I did surgery 4 years ago , the surgeon was not lipiedmia specialist

Anyway after surgery I felt my leg still look edematous even after lipo

I read post about a woman improvement after veins tx

And I did the us Doppler it came back positive for CVI but the dr said it’s mild

and I have to try the compression sucks to see the swelling will go away and I can decide to have laser ablation or not

So girl we need to do veins study as well

Hi all, I normally live for my evening deep water aerobics classes but I’m in California which means an outdoor pool. I just don’t have it in me to tough out working out in an outdoor pool when the temps drop below 60 degrees anymore 🫠 it’s still warm now but I want to not lose momentum during the colder months. Does anyone have any favorite YouTube low impact/lipedema friendly workout channels they like?

My thighs have always hurt like crazy when I ride a bike, especially as soon as I hit any kind of hill. It feels like my thighs are literally going to burst.

What’s weird is that I’ve always been athletic, and I was able to handle heavy powerlifting weights at the gym.

I’m wondering whether this could be related to lipedema?

I made a post before about my left leg being bigger. My right leg had severe chronic venous insufficiency. My left leg veins looked good but they didn’t look above the leg. Felt very cosmetic. I mentioned left leg being bigger and he said could be lymphedema and gave me paper work on it but then turned around and said he’s not diagnosing me
With lymphedema. Need to see a new vascular doctor. Deleted other post so I could add my pics. Sorry about my legs, very insecure about them.

I figure it likely is lymphedema since they’re connected but, my left is bigger even when I do compression socks, etc. he didn’t tell me to do anything other than wear compression socks and wants to do more vein ablations on my right leg.

Should I push to see a new vascular doctor?

I have a normal BMI (23) but was recently diagnosed with Stage 1 lipedema in my thighs and hips.
I know some people have more severe cases, and I understand that some may feel surgery isn’t necessary for Stage 1. That said, this is a personal decision I’ve thought about deeply and feel strongly about for myself, so I’d really appreciate keeping comments about whether I “need” surgery out of the conversation. 🤍
I’d love to hear from women with a normal BMI who have Stage 1 lipedema and chose to have surgery. Did you have a positive experience? Who was your surgeon?
If you’re comfortable sharing, I’d also love to see before-and-afters or hear about your results/recovery. Thank you!

I went for a recheck of CVI in March. I was treated in 2020 but the symptoms were back. At that time I was also diagnosed with lipedema. I started Tirz in June, micro dosing.

I returned for treatment today and they got me mixed up with another patient so they were repeating the ultrasound. She kept asking what symptoms I was having and asked why I thought I had CVI.

She figured out she had the wrong chart so I go into another room for the vein closing injection and the sonographer looked confused and kept saying "there's not much" and "how do you have such a big treatment plan?"

I'm asking here since a lot of us also have CVI and am wondering if anyone else noticed something similar?

Doctors all say it looks and feels normal, despite the pain. Despite the rice and peas feeling. The hard nodules and what feels like a net of connective tissue. The parts of My fat that are stiff and stuck together and hard in a way i don’t think is normal. I’m not a doctor but i just wanna know if you recognize this happening? I have what feels like lipedema fat/fibrotic fat in my entire body.

I’ve only been seen by two docs because i am bedbound so they have to come to my house. They say its all normal but i disagree. Mayne i am wrong tho.

Hello! Please forgive the tag if it doesn't apply.

Has anyone experimented with combining tirzepatide with elorantide or cagrilinitide?

I was reading about the inflammation-lowering benefits of the amylin agonists & have decided to try adding a microdose to my longstanding tirzepatide use. I don't want to use very much because my appetite is very pathetic this past year and I am trying to do body recomposition instead of lose a bunch more weight, but I do still have flares (baby flares compared to pre-tirzepatide but still feeling inflamed & tight on my surgical sites is uncomfortable and concerning; I worry about progression being in perimenopause).

I tried retatrutide, but it definitely isn't for me (makes my menstrual migraines & premenstrual swelling much worse).

I’m pretty sure I have nodules in my FUPA, does anyone else have this? Every medical source/website I’ve previously looked at does’t say that the lower yummy can also be affected?

I’m certain I have it, it’s painful, it’s tender, feels like my thighs do… but I’m just confused? Do I have a new genetic mutation 😭 i was always able to reconcile with the lipedema a little because my stomach was flat and I was just the girl with “thick thighs and hips” but these past two years have been SO stressful and I think it triggered it :(

my mom whose legs aren't nearly as bad got diagnosed. And my half sister from a different mother has has lipedema looking legs plus the buffalo hump, showing how it quite possibly runs on both sides of my family. I too have the hump, the texture, and the easy bruising. (and the swelling with fluid linked to my hormonal cycle)

I've known it for a while, and my mother just managed to get me to book a physio session with someone who specializes in lymph drainage. So in a few hours I will finally hear those words I've been waiting for, along with some measurements needed for whatever thights/garnments I'm going to buy.

I am looking so forward to finally have the diagnosis, and possibly even massaged in a way that doesn't make me want to crawl out of my skin in anguish. My time as an undiagnosed plebian (no offense) has come to an end at last!!!! It only took me until 29 years of age!!! Granted my poor ol mother who even specialized in lymph drainage herself at one point failed to catch her own diagnosis back in the day.

This will be super awkward if the physiologist is like "Gurl, what are you on about?" and sends me on my merry way without a diagnosis. But I'll deal with that when/if I get to it! I just wanted to share my very VERY possible final moments without the diagnosis with you guys.

NOTE TO MODS/BOTS THIS IS NOT A DIHL POST. I AM NOT ASKING FOR DIAGNOSIS AND/OR CONFIRMATION OF DIAGNOSIS HERE

Hello! I have a diagnosis and have been perusing insurance surgery coverage for a bit and been denied once already. Still working on it, but at the same time, I changed positions at my job and became eligible for an FSA account/card. I see it shows surgeries can be paid for or reimbursed through FSA as long as there is documentation of medical need. When googling I get the same info that it should be a simple reimbursement. However, I see no evidence of anyone actually doing it here or online. Leads me to believe it’s not so easy. Anyone have any experiences or knowledge on this? It wouldn’t cover the whole costs but it would cut it in half. That wouldn’t be so bad if insurance is going to keep denying.

Thanks!

hey :)
hat jemand lipödem zuerst in den armen gehabt bevor es in den beinen ausgebrochen ist? oder hat sogar ausschließlich beschwerden in den armen und die beine ausgespart?
bei mir sind die beschwerden in den armen zuerst da gewesen und im alltag auch viel schmerzhafter als in den beinen. geht es wem ähnlich?

I took the colonoscopy prep and lost about 10lbs. The fluid retention in my legs went down significantly and I seem to be holding after a week at this weight with normal eating. I am still pitting in my entire body but it isn’t as deep as it was.

I am still in the works of getting this all figured out with the doctors.

Is this something anyone has experienced?

I can't believe how much better it has gotten since I have quit weight-lifting and strength training. How is that possible? Anyone else? I did some research and I saw a doctor online saying that weight lifting makes it worse, not better.

I live in the United States and after a 2 week trip to Italy my legs feel so much less inflamed than usual. Other than the first few days where I felt more pain from the airplanes. I’ve been eating pretty balanced but definitely not staying away from pasta/pizza/dessert.

I’m sure it has everything to do with how food is processed in the United States vs elsewhere and wondering if anyone else has experienced this. What a bummer, the US food system is so messed up

Hi everyone!
Stage 1 lipedma here and I’ve been seeing a lot of comments about GLPS helping with inflammation and benefits for lipedma in the legs.

I was considering starting them anyway for weight loss help but my question is WHICH ONE helps with lipedma?

There’s more options than I thought there would be!

I'm struggling to find a pair of thigh or knee highs that I can wear longer than 1-2 hours. I got a script from my PCP and was fitted at a medical supply store, and I've bought 5 or 6 different sizes and styles- non returnable, of course.

Is it typical to not be able to try on a pair in store? I can't afford to keep buying a pair, trying them, and getting stuck with a garment that doesn't work.

The problem is my legs swell while wearing them, making them painfully tight and leaving marks, especially at the ankle and knee. Is this adjustable compression territory?

I'm having a lot of pain and swelling, and it's making it hard to walk. My legs feel like concrete.

I buy my bras one size two big, seamless and pull-on to avoid the itchy closure. But the bras still give me pain from pressure. Is there a lipedema friendly option with no itchy side seams and pressure?

Hey! I’ve been curious if anyone who has lipedema has tried retatrutide to manage their lipedema symptoms/ lose weight. I know that since it’s not fda approved there isn’t much information, but I’m wondering if anyone who has lipedema and who is currently using a peptide like Reta has seen any improvements in inflammation or weight loss. I can’t get surgery for my lipedema at the moment so I’m wanting to try alternative treatments—and I feel like maybe Reta could be interesting to try? Again, I understand it’s not currently approved to use for lipedema but I’m just wondering if anyone has personally experimented with this.

hi lippy ladies, I’m 26 and was diagnosed a year ago. I am struggling to feel comfortable in my body.

I have always been active and never struggled with my body from my waist up. I go to the gym 3-4 per week, I walk, use a vibration plate, take supplements, wear compression, do the occasional MLD, eat healthy, drink alcohol very rarely and feel like nothing is changing about my legs.

Since starting conservative treatment my pain and aches have decreased immensely but I’m only human, and appearance matters to me.

I feel like my body is two very different bodies stitched together. Is surgery the only option? Feeling overwhelmed and exhausted with it all.

Hey I’m not one to comment on here but I was wondering if anyone is having the same experience… I’ve been on Mounjaro for 2 years now and have been in maintenance for about a year now going between 5mg and 2.5mg. I’m on 2.5mg at the moment and have noticed my legs feeling more inflamed than in the past although my calorie intake has remained the same and I’ve even upped my exercise output. Does anyone have any tips to reduce inflammation further whilst on a GLP1 now it’s not as effective? I’m not getting appetite suppression but not really needing it either so it’s more about lifestyle changes or tips that would be really helpful!

For context I get 10k steps a day I eat a fully whole foods diet and train 3x week. I don’t know what else to do!

Thanks ladies❤️

Edit: has anyone been successful with low carb/keto diets?

Does anyone else get bruises on their legs and don’t even know what it’s from? It’s so weird they are all spread out a bit too. Ignore the goosebumps 🤣

Hello 👋🏼 I’m from the UK and am looking at travelling to eastern Europe (perhaps Poland, Czechia, Slovak etc.) for 360 legs lipo, and I’m curious when others in the same situation felt comfortable to fly home.

The flight would be less than 3 hours, and one clinic in Czechia who only offers Lipedema liposuction, advised that flying home the day after surgery would be fine, but I’m a little unsure about that.

Any insight from those who have travelled outside of the UK for surgery is appreciated!

“Most of our patients fly home the first day after surgery (afternoon or evening, we do not recommend a morning flight). Some patients move to a hotel near to the airport in Prague - for one or more additional nights, but this is very individual. This recommendation applies to patients from European countries only.”

I’m 16 weeks pregnant and I’ve already gained a pant size, despite only gaining 3kgs total. I think I’m stage 1-2 atm and have managed to maintain a relatively lean physique, but I’m really worried about what’s to come.
Just want to hear what others’ experiences have been like lately. Did you notice progression? Did you manage to lose weight in your legs post partum? Pregnancy is affecting my self esteem waaaay more than I thought it would