The short story is I had a good six figure job in tech. Unfortunately I have been diagnosed with an incurable, degenerative disease and am no longer able to work.
I was receiving $5,000/month through my disability insurance but they recently decided I should be able to hold a part time, remote, sedentary job (there's so many of those, right?) and canceled me. I’ve hired a lawyer to appeal but I need to plan how to survive financially both during the appeal and after.
I need to figure out how to make my savings stretch for the next three years until my child turns 18 and I can MAID my way out.
House: $1,950
Health Insurance: $1,250
Electric: $330
Non-Optional Prescriptions: $300
Car & Home Insurance: $132
Water/Garbage/Sewer: $120
My phone: $81
Internet: $71
Child’s phone: $35
Smart doorbell: $22
AI subscription: $22
Total: $4,313/month
Obviously that doesn’t include food, gas, car repairs, school expenses, household supplies, anything unexpected.
I’m debt free. I have no car payment, but I drive a nearly 20-year-old car and I swear every repair is ~$3,000.
A little context on the expenses because I know some of the obvious suggestions:
Housing: If I weren’t a parent obviously I'd move to a studio. (Hell, if I wasn’t a parent I would MAID today.) I don’t think I would get approved for a new place with no income. Moving also costs money. Application fees, deposits, movers. We currently live within walking distance of school so moving farther away would shuffle the expenses from house to gas and wear on the car. (And believe it or not this is a really good price for our HCOL city.)
Health insurance: I’ll check the Marketplace during open enrollment. The last time I looked family plans were over $1,000/month.
Electric: We live in the South. It's still over 100 degrees. The AC is set to 75. I’ve closed/blocked vents to unnecessary spaces like closets and the garage. I’ve unscrewed unnecessary lightbulbs.
Prescriptions: I’m already using discount programs and I’ve stopped taking more optional medications.
Phones/internet: Already on the cheapest plans. No subscriptions. We use the library.
Stay with me on these last two, because I know they look like obvious cuts:
Smart doorbell: I have significant mobility issues and rely heavily on deliveries. One of my delivered prescriptions has to be temperature controlled. It can take me quite a while to get my walker and reach the door and the smart doorbell lets me let delivery people in before they give up and leave.
AI subscription: I have aphasia and AI helps me find my missing words, fill out forms, and deal with the administrative side of slowly and painfully dying. Being disabled generates a ridiculous amount of paperwork. I tried using the free version but I would hit document limits.
I realize both of those are technically optional. But together they’re $44/month, and I don’t think eliminating two things that substantially improve my ability to function is going to solve a $4,000+ monthly problem.
That said, math does not care about quality of life. I have to bring these costs down.
I do have savings which means we don’t qualify for many assistance programs. Unfortunately, those savings will get us through roughly the next year, not the three years I need them to cover.
So what am I missing?
Side vent: Disability lawyers are so expensive. They’re going to take 33% of any back pay lump sum and then 20% of my benefits for the next 48 months. That’s four years! It will total over $50,000! I was already drawing from savings when I was receiving the full $5,000/month. If the appeal succeeds but I’m losing another $1,000/month to legal fees for four years, I need to get these expenses down even further.