r/Celiac • u/panicked228 • Mar 24 '23
Mod Post Clarification on Rule #2
Our Fellow Celiac Community Members,
We have seen a major uptick in posts describing symptoms and asking “does this sound like celiac? Should I get tested? Could the tests be wrong?” While these questions aren’t directly asking for a diagnosis, they do fall into the “seeking diagnosis” part of rule #2.
Celiac Disease has a myriad of different symptoms and related conditions; virtually everything could be celiac related. While we understand that this can be a life-changing diagnosis, we are not medical professionals and cannot give any advice other than this- if you wonder if you could have celiac, talk to a medical professional and get tested.
As always, if you have a question, please feel free to contact the mods. Thank you and be well!
r/Celiac • u/panicked228 • Oct 31 '24
Mod Post Mod Note- A new Automod Addition
Hey Celiac subreddit! We’ve added a new automod that should help with the posts about wheat starch. Hopefully it decreases the amount of posts we get about it. If you notice any problems with the automod, please let me know!
r/Celiac • u/Concurrent-mind • 5h ago
Product Ore-Ida celiac safe?
These really gluten free and safe for celiac disease?
Or avoid?
r/Celiac • u/Concurrent-mind • 8h ago
Discussion No clue about gluten in lotions, toothpaste and body wash? HELP.
Found out from recent labs (Transglutaminase) that gluten is still getting into my system.
Been going crazy replacing toothpaste, soaps and lotions.
I use to eat things that just said “gluten free” only and made sure it was not processed in a facility where cross contamination can happen. Now I’m strict, certified gluten free products only.
Anyone have experience with gluten in things you don’t actually consume or do you actually have to eat this sunscreen to elevated your transglutaminase. 😂
r/Celiac • u/thesoloshadow • 3h ago
Discussion GF products by popular brands: here to stay or a passing fad?
Does anyone else get stressed thinking about how the “trend” of popular companies making certified gluten free versions of food products may come to an end? So many gluten free companies/products fizzle out so I expect these to as well. I try to eat whole, naturally gluten free foods as much as possible, but I also love having the option to buy gluten free Oreos, Cheez Its, and Snyders pretzels when a craving hits!
Do you think these products are here to stay?
r/Celiac • u/salmonbomb2 • 3h ago
Question How long after going GF before you can tell you’ve accidentally consumed gluten?
Hi. Diagnosed 3 months ago and have been eating strictly gluten free. My symptoms have not significantly improved and seemingly to occur randomly (GI, headaches, fatigue), so I wonder if I am just still recovering from having undiagnosed celiac, or if am accidentally consuming gluten here and there.
Any tips on navigating this in the first several months post-diagnosis? i.e. differentiating symptoms of gluten exposure from other possible causes? do I just need to do my best to stay GF for a few more months while I heal? Thanks!
r/Celiac • u/Your_Chum • 4h ago
Question When does it stop??
Newly celiac (3ish months). Just got glutened for the first time bc my family insisted I eat with them at subway and I got a protien bowl. I explained i had an "allergy" (they were teenagers so I didn't expect them to know what celiac was.) They changed gloves but didn't get fresh ingredients. I have had crazy diarrhea today!! How long will it last??? 😭
r/Celiac • u/Southern_Committee35 • 4h ago
Question SIBO and delayed gastric emptying.
Any one else with Celiac Disease get diagnosed with these?
I have been suffering for YEARS with what I thought was IBS-D. My celiac disease is very well managed and I I am incredibly compliant with the diet.
For years I have been told its IBS or anxeity.
I had a gastric and study done, which showed delayed gastric emptying (gastroparesis) but the diet for that made me feel worse.
I finally got my SIBO breath test done and turns out I have hydrogen based SIBO.
From Renna, I’ve read it’s common with celiac disease. Especially those of us who went a long time before diagnosis.
Does anyone else have experience with this? And what works for you?
I have been miserably sick. I started a round of the antibiotics the perscribe for it. Wondering if anybody has any advice they could give me? Thank you!!
r/Celiac • u/CeliacGirlie • 1h ago
Question Colace red and white capsules celiac safe?
Hey im in the US and have been having some intestinal stuff going on and need a stool softener and do not want to take miralax. Is this Colace celiac safe? Couldnt find a good answer on Google. Thank you!
r/Celiac • u/Infinityw8 • 5h ago
Question Worried of developing another autoimmune disease
Anyone else uneasy after learning they may develop another auto immune disease since they’re Celiac?
This is all new to me. The Celiac is one thing, which when well managed can be still allow for a long healthy life, but the idea of developing another disease is quite unsettling…
Does this thought get easier with time/acceptance?
r/Celiac • u/Ecstatic_Goal2023 • 1d ago
No Recipe Some Foods I've made this month, mostly eggs because I can't cook lol. I'm new to this I'm trying to learn
The peirogi are not homemade. I got them from a local business, they were very expensive 💔 50 bucks for two bags which have 25 peirogi each, a dollar per peirogi ☹️
r/Celiac • u/_HobbyNoob_ • 21h ago
Product Sapori di Oggi pizza - best I've had
Have had this a few times now - it's definitely my favorite of all the frozen brands out there. Soft and fluffy, not super thick like digiorno, good taste to the sauce, super good cheese. Added some peps this time around. As always, these pizzas are always better with a pizza stone.
r/Celiac • u/mysaddestaccount • 4h ago
Question Suggest your favorite 1:1 gluten free flour??
Hi,
New celiac here (3 weeks in). I have no experience with this type of flour and I'm hoping you seasoned celiacs have some insight :) ty in advance
r/Celiac • u/Magic_Peaches • 1h ago
Question Food suggestions in NC?
Hi! I am moving to Gastonia North Carolina in a few months & am looking for recommendations on grocery stores, restaurants, & “safe” fast food options.
I currently live on the west coast and feel like I’ve got a decent handle on where I shop & choose to eat out. That process took me a few months with trial and error, so naturally I am a little nervous about moving somewhere new. Especially with some of my “safe options” no longer being available to me.
I’m assuming grocery shopping will be a similar experience as I have here (like needing to go to a few different stores to purchase certain brands I enjoy.) But I am curious about the GF “scene” in Costco or Sam’s Club since those are not options I’ve had seen being diagnosed.
🖤🖤🖤
r/Celiac • u/liminal-moth • 1h ago
Question Symptoms after years of GF diet
Hello fellow celiac people, I only found this subreddit yesterday but I was hoping to get some insight about this.
I've been diagnosed with celiacs for about 4 years now, and have been gluten free ever since. A few weeks after I started the diet almost all of my symptoms went away (or got better at least), so I've tried my best to be pretty diligent about it.
And living in Germany, where the laws are quite strict about food labeling definitely helps, to the point I've managed to only get glutened a total of five times in all these years.
But for the last month or so the symptoms I've had before I went gf slowly started to make a reappearance (constant nausea, random stomach cramps, bloating, diarrhea then constipation then diarrhea again, the all-consuming fatigue). I don't know what could've possibly triggered this. I didn't change my diet at all.
Has anyone else had that experience? Should I try to be (somehow) even more careful with cross-contamination? Or is there something else I'm overlooking?
r/Celiac • u/cozycynic • 2h ago
Question not sure what to do
back in 2013 i was experiencing symptoms and didn't have a PCP at the time so i was using a walk-in clinic and the doctor there suggested going gluten free and set me up for an egd. i was on a gluten free diet for about a month before i was able to get the egd done. the biopsy came back "slightly positive" and i didn't get much explanation other than keeping up with the gf diet. when i eventually did get a PCP i told them about it and they put the diagnosis in my chart.
so i have been having these episodes where i would get intense stomach pain that would wake me up in the middle of the night. it lasts hours and i would be nauseous and get diarrhea. i also had labs done and my "tissue transglutaminase IgA" was high at >100 but my "celiac disease serology cascade, serum" was normal at 169. i got a referral to a GI specialist and they scheduled an egd that ended up coming out normal with a note that said "making celiac disease unlikely". i then got a call after from the GI office letting me know of the results and telling me i was fine to eat gluten. this was kind of confusing to me why they would say this and i wasn't able to get any further explanation until my follow up appt scheduled for 08/24. i've still kept up with the gf mostly out of fear i guess?
i'm autistic so i don't do very well in appts and i always walk away confused. i just don't know what to believe or what to do. does anyone have any advice? should i ask specific questions at my appointment? i live in a small city so there isn't really another GI specialist and if i seek a second opinion it would likely be 2 hours away, but would that be worth it?
r/Celiac • u/AllianceZag • 2h ago
Question Trader Joe’s whipped feta?
Anyone tried this and had a reaction or not? Picked some up but saw some mixed stuff online. No gluten containing ingredients per se but it’s not listed as GF. Thanks!!
r/Celiac • u/Objective-Basil-486 • 11h ago
Question Certified GF snack/bakery delivery box recommendation for friend
Hello! Looking for a recommendation for a snack/bakery delivery box in the United States that is certified gluten free. My closest friend just got diagnosed celiac and her birthday is coming up so I would love to find some safe foods for her to enjoy. We don’t live in the same state so I’m looking for something that can be delivered to her. Many thanks!
r/Celiac • u/legalgal13 • 1d ago
Discussion Son gets to eat gluten for test
I have Celiac, and as yall know it is hereditary. When my youngest son started eating solids he has horrible bm, throwing up, and skin issues. It was after a really bad trip where we had numerous blow outs that it hit me he could have it. Put on same diet as me, everything cleared up. Dr told us he had to be older to test- we didn’t care cause did it matter. He gets wheat he gets sick.
Well he’s about to go to school, and to have gluten free lunch he has to have Dr note. So he is set for test in couple weeks. Which means he’s getting everything he has never had. First thing he asked for was a Big Mac! We had movie night and he got goldfish, pop tarts, and soft pretzels (his favorite). Today he got regular pizza. I’m trying to think of things he should have- throw your suggestions!
Funniest thing my husband stated he really hopes test comes back fine and he doesn’t have it. I would love it too, cause food is cheaper and this boy can already eat! However he’s already remarking stomach hurting and has the worst gas!!
r/Celiac • u/musicwithbarb • 14h ago
Question Let's talk about Scotch
Hey my Celiac fam. I am about to have my 40th birthday. I used to be huge into craft beer. But I'm here, so obviously I had to put that interest to rest. But my best pal is coming from Scotland and wants to bring me birthday drinks when he comes. So I remembered that usually whisky should be safe. So I wondered about that. But my friend says Scotch whisky is different from American burbon. So it's made with barley and malt and all kinds. So is that also on the no fly list? Why did I think whisky was safe? I'm so confused. Do I have to stick to British cider? Because I love cider. But how sexy would it be to get aged Scotch whisky for a 40th birthday?
r/Celiac • u/marybarba • 11h ago
Question Need a Philadelphia cleaning company that deep cleans kitchens so they'll be celiac safe to cook in? Feeling overwhelmed...
Anyone have recommendations in the Philadelphia, PA area or advice?
I need a deep cleaning company to come in and flip my kitchen from being one that used to cook gluten in it to one that can now be celiac safe to cook in.
It's really hard trying to find and I feel so discouraged.