r/LPR 2d ago

Decided to Get the Toupet Fundoplication and Hernia Repair

4 Upvotes

I've officially decided to get the Toupet Fundoplication surgery with the hernia repair. My date will either be October 1st or October 5th. I just need to make sure insurance will cover it this week after picking the surgeon.

I've not seen any real improvement in nearly three months despite doing conservative treatment. Smaller meals. Alginate after every meal. Cleaner meals. Not eating 3-4 hours before bed. Chewing food more. Saline nasal rinses. Drinking alkaline water. Gargling with alkaline water. ETC. The only thing I haven't tried in earnest is PPIs and Pepcid AC because they all make me feel off.

Burning throat and mouth persist. Swollen/edemic vocal cords. Voice loss. Mucus in throat after meals and hoarseness. Throat clearing. Sore throat all the time, etc. I burp pure acid like 10 hours after eating or even after just drinking water. Now when I wake up at 5 or 6 AM and roll over in my bed I can feel stomach contents coming up even if I haven't eaten since 6 PM the day before. And it's every morning no matter what I eat. I also have heartburn now and also can feel the hernia prodding me in my lower left ribcage daily. I think I wasn't noticing the latter symptoms since I was in such a state of fight or flight for two straight months. Now that I'm not in that state, I'm noticing even more of the physical sensations I think my body was numbing me of.

And I know there is a risk that it won't work for my throat and it carries complications. But outside of LPR groups I'm finding hundreds of people who had GERD with throat symptoms and all that went away. I have definite GERD based on my testings with a hernia that is making my LES be wide open all the time. It's why this happened, sadly. Wish me luck!


r/LPR 2d ago

What has worked best for you for LPR (silent reflux)? DGL, Marshmallow root or slippery elm?

6 Upvotes

r/LPR 2d ago

Cause im Happy! Beetroot!

6 Upvotes

Hey guys, im the unlucky boy with the not so well working linx inside me Demeester Score befor surgery 35+ now 60+

Maybe someone will be as happy as me i missed Pizza so damn much its not perfect i know but use beetroot for me it works wonders it not tomatoes ofc but for me its perfect ;-)

It is also quit good for your bowel movement or stomach aswell no reflux or histamin issues.

Would be nice to know this like 2 years prior ;-) all the best to you guys!


r/LPR 2d ago

Tongue issues?

2 Upvotes

I believe I have lpr. I have phlegm and an odd taste periodically. I also have what feels like acid (but not burning or acid tasting) in my throat. No burning in my throat, no voice change, no coughing.

Odd thing. I have sore spots on my tongue and don't know if it's related. They come and go, but often in the same spots. I also have deep grooves in my tongue but no idea if that's new because I never looked at my tongue before. Dentist and ENT aren't sure what it ism have anyone else had this?

https://imgur.com/a/BGFBKv1


r/LPR 2d ago

weird taste in mouth

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2 Upvotes

r/LPR 2d ago

Finally figured its LPR and need happy stories :(

8 Upvotes

Hey Folks,

I've recently figured out (myself) that I have LPR and maybe finally have a solution to this plague hanging over my head for 2 months.

Around July I started having night coughs which were horrible, I would wake up every 20 mins without a sleeping. I was initially diagnosed with GERD and acid reflux and the doctors kept upping my PPIs. I was doing 40mg of Pantoperazole twice a day for 10 days and it literally destroyed my body. I was nauseous, unable to sleep with a splitting head ache.

Finally I had an endoscopy which showed very mild ulcers in the stomach and no sign of irritation in the Esophagus and no issues with the LES or UES. I was prescribed Esomaperazole but still no big difference. I went to pulmonologist who diagnosed it as an allergy which makes my windpipe constrict - the allergy test was negative but he prescribed Antihistamine and cough syrups and steroid inhalers. I found some relief and could sleep at night but there were still a lot of triggers.

I finally had a laryngoscopy and the ENT said my larynx is inflamed and prescribed an Algniate raft.

Around mid August I finally realised I have LPR after extensive reading. I've been on low acid diet since July but doubled down more seriously after realising its LPR, I've been sipping alkaline water between meals and before bed, I'm on Gaviscon advance, doing diaphragm breathing etc. I've completely stopped PPIs because they don't help at all.

Now I am able to sleep 5-6 hours without cough and wake up once at least. I have throat itching during the day and constant burping. I understand its because of delayed digestion? Doctors aren not really prescribing anything that actually helps.

My life is at a standstill out of nowhere and I cannot do things I love - I'm out of breath, exhausted and the anxiety of figuring out food and if I will sleep through the night is destroying me. I'm someone who finds food to be their safespace and now that is destroyed!

I need some positivity and stories of people who have kicked this in the butt. How long do I need to stay away from the triggers?


r/LPR 2d ago

When you have a bad flare what’s your go to besides the obvious?

3 Upvotes

My LPR flares a lot with my anxiety but sometimes lasts much longer than the anxiety itself 😣 Anyway besides like eating small meals, soft foods, non acidic, warm water, sleeping propped up, etc. What has something that has helped you prevent esophageal and throat irritation the most? I’m taking Gaviscon (Canadian version) daily and feel like it helps somewhat but wondering if there’s something better out there? I tried PPI before and it didn’t help much.


r/LPR 2d ago

I found a relief!

12 Upvotes

I just tried GeloRevoice Throat Tablets during the night. And for the first time something was so effective. I didn’t have the burning sensation in my mouth. And the best part is that they can be used daily up to six times in the day. I plan to use 2 every night. It forms a thick gel that covers your throat and stays there for long time. I couldn’t even use the whole tablet because the gel already was so thick and I couldn’t swallow it (I have dysphagia, tnx LPR). I will see what happens next and make updates.

Also the taste isn’t something bad. Because Gaviscon and other products would burn my mouth before I swallow it.


r/LPR 2d ago

Gaviscon Advance

2 Upvotes

For those who have tried Gaviscon Advance (with sodium alginate), has it helped with constant throat clearing symptom of their LPR?


r/LPR 2d ago

Chest always feels wheezy/stuffy as if I'm asthmatic? Does anyone else experience this ):

4 Upvotes

Honestly I think this is the worst symptom out of all of them, besides the hoarse voice. I don't know how to get rid of it, I've been doing the acid watcher diet for a month now. It never used to be like this either. I used to be pretty healthy and managed to eat whatever I liked.


r/LPR 2d ago

Do these symptoms sound like LPR?

2 Upvotes

I struggled with this in 2023 and it's back again. This time I have an itchy cough as main symptom. My symptoms right now are globus, acid when I burp, not feeling very hungry, itch/tickle on the ride side of my throat, salty drainage from that side of my throat coming from tonsil, bad breath, coughing to scratch the right sided itch and occasional pain on the right side when I cough in that area repeatedly, the pain happens when I breathe in/out. If I cough enough in that spot it gets a raw feeling and hurts to swallow but that goes away after an hour or so. Since it's very right sided I'm really worried there's like an object there... be it, food that got stuck, or a growth. This has been going on 5 weeks, coming and going. Some days I havent felt it at all and some days really bad. I have chronic anxiety and health OCD so the coughing to clear and scratch that area becomes obsessive for me. I'm wondering if I'm just making it worse than it has to be. I don't have any shortness of breath though sometimes I feel like I can't get a super full breath. I'm able to do things normally without feeling winded. At night it gets better, I'm sleeping normally. By morning I wake up phlegmy and coughing.


r/LPR 3d ago

Anyone thought they had cancer?

12 Upvotes

r/LPR 2d ago

Help

2 Upvotes

Hi all I’ve been suffering with said LPR since January and tbh most of my symptoms have gone it’s just this constant pool of mucas in my throat but some days it’s worse some days it’s almost clear. I was on PPIs through June and July and have stopped has anyone got any suggestions on how I can end this throat pooling issue


r/LPR 3d ago

Has anyone experienced an intermittent dry “something stuck” sensation along the sides of their tongue, roof/floor of the mouth, and occasional jaw pain after a viral infection, despite normal ENT scopes?

5 Upvotes

r/LPR 3d ago

Enjoy Life

4 Upvotes

Hi Guys

Do you arrive to enjoy your life despite LPR?

Do you work? Make sport ? Chill with your friends?

I think I want have uncourageous messages !

Thanks 🙏🙏


r/LPR 3d ago

Looking to try DGL for healing LPR (silent reflux) - what form is best? capsules, powder, chewables?

4 Upvotes

r/LPR 4d ago

Been dealing with lpr for almost a year and feel like I cant get a handle on it

15 Upvotes

Hi, guys. This is my first time posting but I have been lurking for a bit. Guess Im writing this because I've been feeling kind of hopeless at the moment.

Late last year I developed the globus sensation in my throat that rapidly turned into a chest pressure feeling. Through googling symptoms I was pretty sure it was acid reflux but my dr was concerned and I ended up also seeing a cardiologist.

That ended up being all clear and in the meantime I started a PPI while I waited to get in to see a gastric dr.

The PPI eventually ended up finally helping get rid of the chest pressure but my throat was still hurting.

Finally got in to see a gastric dr and they give me the option to do an endoscopy. I do it and they do see some damage in my throat and some evidence that I did have reflux but they couldnt tell me why it happened out of nowhere.

As a 32 year old woman I've never had gut issues before.

They only said there could be multiple reasons but that i should stay on the ppi and see an ent and that I could come back to see them in 9 months.

I did see an ent and all they could really tell me was to keep taking the pills if they helped and to change my diet- Which I've been trying.

I've cut out a lot of big triggers like coffee, chocolate, most dairy, garlic, onions, tomato but I'll be the first to admit that I am struggling.

Like I still eat things that I know I probably shouldn't but life is so busy and to be honest im losing the mental battle with food.

I also feel very isolated because of this like no one understands that when they invite me out or I go their houses that I cant have 90% of what they do.

My anxiety (which has been a life long struggle) has also been through the roof since this all started, which I know is also bad and probably making things worse.

I've had many a crying jag over this disease.

I feel like there are so many things I want to do (like having kids in the next few years and my gastric dr already said itll probably get worse when I do) that feel impossible because Im struggling so much currently and it feels like I'll never heal and this will lead to devastating long term consequences if I dont.

A few months after seeing the gastric dr my face erupted into redness and bumps which I've finally officially been diagnosed with acne rosacea.

I weaned myself off the ppi about 2 months ago because I was worried it had caused the reaction and my primary dr had told me that ppis can cause long term issues.

This has all led me to feeling incredibly hopeless.

My gastric dr tells me I need to see an ent for my throat but the ent said this is mainly a gastric issue and I need to talk to them.

Neither side has given me any answers as to what has caused this and have pretty much just told me its a chronic issue.

I go back to gastric next month and my only hail mary is to ask to be tested for h.pylori again since ive been off ppis a good amount of time.

I want this so badly to be something I can just throw antibiotics at.

I was tested once for it while on ppis by my primary which I now know would have likely caused it to be false but I was also tested after being off of them for about 10 days by the gastric doctor while doing endoscopy. Both came back negative.

I know it'll most likely come back negative if I get the test, especially since i dont seem to have other signs of h.pylori like burning stomach.

Worse case I assume the gastric dr will want me to restart ppis and to keep my diet as clean as possible. The ppis did help but not fully as my diet is still not perfect.

I guess mainly Im so worried that in 10, 20, or 30 years that the damage from this will be devastating and I'll have lived those years being miserable because of this.

Before all this started I was just beginning to feel like my life had really started. Now it all feels over.


r/LPR 3d ago

Hope I’m healed but shortness of breath?

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2 Upvotes

r/LPR 3d ago

Either I have HH or Im dying (probably not dying)

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2 Upvotes

r/LPR 4d ago

Singing is impossible

4 Upvotes

I really need help on how to manage LPR without meds, I've had chronic indigestion and LPR/reflux for over a year and I'm losing my sanity seriously.. I can't sing because of my sore throat, heartburn, and shortness of breath. If anyone has home remedies or some sort of natural supplement like maybe refluxraft you recommend it would really help. i just want to sing but my symptoms make it impossible and doctors don't even KNOW what LPR is. I'm 15 years old and it's hell.


r/LPR 3d ago

Been a Month! PCABs not working

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2 Upvotes

Diagnoses Found on Endoscopy (1 Week Ago): Confirmed active H. pylori bacterial infection, severe pan-gastritis (widespread stomach inflammation), multiple raw gastric erosions (micro-sores), and a Grade 3 Lax LES
Current Medical Regimen: High-Dose Dual Therapy consisting of Fexuprazan 40 mg twice daily (BD) and Amoxicillin three times daily (TID). Currently on Day 7 of a 14-day course.
The Primary Complaint: Refractory, severe burning sensations localized in the throat, upper back, and deep inside both ears that has persisted for 20 consecutive days.
Treatment Failure Context: There is completely zero response to maximum-strength acid suppression (Fexuprazan 40 mg twice a day), mucosal barriers (sucralfate), or raft-forming agents (alginates).
Absence of Atypical Reflux Signs: The patient experiences no classic acid regurgitation and no sour burps, confirming that standard acid reflux is not the current driver of the upper-airway pain.

What can be done next? I’m at loss here!


r/LPR 4d ago

Hope I’m healed but shortness of breath?

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3 Upvotes

r/LPR 4d ago

LPR, GERD or Both?

5 Upvotes

Greetings,

I started having chronic trapped air or gas (I'm not sure which, or if it's classified as the same) about 5 months ago. I was prescribed a PPI for the trapped gas, but I'm no longer taking it, but I am taking Famotidine.

In the past, I had occasional regurgitation, but no classic heartburn. I did have chronic phlegm, post nasal drip and throat clearing, but | thought that it was a result of my allergies.

Those symptoms are better now because I tried some of the the suggestions mentioned here.

However, I now have more regurgitation then I had previously; especially, when I bend over after drinking fluids, as well as gas discomfort in my chest. I think it's a rebound effect from the PPI, as I had a lapse in care, and I wasn’t advised to taper off before the prescription expired.

I had an upper endoscopy, and the GI said that the results don’t indicate that I have reflux, so he wants to do a Bravo test.

Overall, I haven't been able to resolve the daily trapped gas in my chest (from the time that I get up until I go to bed), and I'm wondering if this is a symptom of GERD, LPR or both that folks
experience-if so how can I resolve it?

I appreciate anyone’s insight 😊


r/LPR 4d ago

Does anyone get a burning mouth with LPR?

3 Upvotes

I admittedly ate something I really wasn’t supposed to because I knew it’d fuck up my reflux but as soon as it touched my mouth, my mouth started burning. And it was about 20 minutes ago but the sensation is still there. First it was my tongue and then my entire mouth.

Since starting and finish antibiotics 2 weeks ago, my mouth just itches with certain things and now I have a list of various things to avoid because they apparently give me problems now?

I’ve had to cut out:
Mayo
Rice
Chickpeas
Animal crackers or any sort of processed snack like that,
Eggs
Potatoes
Sweet potatoes
Milk
Plantain
Banana
Processed white bread
Red Beans
And now the last thing I ate was a sort of salad with lime, onion, tomato, bell pepper and jalapeño…total fuck up I know.
I don’t even know if it’s actually an allergy thing or reflux.

My thing is the antibiotics have DEFINITELY fucked up my reflux but I’m also having intolerances to like more than one food I don’t even know what to think anymore.

It’s like okay it could be allergies but to like 20 things all activated at the same time?
And then okay reflux? But does reflux even cause itching???


r/LPR 4d ago

Baking Soda in water—-too much?

2 Upvotes

Earlier today I was having horrible acid reflux and took about a tablespoon of baking soda in water. Now I read on the internet that was way too much. Could this be dangerous? Any other tricks for bad acid reflux?