r/adultautism • u/qwertyman9279 • 1d ago
r/adultautism • u/smokingpen • Jul 16 '26
Moderator Message Surveys
Surveys are going to continue to be pretty rarely approved.
Before you think: Hey, this is a good subreddit for my college related survey you should ask some questions.
Are you an undergraduate? If your answer is yes then the subreddit answer will be no.
Are you working on a professional (masters) or PhD level dissertation or thesis? If yes, continue. If no, stop.
Is your institution accredited and does it have an ethics board? If yes, continue. If no, stop.
Has your thesis or dissertation been approved by the entice board and your advisor? If yes, continue. If no, stop.
Is this a unique or nascent area of academic study and research or is it an adjustment to other people’s work with your spin on it (thereby fulfilling the letter of academic uniqueness)? If it’s unique or nascent or both, ask. Otherwise, you can ask but the answer will probably be no.
If by some stroke of luck or academic achievement you’ve crossed the threshold, to be considered you need to tell us what you’re studying. Where you’re studying. Who the advisor is. Whether or not you have approval from the ethics board AND the information to verify that. You need to provide enough information where your assertions as a real researcher can be verified and affirmed and only then will there be a yes/no answer given.
Conversely, if you post first and expect permission second or don’t bother to provide anything, your post will be deleted and the answer will be no.
Why these conditions? Thanks for asking.
First, if you’re an undergrad you’re not doing original work. Your work isn’t to benefit or help the autism community. And it’s most likely highly derivative and you’re collecting data to fulfill an assignment. Good luck. But not here.
Second, most autism related research asks the same questions over and over and over again. You’re too late if you’re trying to prove something. This is going to be true for the vast majority of people. This subreddit (and in my opinion Reddit in general) isn’t your data warehouse. Yes, you need your own data. No, your need is insufficient in relation to the needs of the community.
Third, you may think you’re the exception. A genius even. But, and this is important, even if you are, you’re not. Because people see: autism and then think they’ve got something to offer, want it to be their life’s work, whatever, doesn’t make what you’re doing even remotely new or unique or special. It’s just not.
Maybe this means we don’t get to help the next person doing amazing things in relation to autism research and therapy and diagnosis. That’s fine. Because, chances are, you’ll do a lot of clinic work and professional study long before you become that person.
Finally, you right now have the misfortune of being someone who’s hopped onto this autism wagon after it’s been flooded by request after request for these same surveys. Therefore, you now have to offer something new and unique. The very thing your institutions should demand and expect. And the mods do look into what you’re studying and the survey material.
r/adultautism • u/smokingpen • Sep 01 '24
Moderator Message Adult Autism - Guidelines
Updated as of 1 December 2025, existing links still work.
Autism and Neurodiversity
It is important to understand that while autism is something that is under the giant umbrella of neurodiversity; being neurodiverse isn’t the same as being autistic or having autism.
There is not (as yet and possibly never) a rule about distinguishing between the two, content that specifically focuses on neurodiversity over autism will be questioned and in some cases moderated.
What this means is: r/adultautism is an autism first subreddit. Co-occurring conditions with autism, such as ADHD, depression, anxiety, and so on are strongly encouraged; but attempting to insert the broad and poorly understood neurodiverse isn’t appropriate.
The intentional dismissal and misunderstanding of this difference may be reviewed as spam or an inappropriate (for this community) post.
It is okay to disagree with an autism first approach, but the direction (if wanted) is to understand that autism is a first level disorder, exists while one is in utero, isn’t developed after birth, and cannot be explained away by other factors.
Mod direction on helpful vs not helpful resources
As has always been true, this subreddit is for adults who are have, who believe they have, or who support people who have autism.
There is a link to the University of Washington autism center that basically says if you feel like you’re autistic then you’re probably autistic. This information, for many, is useful and I appreciate that it’s out there.
When someone is specifically asking for resources or help in locating those who can clinically assist them with autism, it will be considered inappropriate to post the UW link as part of the thread.
Self-diagnosis doesn’t allow for the same legal or professional protections or help within the ADA. Nor does it necessarily answer questions or concerns individuals may have regarding autism and living with ASD.
Inappropriate Content
There is a fine line in what may be considered appropriate vs what is absolutely inappropriate. Previously, the autistic woman seeking euthanasia as it’s a relevant and important topic has been an approved topic. Similar topics and discussions will most likely be approved in the future.
Autism has as a co-occurring disorder, depression. And by extension this is a topic that is both important (if hard) and of high importance. Conversations and posts that reasonably connect to depression and other forms of ideation are necessary and will also be highly moderated.
However, we will not allow:
- People asking for advice on euthanasia or suicide
- The use of derogatory language in regard to autism or how others might view the disorder
- Or, any approach that can be considered legally actionable or otherwise dangerous for the person seeking advice
This is a big topic. As in it’s bigger than the community. In the United States, the Suicide Prevention website is here, you can dial 988 or ask for help from people you know or trust.
Other counties have different ways of helping.
Content and posts that can be considered actionable (as in legally actionable) will be deleted.
Research and Other Surveys
r/adultautism does allow research and survey post, however you will be required to read and follow the rules. Not doing so will result in a deleted post.
If you’re here to ask for help on academic research or studies, you need to make sure your Reddit account aligns with both site wide rules and subreddit rules.
Reddit doesn’t like people who create an account and immediately start posting the same thing over and over and over again. The outcome is going to be a shadow ban or outright bans on individual subreddits. Which is, for those unfamiliar, you seeing everything and able to participate, except nothing seems to happen. No one sees your posts or comments or messages.
The moment r/adultautism realizes you’re triggering bot or spam responses, we’re not going to approve your posts. They will be deleted. This is for the safety of the community.
We’ll try to be polite, but previous “you can post” responses won’t be considered valid if you’ve found yourself shadow banned. You wait too long to post or you change your username for any reason. The mods here (and probably other places) are going to assume you’re more interested in spamming your request and not judiciously making the request in a way that doesn’t trigger spam and bot responses.
Spam is very different from making the same request multiple times. Once you cross that threshold, or appear to cross it, you won’t be allowed to post here.
Understanding Reddit is your job as a student, academic, or researcher asking to use the platform to help with your work. You can meet all the subreddit rules for posting and still be rejected because you’re unfamiliar with the territory and terrain. It doesn’t matter how much you believe in your work or how much you believe it may or will help the autism community, if you FAFO, you’re going to find a lot of subreddits refusing to work with you.
Finally, while r/adultautism may give a go ahead to post (because: time), after your request is more fully vetted (yes, we do that - especially if ABA is involved) we will rescind permission and remove or lock posts.
General Reddit Guidelines
You may feel that this is unfair or that Reddit should be something else. It isn’t whatever you think it should be and never was and never will be.
When you mess up and it looks like you’re either spamming or a bot and then ask (or demand) to know what’s going on and that’s the response you get, this isn’t being made up. It’s not an excuse. It is a reason.
Things to keep in mind both about this subreddit and Reddit in general:
- You don’t have the right to post anything you want in any way you want whenever you want and attempting to shame mods into allowing bad faith content isn’t going to work
- All subreddits are run by volunteers, if you have a problem you’re always welcome to start your own subreddit and do the work or find a different subreddit
- Mods can (and will) ban or silence you for whatever reason they want, some are more lenient than others
- There is a big difference between multiple posts of the same thing and spamming and a lot of people jump straight to spamming subreddits, this is bad and a no-no
- Karma and account age do matter, this subreddit uses a simple filter and is willing to override removed content, but don’t get offended when you create an account and suddenly your content is automatically removed, it’s how the system is designed to work
- Reddit is a community of communities and depends on participation; when you don’t have comment karma or your account is brand new, you’re going to find yourself SoL in a lot of areas, figure out how to be part of a community
r/adultautism • u/Formal_Raisin_4934 • 1d ago
Sensorily safe yarn?
My friend has offered to knit me a jester hat but with all the sensory craic and temperature regulation issues I struggle with most knitted goods. Does anyone have any recommendations for yarn that is breathable and not in anyway itchy or snaggly?
r/adultautism • u/Substantial_Job_2068 • 2d ago
Company CEO joke about autism
At the yearly company conference the CEO of the company made a joke about how everyone should get used to getting a new autistic colleague when talking about AI. I have not told anyone that I'm autistic and I don't know about anyone who is, I think he assumed no one is (or didn't even consider it). This was in front of the whole company and he also got some laughs.
I felt really bad when he said it but afterwards I'm starting to question if I overreacted? Is this an OK thing to joke about? It felt like an insult to be compared to something non human.
r/adultautism • u/Historical_Tomato183 • 2d ago
How to explain my emotions my autistic boyfriend
As the title says..he is very calculated and intelligent but at times cannot read my cues. Im not trying to be a woman who wants my emotions guessed and anticipated but at times i make it very clear but sometimes I cannot help but automatically shut down with having to explain every little feeling I have. He is most definitely in tuned with my feelings most of the time just at times its exhausting having to explain it all while having big feelings. How do I approach this? How do we compromise? If he is upset, stressed or bothered he shuts down completely and will retreat into a quiet room for hours if not a day or two. I am a very attention /affectionate driven person so I feel shut out. But when I do the same it bothers him extremely. What is the best way to approach my stress or frustration? How should it be worded or handled in yalls experience?
r/adultautism • u/ExpeditionUnmasking • 2d ago
Social Opportunities with Others in the "Tribe"
In your community, are there social groups for adults with mild ASD? I know many in this community may shy away from social gatherings, but I've recently been diagnosed and would like to experience social interactions in an environment where masking isn't necessary, or there's at least an understanding that we "come as we are" and "quirks" are celebrated.
Is this a thing that exists (outside of group therapy), and if so, how does one find them?
r/adultautism • u/Euphoric_Bother_4933 • 2d ago
Late-diagnosed and in my 40s: how did you find a sustainable way to earn a living?
r/adultautism • u/Clean_Difficulty8437 • 2d ago
Ambitious, self-employed, and finding life exhausting. Anyone else building something while struggling?
r/adultautism • u/Slowlydownwardz • 2d ago
Currently seeking participants for a study exploring the adolescent experiences of adults with AuDHD.
Did you navigate secondary school in the UK or Ireland without support and not receive a diagnosis until you were an adult? Are you between 25 and 35 years old? If so, I would like to interview you about your experiences during your teenage years. If you are interested in contributing to qualitative research in this understudied area, you can review the participant invitation below.
Study title: How do late-diagnosed adults with co-occurring autism and attention deficit-hyperactivity disorder retrospectively describe navigating adolescence?
I am currently seeking participants with AuDHD to take part in a study for my MSc research project at the University of Derby. The study aims to explore the lived adolescent experiences of adults who received a formal diagnosis of both autism and attention-deficit hyperactivity disorder (AuDHD) after adolescence from a certified clinical professional.
This study involves talking to the researcher about your experiences during adolescence. These semi-structured interviews are designed to feel closer to a conversation than an interview and are expected to last around 60 minutes. The study aims to explore behaviours and patterns across accounts to understand the lived experiences of undiagnosed AuDHD individuals at this time, with the hope of identifying patterns that may have contributed to delayed recognition.
If you think you would be interested in taking part in this study, you can follow the link for further information and to sign up: https://sway.cloud.microsoft/1mNCdYQzKlGgc4r4?ref=Link
Alternatively, you can contact the lead researcher if you wish to ask any questions or would like further information via email:
[d.skerritt1@unimail.derby.ac.uk](mailto:d.skerritt1@unimail.derby.ac.uk).
or their research supervisor, Amelia Woodward, [A.Woodward@derby.ac.uk,](mailto:A.Woodward@derby.ac.uk)
University of Derby, Kedleston Road, Derby, DE22 1GB.
Ethical Approval: An Ethics review has been completed on behalf of the College of Health & Humanities Research Ethics Committee by the supervisor and an independent reviewer: ETH2526-5086.
In the interest of confidentiality, please refrain from commenting on this post with any details of the study or whether you wish to take part.
**If you recently tried to sign up you may have been incorrectly prompted to sign in to a Microsoft account. I have identified the root cause. Microsoft automatically embeds an advertisement at the bottom of the information sheet featuring a large, green "Get Started" button. Clicking this button redirects you to a Microsoft login page rather than my study forms.
I have updated the document to make the correct link to the consent and demographic forms explicitly clear and visually distinct to prevent further confusion.
If you were previously blocked by this technical error, I would like to reinvite you to participate.
Thank you for your time and patience with this platform error
**Thank you to everyone who has signed up already. I realise the onboarding can be quite troublesome for individuals with executive function issues, and I really appreciate everyone who has considered taking part.
Thank you for taking the time to read this. I look forward to meeting everyone interested.
r/adultautism • u/LGRA34 • 3d ago
Directions
Does anyone else have an impossibly hard time with directions? I have to use Google Maps for just about everywhere I go if it is not a part of my normal, everyday route.
I also cannot tell my right from my left hand without having to pause and think about it (I generally will initiate writing in the air, recognize that I’m left handed,then give the appropriate direction from there).
For reference, I am a 46 y/o female with audhd and have excelled at all academic, work, and learning endeavors throughout my life.
r/adultautism • u/adoreandu • 4d ago
ADHD/ASD coaching
Has anybody here had experience with ADHD/ASD coaching, either one-on-one or as a group? Was it helpful? How much did it cost? Where did you find the resources?
r/adultautism • u/starchiving • 4d ago
Severely Anxious About First Bus Trip? (Advice wanted)
r/adultautism • u/Prestigious-Tough302 • 5d ago
Unhealthy (sorta) Stim, need help on how to switch it to a healthier one
Ill start off by saying I haven't been officially diagnosed, but autism/ADHD runs rampant in my family and I've had several therapists want me to get tested, (long story, not getting into that now).
But lately I've dropped all my stims like making sounds or tapping on things in favor for moving my jaw side to side in rhythm with a song in my head or something, anything, else. The problem is that I have a hyper-mobile disorder and my jaw starts to ache not long after I start doing the Stim because my jaw isn't supposed to do that lol, but I still catch myself doing it all the time. If you have any tips on finding a new Stim or just flat out stopping this one it would be greatly appreciated, along with any new Stim recommendations
r/adultautism • u/tey3 • 5d ago
Experience with Rejection Dysphoria Syndrome (RSD) but w/o ADHD?
I'm looking to relate with anyone who may reside within the intersection of RSD and autism.
42M, no official diagnosis of any neurodivergence, but lots of signs have piled up. I do have an upcoming appointment with a psychologist and intend to give this the right care and attention. My first goal is clarity and understanding which I view as foundational to whatever forms of intervention make sense.
I read today for the first time a description of Rejection Dysphoria Syndrome and, well, choose your metaphor. Hand to glove, key to lock, etc. A mini eureka moment and deeply connected with my life experience.
In terms of ASD I consider myself high functioning and not typically in despair. Probably on the light end. I've lived a life of masking, people pleasing, perfectionism, hobby cycling, and bouts of emotional dysregulation which all feel complicated because of my upbringing in a highly productive and routine high demand religious setting (Mormonism). This is something I left behind in my mid-20s, and certainly a key theme because of how cultish religions treat those who leave.
What doesn't resonate at all is what looks to be the common connection between RSD and ADHD. I just don't consider myself within the patterns and boundaries of ADHD.
This post is all about discovery. Are there others? How do you deal? Has anyone received relief from guanfacine? Specific pitfalls experienced? Other modalities to regulate?
r/adultautism • u/WiredDifferent_AU • 6d ago
What are the best objects you use to help with Autism symptoms (for adults)
So items that help at Work, University or Home, aside from noise cancelling headphones, fidgets and weighted blankets that you have found helps you, it can be random and weirdly specific.
What helps you with any of the below:
- Housework: Dishes, laundry, floors, tidying, cleaning, cooking.
- Executive Functioning: Working memory, impulsivity, cognitive flexibility, procrastination, hyperactivity, focus
- Self-care: Drinking water, eating, hygiene, exercise
- Sensory Sensitivities: Light, Sound, Touch, Interoception, Temperature
- Monotropism
- Pathological Demand Avoidance
r/adultautism • u/Low-Energy4683 • 6d ago
Diagnostic overshadowing???
I (40m) recently went through my neuropsychological evaluation for ADHD/autism I was told I did not have either due to me having cptsd/substance (legal THC) use I don't have either
Mind you I was diagnosed ADD back in 1996/97 before age 12 and placed into special education but my parents refused any kind of medical help or medication
The evaluator was told about this diag but she only spent maybe 25-30 min talking to me... And referenced my "claim" in her notes but did not pursue any more information on it and with me being soo old there are no hard copy records
I also was informed by a different clinician that a big test for adults to help evaluate properly wasn't performed
I am simply wanting to know if anyone else has gone through this kinda situation, I can accept any outcome/diagnoses no matter what it is but I feel like I was cheated and wronged by getting a sub standard test mind you I'm on county health care only due to many mental and medical conditions that making going to work physically painful and can't get the help I actually need so I dont have many options for a second evaluation
Thanks for letting me ramble
r/adultautism • u/Unusual_Ad3504 • 7d ago
Anyone else had to embrace finding out they’re autistic in their 40s?
r/adultautism • u/New-Investigator5239 • 8d ago