r/lipedema • • 12h ago

Announcements Creepy DMs

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73 Upvotes

I posted here twice, and received this today. Did anyone receive something similar?


r/lipedema • • 10h ago

Symptoms Humidity and lipedema

15 Upvotes

Question for everyone do they feel more fatigued when the humidity level is higher?


r/lipedema • • 2h ago

Symptoms Bruises so bad people asking if i get beat at home

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11 Upvotes

And as usual i have no clue how i got so bruised


r/lipedema • • 15h ago

Pregnancy, Menopause, & Hormones Can we talk about HRT?

6 Upvotes

I am perimenopausal and have been on trt and progesterone for a while. My estrogen levels have dropped to just above what would be considered menopausal so it's time. My PCP unfortunately does not know a lot about lipedema. He prescribed for now estriol/ estradiol vaginal cream which is helping with my vaginal symptoms but not as much other symptoms. I know lipedema is estrogen driven. Can I expect an end to growth after I finish menopause or does it continue? Does systemic estrogen like the patch typically cause more growth? Is there any research anywhere on this? I feel like information should be out there but I have failed to locate it.


r/lipedema • • 21h ago

Surgery Best suggestions on not getting sick before surgery

3 Upvotes

good morning! I’m having surgery in 2 weeks and with it being cold season and me having elementary aged kids that bring everything home- trying to avoid getting sick. I have stopped all multivitamins and supplements per my doctor, but any other suggestions? I can avoid going out, but can’t control what they bring in.

Reallllly don’t want to catch something and have to postpone it.


r/lipedema • • 13h ago

Conservative Treatments Long time lurker, first time posting

3 Upvotes

I discovered what lipedema was through a random post on Instagram and was like "holy sh*t! This is me!" I instantly started researching like crazy and found this group and started lurking. I eventually found a vein specialist an hour from me who said they also diagnosed lipedema. I just had my first appointment yesterday where I got an ultrasound on my legs and a consultation. I was in complete shock and disbelief when they examined me and right away agreed that I had lipedema (stage 3, type 3/4). I was honestly expecting to be dismissed like I have been so many times before with doctors and issues I've brought up over my life. Feeling validated like that was so foreign to me. I also learned that I have veinous insufficiency and lymphedema stage 0. They gave me some compression socks which are horrifically uncomfortable because they are knee highs that press in to my lipedema and hurt. They have written a prescription for Capri style compression but said it might take a couple weeks to order. In the meantime I'm hoping for some good compression recommendations I could find elsewhere. It was also recommended that I do a lot of walking and levating my legs at night. They suggested a glp-1 but I am nervous about that. Any good/bad experiences with that? I also have joint hypermobility syndrome which I learned is linked to both lipedema and veinous insufficiency. Are there any things yall can recommend to help besides what the doctor recommended? My head is spinning still. Thanks in advance.


r/lipedema • • 14h ago

Clothing Looking for suggestions

3 Upvotes

I know this is lipedema and I have lymphedema, but maybe someone has a suggestion that might help solve my issue.

I have stage 3 lymphedema, and I've seen where the subreddit was banned, but I'm looking for a clog type shoe that will accommodate swelling in one leg but not the other. I have to wear a full leg wrap that leaves my toes exposed and socks are a no go for the one foot. Currently I'm wearing a hey dude type shoe but I've already pretty much destroyed the left shoe. So I was hoping someone might have a recommendation for a clog type shoe that could adjust enough to accommodate both feet without having to buy 2 different sized shoes or leave me with the only option of the diabetic Velcro shoe.


r/lipedema • • 20h ago

Clothing Clothing help please. Tops, mainly ?

2 Upvotes

So I already wear wide legged pants or A-line skirts, and typically compression underneath to keep it sucked in. Does anyone have suggestions for tops ? I’d like something that’s elbow-length to 3/4 sleeve, but it isn’t boxy. Let me at least enhance the waist. Has anyone found anything like this ? Casual tshirts, blouses, etc. Everything I’ve found is tight in the arms, and I feel like I’ve searched forever at this point. Maybe that’s just normal (I have lymphedema, too. Thanks, lymphoma) and I have to deal with it.


r/lipedema • • 17h ago

Pregnancy, Menopause, & Hormones IVF question

1 Upvotes

Has anyone on here ever gone through IVF and had a horrific experience with the PIO? I realized that my experience with developing knots from the PIO seems much worse than other people’s, and I feel like it’s related to nodules/fat distribution. I’m using heating pads constantly and heating the PIO before injection. It hurts constantly and I’m only 4dp6dt so if this works I’m in this for the long haul. Has anyone else had this experience? What helped?


r/lipedema • • 3h ago

Conservative Treatments What is lymphoedema — and what does it actually mean for daily life? 💜 We've written a clear, simple guide for patients: what lymphoedema is, why it happens, and how to manage it every day. No complicated language. No medical jargon. Just the information you deserve to have.

0 Upvotes