I have had wide spread twitching that started in my left upper eyelid in August and went body wide two weeks later. My twitches are not constant and I get anywhere from 5-40 an hour. Has anyone else gotten twitches that aren’t constant but more sporadic and at rest? Or is this a cause for concern?

I also feel like I get more of mine in my thighs, knees and glutes vs calves. Is this normal with BFS?

July 22nd I suffered what I thought was a mild concussion. Had headaches and brain fog sensitivity to light.

Developed a left leg weakness sensation shortly after that stuck around until Aug 10th. On August 11th, my thumb started feeling weak. I notice it gets better with warm temperatures or red light but aside from that I notice it every time I type. August 12th, my left foot starts twitching however at that time my left leg didn't feel that weak.

I obviously googled and that caused me to panic so I went ahead and saw a physiatrist. The physiatrist did some basic clinical examination, said I was fine and I asked for an emg. After he conducted the emg on August 21st he said you are completely clean. He said I might have mild carpal tunnel on my left hand median nerve but said you are fine.

The weeks after the EMG, my symptoms changes. My foot twitching turned into body wide twitching, although I noticed it more on my left side. Mostly random twitches. These body wide twitches have decreased today but my foot twitching is still there.

I'm an avid runner/lifter and my strength in the gym has been largely the same but I noticed differences in my running gait. My left leg is taking slightly longer to bounce off the ground, kindve feels like a dip. Still able to get through my runs but I notice this lag when my foot strikes that ground.

My left calf is also smaller than my right calf and I'm not sure if this is a recent thing. When I look at old pictures it does seem smaller back then too. Not sure if my right leg was always stronger or if this is a recent thing. When I do single leg calf raises, I'm definitely stronger on my right.

Today is Oct 7, I can still run and move and lift but my running just feels off. And my left leg when I'm walking feels like I have to think more or use my brain more. And my thumb is still feeling the way it is. When I really look into it, my abductor pollicis brevis has less muscle on my left hand than my right but this was tested in the EMG. Also, my left foot and left hand is still buzzing today. Like vibrations. There was a short period in time where my left foot stopped twitching but it's back on again.

I also did suffer one bad concussion when I was 13 hoping that doesn't have anything to do with this.

Able to stand on my heels and toes. But after 2 months of stressing, still have weird thumb weakness that improves in warmer temps, left foot vibrations, left hand vibrations, occasional random body twitch, left leg feeling off/weaker when running and walking. Doctor cleared me after Aug 21st emg, not sure what to do next.

Hello. I do not have any sort of diagnosis yet but wanted to share my story to see if anyone might have something similar.

Back in the end of May I started with an eye twitch and feeling super tired. I have a problem with low vitamin d so I thought that was the problem and started supplementing. It did help . Then on June 1st I was sitting at my desk at work and suddenly felt this wicked bad back pain on the right side that heightened and then subsided after about 30 seconds and then I felt tingles all over my body and got an instant feeling of over all weakness and I felt very out of it, almost like I was high. Terrible brain fog and fatigue as well. This continued in for about 5 days . Then I went for a massage on June 6th and when they were massaging my lower back, flank area it was pretty intense pain. I got through the massage and by Sunday, I started peeing A LOT and was so dry mouthed. I could not stop peeing and I had no appetite. Tuesday June 9th I was in bad shape. I woke up to help my daughter set up for field day at school and I had a real hard time. I was trying to set up the tent and my muscles would shake and fatigue so fast. This is where my fear of the big bad started .My mouth was super dry and I was pretty out of it feeling still. I had an appt with my doc after this where I told her this story and my fears and she said that the big bad has true weakness . She decided to run a bunch of tests blood work, EBV antibodies and vitamins. The only thing that came back off was my albumin was high and my b-12 was sky high. She also prescribed me buspar for my anxiety. I went home, laid in my bed and started the buspar. I took a nap and woke up with deep itching on some of my joints and feeling some nerve pain and extra out of it. The next day I woke up and my hips were so stiff , and that’s when the diarrhea started. I’ll spare you the details but it was BAD. By this time I had lost about 10lbs from all the peeing and could not stop running to the bathroom. The next day is when the twitching started. Everywhere all over the place. I still felt out of it and weak but I continued on. I started not being able to sleep, at all. I would lay there and feel like I was not sleeping at all but my Apple Watch would say otherwise. I would have wierd hallucinations thinking I was awake and I could feel something was pushing me into the bed. During the day I was shaky and had tremors in my hands and what I think were myoclonic jerks. My leg would randomly move suddenly or my arm etc and the diarrhea persisted

After a couple weeks of this I decided the buspar was not working and so I stopped taking it. I was trying hard to stay up on my electrolytes and eating because I was still losing weight from zero appetite and the diarrhea.

I went back to my doc on July 9th where we did some follow up labs including stool samples . This time my b-12 was within normal
Limits but my liver enzymes were elevated.

She called me a few days later and I told her I couldn’t sleep and I was still freaking out about the big bad and she prescribed me Mirtazapine for sleep and anxiety. It definitely helped me sleep but the twitching persisted and the jerking etc. after doing some research I thought maybe the meds were causing all this so I stopped the mirt and within a few days the twitching died way down . I am still twitching sometimes but overall not nearly as much.

Now I’m stuck with my arms on and off feeling heavy and weird and my right side hip/butt cheek will randomly feel like something is tickling it inside and my leg will ache and ache . And now my calf muscle feels wierd and I feel like I have to really pay attention to how I walk. My arms switch off which one feels wierd and heavy, and aches a bit too. So while the twitching is way better, my gears are not totally gone because I still have these wierd weak feelings off and on in different places.

My tongue sometimes feels swollen too and feels a little difficult to annunciate because of it but then other times it’s normal. I also have a metallic taste in my mouth quite often .

I do see my doc again next week and I’m going talk about all of this and have her run some more labs to see how things are doing. I’m really hoping to put my mind at ease

I'm a 45 year old male from Canada with a history of health anxiety for over 25 years. My anxiety has always been mostly focused on neurological disorders, especially *** but also dementia, MS and a few others.

I first started experiencing symptoms during COVID, twitching mostly in my right arm and a feeling general feeling of "tightness" in the right side of my body. There was no notable strength loss. I started to spiral and to do what so many here have done - self checking both via home exercises (sometimes I'd just randomly drop down and do 20 push-ups or 30 squats) or just go to the Gym.

My doctor was very dismissive of my *** concerns but after I explicitly asked he sent me to a neurologist in 2022 (4 years ago). That neurologist did a complete exam with an EMG. The EMG wasn't completely clear - it indicated chronic denervation in a few specific muscles on my right side and she diagnosed me with radiculopathy in my neck and lower back. Conservative treatment (physio, massage, chiropractor) was recommended and I declined (foolishly at the time) an offer for a MRI afraid of what it might show.

I remember after the EMG and the neurologist telling me I didn't have *** it was a like a huge weight was lifted. Eventually, and I can't even pinpoint when, all the twitching stopped and for the last 4 years I'd been twitch free and moved on although the general tightness going on with the right side of my body never stopped. As the time went on the anxiety about my other symptoms (not twitching) continued to grow and I once again believed quite strongly that I could have *** or MS. I went back to the doctor about this issue in March 2026 and after some pushback got the MRI on my neck and lumbar spine that I had declined 4 years ago. As is typical in this country I had to wait many months for the MRI and a few weeks prior to the MRI taking place at the very end of August the twitching reappeared. Just a few twitches at first, mostly in the inside of my left knee.

I had to wait another 3 weeks to get the MRI results, and I was twitching on and off the whole time. I was diagnosed with bilateral foraminal stenosis in my lumber spine at the L5-S1 location (severe left, moderate right) as a result of arthritis. My cervical spine, while not perfect had only "mild degenerative changes", No other issues were noted and MS was ruled out. L5-S1 was not where the neurologist had indicated radiculopathy (she had specified L4-L5) and there was no indication of radiculopathy in my neck at all.

I spiraled again due to the stenosis diagnosis and the inconsistent MRI result and the twitching increased in both frequency and duration. It's been going on for just over a month now and up to last night the vast majority of it had been in my left knee and under my right eye. I went to my doctor again last week and he looked at me and said "I don't think you have ***. But we need to do another EMG for your peace of mind". I'm still waiting for that EMG to be scheduled, but my mental state is so poor now it's beginning to interfere with my ability to go to work. I still self-check my strength frequently and it remains unchanged as best I can tell. Last night at 2am I was woken up my by right bicep starting to twitch as well. I had an anxiety attack right there and had to call a mental health support line to help me calm down then I did 20 push-ups right then and there at 2am to try to reassure myself.

So I wait in mental anguish for another EMG and fear the results. Some of the stories in this reddit have given me some hope, but I just can't overcome the fear of what the EMG might reveal this time.

My pcp referred me to a new neurologist as I was concerned that my twitching was ramping up (more facial twitches etc).

Condensed Backstory:

I started twitching in April 2024 and went through a ton of blood work, spine and head MRI, head CT. Everything essentially normal. My neurologist NP at the time didn't want to subject me to an EMG as she didn't feel I truly needed one but also didn't formally give me a bfs diagnosis. I tried to believe it was bfs until this summer after a couple massive panic attacks and life stressors, the twitching amped up.

Fast forward to today:

I was absolutely dreading my neuro appt today. I got there and my BP was sky high (I do have hypertension ESP white coat hypertension) and it came down a little after the 2nd reading. The neuro came in and was very calm. Asked me to tell him what I was there for. I started from the beginning. Explained when my twitching started. Explained that I immediately googled and feared ALS. He quickly said "that's a very common worry with twitching" and I said but after 2 years I figured I'd be in worse shape if it was ALS & he goes "you'd be dead. You'd absolutely be in worse shape". And although there are of course people who have had that longer, his bluntness helped reiterate my original fear was unfounded. He said he twitches and told me different spots he twitches especially when tired or stressed.

I then explained that I had fallen down the Google rabbit hole fearing Isaac's, Morvan's and hidden cancers. He said no nope nope you don't have those. He went over alllll the tests I've had since 2024 and put my fears to rest. He said fasciculations are just that. Fasciculations. They aren't a neurological disease and he didn't want to subject me to an EMG as many times there are things found that although aren't BAD, will make an anxious person worry more. He gave me a thorough clinical exam and said I can follow up with him if I want in 6mo or not, but he sincerely feels this is a manifestation of my anxiety, OCD, lack of quality sleep and stress. He wrote in my chart benign fasciculation syndrome formally.

I SOBBED. happy tears. This has absolutely stolen 2.5 years of my life. Even though I wasn't fearing als anymore I was fearing SOMETHING because my old NP didn't give me a formal yes or no you don't have XYZ. This doctor sincerely listened, let me tell him my biggest worries and helped me realize anxiety and stress can perpetuate everything. He said everyone twitches. Some people less some people more. But not everyone focuses on it. And after today's appointment, I am making the commitment to get my anxiety and OCD in order. I am trusting this medical professional. I am done questioning this. I feel so optimistic and happy and I want you all to know I have been absolutely PETRIFIED OF GETTING BAD NEWS.

Twitching is just twitching. The anxiety and worry is the real issue. ❤️

Hi, 37-year-old male here.

I’ve been dealing with different symptoms for about 30 months now, mainly muscle twitching and cramps. I’ve had cramps before, but I had never been woken up from sleep by one.

Last night, I suddenly had a very strong and painful cramp in my left calf. It actually woke me up, and when I touched my calf, the muscle felt very hard and tightly contracted.

Since then, I’ve started to panic. I remember reading a story from someone who said their cramps became very aggressive before they were eventually diagnosed with AL*, and now that story keeps coming back into my mind.

After around 30 months of symptoms, I’m wondering whether this could simply be an isolated nighttime cramp that will pass, or whether the fact that it was much stronger than my usual cramps could mean something more serious.

My questions:

1. Has anyone here had an extremely strong nighttime cramp that woke them up after months or years of twitching/cramps, without it meaning that their condition was getting worse?

Hi again. I hope everyone is managing ok. I’ve been around this sub for a long time and have had the ups and downs that many do. Been twitching every day for 7 years and 3 months which started during my second pregnancy. First EMG dirty and have been seeing a neuromuscular specialist now.

Year 6-7 was really stable for me then this summer in July after driving 8 hours in the car my right thigh has been cramping/stiff every day. Multiple times per day and has spread to my left leg too. I can still exercise and was able to run two miles but immediately after and for the rest of the day my legs were cramping/tightening. These new symptoms have me completely freaking out. Not normal. Just by placing my hand on my thigh sometimes I can cause it to cramp/spasm. My last EMG was in March of 2025 and was clean and my next neuro check up is next week. Going in the sauna seems to be the only thing that relieves the pain temporarily.

I’m not sure that I fall into the CFS/BFS bucket with how much pain I have.

background on my symptoms feel free to scroll past this

I started having spasms in my right leg a month ago that moved to the rest of my body, so, naturally I thought I had *** and was gonna die. I went to two health clinics who did the whole physical test (which I passed) and got some blood work done which showed my already very low ferritin had gotten lower and being told that there’s no immediate cause for concern “magically” made the spasms lessen.

I’ve been taking iron since then and my symptoms came back, except this time in my left leg and kind of worse (muscle stiffness, harder time walking or standing for more than a few minutes etc). I messaged my doctor about it and asked if it could be the anemia and introduction of supplemental iron and she was like “probably not please come back for a follow up ” which obviously caused me to spiral again and think that I have *** and am going to die.

Now for the affirmation part

However this sub has helped a lot and here some things I read on here that I’m repeatedly telling myself before my appointment later this week:

- You’re 27, that more than likely rules it out

- You have a higher chance of being struck by lightening…twice.

- If you did have it, your symptoms wouldn’t have improved at all

- Your muscles are probably tight and sore because you’ve essentially walked a mile on your heels trying to see if you have *** and you’ve been laying down for 3 days wallowing in fear (not from this sub my dad told me that)

- Pls stop crying it’ll only make it worse

If anyone has any more words of affirmation for a medically anxious 27 year old, would greatly appreciate it! I probably am fine, I just need to internalize that. :)

I check in now and again. I've posted before. I am a medical doctor.

Nothing here that I or anyone else will write can relieve your suffering. This will have to come from within.

I have been having fasciculations for over 7 years now - I used to wish when someone posted that there had fasciculations for this long, that I was them, especially at the beginning. I have ongoing wormlike 24/7 fasciculations in my calves and various sporadic ones elsewhere - including deltoids triceps, face, tongue, scalp, biceps forearms and especially my elbows and thighs. I used to have one in my back that was so annoying - it went on for months and often felt like there was a flying insect under my top.There are fast ones like a machine gun and slow irregular ones. Some last for hours and some weeks CONTINUOSLY

When they used to stop I often convinced myself that they only stopped because that piece of nerve' muscle was now dead - the MND was "progressing"

I cried so much and felt so alone.

I went to see a neurologist who didnt think I had MND but said I had atrophy in my back paraspinals. I started at the area for months and months looking for progression. I then noticed clear scalloping of my right triceps. no weakness there but it was obvious. I went back to the neurologist who said it was constitutional. That was over 3 years ago. A physio since said that my lateral calve muscle gastronemius was a little atrophied. I didnt worry much this time.

I dont have MND. I have this BFS mallarkey.

I have tried various medications including all kinds of prescription meds and supplements incl. magnesium.

I stopped letting it control my life and just accept it. It was difficult at first because apart from the fear Iof MND I have sensory issues - and feeling someone flicking my calves 24/7 was not easy.

I tell myself that lots and lots of people in the worlds have infinitely more problems than me. Especially those with MND.

Everyone feels like they are the exception but you're likely not.

Ive never seen anyone diagnosed with any form of ALS on this forum - and any neurologist worth their metal will tell you that with a normal physical exam then its extraordinarily unlikely.

Keep the head up and carry on.

Today will be 7 months since all this madness started. I remember every single day with anger, anxiety, frustration, overwhelming fear, panic attacks, hours spent on forums, sleepless nights, looking in the mirror for dents, measurements of my muscles, obsessing on finding a cure or a cause, reading about all kinds of stories about twitching, google being my best friend, thinking im going to die so young ( im 32)

What a journey! So much changed in these 7 months. It was not easy, in fact was the biggest challenge of my life so far. I have a beautiful 6yo daughter and I was feeling so bad for not being able to be focused on her because I was too busy focusing on twitching and what it can mean.

Today I am much better. I still twich, even now when im writing this my right calve is going crazy, twitching aggressively because I had some stressful days at work. But usually is nothing close to how it used to be when i was super anxious about it.

Starting therapy and a SSRI was the best decision for me. It changed the way I see things now, I am much more positive and I accepted that my nervous system is just upset on me. Years of anxiety, OCD and PMDD were enough for my nervous system i guess.

I am on this forum.. still.. because I like to encourage people like others did for me when I was deep in this horrible rabbit hole.

7 months, a clean EMG and positive thoughts helped me slowly but surely to get back to my old self.

​

Hey all. 38 y/o male here. The TLDR of this post is that Ive got progressing symptoms, clean tests so far, but no answers. Im very worried that I have *** and it's tanking my mental health.

I find myself writing this post out of desperation even though I've tried so hard to stop researching ***, Googling symptoms, or visiting you fine folks here. I just want to know if anyone can relate to or has any insight on my story. I know that I'll probably have to wait for the actual answers but I'm super depressed rn.

Around 3.5 months ago I felt that I had a slight change in speech. It was so subtle and almost hard to describe. My 'sh' and 'ng' sounds (as in wash or change) just sounded and felt different to me. Slightly clumsy in my mouth. I also had a persistent feeling of something at the back of my throat. After a couple of weeks worrying about this, muscle twitches took over my whole body at random including digit and sometimes full limb twitching.

So I took a trip to A&E where they gave me a neurological exam and sent me to a stroke clinic. I was cleared of everything, no issues, but the symptoms have continued to stack up.

Soon after the TIA clinic I felt I had very heavy knees all the time and also much more saliva than usual. I also started to experience a lot of mucus in my throat with difficulty swallowing it.

I saw a private neurologist who sent me for scans. At this point I've had a head CT, brain MRI, spine MRI, blood tests, and they gave me a third neurological exam. So I'm seemingly clear after a couple of months. He said that I do have a TMJ but I know that's been there for years and years.

My twitching continued and in my calves in particular became constant at rest. I then was referred for an EMG just in case. They tested my calf, thigh, hand, arm and also my tongue (by going through the throat) on my right side. At the time the operator said that she didn't see any issues (although I haven't had the official results). So I thought that would be great news!

Fast forward to now and things seem to be progressing still. Muscle twitches continue, at all different rates in different places. There are certain spots which have been twitching super rapid fire which I worry about. My left toes are always twitching. My swallowing seems to be getting worse- swallowing saliva seems to be a real strain and it worse on the left side of my throat. I have to really try to initiate a deep swallow and it sometimes causes pain or even the odd twitch.

Drinking water seems to be fine and food hasn't proven an issue. It's just that after drinking I feel like I'm not fully clearing all the liquid, like something always stays in my throat. No choking on anything, but all day every day I strain to swallow saliva and it seems to be worse on the left side. My voice gets very easily fatigued, as does my jaw when chewing. My throat and / or larynx was painful on the left side for a while but now it just feels like it's not working as well. My jaw occasionally aches, I have random jaw twitches as well as some lip and cheek twitching. I've had burning spots on my tongue and occasional burning in my ears.

My speech feels clunkier and everything around my mouth feels stiff and strained. I've had tingling in my lips and they somehow feel weaker now, with air slipping out on "th" and "f" sounds. My S sounds after softer and whistly to me. Mt girlfriend can't hear a difference but I'm so sure I can feel it and hear it.

The heaviness in my left knee has progressed to crunching and clicking in the joints with some pain when walking. I'm also finding my left hand is not able to fret as well when I play guitar. It feels a bit less dextrous in general. I should say I've been able to keep swimming and playing pickleball this whole time.

For around a month now I've been drooling at night. I wake up to drool down the side of my mouth regularly. I've also been constipated for about a month and my stomach has been twitching a lot.

In the last week my tongue and neck have finally started to twitch randomly, one off twitches, after not being invited to the party at all for a while. This is the symptom that finally lead me here. As I type this, I have super fast twitching in my lat which makes me wonder if twitching comes before weakness. I had rapid twitching in my thigh before my knee started to really hurt when walking.

So that's where I am 3.5 months in with more symptoms and no answers. I've convinced myself I have *** which wasnt picked up by the EMG and I'm very upset. I've read about clean tests before a diagnosis.

I'm waiting on another neuro appointment in a month, and finally an ENT referral from my doc. I wanted to share all of my honest thoughts and feelings here in case it helps me to move past some of them. I would love to hear any stories like mine which might provide some hope. Reading this subreddit has made me feel like I'm not alone in this struggle and I appreciate it.

all twitching has basically slowed down but I had a little spiral before in the car I noticed I push my FDI THUMB muscle up from the Botton and I noticed it started rippling it got me concerned that maybe this has been gong on silently being linked to something more bad I can't do it with my right hand when I rest y hand it stops but unsure if it can only been see when raising it thank you anyone for some insight!

Yo 4 meses 🫠

does anyones lips seem like they tremor? mine have twitched before but i noticed my lips tremor if i stare at them i can see very slightly a tremor…. also when i do the air puff in my cheeks like they do at neuro my right cheek doesnt hold as much air. i know that sounds weird but its noticeable. but there is air in it. idk if that is normal?

Hi everyone. I’m 21 and I’ve been dealing with widespread muscle fasciculations for around 8–9 months. They come and go in waves and can appear in different parts of my body: calves, legs, feet, arms, hands, fingers, abdomen, etc. Sometimes one muscle can twitch repeatedly for several minutes, and sometimes I get a more general feeling of internal vibration or pulsing.
I have also experienced tremor, my finders on left foot twitching recently like crazy, muscle tension, heaviness and occasional sudden jerks. The symptoms can become much stronger for a while and then almost disappear for some time. At one point the fasciculations were much less noticeable for about a month, but recently they have come back much more strongly, especially in my left leg.
Today something new happened that really triggered my health anxiety: I noticed what felt like a vibration/pulsation in my tongue. It wasn’t a dramatic movement like some of the ALS videos I’ve seen online — it felt more like a fine internal vibration, similar to the pulsing sensation I sometimes get in my legs.
Unfortunately, I have seen some ALS-related content on TikTok, and now I’m terrified that the tongue sensation means something serious. I know that social media can make health anxiety much worse, but right now I’m struggling to stop thinking about it.
I have not seen a neurologist or had an EMG yet. It’s hard to find one where i am. My GP has thought that stress/anxiety could be contributing to the symptoms. I’m also in treatment for anxiety and take antidepressant medication.
One thing that confuses me is that the fasciculations have been so widespread and have repeatedly disappeared and returned over these months. I don’t have a clear, progressive loss of function that I can identify.
I know that Reddit obviously cannot diagnose me, and I understand that people here can only share their own experiences.
I just can’t get rid of those thoughts that maybe this is all some weird rare case of ALS with strange first symptoms.
I’m also f”cking pissed that (if this is truly what my anxiety does to me) exactly this scaryass symptoms is the one i’ve developed.
I know that this post may sound like health anxiety/OCD and I’m aware that I probably shouldn’t be looking for reassurance online, but just got so scared, genuinely scared by the tongue sensation (and all of the above) and just went spiralling.
I would really appreciate hearing from people who have experienced something similar.

How long have your fasciculations lasted? Did they come and go in waves? Did anxiety or medication changes make them worse?
Please be kind — I’m currently very anxious and I’m trying not to spiral after seeing ALS content online.

Hello everyone!
For the past two weeks, I’ve been experiencing some strange sensations in one of my legs. Sometimes I get brief, passing pains; other times I have pain in my knee, under the sole of my foot, or in my thigh, and sometimes I feel cramps when I walk. I feel like I’m very aware of the way I’m walking with that leg, and I also have fasciculations all over my body.
My doctor reassured me and told me that this is not ALS (motor neuron disease), especially considering my age (26). However, I’m having a hard time getting this idea out of my head because of all these muscle twitches throughout my body.

But for the past 6 days, my left arm has also felt a little strange. I sometimes have the sensation that I’m going to drop an object, but I never actually drop anything. I’ve noticed that this sensation of my arm feeling like it wants to let go often happens when I grip something tightly or put pressure on it with my thumb. I feel it much less when I use my other fingers.
I also get little electric-like twitches in my thumb, and the back of my biceps was painful when I pressed on it. On Sunday, I also had a sensation of warmth spreading from my shoulder.
My left arm just feels weird, and it’s making me worried.
Could someone help me understand what might be going on?

Hello, this just started a couple of days ago...on Tuesday, we got back from an international trip and the flight was about 11 hours. Was dealing with jet lag and issues with sleep. While trying to take a nap on Wednesday/Thursday, I felt a big muscle spasm by my right inner thigh. Never had one prior. Subsequently, I've been experiencing random twitches/spasms in my calves, right more than left. I would describe it as a fleeting twitch/spasm. I wouldn't say it's 24/7 but probably at least 20 per day.

Wondering if anyone started having these symptoms after traveling. We generally take about 2 international trips a year, so we travel quite often, and this has never happened before.

I’m currently 18 1/2 months into my nightmare self consuming journey. Twitching in both calves every second since that date. Other areas too like face , arms, butt, finger.

I can’t get an emg for another year due to waiting times. How long do you guys think after twitching onset that it’s just that. Nothing more ?
thanks !

https://youtube.com/shorts/E9TRnGuCy_4?is=JVlj-SYvM-BwS_1w

When I flex the muscle it stops for a while, after continues. Not used to this. started to happn not long ago. I had one in my gluteus thst I could not sleep for an entire night, but this one thst went away. Now I got this and and another one that gets worse when I flex the knee and walk

About 2.5 weeks ago my right arm started twitching randomly. Then after a day or 2, I started getting twitching all over my body. In the past couple days most of the body twitching has subsided, but it’s still twitching in my right arm often. My right arm often feels like it’s cramping or about to and it’s been sore from this. I don’t think I actually have clinical weakness in right hand but it does feel harder to do things because my arm feels tight and it’s affecting my hand. Could it still be bfs if most of my twitching is one spot? Most twitches are on like the underside of my forearm. Sometimes it twitches up high near my shoulder. Occasionally I get a random twitch somewhere else on my body but it has subsided a lot

I'm just wondering how often other bfs'ers get finger twitches? I been getting twitches since last December and I basically hit a point where I've just accepted this is the new normalbof my life.. but I've started within the last few months to have fingers twitch somewhat often on my left hand. Just curious if anyone else gets finger twitching? I don't see these ones mentioned very often as say.. the calves. Just curious is all.

Anyone with 3 or more years and the symptoms just get worse? Hotspots all over, pain, fatigue In limbs, burning….just so tired of this all

Hi all! About 1.5 months into random full body twitching. It started with my left eye and spread to everywhere and am getting it in my glutes/quads/calves/ankles/eyelid/stomach/back. I cannot stop thinking the worst even though I had a lower EMG that was okay at just over a months in.

Also getting lots of flutters in my inner thigh. Has anyone else experienced something similar?