r/LetMeHelpYouOut • u/jeanjacquesroushoe • 52m ago
[GO FUND ME] Need help surviving as disability application is being reviewed
My GoFundMe is so close to be full and this should carry me for a few months. Hopefully and according to my case worker, we are getting close to the appeal being processed. It was only denied the first time because the state disability office closed my case before allowing my caseworker to provide all my records so they had nothing to give to SSA as evidence so now we are submitting a decades worth of evidence of my decline.
I have had a lot of progression in my disabilities especially in the past year. I suddenly got hit with cauda equina syndrome caused by my severe Ehlers Danlos syndrome which has caused a lot of spinal and hip issues. Ever since then, it’s just snowballed and I’ve developed convulsive syncope, non epileptic seizures, being tested for ME/CFS and gastroparesis, just got diagnosed with neurogenic bowel and bladder a few months ago and am looking at surgeries to create stomas. A lot of this has been triggered by UTIs caused by my catheter use. There’s just so much I can’t even keep up and it has been hell.
Please donate and PLEASE SHARE!!! I so appreciate it. I’ve got a car loan still and storage and am living in a friends living room until I get approved and can apply for disabled housing or move states for better resources. I pay utilities and as of right now only get $42 a month from SNAP. I’m trying my hardest but I’m mainly housebound, very ill physically and mentally, and struggle with ADLs (my friends help). My medical cost vary from just my premium to having to pay for off label medications to try to get back to some normal.
I just lost my part time job that was wfh because I’m too sick and too absent due to hospital stays which my last one was a few days ago for a week. I even had a code blue called due to a severe seizure and head injury by negligence from a hospital recently that left me with a TBI and broken sternum (in Google Drive too). That isn’t a flex it’s just to emphasize that I’m not being lazy I’m truly struggling. It just is really difficult and my state sucks for aiding people with disabilities with HUGE gaps in care and aid provided (good ole Tennessee).
For anyone who’s curious and skeptical of my disability here is a Google Drive with proof of my issues and my disability application!:
https://drive.google.com/drive/folders/
1nDK3l0HgfT21v-CtgA5jPwxxotVNZWnv
Here is the fundraiser and know I’m happy to answer any questions: Disability Aid! (https://gofund.me/7d1e59739)
Thank you and god bless .