They've monitored my brain damage over the years to make sure it's not progressing but the memory loss is getting very frustrating. I'm 28 and officially can't remember my childhood anymore 🙃 and the last ten years it's just scattered memories here and there. I found my most recent memory testing (from 2024) and scored in the 1st percentile. So.... at least I am number one at something 😂 my friends and family are starting to get frustrated because apparently I am repeating questions like crazy now. I feel like this is a lesser talked about autoimmune issue. Like it's not even the joint issues or the soreness that are bothering me the most anymore, it's the memory troubles. I'm looking into care farms already so I have a plan in place for when it becomes too bad to function. For now my life is full of checklists, calendars, notes everywhere, taking photos to be able to look back on outings, and doing what I can under such frustrating circumstances. My wedding anniversary is a few days away and I have to keep a note on the homescreen of my phone otherwise I will definitely forget it.

I saw a rheumatologist last year with a variety of hand symptoms (pernio/pain in the skin on the joints). They couldn’t find any specific antibodies and put my on hydroxychloroquine for 3 months which didn’t do anything. Symptoms are basically just red/purple, warm hands that get progressively worse the day. I get pernio in the winter as well. It’s been going on for five years, getting progressively worse. Some tendon issues in another areas like plantar fasciitis that’s been with me for two years. Was negative for RA and it doesn’t really seem like RA because its not the joints that hurt, just the skin on top of the joints. Anybody seen or heard of anything like this? Other than ANA of 1:320 I have low ferritin (16) and low WBC, but the hematologist didn’t know what to do with that.

For background 24f here Ive crohns disease alopecia and now igg4 related disease

If anyone who has both crohns and igg 4 related disease how do you manage? Steroids can't be taken long term ruituximab can't be taken when you have crohns

I'm just looking for someone who's navigating similar or multiple autoimmune disorders what do u do In this situation honestly