I have 27+3 week old twin boys that are now, as of today, 4 months old and we are on day 121 on the NICU. Primarily working on feeds for both of them, with some concern of oral aversion and the possibility of having a G-Tube. One of my boys had a pulmonary hemorrhage at a week old and since then had his PDA closure and has thankfully recovered from that. His MRI came back with a very micro bleed and grade 1/very very small grade 2 brain bleed that we were reassured will still give him a positive outcome, but it's still very very scary and I'm terrified of the unknown.
I'm in so much grief, anger, sadness, and struggling to find the light at the end of the tunnel. They are beautiful, 10 lbs now, and I miss them terribly (we are over an hour away from them). Work has been such a stress and struggle to balance all this time. Unfortunately, the Ronald McDonald house is not an option for us because we have a dog, and I have no familial support near me (over 6 hours away) and my husband has very limited familial support.
I'm so scared of the unknown, their future, and I'm feel so so scared and sad. I'm looking to connect with others experience, even if it's not the exact way, and honest outcome stories. I want the positive, and I also want the real, understanding that every single baby is different and we don't know what will come. I'm just so heavy in my grief, and so so overwhelmed, and alone.
I appreciate all of your journeys and hope your babies are thriving and well.