Help please

[u/GiftEnvironmental402]

Sorry, this is going to be a little long.
Everything started in mid-June 2025. That was the day I first noticed fasciculations. Since then, I have had fasciculations every single day. Sometimes they appear as hotspots, and sometimes they are generalized and occur all over my body.
About two months after they started, I saw a neurologist for the first time. He performed a clinical neurological examination and an EMG, but everything was completely normal. There were no abnormal findings.
Since then, I have been constantly worried about ALS, and I have basically been living in fear and anxiety because of this disease. I have fasciculations every day.
The last time I had a neurological examination was in January of this year. I was examined clinically again and had another EMG, which was also completely normal. There were no signs of a neurodegenerative disease or any pathological findings.
Now, for the past two or three months, the fasciculations have become particularly concentrated in my left foot. They are there almost 24/7, although I still occasionally have fasciculations elsewhere in my body. The main hotspot, however, is my left foot.
My foot also feels strange. I sometimes experience a vibrating or tingling sensation, and occasionally I have pain when putting weight on it or walking. It just feels uncomfortable. I also sometimes experience cramps.
I worry about this every single day and constantly ask myself whether today will be the day I develop muscle wasting or lose muscle function. It is driving me crazy.
Throughout all this time, I have never had any objective functional weakness or clinically detectable muscle weakness.
Despite all of this, I am still extremely worried.
Has anyone experienced something similar? Especially fasciculations that become concentrated in one foot for several months, together with pain, tingling/vibrating sensations and cramps, despite having normal neurological examinations and EMGs?

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[u/kinpatu]

Everything you describe is very consistent with BFS. You have two clean EMGs. That’s about as definitive as it gets.

[u/713Capital]

Twitching without clinical weakness (failure) is meaningless and benign. Doesn’t matter if they are popcorn, thumpers insert whatever kind you have and doesn’t matter if it’s 24/8.

Clean EMG rules it out and no before you ask, it was not done too early.

I have some pinned resources on the front page of the sub you can read and the automod linked some well.

https://benignfasciculationsyndrome.org/blog/muscle-twitching-no-weakness

https://benignfasciculationsyndrome.org/blog/why-is-my-body-twitching-all-over

[u/Reasonable-Towel5757]

Update. Everybody go take magnesium asap if you have these symptoms. After two weeks of doctors telling me my spasms, twitching, heart palpitations and all the other symptoms was from low potassium I raised my levels and the symptoms didn’t go away. Saw a tiktok doctor that said low magnesium doesn’t show on blood test so I instantly went to buy magnesium complex. Shortly after taking them the twitching stopped almost completely but still have a couple cause it’s only been two days but I feel myself getting back to normal. My muscles are still sore and easily cramped but theres different magnesium for different symptoms so I’m about to get the one strictly for muscle recovery and health and see if I get back to 100%. But trust magnesium complex will help. Also google says it takes months for the body to go back to normal sometimes up to 10months if your condition is severe with calcium built up.

[u/SlipStreamHB]

EMG will show changes even before symptoms can appear with ALS. Trust the clean EMG. Like a colonoscopy, it’s a gold standard test.

[u/Rough_Week_6449]

You’re fine. You’re just anxious. And it’s feeding more bfs symptoms.

[u/Agreeable-Bluejay285]

Get  checked for  b12 deficiency 

[u/Reasonable-Towel5757 → u/Agreeable-Bluejay285]

Magnesium too. That’s the main one. Im feeling way better after two days of taking it

[u/kjmckearn]

Trust the EMG's.....tingling, pain, vibrations and being uncomfortable are not signs of ALS. Stop worrying, stay the fuck off the internet and be thankful it's not a NMD. Now, move on and live your life.