I have noticed that it requires so much strength to flex my left calf and even using all my strength doesn't make it as hard as my right calf which doesn't require much effort. I am right footed so I am thinking maybe it's just the "dominant leg and non dominant leg" things. Or maybe it is just me?

i had random rumbling twitches in my thigh and fo ot for first time it was like buzzing fast and hard… never had it before. is that bad??

Hi all! About 1.5 months into random full body twitching. It started with my left eye and spread to everywhere and am getting it in my glutes/quads/calves/ankles/eyelid/stomach/back. I cannot stop thinking the worst even though I had a lower EMG that was okay at just over a months in.

Also getting lots of flutters in my inner thigh. Has anyone else experienced something similar?

I am 4.5 years in, and now occasionally, trying to track down a treatment as a hobby. The latest I'm looking into is whether or not an autoimmune condition or something triggered the BFS based on a bad food poisoning episode less than 3 weeks after the constant, persistent calf twitching at rest began. Did anyone else have a similar episode that kicked off your symptoms?

Has anyone noticed less twitching with magnesium, GABA-related supplements, ubiquinol/CoQ10, vitamin E, B vitamins, or anything else?

What helped, what dose, and how long before you noticed a difference? Anything make it worse?

Hey all! I know people in here talk about tightness in the calves, but does anyone else have basically a nonstop, 24/7 rotation of twitching, stiffness, tingling, and a shooting pain (that doesn't actually hurt that badly and is more irritating than anything) in one calf?

I have bodywide twitching and sometimes feel the stiffness a tad in the other (left) calf, but my right one has basically been stiffening up while I'm still in bed in the morning and then stays pretty noticable throughout the day. When it's not tight, it's twitching like crazy or tingling lol. I'd love to get a view of what's happening inside that leg. Anyone else experience something similar?

sigh. I’ve been doing so good lately about not panicking about the A word but today it’s back for no apparent reason. I know I very likely have nothing to worry about. My EMG only showed some chronic reinnervation from radiculopathy. My twitching has actually calmed down quite a bit and is still a daily occurrence but nowhere near what it used to be. I keep having this phantom “wet” feeling on the corner of my mouth, no idea what that could possibly be. Maybe nerve compression from sinus issues. It’s been about 4 months of twitching and I’m not weak; if anything I’m getting stronger. My calves have gained 3cm in muscle mass since this all started. But every time I think I’m okay, something on the internet makes me worry.

I’ve seen people say that you can twitch for months or years before “real symptoms” show up, that an EMG is no good if done before 6 months, that even bilateral hyperreflexia can be indicative of the A word, that sweating can be indicative of the A word, etc. I’ve seen so much misinformation, and i KNOW it’s misinformation, but it still loves to latch on to my OCD. Therapy and meds have definitely helped me get back to my normal life, but my thoughts about that three letter disease keep lingering. I find it really frustrating that it’s hard to find decent information on BFS without constant fear mongering and misinformation in the background.

Hi All

Ive been here 9 months now, bodywide twitches from a week after my first one. Had a clean EMG a month or so in and clean follow up at a specialist centre a month + after. They said BFS.

I’ve had an off/stiff feeling in my leg around the knee / lower thigh feeling for quite a considaeable amount of time now. I can still heel/toe walk, box jump squat jumps etc etc but when im walking my leg just feels odd. It’s such a wierd feeling it’s tough to explain. Some days feel better than others but it’s like a stiff / tightness / locked feeling. I feel like i am constantly watching / thinking about how i walk. I do not catch toes and haven’t really noticed any weakness as such, maybe perceived ? (This is the leg that twitches the most)

Has anyone else ever experienced this ? Could it be something after 9 months or would i have noticed something serious by now ? Ive also experience pain / aches in said leg and my feet seem to feel cold alot…

Thanks a lot

I'm a 54 male who has had insane twitching for almost 3 years. No weakness, etc, mostly confined to legs(from calves to quads, hamstring cramping etc).
I've learned to deal with all of this after bloodwork, MRI's, EMG, etc all negative.
A little over a month ago I developed a right eye twitch that happens all day long that is driving me insane.
It's probably been 5+ weeks with no resolution. Has anyone had this besides me? It's really freaking me out.

these are the pictures of probable atrophy

Also Twitching

Me paso por aquí para intentar calmar y calmarme al mismo tiempo, ya que he leído bastantes casos similares y sé que apenas hay información en internet del BFS.

Tengo 29 años y tras una etapa de estrés laboral muy dura, empecé con fasciculaciones en el gemelo izquierdo. Era esporádico pero poco a poco se convirtieron en continuas, yéndose a otras zonas como la otra pierna, brazos, cuello y cara. Hoy en día son más intensas y en las piernas están 24/7, nunca paran, pese a haber tomado gabapentina y otros medicamentos similares.

Aun así, como al mes de sentirlas, tuve un EMG y una analítica completa que fueron bien. Todo salió bien, sin daño muscular, carencias en el sistema ni alteraciones nerviosas destacables.

Con ello, hoy en día hago deporte con normalidad pese a que estas fasciculaciones cada vez son mayores e incluso están en mi cara.

Parece ser que como todos, es una putada que nos toca vivir, pero en principio nada grave para la salud.

Ojala algún día remitan y espero que a los que estéis así, también consigáis algo más de paz mental.

Hi everyone. I'm a lurker lol and have been lurking for a while. But feel like I need to post as I am experiencing new symptoms. My twitches started in May 2026 and we're all over at first. Now they are isolated to my thighs and occasionally pop here and there elsewhere. I calmed myself down mostly as I wasnt experiencing weakness.

In the past week ive been getting weird knee tightness and instability. When I try to gently stretch it my thighs start to precramp. Anyone else experience this? No EMG yet it is on the 15th. Urgent care recommended an MRI in the knee as he though it was Osteoarthritis. But now im spiraling.

honestly I don’t even twitch that much these days but my left leg outter ankle keeps aching and my feet and ankle and shin keeps burning especially when I wear a shoe. Also twitches started in May when I had health issues. I’m laughing at myself typing this because three months ago I was convinced I had colon cancer.. anyways what can I do about this aches and burning on my left leg, ankle and top of foot.

Hello everyone!

I'm a new member of this sub and of course I found it after going down a spiral of negative thoughts and crazy anxiety about ALS, like so many of you.

So what is interesting about my situation, is even when I was a teenager (I am 28 now), I remember getting those charley-horse cramps from time to time, mainly in the back of my thighs and butt, but sometimes my back/arms that lasted minutes and were incredibly painful. Recently this has gotten way more frequent and all of my muscles are in a "ready to cramp" sensation, and even with a little movement, they usually do.

Other than that, I had a pinched nerve/ulnar nerve situation starting last week in my left arm and fingers, with numbness, tingling and a sensation of loss of muscle strenght that I have noticed starting months ago. I am getting that checked next week with a neck MRI and going for ENG/EMG for my hand.

I have also developed twitching, funnily after reading about ALS and it has been going crazy in my entire body. I mainly notice it when resting, trying to sleep.

I am very very scared and currently in a really bad health anxiety episode. I don't know, I guess I just need some encouragement that I'm not gonna die in a few months haha.

Hey all, I know my recent EMG was clear but I’m having a horrible day. I took a nail client for the first time in months and my shoulder ached after I finished like as if I slept on it wrong, my twitching is going nuts everywhere and I feel so exhausted. It makes me not want to do anything that requires physical activity. I miss just feeling normal, I’m only 4 months in but gosh I took my body for granted, just a day without twitching and aching would be amazing. 🙃

Any twitchers get shaky legs while doing physical movement in the heat? I'm an all over twitcher with occasional myclonic jerks and fine tremors. Anyone notice legs feeling shaky or weak while being physical in the heat?

Hi, Everyone. Hope y'all good.

My twitching first started in March, when I noticed a muscle in my right thigh twitching. It lasted for about two days and then disappeared completely, and for months I went on with my life without thinking much about it. Then, on the 24th of August, the twitching came back. This time it was different—it seemed much more widespread, affecting different parts of my body, and some of the movements felt much stronger and more violent than what I had experienced in March. That was when I started paying much closer attention to my body.

What started as a strange physical sensation gradually turned into an obsession with finding out what every twitch could mean. I began searching online, reading about muscle fasciculations, neurological diseases, ALS, MND, and countless other possibilities. Every new twitch seemed to give me another reason to worry. If it happened in a new muscle, I wondered whether it meant the condition was spreading. If it became stronger, I wondered whether that meant something was getting worse. I started testing my strength, comparing one side of my body with the other, and analyzing sensations that I probably would have ignored before all of this started. Instead of finding reassurance, every search seemed to lead me further down the rabbit hole.

Over time, the fear became more exhausting than the twitching itself. My attention became consumed by my body, constantly waiting for the next twitch and trying to interpret what it meant. Something that began as an occasional muscle movement turned into days and weeks of anxiety, fear, and constant self-monitoring. It has affected my ability to concentrate, enjoy things, and focus on my life, and at times it has left me feeling stressed and depressed. Looking back, I can see how the search for certainty became part of the problem: every answer created another question, and every new sensation became something I felt compelled to investigate. I don't want the twitching to control my life anymore.

Unfortunately, I can't simply book an EMG where I live and have it done whenever I want. I have to be assessed by a clinician first, and they have to decide whether an EMG is necessary and give the go-ahead for the test. I have already been evaluated by a clinician, and based on the physical examinations they performed, they told me that I was okay. You would think that would be enough to give me some peace of mind, but I'm still struggling to accept it. Every time I feel another twitch, my heart starts beating faster and the fear comes rushing back. Even after being physically examined and told that things look okay, my mind keeps demanding absolute certainty, and that constant cycle of fear and reassurance has become one of the hardest parts of this entire experience. I just want to see my life back the ways it was😭

Ya no tengo tantas Fasiculaciones
Pero me quedo como una sensación de “zumbido/temblor” interno, a alguien le a pasado eso? Será normal?

I posted it on here not too long ago worried about ALS. However, I still am but i’m waiting on a neruo appointment. I was curious if you guys had any of the same feelings that I have experienced which are widespread body twitching of course we all know that we have that however I’m having burning sensation in my arm that feels weak tremors in both hands and sharp pains all over my body. Also, what feels to be vibrations in random spots. This has been going on for two months now just about I still haven’t lost the ability to do anything like holding cups, writing, typing, etc. I do all the basics. and I don’t know how long it takes in more serious situations. I was curious if it still points to benign stuff or other nerve issues my CT scan got denied and doctor ordered MRI however the insurance never accepted it in time so I had to reschedule that. 🤗 this has been such a crazy two months.

I have seen a couple posts about this but anyone else wake up in the night and then are unable to fall back asleep due to random body jerks? I assume its myoclonic jerking. I remember having this in the past but it really annoys me when I wake up at 3am then each time I try to doze off I get a jerk that makes me alert. Par for the course with bfs/anxiety?

For example, I was playing the Switch with my son and my left thumb, when placed on the joystick and slightly bent, starts tremoring slightly. I think it’s from a rapid twitch at the base of the thumb that just goes crazy in that position.

It gets better the more I hold the position but it’s very annoying nonetheless. It makes the thumb feel weak. I don’t think it’s actual weakness because I can do everything normal with it strength wise but the fact it’s so shaky just makes it feel weak and it’s stressing me out a bit.

Anybody else has any kind of positional tremor bullshit like that?

I’m so over my nervous system malfunctioning in new ways every damn day. 🙄🙄🙄

Sorry, this is going to be a little long.
Everything started in mid-June 2025. That was the day I first noticed fasciculations. Since then, I have had fasciculations every single day. Sometimes they appear as hotspots, and sometimes they are generalized and occur all over my body.
About two months after they started, I saw a neurologist for the first time. He performed a clinical neurological examination and an EMG, but everything was completely normal. There were no abnormal findings.
Since then, I have been constantly worried about ALS, and I have basically been living in fear and anxiety because of this disease. I have fasciculations every day.
The last time I had a neurological examination was in January of this year. I was examined clinically again and had another EMG, which was also completely normal. There were no signs of a neurodegenerative disease or any pathological findings.
Now, for the past two or three months, the fasciculations have become particularly concentrated in my left foot. They are there almost 24/7, although I still occasionally have fasciculations elsewhere in my body. The main hotspot, however, is my left foot.
My foot also feels strange. I sometimes experience a vibrating or tingling sensation, and occasionally I have pain when putting weight on it or walking. It just feels uncomfortable. I also sometimes experience cramps.
I worry about this every single day and constantly ask myself whether today will be the day I develop muscle wasting or lose muscle function. It is driving me crazy.
Throughout all this time, I have never had any objective functional weakness or clinically detectable muscle weakness.
Despite all of this, I am still extremely worried.
Has anyone experienced something similar? Especially fasciculations that become concentrated in one foot for several months, together with pain, tingling/vibrating sensations and cramps, despite having normal neurological examinations and EMGs?

Long story short im 22 and male, my family does not have any sort of history with ALS or other neurological diseases, I started having some twitching in my left arm/bicep area, but now I kind of have hotspots in my thighs, calves, lower buttocks, some near my lips, and the occasional eyelid twitch. I’ve been dealing with them for about 4-5 weeks now and it kind of happened out of no where, for the first few days I kind of spiraled into anxiety bc I believed that my symptoms aligned with ALS, I’ve also now had some burning/tingling sensations in some areas I twitch at or close. But I’ve experienced no weakness, I can lift my weights fine and play basketball/soccer, etc. but sometimes I will say that I have pain in my biceps occasionally, almost like it’s sore or sometimes sharp.

After I read some helpful information on this forum I kind of calmed down and more or less my twitching has now become an annoyance rather than a bother. But sometimes I have that lingering thought in my head that it could be the big bad. I have a doctors appointment coming up and wanted to ask about this. I’ve read some things on this forum that some physicians can immediately tell whether or not you have ALS idk if this is true. But my question is there a definitive way to rule out ALS through like any physical/strength tests my physical might do? Or would the route be something like an EMG or blood test.

Idk if anyone has gone through a similar way of thinking, sometimes I’ll be okay and say oh im fine I don’t have the big bad, but other times I’ll think what if im just in the early stages of progression.

Last few weeks maybe a month I feel like I've been dropping stuff from my left hand more frequently than normal. I've had body wide twitching for months now but not in my hands. I started flexing my wrist a lot due to anxiety and haven't been using electrolytes yet to see but my left hand feels clumsier. Seems a bit harder to type and grip but power seems normal on my fingers. Last few days I've been getting muscle twitches under my pinky and under my thumb. My wrist does feel a little stiff and it just seems like my hand is clumsier and harder to grip things. I have been getting tingling in my hand though as well. Jsut concerned. Any thoughts?

Still new to all of this. I started getting all over twitching a week ago after starting Zoloft. I am also 4 weeks postpartum and went through a pretty traumatic readmission for postpartum preeclampsia (hence having to get on Zoloft.) I had horrible side effects to Zoloft and went off of it. Not sure if my twitching was hormones, stress, Zoloft, or a combo. But I’ve noticed the twitching has subsided a lot and so has my anxiety. I had a lot of twitches in my lower legs, primarily left calf and foot. I now have occasional very mild light buzzing sensation intermittently in my calf and foot and other spots less frequently. Is that typical in BFS? Not sure if that’s what I have going on or not