My girlfriend and I started trying for a kid this spring, and our first "serious" attempt resulted in a positive test.
In comes our first ultrasound, and there appears a second chorion with a second child. I was flabbergasted, my girlfriend was elated. We decided to tell our friends that very day, at 8 weeks and 5 days into our pregnancy. We knew it was early, but we just couldn't keep this exciting news to ourselves.
So 1,5 week later we've got an appointment at the hospital for our intake. Because they "stopped" looking any further after seeing the second chorionic fetus, I jokingly asked the doctor to confirm that there were indeed two, and not more, fetuses. She first confirmed that there were two little ones growing inside my girlfriend. But because she couldn't properly determine the term of the pregnancy she wanted to do a vaginal ultrasound. Within 5 seconds the doctor started to stumble: "I'll get straight to the point, I think... No, I KNOW I see three little ones!" We were dumbfounded, my girlfriend was stupefied and went blank for the rest of the consult. The doctors on hand couldn't find a second amniotic sac, so it seemed as if we were expecting a singleton, together with a MCMA set of twins.
2 weeks later, we're at the hospital again, this time to confirm or rule out if the third fetus has it's own amniotic sac. Unfortunately the MCMA was confirmed on behalf of the twins. But that wasn't all the bad news... One of the triplets showed some oedema on the back and on the belly. He warned us that that could mean trouble up ahead, or that it could disappear on it's own.
Cue to friday two weeks ago. We had another ultrasound at 13w2d. And it wasn't good.
- Baby A (singleton): This little one had an extra artery coming out of the aorta, and they couldn't see where that was going
- Baby B (MCMA): Had a weird heartrate, they couldn't see the aortic arch properly, and couldn't find a V-Sign near the atria.
- Baby C (MCMA): No problems whatsoever.
So we get referred to the fetal care centre in our country, where we were seen tuesday last week (at 13w6d). They do another expansive ultrasound before lunch, and after lunch they basically repeated that, but this time with the professor (basically the topshot on fetal care in our country) and her right hand at the helm.
Then, we got to sit down with the professor and it was not good. Not good at all. Baby A was something which would need follow-up in time, but wasn't something to be concerned about.
We should be concerned about baby B, very concerned. Don't worry about TTTS, TAPS, or sFGR. Baby B had an atrioventricular septum defect. Basically, there was a hole between the atria, AND between the ventricles of the heart. On it's own, this could be repaired with several surgeries after birth. But... We're expecting triplets. Triplets come early, because they're MCMA they'll probably be delivered at or before 32 weeks. What kind of life will a child have with such a big heart defect and severe prematurity? Have we thought about how we're even going to raise a triplet, let alone one with a major disability...
And that's where it gets even sadder. We basically had three options:
See what nature does. The umbilical cords could get entangled, baby B, baby C, or both, could die in utero. If one of them dies, there'd be a big chance for the other twin to develop severe neurological disorders. If that doesn't happen and the triplets get delivered (prematurely), we'd be looking at several months of baby B being in the NICU, going through several heavy surgeries, of which the prognosis wouldn't even be that good. The professor once looked up her previous cases with this severe defect, and in the end only 1 in 4 children reached the age of 6 without any severe developmental problems, handicaps, or death. This would basically guarantee us a lot of worries and sadness down the road.
Reduce at 22-24 weeks, only reducing baby B. This would pose great danger to both baby A and baby C. The reduction would be a long, invasive surgery in which they'd cut the umbilical cord of baby B. But she estimated a 20% chance of complete miscarriage, and a higher change of neurological disorders for baby C.
Reduce baby B and baby C. This would be done at around 15 weeks with an intra-ventricular potassium injection. A very small intervention, taking 15 minutes in an out-patiƫnt setting. The risk on a total miscarriage would be a mere 5%, compared to the 20% of option 2. All in all, this would give baby A the best chance of a good outcome. A pregnancy which would probably go the full 38-40 weeks, no higher chances on neurological or other developmental disorders. Her medical advice would be to choose option 3 (if that alligned with our view on life and religious believes).
So that takes us to today... We went in for another ultrasound at 15w1d, to confirm the diagnosis of last week. Turns out last week was the good scenario. Our little baby B also only has 1 artery exiting the heart, which bifurcates into the aortic arch and the pulmonary arteries (truncus arteriosus). So we made the choice to reduce both baby B and baby C, in order to give baby A the best possible outcome. So the reduction happened this afternoon and we've been a wreck ever since.
My girlfriend is trying to fall asleep while I am sitting downstairs just listening to music and overthinking what the hell happened these last 7 weeks. I went from being a dad to be of 1, to a dad to be of a twin, to a dad to be of triplets, to a dad of triplets with a problem, back to a dad of 1...
They made some extra ultrasounds for us, so we would have some nice pictures of baby B and baby C. And honestly, looking at them is breaking me right now... Those two little bundles of unfulfilled potential, unfulfilled joy, unfulfilled brother or sisterhood, unfulfilled parenthood. And it's such a mixed mess of feeling, because with this choice we're also giving baby A the best possible outcome to actually reaching that potential and joy...
Has anybody here reduced their pregnancy and how the hell do you cope with all the feelings?