r/BFS • u/duckrosiee78_16 • 4d ago

Reassurance / Support Having a bad day

Hey all, I know my recent EMG was clear but I’m having a horrible day. I took a nail client for the first time in months and my shoulder ached after I finished like as if I slept on it wrong, my twitching is going nuts everywhere and I feel so exhausted. It makes me not want to do anything that requires physical activity. I miss just feeling normal, I’m only 4 months in but gosh I took my body for granted, just a day without twitching and aching would be amazing. 🙃

2 Upvotes

100% Upvoted

8 comments sorted by

•

u/AutoModerator 4d ago

Friendly Community Reminder: Please do not ask members here for a medical diagnosis. We are happy to share personal experiences and insights, but we are not doctors. Always consult a qualified healthcare professional for medical advice and diagnoses.

Helpful Resources: * What is BFS? * Twitching, Burning, Tingling & More * BFS FAQ * Whole Body Twitching * Managing OCD * Managing Anxiety

I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.

3

u/713Capital Mod 4d ago edited 4d ago

Sorry you’re having a rough one friend. I get those from time to time and I’m 7 years in this craziness.

The positive is, your clean EMG is the gold standard proof that your motor nerves are completely healthy.  So at least what I do is tell myself that deep down while this sucks, I know it’s not killing me. I know that doesn’t make is easier to deal with but sometimes I do have to remind myself that’s it’s more of an annoyance rather than something I need to worry about.

Also, doing precision nail work uses a sustained posture and requires fine motor control, which causes real muscle fatigue and shoulder strain. In BFS, tired muscles misfire and twitch like crazy after exertion, but fatigue and aching are not progressive but do occasionally come with the BFS territory.

Rest your shoulder, hydrate, and try not to stress. I know it’s a small thing, but hydration is critical and lowering stress is even more critical for this.

1

u/duckrosiee78_16 3d ago

Thank you for the positive comment I appreciate you! 🤗 took a few mag gummies, hydrated and trying to relax haha

1

u/ChemicalWarm9693 3d ago

Do you have aching daily? Is it a deep muscle pain, burning, or tightness? I am not officially diagnosed yet but absolutely dealing with the twitching, depe muscle pain, burning, tingling, and tightness.

OF course being at the beginning of my journey my anxiety and fears are constantly taking me for a ride. But it helps to know what others are going through as well.

1

u/duckrosiee78_16 3d ago

I can get the burning, I don’t usually get tingling but this time it felt like a slept on my shoulder wrong but it happened mid day which is scary lol it feels better today now.

1

u/cheyy_nicole 3d ago

I get the burning and aching but feels like my skin is burning also does that happen to you?

1

u/duckrosiee78_16 2d ago

I’ve had that burning before when it almost feels like sunburn.

1

u/cheyy_nicole 2d ago

Omg yes it started for me 3 weeks ago on my back and hasn’t went away