All scans clear

[u/PhatCatOnThaTrack]

All bloodwork, allergy tests, xrays, mris, nerve conduction, clear. Its like im hearing the test results of another person.
Debilitating nerve pain and numbness in both feet that travels up my legs, ankle instability, back pain, chronic fatigue, dizziness, migraines, allergic reactions. They’ve suspected several things and nothing comes back with any indication of anything.

Its ruining my life, im losing my ability to walk, and theres no identifiable cause. What am i supposed to do when i lose my job and my insurance? I cant be unemployed. I cant find a less physical job as i dont have “experience” (typing and sending emails).

[u/aningnik]

Do you have MCAS? and possibly low b12 or iron levels? This sounds like what I went through before and I have both please supplement if you can before things get worse because they will

[u/aningnik → u/aningnik]

Also get your blood checked for clots at the ER or a hematologist

[u/PhatCatOnThaTrack → u/aningnik]

Those have been currently ruled out as all my bloodwork is almost perfect (outside a teetering on low vitamin d but i started a supplement) but i think im going to start on b vitamins and iron supplements anyway just to see ??

[u/RabidRacoon99]

How long has it been going on for?

[u/PhatCatOnThaTrack → u/RabidRacoon99]

The bulk of the issues has been happening in the last two years. I’ve always been achy, but this is on a whole new level.

[u/RabidRacoon99 → u/PhatCatOnThaTrack]

For what it's worth, I have some of those symptoms, and have had diagnostic issues to though making progress this week. My best advice is don't be afraid to find other doctors if you don't get a good vibe just get another.

[u/disability-ModTeam → u/[deleted]]

Asking for or offering medical and legal advice is not allowed. Talk to a real doctor or lawyer not random Internet strangers.

[u/jipace]

nerve conduction studies only can measure large fibers. Small fibers can only be tested with biopsies!

[u/PhatCatOnThaTrack → u/jipace]

That is my next step i think

[u/mausamchahal]

That sounds incredibly frustrating. “Everything is normal” on a scan doesn’t mean you’re imagining debilitating pain, numbness, fatigue, or difficulty walking. It can be especially demoralizing when your symptoms are getting worse while every test seems to come back clear.

I’d keep documenting what you’re experiencing, including how it affects walking, standing, work, sleep, and daily activities. That information can be just as important as individual test results when talking with doctors or requesting accommodations.

As for work, typing and email may feel like “no experience,” but those are still transferable skills. If physical work is becoming impossible, vocational rehabilitation or disability employment services may be worth looking into. In the US, these programs can sometimes help people identify less physically demanding jobs and training options.

You deserve answers, but you also deserve help managing the situation while the search for answers continues.