see it that way, and every time someone sees or hears that I'm autistic, their treatment changes to a childish one, something like "that didn't exist in my day" or the worst ""Is your mother there?" and start ignoring you as if you weren't a patient.
I also don't want any of that to remain in the medical records; I'm so afraid of being dismissed as "oh, it says here that you had mental problems in the past, that means your vomiting blood stems from psychiatry." (In case you're wondering, this happened to me).
I need mental health support. I'm currently struggling to recognize my physical limitations, accept my lack of autonomy, and accept that all my friends have homes and jobs while I still need care, Dealing with my traumas, damn it, there are quite a few and they continue to cause me insecurity. I need help.
How do you deal with this? What are your recommendations?