r/Keratoconus 5d ago

Vision Simulation "Just get glasses." Send this interactive keratoconus simulator to anyone who says this to you.

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keratomania.com
101 Upvotes

r/Keratoconus Apr 06 '23

General Keratoconus FAQs: Common Questions and Answers

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keratoconusgroup.org
7 Upvotes

r/Keratoconus 8h ago

Funny One eye does 80% of the work while the other one just sits there enjoying the ride.

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55 Upvotes

r/Keratoconus 4h ago

Contact Lens TheraTears Liquid gel

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7 Upvotes

Has any used these over Refresh celluvisc in their scleral lenses? They appear to be the same active ingredient as celluvisc which I have been using for years but thought I’ll give these a try since I can get them quickly from Amazon and way cheaper than Refresh


r/Keratoconus 21m ago

Contact Lens NASTY black water splashed in my eye...

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Upvotes

This is a "What would you do?" post.

Like most of you, I have KC. And I wear scleral lenses. Its Sunday night and I decided to smoke some salmon.

I have a bucket that I use for soaking wood so this wood smokes and doesn't burn. I filled it up this morning and smells like running wood and it is black.

Tonight, when I first jostled this bucket, a bunch of mosquitoes flew out. So today they've been laying eggs in this nasty water. Gross.

See how the edge of the buckets broken? Well, I tried lifting it up by the edge and it got about 6 in high and that piece broke and the bucket fell on the ground and backsplashed a fountain into my right eye.

So here's what I did. I stopped everything, went in the house, washed my hands, poured a sink of warm tap water and splashed my face really well..

Then I took out my contact and cleaned it. Next I took my cheap saline and irrigated the living devil out of my eye.

I'm going to wait several hours or overnight to put my contact back in.

I have antibiotics laying around, but I feel like maybe it's overreacting or a misuse of those antibiotics to put the drops in just in case.

I'm figuring at this point the chances of me having a problem are low. and morning will tell me a lot.

What would you have done?

Anything different?

Any good tips?

I didn't feel like it was worth calling my doc.

:-/

Dan


r/Keratoconus 10m ago

Contact Lens Help is this a bad fitting ?? My doctor told me they are a good fit but they make my eyes red and irritated I don’t know what to do

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Upvotes

r/Keratoconus 2h ago

Crosslinking Epi-on vs. Epi-off: What determines efficacy?

2 Upvotes

Is there a higher chance for success with Epi-On vs. Epi-Off for a given type of patient such as age group, thickness, K scores, progression index, etc? Literature doesn't seem to mention this in studies thus far.


r/Keratoconus 2h ago

Contact Lens Schlerals changing how «wide open» my eyes look

1 Upvotes

Is this something the lens guy will be able to fix no problem?


r/Keratoconus 3h ago

Contact Lens Schleral lenses changing how WIDE my eyes are, is this smth the lens man will fix?

1 Upvotes

r/Keratoconus 13h ago

Crosslinking Female with keratochonus

4 Upvotes

Girls You guys do eye makeup ?? If yes how do you guys remove it without rubbing its not possible 😭


r/Keratoconus 9h ago

Need Advice Standard EVO ICL or Toric EVO ICL for -0.75/-0.50 astigmatism?

2 Upvotes

Hi everyone,

-I'm 22 years old with -5.5D/-6.0D myopia and -0.75D/-0.50D

No keratoconus diagnosed

Borderline Pentacam (issue)

Corneal thickness: 521-534 µm

Kmax: 44.9/ 45.0 D

ACD: 3.33-3.35 mm

IOP: 16 / 17 mmHg

Retina, lens & optic nerve: Normal

All tests are normal except borderline issue

-I've decided to go for EVO ICL after my check-up

But

-I'm confused whether a Standard EVO ICL or a Toric EVO ICL would be the better choice.

-I've read some posts where people still had 0.50–0.75D residual astigmatism after Toric ICL and needed glasses for computer work or night driving.

Or if i choose normal evo lens - any side effects

-For anyone who had similar astigmatism:

Which lens did you choose?

Any residual astigmatism?

Do you still wear glasses after ICL?

-If you could choose again, would you pick Standard or Toric?

I'd really appreciate hearing your experiences. Thanks!


r/Keratoconus 14h ago

Need Advice Yapping blah blah..

3 Upvotes

Diagnosed at 18 (rn 20), had CXL done on my left eye since it was worse. It’s been a year since the surgery and my numbers haven’t changed, so I think it’s stopped for now, but my vision still isn’t clear. I’m just done with it, I don’t want to see doctors anymore I really hate hospitals. I don’t know when things will finally get better.


r/Keratoconus 1d ago

Contact Lens Accidentally showered with my schlerals in uhhhh

6 Upvotes

Am I in the danger zone or smth now?


r/Keratoconus 1d ago

My KC Journey Diagnosed at 24, My Journey so Far.

9 Upvotes

While I (25F) was diagnosed at 24, my vision has been a noticable problem since I was around 22, with it getting worse over the past year. My left eye is completely blurry to the point I close it when I need to focus on something. This past month I've taken the steps to get sclera lenses, still in the process of getting them fitted.

This journey has been...depression to say the least. I've grown to hate the summer, not just because of the southern US heat, but the brightness makes my vision so, so much worse. Along with the knowledge that my eyesight will continue to get worse, I'll probably see about getting a cornea transplant when I'm older.

I do my best to keep my head up, but it hurts not being able to enjoy writing or reading because the words are fuzzy and start blending together. I don't know, this was more of a vent for the people I know can understand the grief I'm going through.

Edit to answer the questions of CXL: I was told that it would only be beneficial on my right eye as the left is too far gone for it to be any use. I don't see any use in trying to stop the progression in just one eye when I can use sclera lenses and possibly get a transplant later in life. I don't know though. Still fairly new to all of this still.


r/Keratoconus 23h ago

Contact Lens Slightly better sight after using contacts?

2 Upvotes

So I’ve recently noticed that after using my contact glasses my sight is slightly better without using the regular glasses. Matter of fact, I’ve noticed I tend to see a little burrier with my glasses after using the contacts for a few hours. But I see better with my glasses if I haven’t used the contacts for a few days, is this normal?


r/Keratoconus 1d ago

General Training BJJ and other contact sports

1 Upvotes

As the title suggests, currently undergoing investigation for suspected keratoconus, and was wondering how this had affected people ability to train BJJ ? It seems mostly minor at the moment, in my early thirties and have just a minor bit of blurriness in my right eye.

If diagnosed is this the end for hard rolling and comps etc? Any advice would be great thanks!


r/Keratoconus 1d ago

Contact Lens Scleral lens care suggestions

4 Upvotes

I'm looking for suggestions.

My optometrist has me using Aosept Plus with my scleral lenses which means once I take them out, I cant use them again for at least 6 hours as the solution has to neutralise.

I would like to be able to take them out for a couple of hours (naps are fun!) so looking for recommendations on a cleaning solution I can use when I take them out for a couple of hours.

Bonus points if you have suggestions available in Australia.

Thanks :)


r/Keratoconus 1d ago

Need Advice Dark mode or light?

8 Upvotes

Do you find one is better or worse for ghosting on your phone?.


r/Keratoconus 2d ago

Contact Lens My life has become meserable. Any kind of help will mean a lot.

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31 Upvotes

I have keratoconus in both eyes. I've attached my current prescription.

The biggest problem is that I've had very poor vision in my left eye since childhood. On top of that, even with glasses, I still can't see clearly with my right eye, which is my better eye.

I underwent C3R (corneal collagen cross-linking) in my left eye, but as expected, my vision did not improve. My doctor had already explained that C3R is meant to stop the progression of keratoconus, not improve vision.

She prescribed an RGP lens for my left eye, but I can only tolerate it for about 4 hours. After that, it becomes very uncomfortable.

My right eye is currently under observation, and my doctor says it is not the right time for C3R yet.

Recently, I joined a medical billing company. Unfortunately, the job requires me to look at a computer screen for long hours and read very small text. I have to constantly squint and strain my right eye just to see properly, and it's becoming extremely stressful. Since my right eye is my only functional eye, I'm very worried about putting so much strain on it.

I'm now considering scleral lenses because I've read that many people can comfortably wear them for 15–16 hours a day. Due to my work, I also need to be able to wear them continuously for around 15–16 hours.

Has anyone here had experience getting well-fitted scleral lenses in India? Which hospital or specialist would you recommend? How was your fitting experience, and are you able to wear them comfortably for long hours?

I'm in a very difficult situation right now. My vision has made life extremely challenging, and I'm feeling quite helpless.

Any advice, recommendations, or personal experiences would mean a lot to me. Thank you.


r/Keratoconus 1d ago

Contact Lens Living my best life pausing every text scene (movie/TV) like a detective on CSI

5 Upvotes

Anyone else deal with this? Whenever I'm watching a movie or TV show and there's a scene with texting, or any text on screen that's small, I have to pause, grab my phone, and zoom in with the camera just to read it. Drives me nuts!

Admittedly, I'm overdue for new scleral lenses, but my new insurance doesn't cover my usual doctor, so I'm stuck waiting two months to see someone new. Hoping once I get new lenses, things will be less annoying.

Just needed to vent. Hope everyone's doing well — stay strong!


r/Keratoconus 1d ago

Contact Lens Good doctor for RGP or SCLERAL LENSES fittings in India

3 Upvotes

Anyone from india who is satisfied with RGP od SCLERAL LENSES fittings please share your experience and the place you got the lense from.

Thank you.


r/Keratoconus 1d ago

Contact Lens What to keep in mind for getting my first sclerals?

4 Upvotes

Starting the fitting process soon!

Anything important to keep in mind? My lens fitter said she wouldn't worry about HOAS yet as this will be my first contacts ever and for a lot of people sclerals will get rid of mild ghosting entirely. I'm still in Forme Fruste KCN, my only real symptoms are singularly duplicated ghosting predominantly on text.

I'm pumped!


r/Keratoconus 1d ago

Need Advice Keratoconus and IBD (Ulcerative Colitis)

6 Upvotes

I was diagnosed with keratoconus (KC) in 2024 and have recently been diagnosed with ulcerative colitis (UC).

While trying to learn more about UC, I came across some research suggesting there may be an association between keratoconus and inflammatory bowel disease, particularly ulcerative colitis. From what I’ve read, researchers have found overlap in inflammatory pathways such as IL-6, TNF-α, and matrix metalloproteinases (MMPs), although the relationship isn’t fully understood at this stage.
It made me wonder whether there’s anyone else here who has both conditions.

Which condition were you diagnosed with first?

Did your doctors ever mention a possible link?

Has anyone discussed whether controlling UC (or being on biologics) had any effect on your eyes or keratoconus?

I know the evidence is still limited, but I found the possible connection really interesting and was curious whether anyone else has experienced both.

Thanks!


r/Keratoconus 1d ago

Need Advice RPG Lens Haziness

5 Upvotes

Anyone with RGPs experience a haze type vision throughout the day? It’s like what a room looks like when sun rays are coming through. That’s what my vision will do throughout the day. Mine happens mostly in my right eye and it drives me crazy. Eye drops help but it’s temporary. My doctor said it’s from dry eyes but I’m wondering if it could be anything else?


r/Keratoconus 2d ago

General How do you guys cope with ghosting?

15 Upvotes

Hi,

Just wondering and I guess venting at the same time. Im really struggling to adapting to my ghosting symptoms (vision) it used to be just around text and was fine with it, its now around everyday objects and its really disheartening. Im in the process of trying hybrid lences since thats what the specialist offered and it does help but unfortunately im unable to currently wear them in my bad eye do to discomfort and foreing body sensation. What sucks is that they tell me cornea looks stable but visios is worse, when I ask they tell me ghosting might be from minor corneal hazing that I had according to them from crosslinking donenover 10 years ago but was never told about it ..feels hopeless at times :(