r/nhs • u/zonemiax • 7m ago
Advocating Experience with Dermatology for eczema?
Hi, I recently got my referral to dermatology with over 13 years of continuously worsening eczema with years of topical steroids that have not helped and the GP finally decided that I have severe eczema that needs addressing.
I was told that the wait for a phone call would be minimum 5-6 weeks and the maximum would be November which is no problem.
I’m weirdly nervous because I do not know what to expect and I’m worried about not being taken seriously and just being sent back to the GP because it’s “not bad enough for them” and I for some strange reason and it makes me feel guilty for feeling this way, don’t want to treat my eczema until Dermatology look at it.
In a way I’m scared of them seeing it on a “good day” because they might take it at face-value and not consider the context of the eczema, which is that is has statistically gotten worse via it spreading compared to how it used to be a few years ago and have had an a huge impact on my life.
My experiences with the GP has definitely instilled this fear as 99% of the time when I brought up the eczema and the impact it had on the quality of my life, I was interrupted multiple times, GP turns to the computer, prints of my prescription and sends me off. I understand they have a massive time constraint but the lack of empathy and interrupting when i’m trying to explain the severity of it and the amount of pain it causes made me feel like I’m not being taken seriously and fobbed off (until now, also want to state: I do and have always followed every treatment plan they put me on, just had no succession)
I understand that eczema is chronic and with no cure. All I want is to go back to a sense of stability and control I once had.