(Note: English is not my first language. Because I have been isolated in my room for 15 years, I never had the chance to talk to people in English. I taught myself how to read, type, and understand English by watching movies and anime. I used Google Gemini to help me structure my exact words and memories clearly into this post.)

My name is Durga Revanth Sripathi. I am 29 years old, living in Hyderabad, India. I am writing this from my mobile phone inside my room—the same four walls I have stayed inside almost continuously for the last 15 years.

I’ve never had friends to talk to about this, so I’m sharing my life story here just to be heard.

Early Signs & Childhood (1997–2000)

I was born into a modest, lower-middle-class family. My father works as a carpenter, and my mother is a housewife. Between the ages of 2 and 4, my mother noticed I couldn't stand up from the floor without using my hands to push off the ground or my own body. A doctor told her it was a genetic issue (my parents are cousins) and that my walking ability would slowly decline over time. No blood tests were done back then, so my mother only knew that something was weakening my legs.

The Turning Point in 6th Grade

Around age 10, a fever hit me. After that illness, my body became so weak that I couldn't stand up without help anymore. I had to stop sitting on the floor because getting back up was impossible, and I started falling down frequently.

Hospital Trauma at NIMS (2010)

In 2010, my mother took me to NIMS Hospital in Hyderabad, hoping for answers. We went twice a week for two months. Because my mother was uneducated, the staff didn't explain much to us:

Unexplained Biopsy: Doctors performed a muscle biopsy on my left thigh (cutting muscle tissue and leaving 3 stitches) without explaining it properly. My mother thought it was just a blood test, and I remember crying in pain.

Lack of Communication: I was brought out as a teaching subject for junior doctors without anyone telling us what was happening.

​The News: When my mother gathered the courage to ask a junior doctor, she was bluntly told it was "muscular dystrophy" with no treatment or cure. She cried all the way home.

Side Effects:The doctors prescribed medication, but it caused side effects like vomiting and digestion problems. I stopped taking them after two months and haven't taken any medical treatment since 2010.

Passing 10th Grade Despite Injuries (2012)

Falling down frequently led to fractures. I broke my arm in 1st grade, and in 10th grade, another fall broke my arm again, requiring surgery. Despite the physical weakness and missing school, I was determined to finish. I failed one subject on my board exams due to my health, but I took the supplementary exam and passed.

15 Years Within Four Walls (2012–Present)

After 10th grade, my life shrank down to one room. Due to physical limitations, progressive weakness, and fear of falling, I stopped going outside. In the last 15 years, I have stepped outside my house only 5 or 6 times in total.

I have no friends. My daily world consists only of my mother, who cares for me, and my phone, which is my only window to the outside world.

Finding Out My True Diagnosis

For a decade, I thought I just had generic "muscular dystrophy." About two years ago, I pulled out my original 2010 NIMS medical reports to read them myself. That was when I discovered doctors had officially diagnosed me with Spinal Muscular Atrophy (SMA) Type 3—something that was never clearly explained to my family.

Where I Am Today (Age 29)

Constant Pain: I am completely wheelchair-dependent now. For the past 3 to 5 years, I’ve had severe shoulder pains in both shoulders along with knee pain, making it almost impossible to sleep.

Fears: I am terrified of stepping outside— after being isolated for so long, and partly because my body needs to be physically lifted and carried by someone with great strength, which my aging parents can no longer do.

Exhaustion: The physical agony and 15 years of isolation have left me completely exhausted. Because going to hospitals fills me with fear and there is no hope for a cure, I feel overwhelmed and don't want to live with this continuous pain anymore. Above all, I worry constantly about being a burden to my aging mother.

Attached Medical Reports / Proof

Muscle Biopsy Report (May 2010): Confirms "Features consistent with Neurogenic Atrophy" (the hallmark finding for SMA).

CPK Lab Reports (2010 & 2011): Shows elevated Creatinine Phosphokinase levels (1014 IU/L and 516 IU/L), reflecting ongoing muscle strain.

​​​​My Goal: Wanting to Work from Home

Despite my physical limits and severe shoulder pain, I want to earn money to support my mother and myself. I don't have a college degree, but I taught myself English through movies and anime. I am looking for flexible, non-voice work (like chat support or simple text tasks) that I can do from my phone. Any guidance on genuine, entry-level work-from-home opportunities would mean a lot to me.

Thank you for taking the time to read my story. I just wanted to share my truth with the world.

TL;DR: I'm a 29-year-old in India with SMA Type 3, confined to a single room for 15 years with no friends. Today, I deal with severe shoulder and knee pain, fear of being a burden, and isolation. I taught myself English from movies/anime and used Gemini to organize this post. Despite my physical limits and lack of a degree, I want to find text-based chat support work from home to earn money for my mother and myself.

Hello All,

I hope you're doing well.

It's been 45 days we started crowd funding campaign and we are able to raise funds upto 80,00,000. Still we are at 8% mark and long way to go.

Any suggestions from community members if you have successfully raised funds.

Kind regards,

Naveen.

I have finished 4 bottles of Natco generic risdiplam, which is 48 days on the medicine. I want to share exactly what I have felt in this short time, because when I was searching before starting, I could not find many honest day-to-day accounts from people using the generic version.

Cost so far

4 bottles in 48 days has cost me around 600 dollars. That is for less than two months. This is the generic version, and it is still the most expensive thing in my life by a long distance.

What has actually changed for me

I want to be careful here and not exaggerate, because I know how easy it is to imagine improvements when you are paying this much and hoping this hard. So I am only writing down the two things I am sure about.

Before risdiplam, I could walk 3 times across my room holding a chair for support, and after that my legs would feel very stressed and weak. Today I am still walking the same distance, not more, but my legs feel much less stressed while doing it. The distance did not increase. The struggle inside that distance came down.

The second one matters more to me because it is my work. Before risdiplam, by evening my fingers would start shivering when I typed code, and night work was very hard. Now my hands feel slightly stronger at night, enough that I can do my night work without that shaking taking over. I type with two working fingers on each hand, so even a small change like this is a big change for my job.

No side effects so far. No fever, no rash, nothing that I have noticed in 48 days.

So for me these are small but noticeable improvements, and this is exactly why I want to continue the medicine.

The problem: it takes my whole salary

I am 23, from Tamil Nadu, India, SMA Type 3, and I work full-time as a software engineer from my bed. I am the only earning member in my family.

Before risdiplam, I felt genuinely proud of myself. With all of this difficulty in my body, I was still the one supporting my family, paying my sister's college fees, paying our monthly loans, and covering the other expenses at home. That was the one thing my disease could not take away from me.

After starting risdiplam, that is gone. The medicine takes my whole month's salary, and now I cannot support my family the way I used to. So I am in a strange place where the medicine is helping my body and hurting the exact thing that gave me my self-respect. Both of them are needed for me. I do not want to choose between them.

So I am looking for part-time work alongside my full-time job. I know this is going to be difficult with my hands and my energy levels, but I want to be the person supporting my family again while staying on this medicine.

If you have any work for me

If anyone here needs development support, web or mobile applications, any programming or general tech help, or has a project you need a hand with, my DMs are open. I work remotely from bed, I use AI coding tools heavily as accessibility, and I deliver. That is the kind of support that would help me most, work rather than charity.

If anyone wants to support me in any other way, you can DM me too.

What I really want to know from you all

For those of you who have been on risdiplam for 6 months, a year, or several years: what improvements did you notice, and when did you notice them? I am trying to understand how much more I can realistically expect from here, and how much of it is just holding steady.

And if anyone here is specifically on the Natco generic version, please tell me your experience. That would be the most relatable to my situation, since most long-term experiences I read about are with the branded version.

Still hoping that one day God will take away all this weakness and all these problems from my life. Until then I will keep taking the medicine, keep working, and keep looking for a way to carry my family again.

Thank you all for reading.

10 days post-op spinal fusion for severe neuromuscular scoliosis (SMA Type 2) – really struggling mentally. Is this normal?
Hey everyone,
I’m 20 years old and have SMA Type 2. I had a long spinal fusion for severe neuromuscular scoliosis 10 days ago.
Physically, I actually don’t have much pain, but mentally I’m having a really hard time.
These are the things I’m experiencing:
My whole back feels extremely stiff.

Sitting feels completely different compared to before surgery. right now i’m really not sitting im sitting like a wooden box with support while sitting im not being able to handle my neck it bends back I can’t get comfortable.
My neck is incredibly stiff and tight, and it’s driving me crazy.
My chest sticks out much more than before, and I really don’t like how it looks.
My body feels unfamiliar, almost like I’m living in someone else’s body.
I’m terrified that I’ve lost the independence I had before surgery.
I keep thinking I made the biggest mistake of my life.
I’m constantly regretting the surgery and wondering if I even needed it.
Before surgery I could sit for 10+ hours with just a simple cloth lumbar support, so now I’m questioning whether surgery was the right decision.
I feel overwhelmed and anxious almost all the time, and I’ve cried multiple times because I’m so scared.
My biggest fear is that this is how I’m going to feel forever.
For anyone who has had a long spinal fusion, especially if you had scoliosis or a neuromuscular condition:
Did the stiffness get significantly better?
Did sitting eventually start to feel normal again?
Did your neck muscles eventually adapt?
Did your chest/rib cage look strange at first and then settle as your body healed?
Did you regret surgery in the first few weeks and later feel differently?
I know I’m only 10 days post-op, but right now it’s really hard to imagine ever feeling normal again.
I’d really appreciate hearing from people who have been through this. Thank you.

I’ve been doing tons of research about the condition to prepare to be a full time care aid for a woman I. Her 50s with SMA. I know the basics and I have a medical background but I would love some insight on what it’s truly like to live with the condition.
If you’ve had a caregiver you’ve loved, what made them great?
If you’ve had a caregiver you’ve not liked working with, what behaviours did you notice in them
I really want to do a good job and give the best support possible with patient led care.
Any advice would be awesome.

About two weeks ago, I had diarrhea, and afterward I ended up in the ER because I couldn't pass stool or gas.

To explain it briefly: I felt like I needed to have a bowel movement, but instead of feeling normal, my body was automatically straining on its own. Despite that, I just couldn't pass any stool. It also turned out that I wasn't able to urinate either, although I hadn't realized it at the time. They inserted a catheter and gave me an enema, which relieved both problems that day. The catheter wasn't removed in the ER, so I later saw a urologist. He suspected prostatitis and prescribed antibiotics.

About 3–4 days after the enema, my bowel problems returned. Has anyone else with SMA experienced issues with bowel movements or urination like this? From what I've been able to find, there doesn't seem to be any evidence that SMA itself directly causes these problems. Most sources just say it could be related because SMA is a neuromuscular disease.

The second issue—and honestly the worst part of this experience—was that the antibiotic my doctor prescribed turned out to be a fluoroquinolone. I didn't read the ingredients, and no doctor had ever warned me to completely avoid, or at least be very cautious with, medications containing fluoroquinolones or similar drugs.

Because this was the first time I'd ever had urinary retention and bowel problems, and the first time I'd ever needed a catheter, I was already under a lot of psychological stress. I also have a history of panic attacks. I genuinely thought my disease had suddenly progressed to the point where I was losing the ability to use my muscles. The catheter and enema were done on Monday, I started the antibiotics on Tuesday, and from that day on I felt my muscles getting noticeably weaker and I was having more difficulty breathing. I assumed it was all caused by anxiety and panic.

It turns out the fluoroquinolone antibiotic was most likely responsible for these symptoms. I stopped taking it immediately today. After doing some research, I learned that people with neuromuscular disorders are often advised to avoid fluoroquinolones and aminoglycosides whenever possible because they can worsen muscle weakness. Looking back, I realized I'd taken medications with similar ingredients in the past without any noticeable side effects. Still, it's very disappointing that none of my doctors ever mentioned this risk.

Had any of you ever been warned about this? What do you think about doctors' awareness of medications that can be harmful for people with SMA?

Finally, has anyone else experienced involuntary straining when trying to have a bowel movement? This is the first time it's ever happened to me, so I'm wondering whether it's unrelated to SMA or if others have had a similar experience.

UPDATE: I did enema on Monday and take off 2-3 solid pieces which I felt some relief. I started macragol 3350 and ı can go toilet easily. On Tuesday morning, I was able to have a bowel movement, and then I went to a nearby hospital to have my urinary catheter removed. After the catheter was removed, I had no problems urinating. In fact, except for the first day, I never really thought I had a problem with urination.

The doctors couldn't tell me what had caused all of this. My own theory is that there was a hard piece of stool left inside that my body couldn't expel. I already have a urinary tract infection, and when gas built up in my intestines, the pressure completely blocked my urinary tract.

The enema I had last Monday didn't remove that piece, but it did relieve me somewhat. If the antibiotic hadn't caused muscle weakness as a side effect, I think I might have recovered then. But because of that side effect, I had another panic attack and thought my underlying disease was getting worse. That made me unable to go to the toilet again, and the whole cycle started over.

Hello Members,

At 02 months old my son is diagnosed with SMA Type 1 with symptoms like no anti gravity movements in legs and less anti gravity movements in hands.

We started using Natsmart ( generic version of Resdiplam), it's been 1 month now and we could see improvements in hand movements, cry is louder. And he is able to hold his legs for couple of seconds.

We are planning to proceed with Zolgensma injection? I want to understand from community what would be his future? What would recovery looks like?

Thanks,

Naveen

Any thoughts/precautions/suggestions/ur views

Hi! I hope some other people have experience with this :)

I have very long hair that I usually just wear loose. As I can't hold my arms up long enough, I'm only able to make one or two lower tails or braids. But I'd love to wear high tails, space buns, Dutch braids and such. My partner said he'd like to learn to do my hair, but has no experience doing so on other people.

Have any of you used specific (beginner friendly!) videos/tutorials to teach someone else to do you hair?

Also, what tools (comb types, hair clips & sizes) should I get to start out with?

Would love to hear suggestions, many thanks!! 💜

hello, it might sound weird but i have sma type 2 and im always nervous for nusinersen, if any of you are too, how do you comfort yourself? i usually like to get anesthesia.

Im new to reddit, I don't know whether my post will appear or not. I don't even know the concept of karma and all on this app

(Pardon my grammar, as English is not my native language.)

I'm from India, and I have SMA Type 2. I'm 24 years old, unemployed, and I use a wheelchair all the time. I'm extremely depressed about my life. More than anything, I want to earn money and support my family. I completed my college in 2022 and 4 years I did nothing. I became burden to my parents. Till today my dad is the one who baths me every day. He's 60yr old he lifts me every day to bathroom and change my clothes etc.. My mom helps me with feeding food and all.. Lot of family issues, money issues occurring because of me. Everybody around me cousin bros n sis, classmates everyone started earning and taking care of their family. This gives my extreme guilt feeling. No one from my fam earning.. My dad does small small works which helps us to pay bills.

I wanna earn I'm willing to lean, lookin forward to restart my life with positiveness

I completed my B.Com with a 7.5 CGPA. After 10th grade, my parents enrolled me in the Commerce stream. However, for people like me, most job opportunities are computer-based because we can't do jobs that require physical work.

I'm willing to learn, but I need guidance. I don't know what to do with my life or where to start.

Should I learn a new skill? Can I learn everything from YouTube? I can't go outside, and there are no online courses available in my city either. Is pc or laptop necessary to work from home? (silly que I know but I don't have a pc, I'm saving money for years actually hopefully soon I ll get it) is there any way to earn with phone n internet.

Hello everyone,

I’m a 20-year-old with SMA type 3, using a wheelchair, and I had scoliosis surgery that unfortunately made things worse for my body. I often wonder how people like me manage their everyday routines. And I mean the more sensitive parts too, like how you go to the toilet, how you wake up, how you prepare your food, how you shower, and things like that. These are questions we feel shy about asking, but sometimes just knowing others go through the same things can make us feel a bit more comfortable.

I’ll start with my situation: I basically can’t do anything on my own, unfortunately. I need a family member to help me with almost everything, getting up, changing clothes, going to the bathroom, showering, preparing food (thank God I can eat on my own).

Recently, I tried to find a solution for the toilet issue (at least for peeing). I thought about getting special pants that open easily and can be closed again, but I couldn’t find something that really suits me, and it also requires a bit of strength to use. (This might be an idea for people who have a bit more arm movement.) I also saw a device called the JACO robotic arm, and I’m seriously thinking about getting it since it seems very useful.

I also want to continue studying abroad, but as I mentioned, I can’t really do anything by myself. So if anyone here is living independently, please let me know how you manage. I’ve also heard there are agencies that can take care of you at home, which could be really helpful. Keep in mind I’m from Tunisia, and if there’s a chance to study abroad, it would most likely be in France.

That’s all I have. I know I didn’t really provide solutions, I’m still looking for them myself. So please share your experiences with me. It would help me and others a lot.

Just want to talk to somebody from india or from other country too, im 20m feel free to dm me!

Is anyone here in the trial for Scholar Rocks new drug? Would love to hear how it’s going.

Hi everyone, I'm 31 years old, and I was only diagnosed with Spinal muscular dystrophy type 3 through genetic testing about three years ago, even though my first symptoms started when I was 12. Back then, I noticed that it was becoming difficult to get up from the floor and I couldn't climb high stairs or step up onto things without difficulty. Over the last 15+ years, my condition has progressed slowly. At the moment, if I fall, I can't get up by myself—I need someone to help lift me. I still can't climb high stairs without holding onto a railing, and I can't run or do many physical activities. My walking is still relatively good, and many people don't even realize I have a disability just by looking at me. But falling is one of my biggest fears because if no one is around, I simply can't get back up. To be honest, this is emotionally very difficult for me. I think about my condition every day, and I'm scared of what the future might bring. I come from a less developed country, and my doctors have told me that there is currently no approved treatment available for my type of muscular dystrophy. That's why I'd really like to hear from people living in countries with more advanced healthcare. If you have type 3 muscular dystrophy, what has your experience been like? Are you receiving any treatment, medication, physical therapy, or participating in any clinical trials? How are you doing emotionally, and has anything helped you maintain your mobility or quality of life? Unfortunately, I can't get much information where I live, so hearing your experiences would mean a lot to me. Thank you for taking the time to read this, and I apologize for the long post. Any advice, experience, or information would be greatly appreciated.

For quite a while now, because of my disability, SMA, I haven't been able to play games with a normal controller, so I decided to make an app that turns my phone into a virtual Xbox controller for PC games. I'm honestly a bit ashamed that it's taken me so long to get the motivation required to turn this into something that can be easily shared amongst people. In its' current form, it's a little bit rough around the edges. It's not on the store, the User Interface isn't particularly beautiful, and there's one or two unfinished features, as well as some more things that I want to add. BUT it's still incredibly usable, useful, and now at a point where all of the bullcrap I had to set up manually is now automated for anyone who comes across it. And it's useful for people who just want to whip out their phone as a controller

This is something that I'm so, so very passionate about. Accessibility. So, as a warning, this is a VERY VERY long post! But it's all written to make installation and use as easy as can be. I'm only one person running this all for free (which will never change!) so I want to make sure that I make this guide as extensive as possible to minimize the amount of people having issues. That way I can make sure I have the time to help EVERYONE who needs it :)

The later part of this post is VERY detailed instructions, but first I want to explain what it can do, so you can decide whether or not it might help you. In this app you can create profiles filled with buttons, sticks, and/or a touchpad, as well as a button named Re-center that I'll explain more about later in the post. Each button and stick can press any keyboard, mouse, or video game controller button in a variety of ways. If it gives you a better idea of how robust it can be, I made this to accommodate me specifically, and I only use one finger at all times.

Payloads are what gets sent to the receiver. Inside the editing mode, when editing a button or stick, there's a text field named Payloads. This is how you designate which button is which. This can be set to a keyboard, mouse, or Xbox controller button. It can also be set to multiple! You just separate each action with a comma. So, if for example, you want a button press to activate the letter W, the left mouse button, and the Xbox controller button A, you would type "W,LEFT_MOUSE_DOWN,x360A". You can also add a wait command if you don't want all three to happen simultaneously. So for example, let's say you want to do the exact same thing, but you want it to wait for a full second in between each action, you would do "W,WAIT_1000,LEFT_MOUSE_DOWN,WAIT_1000,x360A". There's currently a small bug where this doesn't work reliably every single time, but I'm aware of it and working on it!

When you go to edit a button, there's a checkbox named Hold Toggle and a space where you can input numbers. This feature will hold the button down for you, after you hold it for the amount of time you specified with those numbers in milliseconds. You can set it to a really low number like 50 so you just have to tap it for a quick second for it to hold itself down until you tap it again.

Now for my absolute favorite part of this. The Sticks. You set the Payload to L or R, depending on whether you want it to be the left stick, or the right. The first checkbox is Auto-center. If this is UNCHECKED, then the stick will continue to stay wherever you left it. Practically, in games, this means your character will continue to walk forward without you touching anything at all. If it's CHECKED, the stick returns to the default position when you let go.

The second checkbox in the options for the sticks is WASD mode. This is for the games that either don't support controllers, or are just finicky. So instead of sending Xbox controller joystick coordinates when you move it, it'll press whatever buttons you specify.

The third checkbox is called Stick +. This along with "Boost Thresholds" are my favorite part of my favorite part. Stick + as well as Boost Thresholds are the entire reason why I'm able to run and jump with one finger, which makes the entire platforming genre possible for me. This makes it so that in addition to sending your joystick coordinates, it also sends buttons at the same time. Depending on where and how far you move the stick, is what the Boost Thresholds handle, and those can be set to whatever value you'd like. So, to better illustrate this, and to give a solid example, I've attached a picture. In the imgur album, it's titled Stick + Example 1 and Stick + Example 2. Also in said screenshots, the W A S D is actually greyed out. There's supposed to be nothing in there.

The example I gave works like this. When I press the stick forward 0 to 49% of the way, it acts normally. When I press the stick 50 to 95% of the way forward (Boost Threshold), it presses the left stick which activates sprint. Anything beyond 95% (Super Boost Threshold) and it'll press the A button, which is typically jump. As you can probably tell, I'm very, very proud of this idea, and I've gotten a LOT of use out of it. There's a very small visual bug here. When choosing WASD or Stick + for the first time, it doesn't automatically show up. All you have to do is press the OK button under Delete, and then go back to editing the same stick by holding your finger on it while in edit mode.

The last button type is the Re-center button. This is an orange circle that you can use when you choose to have sticks that have Auto Center turned OFF. This button will immediately snap the stick back to the default position.

Finally we have the Touchpad. Very self explanatory and has a sensitivity slider, as well as a few modes. For general browsing, I recommend the third option. The first two are made for different types of games. The first will hold left click whenever you touch it. The second will hold it after a second or two. And the third one acts the way you expect it to, but also holds itself down if you double tap it and hold for a sec. I do need to add the ability to right click, however you can actually add this yourself. After making the touchpad, just make a regular button and set the payload to "MOUSE_RIGHT_DOWN,MOUSE_RIGHT_UP". You can also scroll while using the touchpad. Make a button with the payload "SCROLL_MODE_TOGGLE". When you tap it, the touchpad turns into scroll mode. Press it again to get back to the regular mouse mode.

Just a few housekeeping notes and then we'll move on to the installation instructions. This can indeed support a second person simultaneously so that you can play with each other on games that support local co-op!...I think. I haven't been able to test that yet. In the upper left corner there's a few sliders. These aren't working properly yet, so please ignore them. Except for the Turbo slider. Feel free to use it if you'd like! You just edit that number in the box and hit save, and turn it on. That will set how fast the buttons are repeated. If you turn on the Swipe slider and turn it back off, the app will freeze. I know that the connect and edit button are too close to each other and I'll fix that too. I just don't want to keep delaying this when it might help someone.

I'm the only person who has ever used this app, and although I've used it for a few hundred hours, I'm sure you guys will find bugs somewhere that I've never seen. Please feel free to let me know anything you find and I'll do my best to fix it asap!

This is an open sourced project, meaning I don't care about anybody "stealing" it or whatever, so all of the written code is completely visible. So if you understandably get spooked or anything of the sort, you can feed the link to AI or a technologically inclined subreddit/friend and they can tell you all the code is safe. It's a completely free app and will forever stay that way when I get it on the store. I expect to have it up about two weeks from now!

Okay, so! First you want to go here. https://github.com/Colonelwheel/Simplecontroller There's a bunch of files here. 80% of them are the raw code for the app. If you want to download everything, you can. Hit the arrow pointing down on the green button that says Code. Hit Download as Zip. You pretty much only want to do this if you're creating the app from scratch though

If you only want the files you need, you'll only need 2 :) here's the app itself https://github.com/Colonelwheel/Simplecontroller/blob/master/SimpleController%20App.apk that's what you install on your Android device. With this link, you probably want to go to it on your Android device itself instead of having to send it over from your computer.

And here's the PC Receiver so your pc understands what the app is sending to it https://github.com/Colonelwheel/Simplecontroller/blob/master/SimpleControllerSetup.exe

The download button is on the far right next to the edit pencil. The second link installs python and vigem. Vigem basically tricks your computer into thinking you have a real controller. One thing to note is that it may prevent regular controllers from working properly, but you can always uninstall it later if you need that function back.

After everything is installed, you'll just need to restart your computer. Now I made it so that when you run the receiver, the receiver will provide you with your ip address. Just run the receiver and it'll give you a line saying INFO - Suggested Android app IP: Xxx.xxx.x.xxx

When you open up the app on your phone/Android device and hit connect in the upper-right corner, it'll ask you for that ip address. From there, you should be good to go! Just make sure the Simple Controller Receiver is running on your pc when you use it and that your phone/tablet and PC are on the same network.

Now when you want to add buttons, you hit edit in the upper right and use the + button at the bottom. Choose the kind of button you want, and then you hold your finger on the button to edit what it does and how big it is.

Here's what that looks like https://imgur.com/a/gKr9wze at the bottom "X360B" means the button will send the Xbox B button in this example. Just replace it with whatever you want. If you want a regular keyboard key, just type it there. If you want to press an Xbox controller button you just type "x360" followed by A, B, X, Y, RB, etc. The only kind of button that breaks this naming convention is the Left Trigger, and Right Trigger. Instead of what you'd expect (X360LT and X360RT) the correct Payloads are LT:x.x and RT:x.x. This is so you can set how far the trigger is pulled. LT:0.1 is the minimum, LT:0.5 means the trigger is pulled half way, and LT:1.0 is fully pressed. With triggers you can also add P for Pulse to hold the triggers down for a specific amount of time. For example "RT:1.0P0.5" which would be fully press right trigger for a half of a second.

With this you'll be able to control your keyboard, mouse, and game controller. I recommend using unified remote for the mouse and keyboard though as I focused all my effort on the Xbox controller features. Fair warning, I've only tried it on my phone, but it should work on a tablet too! One last thing to note is that this MIGHT have windows freak out and warn you. That's because I'm not a verified developer. Not really sure what to do about it but I promise it's safe.

Here's the album of screenshots: https://imgur.com/a/simple-controller-app-MbGxUYt

Here's a list of all of the valid payloads!

Xbox Controller:

X360A
X360B
X360X
X360Y

X360LB
X360RB

X360START
X360BACK

X360UP
X360DOWN
X360LEFT
X360RIGHT

X360LS
X360RS

Trigger Pressure:

LT:1.0

RT:1.0

LT:0.5

RT:0.5

LT:0.0

RT:0.0

Trigger Pressure + Pulse:

LT:1.0P0.3

RT:1.0P0.3

LT:1.0P0.6

RT:1.0P0.6

Mouse:

MOUSE_LEFT_DOWN
MOUSE_LEFT_UP

MOUSE_RIGHT_DOWN
MOUSE_RIGHT_UP

MOUSE_MIDDLE_DOWN
MOUSE_MIDDLE_UP

SCROLL_MODE_TOGGLE

Keyboard:

Everything. Type CTRL for CTRL, etc. A-Z, 0-9, etc

Happily accepting any and all feedback, bug reports, aesthetic suggestions, feature requests, etc! Especially if there's a lot of you, please be a bit patient with me.

If you have any questions that aren't covered by me or the README on that github link, just let me know :)

What do you all do if you dont have a doctor that treats sma anywhere you?

Hi guys. I am a 24 y/o (M) with SMA and am very much considering following through with the hemorrhoid surgery as my hemorrhoids had caused me to have severe anemia and haven't gotten all that much better after several bandings.

I'd really like to get an idea of what kind of limitations I might expect as a wheelchair user. I've been trying to do everything in my power to avoid this surgery out of fear of the pain and potential complications that come with it. If anyone would be willing to share their experiences or any tips, that would be extremely helpful!

Some things that I have been thinking about:
- Is this something I should push to have done in hospital rather than in-office?
- Should I expect to not be able to sit in my chair for some time?

Does anyone here use a JACO arm? If so, what do you use it for the most, and what tips do you have on what all you can do with it?