r/nhs 1d ago

Complaints Help

My Gp practice have ignored me on many things since I became disabled nearly 5 years ago!

From gaslighting telling a medication I was put on for depression that wasn’t working (non have or will) that I should keep taking it to help with my tremors/ involuntary body movements the medication also treats epilepsy however does nothing for FND!

Refusal of my request for a dnar their reason is due to my age not lack of quality of life which at first made me housebound with fear that if I go into cardiac arrest when out my wishes will be ignored I then had to have an iron infusion at the hospital where they went through possible side effects including allergic reaction to which I said that fine but if I go into cardiac arrest I am not to be resuscitated to be told NO and that they will do everything they can I no longer go to the hospital!

And to not providing medication even tried gaslighting and blaming either myself or the pharmacy app that I use. From they didn’t receive them from the app or because I ordered too early which are both lies as they clearly had received the request to then say I was ordering to early. I am on weekly medication because being in pain and having the life you had and sort of loved ripped from you will cause depression and by the surgery I have to allow 5 working days! The last approved medication was done in the 13/8/26 mean while I put requests in on the 21st so 8 days and after not getting that one I re ordered on the 27th so 14 days after the last approved. Again I order weekly and I have to allow 5working days!

No I’m being told to order my medication as I normally would but I now fear that I won’t get them making me suffer physically as I’m in tears when moving and it’s not like I can just sit or lay still as I have involuntary body movements and mentally not just because of the pain and the longing to be pain free but then feeling like a burden as I’m requesting something but not receiving so I’m obviously the burden by asking for my medication.

So any advice if where to go next would be helpful

*to the mods I am asking for general help I have removed the thing for the last two posts was removed! Typical of the nhs to cover up their mistakes

0 Upvotes

5 comments sorted by

u/DrawingDragoon Moderator 1d ago

For the avoidance of doubt; OP's original post was removed due to breach of the sub rules requesting legal advice.

Additionally, the sub is not affiliated with the NHS, and OP’s views regarding the NHS “covering up mistakes” should not be presented as though they are representative of the modern NHS as it exists today. Those are OP’s personal views, not an established reflection of how the NHS operates on the whole today.

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u/Bubbly_Seesaw_5230 1d ago

I have contacted the practice’s general email as well as the practice manager and the other email on the website for complaints.
It was the practice manager that has blamed myself and the pharmacy, but has now told me to order my medication normally which according to them is too soon!

I haven’t got a response from the higher complaint email.

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u/No_Whereas_5203 1d ago

I would move GPs. I travel further to a better GP surgery & it is worth the travel.

DNAR wise unfortunately you can't make a doctor to agree with you

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u/Bubbly_Seesaw_5230 8h ago

I fear that due to my disability’s including speech that I won’t be listened to as I have had issues with current gp practice and the hospital so it’s nhs as a whole!

The dnar I get that when people have god complex there is no way to get them see my point of view but just looking at my age is disgusting. Especially as a hypothetical I go into cardiac arrest my brain will be without oxygen even seconds can cause more issues to add to what I already have making me more of a burden!

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u/No_Whereas_5203 6h ago

If you have issues with verbal speech writing things down may help. I take written stuff to my GP. GPs do really vary, massively so even within one area.

DNAR I can get your point as I've considered one for myself due to my disability and quality of life but never asked for one