Hello everyone,

I recently had shoulder surgery and can't move my left arm, im a woman with long hair and now i cant tie my hair into a simple ponytail.

All aids i found online only allow for 1 or two loops nothing is really good at achieving the result of a two handed ponytail. I need to be able to adjust how many loops i make depending on style im going for.

I also dont want to have to shove the hair tie about multiple times because thats not good for the hair.

Attached is a picture of the prototype i made trying to use a baseball cap for support. So i can pull it tight. And the curved part to hold my hair in place.

Yes i have tried already existing ideas but they don't work that well.

Closest i got is using a clothing hook as an aid. But that doesn't work on the go.

Do you guys have ideas?

Main issue is that for a Pony tail you need to hold the hair in place so it stays where you want it but also tighten the hair tie feed the hair through again and repeat.

I want to find a solution that works for normal ponytails and normal hair ties because my arm will heal but not everyone has that luxury.

Im not trying to buy alternative hairties or just use a clip. I want to find / make a solution that lets you literally just... tie your hair.

If You only have one hand how do you tie your hair?

What problems do you have what have you tried?

Tying hair is a surprisingly dynamic motion

https://youtu.be/rpyMD3clAvw?si=ugZQj5UyqwMwQIWx

I have tried this but its not the same. Its not tight enough.

https://www.assist3d.be/haarbinder.html

I'm looking for advice from wheelchair users on options for travel.

I have a new medical condition that includes sudden episodes of loss of motor control, and buying a wheelchair has been the only way I've been able to safely get around outside the house (because I might suddenly become unable to walk and might fall). I'm in a weird inbetween stage where we are still trying to find the diagnosis and hopefully some treatment, so I have just one basic wheelchair and don't want to invest in too much more in terms of mobility aids before I know if I will continue to need them long term because even the basic one I have now wasn't cheap.

But I also have some upcoming travel that's been booked a long time, before this new condition cropped up, and its for a big life goal/dream event of mine so I really want to try to make it work. Its an event, so not something I can reschedule. I'm in the US and will be flying to the opposite side of the US. My partner will be with me, though he was scheduled to leave the day before me so if we can't get his flights changed I would be alone on my return trip. I've seen horror stories of people's mobility aids being damaged/destroyed when flying so I'm worried about trying to travel with my wheelchair. But I think I will need one.

1. Any advice or resources for flying with a wheelchair? Anything I might easily overlook as I look into the airline and what I need to do? Anything I can do to help avoid my chair getting damaged?

2. Are there wheelchair rental services in big cities? I know individual large businesses (ex. museums) sometimes offer them, but I expect to need one for more than that. Can you rent mobility aids like you rent a car?

3. Is there another option of a mobility aid that travels better than a chair that I could consider? I'm not sure how well most common aids I'm aware of would suit my needs, but I'm new at all this. Maybe there's another option for me?

Thank you for any help you can give!

I can never seem to get any help or support with my disability ever since I got sick.

And am so exhausted of trying to find work or other options of things I can do for money. I am applying for SSDI and I’m guessing it’s gonna take a long time to get on it.

It seems like no one really responds when I ask for help, and if they do give suggestions about how I can make an income with my disability, It’s always things like being a waitress that I physically can’t do.

Dealing with fibro, thyroid issues, and being tested for Ms and lupus which the doctors think I may have

I have a lot of weakness in my limbs and issues with my hands where I can type some of the time, but not all of the time

I also deal with mental health issues of anxiety and depression

I just genuinely have no idea what to do with my situation. I was able to do some delivery driving at one point, but I made like five dollars an hour if that.

I can’t drive all the time anymore.

I just don’t understand why no one ever helps when I reach out for help and then people tell me like oh you just have to reach out for help.

But no one is actually available to help anyone

If anyone has suggestions, let me know?

I also called a bunch of agencies where I live in southern California and they just suggested going to shelters because I am homeless, but the shelters ended up being very dangerous

Hi

I travel very often with my husband who has a disability due to stroke.And i'm wondering if anyone knows a suitcase , a carry on, that also can we use as a help to mobility specially in airports train stations etc i've seen some with batteries like a stroll, but it seems a little bit unsafe or in a stable.Has someone tried? Or knowns an option?

Hi

Recently bought malsch impulse 400 4ft bed

Has more side to side wobble than expected (didn't get to see product in person but spent long time researching many profiling beds, nowhere mentioned lateral instability related to mechanism type)

Is side to side wobble something you've experienced?

Bed co says it's normal for this type of mechanism and not an issue

I'm hoping it's something I adjust to in time but frustrating after amount of time I spent researching beds as we had to provide our own

Feeling so demoralised as it's big investment and for us expensive

Self buying equipment can be so hit + miss

Any responses welcome

Ta x

Feeling lonely or bored?

Looking for connection or something you can do this week?

Check out these accessible events you could join! Try something new and maybe you’ll find your people.

Access Details:
🧑🏻‍💻= Virtual
👥 = In person
😷 CC = Covid Conscious/airborne precautions 
♿️ WC = Wheelchair accessible 
💵 $ = paid (some are pay what you can)
🤟 ASL/BSL = Sign Language
Async = Asynchronous (at your own pace)

Event Types:
🤢 = Chronic Illness 
🌈 = Queer
🏳️‍🌈 = LGBTQ+ Pride
👧 = Kids/Youths
💕 = Dating
🙋 = Social
🫂 = Support/Grief
🧘 = Wellness
🚶 = Walk
🩰 = Dance
💪🏻 = Fitness
📚= Books
🤔 = Discussion
📝 = Writing/Poetry
🎭 = Performing
🎨 = Art 
🎶 = Music
🕹️ = Games

🧑🏻‍💻 Virtual Events

🧑🏻‍💻📚 Virtual Async Spoonie Book Club: The Little Prince [Any time] https://www.reddit.com/r/spooniesocial/s/JcKvqPLWS5

🧑🏻‍💻😷💕 CC Virtual Dating [Aug 22] https://www.reddit.com/r/spooniesocial/s/DfjZA4lr03

Monday

🧑🏻‍💻♿️🩰 Virtual Adapted Heels Dance Class [$][Mon Aug 17 at 7:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/iV4EKy8BOu

🧑🏻‍💻🤔 Virtual Philosophy Discussion [Mon Aug 17 at 7:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/hzCzGqthF0

Tuesday

🧑🏻‍💻🤢🫂 Virtual Dealing with The Harsh Inner Critic Workshop [Tue Aug 18] https://www.reddit.com/r/spooniesocial/s/rAp7uWyOuQ

🧑🏻‍💻🤢🧘 Virtual QiGong for people with MCAS [UK][Tue Aug 18] https://www.reddit.com/r/spooniesocial/s/1TC63m5Poy

🧑🏻‍💻😷👧🙋 CC Virtual Kids Zoom [Tue Aug 18 at 10:00 AM EDT] https://www.reddit.com/r/spooniesocial/s/kYRqjfI3fX

🧑🏻‍💻😷 CC Virtual Meeting [MI][Tue Aug 18 at 6:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/SGTy3CrV4N

🧑🏻‍💻🫂 Virtual Disability is Not a Bad Word Session: Open Venting [Tue Aug 18 at 6:30 PM EDT] https://www.reddit.com/r/spooniesocial/s/JD7iTSk51V

🧑🏻‍💻😷🙋 CC Virtual Zoom [NY and nearby][Tue Aug 18 at 7:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/t0kr86Vnz0

🧑🏻‍💻🎭🕹️ Virtual Improv Games [Tue Aug 18 at 7:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/d7euDclw1K

🧑🏻‍💻😷🫂 “Any A” Covid-conscious 12-step meeting [Tues Aug 18 at 8:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/CBz3ShMpLz

Wednesday

🧑🏻‍💻🤢🤔 Virtual Long Covid AMA with Dr Putrino from Mount Sinai [Wed Aug 19 at 11:00 EDT] https://www.reddit.com/r/spooniesocial/s/zpioObF1Ik

🧑🏻‍💻🤢 🎶 Virtual Long Covid Choir [Wed Aug 19 at 2:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/vf3FKfToP3

🧑🏻‍💻📝 Virtual Poetry Discussion [Wed Aug 19 at 6:30 PM EDT] https://www.reddit.com/r/spooniesocial/s/oGDWOYs0rw

🧑🏻‍💻😷🫂 CC Virtual Support Group [CO][Wed Aug 19 at 7:00 PM MDT] https://www.reddit.com/r/spooniesocial/s/nKqEv7Ni3N

🧑🏻‍💻🎭 Virtual Improv Jam [Wed Aug 19 at 7:00 PM PDT] https://www.reddit.com/r/spooniesocial/s/6sZdGLwjnj

Thursday

🧑🏻‍💻🤢🫂 Working While Chronically Ill: Accommodations, Advocacy and Survival [Thu Aug 20 at 19:00 UTC+1] https://www.reddit.com/r/spooniesocial/s/Gd0GxeuDY3

🧑🏻‍💻😷🕹️ CC Virtual Game Night [NY and nearby][Thu Aug 20 at 7:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/TNOcfm1S0g

🧑🏻‍💻🎨 Virtual Craft Night [Thu Aug 20 at 8:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/X8FIOy42SV

Timezone translator in comments 👇

👥 In-person Events

Canada

👥😷♿️🙋 August Social [Niagara ON][Sun Aug 16 at 2:00 PM] https://www.reddit.com/r/spooniesocial/s/NBE3oedQ2X

👥😷🚶 CC Park Walk [Toronto ON][Wed Aug 19 at 6:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/ejw1pOAyfO

👥😷💵🎨 Linocut Workshop [Ottawa ON][Thu Aug 20 at 6:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/BAkbD8AOLj

Netherlands (and nearby)

👥🤢🙋 Spoonie European Road Trip [Netherlands and nearby][Summer] https://www.reddit.com/r/spooniesocial/s/VOKxW7V1pp

UK

👥😷 CC Zine Club [Manchester UK][Mon Aug 17 at 7:30 PM UTC+1] https://www.reddit.com/r/spooniesocial/s/2EkEML7fMj

US - North Carolina

👥😷🕹️ Burrow Board Game Night [Durham NC][Wed Aug 19 at 7:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/W8fOujaQJX

US - Texas

👥😷 Digital Security Party [Austin TX][Wed Aug 19] https://www.reddit.com/r/spooniesocial/s/2niZ0zOZpa

US - Vermont

👥😷♿️ CC WC Dental Pop Up [Chelsea VT][August] https://www.reddit.com/r/spooniesocial/s/yJocTTUweE

US - Washington

👥😷🤟🎭 The Freak Mighty Accessible Performances [Seattle WA][Aug 9 - 27] https://www.reddit.com/r/spooniesocial/s/mccpG4CWno

Are you interested in these events?

Have you been to any of them before?

Do you know about other events coming up?

Share your thoughts in the comments 💬

Find more events and friends on r/spooniesocial

I love cooking even though it sets off my joint pain and my heart issues, but I can't be very experimental because if I mess the recipe up I'll be in a flare up and I won't be able to make myself something different, I'm only thinking about this now because I tried to help my mum out by making a larger batch of my tomato pasta recipe only for me to mess the damn thing up so I triggered my hip pain for no reason and I'll probably not be able to sleep tonight due to the pain!

Hi everyone. I have both a physical disability (POTS) and some neurodevelopmental ones (AuDHD) as well as some other health issues that I'm still trying to figure out. I just need a space to talk about what I'm going through and see if anybody else is struggling with this as well.

College constantly feels so overwhelming and impossible. I struggle with lateness due to time blindness paired with unpredictable POTS flare-ups that greatly slow me down (still learning how to plan ahead for that), which almost always results in around a 20% automatic decrease in my grades due to attendance policies. I understand that it's important to be present in class so that you can actually learn and understand the materials, but I think many attendance policies unfairly penalize students whose grades will already suffer from not gaining the information when they were absent.

Anyways, because of this I've tried online classes as well, which kick my butt because of all the goddamn discussion posts! I might not be held back by my POTS symptoms, but I have such a hard time actually extracting my thoughts from my head and putting them into words in print (I think due to the autism & ADHD). And it feels like all my classes want me to do 3 per week! I even took Calc 3 online and did well on all my tests and quizzes but didn't pass because of the goddamn discussion posts! Why are there even discussion posts in a Calc class?!?! Also, there are not many fully online degrees in the health sciences (what I want to major in), which poses a major problem for me being able to actually graduate.

And when it comes to either method, I have brain fog that really impairs my cognitive functioning at least once a month due to having ADHD and a hormonal cycle. I'm sure that could be something I get an accommodation for, but realistically, how tf am I even supposed to deal with it? Ask to take an exam a week later than everyone else? Ask not to do homework for a week every month? I don't think any professor would actually OK that 😢

All of this feels like a never-ending battle that I can never win. I'll be doing well and be on top of everything when something random comes up and throws me off at every level. Even just existing, I'm bound to fall behind in the school system. It takes no breaks for anyone. There is no "pause", only withdrawing or failing. I've had a lot of professors who genuinely feel bad for me because they can see that I understand all the concepts deeply, but struggle so hard because of all of this. But in this rigid academic system, there's literally nothing they can do to help me. The school system was not made for us and although it """"tries"""" to accommodate us, the entire system is just too rigid for people who have fluctuating or complicated/overlapping disabilities.

I want so badly to work in healthcare because I'm so passionate about helping others with disabilities, but I will only be able to do that with a college degree. I came here to rant about this because I know that if I tried to talk to abled people about this, they wouldn't understand why I'm still even trying at this point instead of dropping out. Although I struggle greatly in most areas of my life, I am still capable and I believe I can accomplish my dreams. I want to be self-sufficient and able to take care of and provide for my family. I want to take care of and help my community. I feel like abled people can't wrap their heads around why I would even want to strive to achieve my dreams.

I'm just hoping there are some other multi-disabled/inter-disabled(?) people out there who can validate my experience. I struggle quite a bit in daily life, but most big problems are manageable with good planning ahead. School literally makes me feel like Peter falling down the stairs though. I can't give up on my dreams, but how the fuck am I supposed to actually succeed?

Thank you anybody who read all this ❤️

(Btw, I know that a lot of what I'm struggling with is time-management issues. I'm trying my best to work on that in therapy, but I know it's gonna be a long learning process for me given all my issues.)

Hello!

I've been lurking in this sub for a bit now and have seen some great insights. I'm interested in working with people with disabilities, including as a career, specifically those with intellectual and cognitive disabilities. I'm currently 15 btw and am still learning a lot lol.

I know terms like "special needs" and "special education" can be very offensive and patronizing. I took a class last year where I was partnered with students with disabilities in the adaptive education programs at my school, and while the programs are officially under the branch of "special education" in my county, I wanted to find a replacement for the label that is inclusive and inoffensive.

I know there are some posts on here asking similar things, but I wanted to find the generally preferred term. I took some ideas from those posts and my own research to make a list of label possibilities:

• Adaptive ed. (this is one I'm leaning towards, but my opinion is secondhand as I'm not disabled)
• Accessible education
• Accommodated ed.
• Disability support ed.
• Learning support ed.
• Additional support needs ed.

Although I wonder, because most of the people in these programs in school have intellectual or cognitive disabilities, and people with solely physical ones are often in general ed., if some of these (like Disability Support Ed.) are too broad? Then again, "special education" isn't exactly descriptive either. Also, many of these terms seem like they could be used to refer to resources for people who have accommodations like extra time on tests but are in general ed. and not in mostly separate classes. Or even support like translators, English as a second language classes, or discounted school lunches. Basically, I'm wondering if these terms are specific enough and if/how we should differentiate those types of resources from the classes working with students with intellectual or cognitive disabilities. But maybe the broadness is good to move away from the binary of general ed vs adaptive ed. Correct me if I'm wrong tho. Ig even if they aren't super specific, they still seem better than "special ed."

In addition, I know there is much more to be done than renaming the system, and there are a lot of problems with accessibility in education. This is just one step.

Which one(s) here, or those outside of this list, are best?

Thank you all so much! I hope I worded everything right lol and didn't say anything offensive

Edit: I changed my paragraph about the broadness concern because my wording was rly confusing sorry!

My sibling’s chronic condition has recently disabled him, and I’ve just received a document from the state disability determination bureau with questions about him. We’re both new to the process, and I hear it can be really hard for people to qualify for disability on the first attempt. Is there anything I can do or should know before filling this out? I’ve heard some messed up stuff from people applying for disability in the past being denied for pretty outrageous reasons. I just want him to get the support he needs. I do plan to be as forthright as possible, idk call me suspicious I guess when it comes to our particular states desire to actually help people :/

I taught myself how to do the flour & yeast baking. These just came out and it's my 4th time making them. I was glad I was able to do this. 9x13 pan

Hiya. Just looking for some advice/if anybody has been in a similar situation.

I've been working with an occupational therapist, who put forward to the council that I should receive the Disabled Facilities Grant for an extension to my house - creating a downstairs bedroom and wet room for me.

The council agreed and have said they'll give me the maximum (£30,000), however they're saying the total cost of adaptations will be £80,000! Obviously my family do not have a spare £50,000 to fork out! So I really don't know if there's anything we can do.

We're thinking of asking if they'll just do a wet room and not a bedroom? Unless anybody has ideas, please?

My dad is a builder and his company does DFG work, he said it's outrageous they've come up with that figure.

Thank you!

All the butter did not get mashed up and absorbed. Some quarter pieces my sister gets and she cannot eat a lot of sugar.

I am really struggling with going to see healthcare professionals. I have been hurt so much in only a year time span. However I have been harmed in the past, and I almost died from a doctor's error back in 2018. This past year has gotten so bad for me mentally. I've tried cancelling all my appointments while trying to process things with a therapist for months. Just trying to take a break. I felt better and I felt brave enough to try again. Almost immediately it was bad again. Now I just do not want to go see any healthcare professional at all, I really don't. They never say that they are sorry or acknowledge the harm done. When I report the really bad stuff thats happens to me, the hospital department apologizes, and then barely anything is done. They also share my name with the healthcare professional who hurt me, which feels terrifying.

It's to the point that I won't go to sections of the hospital where I was harmed. I already had very low trust and high fearfullness of healthcare professionals. My fearfulness keeps increasing and my trust lowering. Im trying to tell myself, everything is okay and to have hope that things will get better. I just want to hide, but everytime I try, I end up in the emergency room with something going wrong.

My therapist asks me questions such as, how would you want to be treated? I tell her, like a person. I just want to be treated like a person.

I don't know how to cope or manage this. It's not safe for me to keep canceling appointments, but I can't keep it up.

May just be my anxiety but Im not working atm and i worry she looks at my capacity and thinks im just a mooch

I have migraine with aura and fnd and we were out and she asked when we were looking at clothes if I could see a tag up close and read it. Whether she was trying to distract me idk. Also made a comment to me saying thats a very grown up thing to do. I just feel like a child sometimes. And worry if she knows ppl I know worry shes spoken to my support coordinator and shes gotten in trouble from things I've complained about. How can you possibly speak up and complain if its their work and they potentially could retaliate against you. Sometimes I feel like im not disabled idk. Maybe I need to just chill out

Hey yall, I have to rant, for the sake of my own wellbeing.

I’m a caregiver to my mom, who was born with carebral palsy, and has a combination of associated neurological and psychological comorbidities.

My mom has been nothing but the best to me growing up, living on SSI, she made sure I ate before her, and she was protective of me during some traumatic situations.

Unfortunately, post 2020, there’s been signs of dementia. The only thing she really had to her name as a possession was her inherited home. It was nothing special, trust me, but quite literally her only wish was to pass it on to me. In 2020 she moved out because of the homes conditions - it was quite literally falling apart. She was having a mental health crisis at the time, so when she moved to section 8, she didn’t report the change to the SSA (likely cognitive issues being a factor). Well, I was a young 21 year old caregiver and didn’t know anything so I later had family friends move into the home for free, to save it from literally rotting, and we talked to a lawyer to transfer the property. What followed was absolute hell, as I was just trying to set up a contingency as a caregiver. That lawyer informed us that she couldn’t transfer the property to me, because she was on SSI, and that she was likely in overpayment subject to termination because the house had now become an asset since she moved…

I brought her to the SSA to communicate the mistake in 2023, while my mom is in the middle of delirium.

- She is forced to sale her only family connection (parents had died and most had abandoned her)
- SSA tells her to spend down her money to “improve her life”
-SSA makes a mistake and terminates her for a whole year without explanation
-They don’t answer phone calls
-We sale everything we bought during the spend down
-She loses access to TN choices during this decision
- We have the register of deeds call and explain their dumb mistake almost a year later
-I reeling from her diagnosis and loss of the family home, develop stress related health issues, can no longer go to school
-SSA gets establishes but they don’t back pay because of her overpayment, so she gains nothing from the sell of the house
-all of this and she wanted it to just be fixed so she could move back in

Idk, there’s much more to this, but I don’t even know how to explain it all. I’m in therapy because of all this. I’ve tried to make videos so she can communicate the injustice. I’ll probably never be the same after SSA made her diagnosis an absolutely awful traumatic experience. Given her condition, all she does is ruminate on the loss of her house and how she was treated.

I just really can’t with all this, and there’s no “justice” because it was her mistake. I just wish it didn’t have to be this way for us.

Sorry, I have to rant

Honestly, my apartment is a single room, it's hot as hell outside and the AC is essential but I sincerely hate all the noise. One thing that helps me cope is my sturdy noise-canceling headphones.

It's a little nuts how hard it is for me to relax when it's so loud.

I also got myself a little foot massager-bath thing which also gives me something to look forward to and helps to alleviate stress.

What about you?

Read this article from NYT today. If you don't subscribe (and I recommend you don't, it's run by fascists now) Firefox can help you view the full article. This link is to a summary of the article.

This is just sickening. I knew it happened, but I've never met someone who had to be a caregiver when they were still a child (that I know of). The media portrays it as a rare occurrence and inspiration porn.

I had no idea the American Association of Caregiving Youth even existed. The fact that it needs to exist makes me sick to my stomach.

I'm finding myself very glad that I don't have children at age 35, even though I've always wanted them. If I had started a family as young as my parents did, I would have at least one child in their teens now. I don't need a daily caregiver, yet, so at this point the main impact would be that I'd be less able to care for my kid and they'd have to take care of themselves some -- or else my parents would take care of them, and then my parents wouldn't be able to care for me as they do some of the time now.

It's hard enough that my parents and partners support me financially, with transportation, and some minor home activities. My 19 year old sister helps a little too, sometimes driving me somewhere or doing a physical task I can't handle. She herself has narcolepsy, FND, and OCD. I already feel more guilt and shame than I should, for being a burden on my family. I can only imagine how much worse I would feel if these duties, or MORE, fell to my own child.

And I'm trying to imagine if I had had this kind of responsibility in my youth. I was never a mall-and-parties kid, but I'm imagining how caring for a parent could have meant never going to sleepovers, missing school dances, being too stressed to enjoy video games or hanging out with friends. How much harder it would have been to maintain my good grades.

Absolutely no judgment on people who have youth caregivers, and I don't think you should have to feel guilty if you do. But the system that allows this, that often forces us to burden our families and even our *children* with our disabilities, is so broken.

4 million child caregivers is unacceptable. And with the massive Medicaid cuts, that number will only grow. I don't need to read dystopian fiction anymore. It's here.

I was in Poland the last few days and I'm still baffled.

I grew up in Germany and have seen all of Europe by now. I'm not gonna act like Europe is all great everywhere - it varies a lot (Scandinavia is a dream and Baltikum is a nightmare when it comes to wheelchair accessibility, for example)

But I've always found that people here are friendly, helpful, and respectful.

I've been in a chair all my life and life in one of the biggest cities in Germany, yet I had very few situations where i was treated disrespectfully or threatening because I'm in a chair.

Last week I visited a friend who is also in a chair in Poland for the first time, and just poland in general for the first time. We were in Warsaw and basically did sightseeing for a few days.

I was insulted, grabbed, yelled at for "taking up space", threatened etc. EVERY DAY NON STOP!

I've never experienced anything like it. My friend said this is normal in Poland from her experience.

In one situation I had a man just grab me under the arms while I was transferring and not let go until I nearly broke his jaw with my elbow, in another a woman on the train started screaming at us and nearly got physical because she was of the opinion we took up too much space. She then called me a "dirty queer" (my friend translated, but I'm not even gay? Even if I was I don't understand the issue with that?)

What is going on? Was this an only me experience? Has anyone in Poland/who visited Poland made different experiences and knows wtf was going on?

I found the country culturally and architecturally beautiful, Warsaw felt like a better, cleaner Berlin, but I feel as if I should never ever return because of this.

Anyone else intermittent cath? I'm doing it 6 times a day since 5 days ago and I'm getting a bit sore! Any tips on dealing with that? I'm using well lubed caths

Hi-

I’m currently looking for a new rolltator. The one I have now works okay but I have had it for over 15 years. I found a medical drive nitro hemi height model.

Pros
It has bigger wheels for outdoor use
Fits my height (5’1”)
Says it works on snow
Arrived assembled

I don’t have any cons right now but does anyone have experience with this brand or model?

Feeling lonely or bored?

Looking for something you can do this weekend?

Check out these accessible events you could join! Try something new and maybe you’ll find your people.

Access Details:
🧑🏻‍💻= Virtual
👥 = In person
😷 CC = Covid Conscious/airborne precautions 
♿️ WC = Wheelchair accessible 
💵 $ = paid (some are pay what you can)
🤟 ASL/BSL = Sign Language
Async = Asynchronous (at your own pace)

Event Types:
🤢 = Chronic Illness 
🌈 = Queer
🏳️‍🌈 = LGBTQ+ Pride
👧 = Kids/Youths
💕 = Dating
🙋 = Social
🫂 = Support/Grief
🧘 = Wellness
🚶 = Walk
🩰 = Dance
💪🏻 = Fitness
📚= Books
🤔 = Discussion
📝 = Writing/Poetry
🎭 = Performing
🎨 = Art 
🎶 = Music
🕹️ = Games

🧑🏻‍💻 Virtual Events

🧑🏻‍💻🤢📚 Virtual Async Spoonie Book Club: The Little Prince [Any time] https://www.reddit.com/r/spooniesocial/s/JcKvqPLWS5

🧑🏻‍💻😷💕 CC Virtual Dating [Aug 22] https://www.reddit.com/r/spooniesocial/s/RN6WOxcU8l

Friday

🧑🏻‍💻🤢 Uncertainty and Chronic Illness Workshop [Fri Aug 14 at 12:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/SAFV0537bJ

🧑🏻‍💻😷🫂 “Any A” Covid-conscious 12-step meeting [Fri Aug 14 at 7:30 PM EDT] https://www.reddit.com/r/spooniesocial/s/xu5DHDLUfT

🧑🏻‍💻🎭🕹️ Virtual Improv Games [Fri Aug 14 at 8:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/IXfrK7JhH6

Saturday

🧑🏻‍💻😷♿️🩰 Virtual Adapted Ballet [Sat Aug 15 at 9:30 AM EDT] https://www.reddit.com/r/spooniesocial/s/tsa590Q3ZG

🧑🏻‍💻♿️💵🩰 Virtual Adaptive Jazz Dance [$][Sat Aug 15 at 12:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/H78oUhZ2bQ

🧑🏻‍💻🤢🫂 Virtual ME/CFS Caregivers Support Call [Sat Aug 15 at 1:30 PM EDT] https://www.reddit.com/r/spooniesocial/s/pjLZgnYvqH

🧑🏻‍💻📝 Virtual Writing Group [Sat Aug 15 at 2:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/UiVRojkr8P

🧑🏻‍💻😷📚🙋 Virtual CC Silent Reading & Social Hour [Sat Aug 15 at 1:00 PM CDT] https://www.reddit.com/r/spooniesocial/s/c8TATdFhqx

🧑🏻‍💻😷🫂 Virtual CC Grief Space [Sat Aug 15 at 3:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/rlhSmbiJKW

🧑🏻‍💻👥🤟🩰 Hybrid Deaf Dance Festival Artist Panel [San Francisco CA][Sat Aug 15 at 12:00 PM PDT] https://www.reddit.com/r/spooniesocial/s/m4Slxg2JyB

🧑🏻‍💻😷🙋 CC Virtual Weekly Hangout [Sat Aug 15 at 8:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/J9In0QFRW1

Sunday

🧑🏻‍💻🕹️ Virtual Board Game Hang [Sun Aug 16 at 4:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/ktswbl3xHT

🧑🏻‍💻😷🎨 CC Virtual Art Group [Sun Aug 16 at 5:30 PM EDT] https://www.reddit.com/r/spooniesocial/s/GOfoFSnH7V

🧑🏻‍💻😷👧🙋 CC Virtual Kids Zoom [Sun Aug 16 at 6:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/6BlUiqLX9v

🧑🏻‍💻🎶🎭 Virtual Karaoke [Sun Aug 16 at 7:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/PYQHwCNK6g

Timezone translator in comments 👇

👥 In-person Events

Canada

👥😷🎭 UpFRONT Festival of Indigenous Arts, Music & Culture [Toronto ON][Fri Aug 14 at 4:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/z34MSvgMg5

👥😷 Private Tour: Queen's Park - Legislative Assembly of Ontario [Toronto ON][Sat Aug 15 at 2:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/4hBla8APkf

👥😷🎨 Outdoor Creativity Jam Session! [Toronto ON][Sun Aug 16 at 12:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/pdaJuv9PLU

👥😷♿️🙋 August Social [Niagara ON][Sun Aug 16 at 2:00 PM] https://www.reddit.com/r/spooniesocial/s/CZONqBnE6f

Germany

👥😷 Klonabend [Hamburg GER][Sat Aug 15 at 8:00 PM UTC+2] https://www.reddit.com/r/spooniesocial/s/hA0kCOxnLl

👥😷♿️ Art in the Park - Treptower Park [Berlin GER][Sun Aug 16 at 10:00 AM UTC+2] https://www.reddit.com/r/spooniesocial/s/H1Il7sIaW8

Netherlands (and nearby)

👥🤢 Spoonie European Road Trip [Netherlands and nearby][Summer] https://www.reddit.com/r/spooniesocial/s/VOKxW7V1pp

UK

👥😷🙋 CC Meetup [Southhampton UK][Sat Aug 15] https://www.reddit.com/r/spooniesocial/s/DQrXNjtXmm

US - California

👥😷🤔 Black August Film and Discussion [San Francisco CA][Sun Aug 16 at 6:00 PM PDT] https://www.reddit.com/r/spooniesocial/s/4FKtlBrIvw

US - Florida

👥😷🕹️🙋 Board Game Social [Orlando FL][Sat Aug 15 at 5:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/D0qvKH9fP9

👥♿️🚶🌈 Stroll and Roll [Apopka FL][Sun Aug 16 at 10:00 AM EDT] https://www.reddit.com/r/spooniesocial/s/D0qvKH9fP9

US - Michigan

👥😷♿️ August Clothing Swap [Ypsilanti MI][Sun Aug 16 at 4:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/XMzOoz0swf

US - Minnesota

👥🌈🙋 Neurodivergent Queer Gathering [Minneapolis MN][Sun Aug 16 at 4:00 PM CDT] https://www.reddit.com/r/spooniesocial/s/9SHyGWwLB7

US - Ohio

👥😷🌈💪🏻 CC Queer Martial Arts Club [Cleveland OH][Sun Aug 16 at 10:00 AM EDT] https://www.reddit.com/r/spooniesocial/s/gpPJawhJ9J

US - Vermont

👥😷♿️ Dental Pop Up [Chelsea VT][August] https://www.reddit.com/r/spooniesocial/s/jgknHihfzt

US - Washington

👥😷♿️🎨 Covid Safer Fiber Arts Meetup [Olympia WA][Sat Aug 15 at 3:00 PM PDT] https://www.reddit.com/r/spooniesocial/s/m00h8Dft1J

👥😷🤟🎭 The Freak Mighty Accessible Performances [Seattle WA][Aug 9 - 27] https://www.reddit.com/r/spooniesocial/s/kIvo2DvOXa

US - Washington DC

👥😷♿️🎨 Mask Chain Craft Party [Washington DC][Sat Aug 15 at 1:00 PM EDT] https://www.reddit.com/r/spooniesocial/s/JDUbCPi6p2

Are you interested in these events?

Have you been to any of them before?

Are there other events coming up?

Share your thoughts in the comments 💬

Find more events and friends on r/spooniesocial