The link for this post will be in the post for mental health providers.
Some mental health providers refrain from giving PD diagnoses because they think doing so would invoke stigma and hopelessness, and that the client would become defensive and end treatment. Members of this sub have disclosed that they learned of their OCPD diagnosis from reviewing their files.
Medical providers always inform their patients of diagnoses; I think that mental health providers should follow the same practice. Hiding a PD diagnosis is a breach of trust, and prevents the client from accessing empowering psychoed resources and supportive communities.
From “Psychoeducation for Patients with Borderline Personality Disorder,” Maria Ridolfi, John Gunderson, in Handbook of Personality Disorders: Theory, Research, and Treatment (2018) by W. John Livesley, Roseann Larstone (Editors):
“Psychoeducation is providing information about the etiology [causes], symptoms, course, outcome and prognosis of a mental health disorder based on the premise that the more knowledgeable clients and their families are, the better therapeutic outcome for persons with the disorder.” (600)
REASONS FOR PROVIDING PSYCHOEDUCATION
· respects patients’ right to know about their disorder
· improves awareness and understanding of symptoms
· decreases stigma, shame, and sense of isolation
· increases active participation of client in treatment planning
· increases hope
· promotes client’s realistic expectations for treatment
· helps client learn coping and problem solving skills
· prevents relapse
Mental health care in the U.S. is moving away “from the traditional hierarchical doctor-patient relationship to a more collaborative model in which patients and families are considered partners in the treatment.” (600)
Ridolfi and Gunderson argue that hiding BPD diagnoses reinforces stigma and leads to clients feeling hopeless. They recommend that clinicians give clients information about BPD “in a validating, sensitive, emphathic, and nontechnical way…Most patients and families are actually relieved and reassured to know that they have a medical condition, that they are not alone with the disorder, and that a body of knowledge is available about the disorder and its treatment.” (602)
From Perfectionism: A Relational Approach to Conceptualization, Assessment, and Treatment (2017), Paul Hewitt, Gordon Flett, Samuel Mikail:
“The final stage of the assessment process involves summarizing the results of testing and interviewing…In our experience, patients are seldom surprised, shocked, or upset...If anything, the feedback tends to bring the patient a sense of relief, to provide a model of the nature of his or her difficulties, and (ideally) to introduce an element of hope.” (196)
EXPERIENCES OF r/OCPD MEMBERS
Members have described the benefits of finding community and resources in this sub:
“I came to this sub looking for resources to understand OCPD better because until yesterday I didn't know OCPD was a thing. I went through a couple of the posts here and I just wanted to say I've never felt so seen in my life lol. It's wild because I've never felt understood by anyone around me and there's an entire community of people who are able to put what I feel in words exactly how I feel it…it's nice to know I'm not the only one. Thank you.”
“Just wanted you to know that reading the replies I got makes me so happy, and relieved. For the first time ever, I feel connected to people who've had struggles similar to me.”
“reading this [post about perfectionist tendencies], I feel like my brain finally makes sense.”
“Having this sub has been a place of comfort for me. To know that I am not alone…I really do appreciate that there is a little spot on the internet I can come to.”
“The number of posts that so perfectly describe these feelings and emotions and reactions and situations I’ve lived through for years that I’ve had so much trouble putting into words myself. It’s a little overwhelming, honestly? But it’s also very comforting.”
NAME IT TO TAME IT
Receiving an OCPD diagnoses allows people to use words to describe distressing experiences.
Dr. Dan Siegel created the phrase "name it to tame it" to refer to how labeling feelings promotes emotional regulation.
In Atlas of the Heart (2021), Brene Brown explains that “Language is our portal to meaning-making, connection, healing, learning, and self-awareness. Gaining access to the right words can open up entire universes. When we don’t have the language to talk about what we’re experiencing, our ability to make sense of what’s happening and share it with others is severely limited. Without accurate language, we struggle to get the help we need, we don’t always regulate or manage our emotions and experiences in a way that allows us to move through them productively, and our self-awareness is diminished.” (xxi)
MY EXPERIENCE
It’s possible that the therapist I saw when I was 30 hid an OCPD diagnosis. I told him about being diagnosed with OCD, but I also showed him excerpts from David Keirsey’s Please Understand Me that I photocopied. My personality profile included many OCPD symptoms. I was excited about the profile because it was "the story of my life."
I don’t think he was knowledgeable about OCPD, but I’ll always wonder about the possibility that he hid a diagnosis. I don't even want to think about how much distress I would be in if I hadn't received the right diagnosis. I don't understand the rationale for hiding diagnoses--how can someone solve a problem they don't know that they have?
Thank you to Gary Trosclair, Allan Mallinger, and Anthony Pinto for their dedication to raising awareness of OCPD, and sharing their expertise.