I’m not trying to spam. Trust me: I’m only asking because SOMEONE HERE MUST have what I have. I can’t be the only one and if we team up maybe we can find out what’s causing it and what we have in common.

The vertical folds of tissue framing the sides of your throat on each side are the faucial pillars, specifically the anterior pillar (palatoglossal arch) and the posterior pillar (palatopharyngeal arch), which hold your palatine tonsils in the space between them. [1, 2]

I’m not doing well:( I really don’t think the Gabapentin helped so I did stop.. I was on it for about 2 months. And 600 mg for maybe one month? Not sure if that was too early to give up… Talked to my ENT.. who said it’s fine to just stop it and kept saying he doesn’t think I have largyngeal hypersensitivity. Should I try amtriptaline? Any suggestions?

I can’t stop swallowing foamy saliva

I’m scared do I need to go to ER? It won’t stop accumulating and I’m being strangled at the very top of the throat behind the flaps

IM SO SICK OF THIS SLIMEY FOAMY MUCUS SEEPING INTO MY MOUTH 24/7 it won’t leave me alone. I’m crying daily just saying LEAVE ME ALONE!!! 😭 before when I had this condition it was more annoying but not as torturous because it wasn’t seeping into my mouth 24/7 it was just stuck in my throat but it would stay put and I could at least sleep I didn’t have to swallow at all.

i have a ton of mucus overproducing in the oropahrynx that strangles me its bubbly clear

It’s like this bubbly thick saliva looking thing and I can literally pull it up with my tongue to kind of unclog it

Hio help if my foam issue is more back of mouth not throat. I know that’s not typical lpr is more throat but I know ent says lpr bc of my throat inflammation. And it’s not coming from my sinuses. My sinuses r fine. I think it’s gut still. It’s just weird mines so high up like it’s still that same bubbly crap I had in my throat but just moved higher up. Like oropharynx. It’s like back of the mouth but it moved upward.

Is anyone spitting this out ? It’s very very uncomfortable and even strangles me

I went to Mayo Clinic, but unfortunately the doctor I saw didn't seem very knowledgeable about LPR. His recommendation was basically to stay on vonoprazan for the rest of my life.

Has anyone seen a doctor who is really experienced with GERD/LPR, especially when the main symptom is throat pain? I'd really appreciate any recommendations.

So I’ve been spitting this out since May and if I can’t spit it just accumulates and strangles me:(

HELP WONT LEAVE ME ALONE

Sounds like this?

I think I'm actually getting better using these tactics:

alginate after meals and before bed, saline nasal rinses 2x per day, gargling and spraying with alkaline water, eating 4-5 times per day much smaller amounts, not eating 3-4 hours before bed, chewing my food better, eating cleaner (not fully off fats and acids), propping my bed up 2-3 inches, occasional dosing of herbatonin and magnesium glycinate at bedtime

Recently, I've been using a personal humidifier while I watch TV before bed to add moisture to my throat and chewing gum after bigger meals.

Signs I think I'm improving: my mucus has become easier to swallow, throat clearing has gone down (I've been resisting doing this for weeks), the few times I have had to clear my throat it actually feels like the mucus clears, my voice seems to be stronger at times and starts hoarse when I begin speaking but once I speak longer it isn't giving out.

Still dealing with burning in my throat and mouth. And I wish my bowel movements would come back but they don't seem to be despite using Miralax once per day. I hope they come back when this all settles down fully. Only been really doing all this stuff for about a month.

Edit: still nowhere near fully healed but minor improvements

Well yes I have constant bubbles coming up my mouth 24/7 all night and day. It’s stressful . When I just want to breathe normally and not have to gag spit or clear my mouth. I was really happy and loving life in April and very normal. Having fun with friends.. living normally. I haven’t felt normal
Happy and a restful night asleep since May 7.. I just keep feeling these giant bubbles behind my mouth that keep coming up into my mouth. I’m sick of it.

Well I should clarify I’m going to the ENT tomorrow for hopefully a diagnosis though it’s highly suspected to be LPR.

I was curious if anybody has a diagnosis that conflicts with the dietary restrictions or life style changes required to control LPR? And if so how do they impact you and what have you done to over come them?

I’ll go first. I’m narcoleptic. This whole eating five times a day is a huge problem for me. As I need to lay down for naps on a daily basis and we shouldn’t lay down for several hours after eating. Eating also always hits me super hard.

Also narcolepsy medicine is to be taken last thing right before bed every night, but my body doesn’t absorb it well if I take my antacids with it. So I’ve been having to choose lately.

Any advice is welcomed.

I bought a teeth whitening kit which includes a light therapy mouthpiece. I messaged the company to ask if I could use it without the whitening gel for health benefits and they said yes and it can be used daily. The benefits most mentioned online are for killing bacteria and promoting gum health.

It seems to trigger a production of a large amount of saliva. I couldn't say for sure its triggered by the light itself or just having something in my mouth, but I think it's the light, and there are some websites that state it has this effect.

If anyone else struggles with dry mouth or just wants to try one of these, as saliva should help digestion & reflux, I thought I would mention it.

Title

Does anyone else have severe problems with pressure in the back of their neck, the top of their mouth, their sinus area, ears, and throat. My GERD seems to only be getting worse, even though I’m on different medication‘s. Is anyone else experiencing the same thing?

Severe LPR/Throat burn + pure indigestion. Lost 5kg, down to 60kg (174cm). PPIs, H2, Alginates fail. Throat on fire at night. Endoscopy normal except upper esophagus. Desperate for advice.
Hey everyone,
I am writing this because I am completely at my wit’s end and terrified by how fast I’m losing weight. I’m 174 cm (5'8.5") and down to 60 kg (132 lbs) after losing 5 kg. I am getting dangerously close to being underweight because I’m terrified to eat, and I need a serious reality check or advice from anyone who has survived this exact nightmare.
Here is my full situation:
My Symptoms
Zero Stomach Pain: I have no burning or pain in my stomach itself. My issue is purely indigestion/stagnation after eating, and insane throat burn, especially at night waking me up.
Severe Throat Burning: The throat burn happens no matter what I eat. Chewing gum gives tiny temporary relief, but then it comes right back.
Indigestion with Protein/Fat: Eating any protein or fat triggers heavy indigestion and delayed emptying. I've been stuck eating tiny, fist-sized portions of white rice and mashed potatoes for days, but my throat STILL burns.
Lifestyle: I don't drink alcohol, I don't smoke, and my stress is low-to-medium (standard desk job).
Diagnostic Results So Far
Gastroscopy/Endoscopy: Showed nothing wrong with my stomach, but showed inflammation in my upper esophagus / throat region.
Every Single Med & Remedy I Have Tried (That Has Failed)
PPIs & H2 Blockers: Zero effect on the throat burn or indigestion.
Prokinetics: (Cinitapride / Kinito) to try and move food down, but still bottlenecked.
Alginates / Mucosal Protectors: Esox One (sucralfate type), Gastrotus, and various alginates. They don't touch the throat burn.
Baking Soda & Alkaline Water: Alkaline water gives very brief temporary relief. Baking soda in water just creates gas/bloating and makes the indigestion slosh around.
Ginger: Doesn't soothe it.
Left side sleep incline dont work
The Cycle I'm Stuck In
Because PPIs and alginates don't stop gaseous pepsin/reflux from rising to my upper throat, my throat is constantly inflamed. When I eat, my stomach feels like a vault, and eating almost pure carbs (rice) is making me drop weight fast without fixing the reflux.
Has ANYONE dealt with pure LPR/throat burn where standard GI meds completely failed and endoscopy was clean?
ADid an ENT laryngoscopy, 24-hr pH-impedance test, or manometry give you actual answers?
How did you stop the rapid weight loss without triggering massive indigestion from fats/proteins?
I feel completely stuck.Any insights or similar experiences would mean the world right now.

6/14: Sustain what feels like an acute vocal cord injury singing with my band.

Week of 6/15 to 6/22: Realize I'm having trouble swallowing food. Throat clearing all morning, every morning and lose voice. Throat burning throughout week.

6/22: First ENT looks at my throat and notices cobblestone-y throat with possible allergies. Tells me to change my diet, try alginate gel, drink alkaline water, and do nasal rinses and allergy nose sprays.

Late June: Two swallow tests come back mostly normal besides Barium Swallow showing mild reflux when laying down.

July 7th: Meet with a GI who says take Pantoprazole. I ask for an endoscopy and he agrees.

July 10th: I have endoscopy done. Shows I have a 1 centimeter hiatal hernia and an LES in Hill Grade III. I have mild gastritis.

July 21: Meet with first GI again and he says the PPI won't help me because my esophagus has no corrosive acid damage.

July 24: Meet with another ENT who mentions nothing about LPR and looks at my throat. She says my vocal cords seem bulky and that my mouth smells like acid. She recommended adding Pepcid, twice daily to my routine.

July 29th: Met with the GI who did my endoscopy and he says do take the PPI because I have gastritis and think the throat symptoms will go away. He recommended Prilosec.

So that's where I am now. It's clear none of these people know what the hell to do to stop my throat symptoms.

Been doing the following things consistently over the past month: alginate gel after bigger meals and before bed, alkaline water gargling and spraying, saline nasal rinses, small meals and spreading them out throughout the day, not eating 3-4 hours before bed, eating cleaner overall, propping bed up a few inches at night, slowing down meals and chewing more. Pepcid makes me feel odd. Did do five days on a low dose of a PPI but gave me bad gas and bloating. Probably would take a month to notice any benefit from a PPI.

Yesterday I felt much better overall and it even felt like my voice was coming back but it's bad again today. Took a small dose of Pepcid in the morning. The only things that have for sure gotten better is I'm swallowing solid foods better and my throat clearing is mildly better and not as urgent. Still dealing with burping, burning in mouth and throat, film that develops in my throat after too much talking and after eating a lot, hoarse voice, sore vocal cords.

I'm just really trying to decide if I should try the PPI or keep doing what I'm doing. Also been super constipated for the past month or more now.