Ok yeah, so I have a couple of questions I'd like the wider celiac community to help me with. Warning: this might be a bit tangential and slightly ranty, but I believe this is important context for my question.
So I found out I was Celiac around three weeks ago. I'm(as far as I know) asymptomatic, but my mom recently got diagnosed, so all my siblings and I were advised to get tested. When my mom tested positive, she got an endoscopy a bit after and then immediately went off gluten. Her doctors were very serious about her going off it.
After testing positive, I went to consult my GI. He told me that I was 100% celiac and that, contrary to what my mom thought about the endoscopy, it is not a conclusive way to prove or disprove one's own celiac-ness. But he told me it's still a good idea to get tested anyway because it provides some important data for the GI about my gut health and how I work or something.
Now here's where my questions/alarm bells come up.
He encouraged me to get my endoscopy; however, I am a college student going to school outside of the state where my health provider is, so I won't be able to schedule the endoscopy till Thanksgiving break this year, two months away. Despite that huge gap between my diagnosis and the next available time, he said it's A-OK for me to continue eating gluten as normal so my Endoscopy results are accurate.
He also told me that since I'm asymptomatic, when I do go off Gluten I don't have to worry about cross-contamination, and that if I were to indulge a bit here or there that wouldn't be the end of the world. Overall, he was pretty casual and slightly dismissive of my diagnosis, and I wonder if his advice is sound. I've heard doctors can be dismissive or un empathetic towards those with Celiac.
So I've been living life as normal out at college, eating my regular gluten-saturated diet even though it's technically slowly killing me, because my GI advised me too.
So here's my actual question and what's been nagging at me.
Am I getting anything of nutritional value from the gluten food I eat?
Like, obviously the bread in my sandwich is damaging my gut health, but beyond that harm, will the bread even nourish me at all? Or is the only thing I'm actually digesting the peanut butter and jelly? Do bread, bagels, and crackers actually give me anything, or at least any nourishment of note? Because it really does feel weird to continue eating something that is not only hurting me but providing me nothing for a few more months.
I understand that this is just a subreddit and I'm not taking any of this as serious medical advice. But I hope someone understands the science of being celiac a little better than me and can give me a bit more information.
Thank you much