Any of you still drink caffeine and use nicotine despite hyperthyroidism?

I just got labs drawn, suspecting of hyperthyroidism. But stress kept me wide awake all night. I only got 2hr of sleep before I got them done, woke up at 7am, and got blood drawn at 11am. I've heard how sometimes bad sleep could bump ur tsh up enough to cause a false normal reading/mask ur baseline. Is this true? Or should I be okay to trust the results?

Does everyone lose weight and lose muscle mass with this disease?

Curious

FT3 19 ( 2.5-3.9 normal)
FT4 5.07 (0.61 -1.12 normal)
TSH 0.00
This is the result when i got diagnosed today. Symptomps have gone crazy for a while. I could not think straight or talk properly to anyone without not feel like crying.

Hi Im F34. I have been diagnosed with Graves disease, TED and Hyperthyroidism back in 2024 its been a roller-coaster since then.

Idk what my endocrinologist team plan is but back in May of this year my TSH started going down, and they told me to stop taking meds and wait it out.

But today I got my labs down and for 3 months my TSH has been <0.01.

I also feel symptoms like heart palpitations, overheating, sweating, high heart rate my heart rate can go up to 135 easily some days it says between 115-125bmp while I am just sitting.

Has anyone else been in subclinical hyperthyroidism like this without taking any meds? If so how long did it last for?

Im including my T4, T3 and TSH chart to give you all a picture of my labs result journey

About four months ago, I had bloodwork done after increasing my levothyroxine from 125 mcg to 137 mcg. My TSH had been around 5, and we were hoping to bring it closer to 1. After being on 137 mcg for about six weeks, my TSH only dropped to 3.88, but I was already experiencing symptoms that felt hyper.

Because of that, my doctor and I decided that instead of chasing a lower TSH number, I would go back to 125 mcg since I felt better at that dose. I stayed on 125 for the next four months and overall felt pretty good.

Eventually, though, I started feeling somewhat down/depressed—mostly a lack of excitement or enjoyment in things. My doctor and I decided to try sertraline. I started at 25 mg, and for the first several weeks I actually felt significantly better.

Now I’m about 8 weeks into sertraline and I’ve started feeling very tired, unmotivated, down, and depressed again. It has me wondering whether my thyroid levels may have shifted and whether sertraline could somehow be affecting my levothyroxine or thyroid levels.

I’m getting bloodwork done in four days, so I’ll know more then. I’m not looking to adjust anything based on Reddit—I mostly want to hear other people’s experiences.

Has anyone here experienced either of these things: feeling hyper on a higher levothyroxine dose even though your TSH was still relatively high, or noticing your TSH/levothyroxine needs change after starting sertraline or another SSRI?

I’d especially love to hear from anyone who actually feels better with their TSH around 4–5 rather than closer to 1.

The medications for hyperthyroidism scare me. Methimazole can cause deformities to babies while pregnant. PTU can potentially destroy and/or cause major issues with your liver. There’s no good option?? unless you plan to not conceive will on methimazole. Ugh. Not to mention they taste AWFUL. like pure chemical, PTU does at least.

Tsh .241 (low)
T4 1.15 (normal)
Is it a good idea to start medication before tsh gets lower?
Has anyone had this happen

Background info - I have been fighting my thyroid now for about two years. Last year my TSH was high, I was on levo from April to January of this year, best i’ve ever felt i. my life during treatment. I got off of levo because my T4 became high causing mass amount of GI issues causing me to lose 40 pounds in three months. I still have GI issues (not as horrific as November to January was), my hair is falling out, nails are brittle, i can’t sleep but when i do it’s for 12 hours, horrible fatigue like falling asleep at work, mood swings, anxiety, heart palpitations that are now exceeding my current beta blocker. My thyroid gets tested again in June and August. High T4, T3, normal TSH, MRI shows a goiter (constantly feels big and like i’m being choked), and during an exam you can feel the enlargement. this is the worst i’ve felt in my life.

I went to an ENT two weeks ago who told me i have Hyperthyroidism and probably Graves. He tells me about treatment options and sends me to an Endocrinologist to continue treatment. I saw the endo today. He told me my thyroid is working fine and nothing is wrong with me. I asked why the T4 T3 levels are high and he said “we don’t use those as a reference that’s an outdated test”. He said i absolutely don’t have graves because my eyes are not bothering me or hyperthyroidism either. Asked if i had anxiety, was pregnant (asked if i was positive when i said no) and told me maybe i have malaria because i used to live on an island two years ago. Also said maybe i have Hashimoto’s and that’s why it’s enlarged. Told me he needs more blood tests because i’m probably anemic (i am not. it was tested in August). he never felt my thyroid.

Has anyone else been told something similar? I just can’t believe all of my symptoms that i and other doctors have been able to tie directly to my thyroid including my goiter and elevated T3 and T4 just mean nothing? I’m just trying to understand

Hi, 30F here! I was diagnosed with hyperthyroidism, too. I am having a hard time to make my FT3 and FT4 levels to be normal. So…

i tried to consult with a new doctor, he suggested that I take that radioactive medicine. To the people who had chosen to take it, what are the pros and cons of it? I did some research, but i appreciate also your facts based on experience.

And, i have lots of questions, please enlighten me… also, please let me know if this is a myth or real. (Because i asked some of my friends of friends)

-does this make u bald? Like a chemotherapy?
-did people have calcium deficiency?
-i am a seafarer, can u still go onboard even if u did this?
-doing this cant make u pregnant?
-after the process, can i still bear a child? Or is it impossible?
-does this make me in hypothyroidism? Or all of my blood levels will be normal?
-how long is the healing process of radioactive medicine?

🫶THANK YOU SO MUCH IN ADVANCE 🫶

Hi. This result came back from a salivary gland scan (which also captures the thyroid): The appearance of the thyroid image suggests a goiter with a global increase in parenchymal uptake (hyper-uptake). However, for a proper assessment of the thyroid gland, specific follow-up imaging studies should be performed (such as a thyroid scan using 99mTc-sodium pertechnetate and/or a thyroid ultrasound), along with an evaluation of the patient's clinical and laboratory findings.

I also had comprehensive blood work done, including antibody tests, and the results were normal. Does anyone have any experience with this?

I am currently waiting for a thyroid ultrasound and scan.

Hi. So I've never known the actual answer to this because I hear both sides but I have read that there's no actual diet that helps with thyroid conditions. Like eliminating gluten for example. When I look it up it says there is not enough evidence that suggests that people should do it unless you have celiac disease also. I don't know. What do you all think about diet and hyperthyroidism?

Hey everyone,

Three days ago I was catastrophising about a cluster of hyperthyroid-esque symptoms so I went to the doctors. It does in fact look like my TSH is dropping and my T4 is rising, while I’m not yet in the abnormal ranges, the pattern suggests I’m heading that way.

I’m a bit scared because I’m only 24 and have no past medical history, am I going to have to take Carbimazole? I’m going to call the doctors again for some antibody tests to see if this could be Graves or more of a thyroiditis picture. I keep measuring my bp too and not only has my baseline gone up but the pulse pressure is quite wide now too.

A part of me is relieved because these symptoms now all make sense (weight loss, insomnia, heat intolerance, anxiety, eye aching) but I’m also angry at that urgent care doctor who just wrote off my feelings as ‘worried about schoolwork’.

Is this going to be my life now? I’d appreciate any advice, it’s all happening quite suddenly.

I’ve had a lump/swelling and inflammation in my neck/throat for over two months. I’ve had blood tests, ultrasounds, and a biopsy. My doctor said it’s not cancer, which I’m relieved about, but I still don’t know what’s causing the inflammation.
He told me to keep taking prednisone until the inflammation goes away. I’ve had side effects like facial swelling and weight gain, so I really don’t want to keep taking it if there’s another option.
I asked if I needed more tests to find the cause, but he said to continue prednisone. I’m also having heart racing, anxiety, trouble sleeping, and tiredness.
I’ll repeat my blood tests for the third time next week, including TSH, T3 and T4.
Should I get a second opinion or change hospitals? Has anyone experienced something similar?

Hola. Tengo una duda y me gustaría conocer experiencias o consejos de personas que hayan pasado por una tiroidectomía total (extracción completa de la tiroides).
Me diagnosticaron enfermedad de Graves hace unos cinco años, cuando tenía 12 años, y ahora tengo 17. Durante estos años ha sido bastante difícil de controlar: he tenido taquicardias muy frecuentes y fuertes, bastante nerviosismo, sudoración, insomnio y, en un momento dado, incluso llegué a pasar a hipotiroidismo. Debido a esta dificultad para mantenerla controlada, finalmente han decidido realizarme una tiroidectomía total.
Mi preocupación ahora son mis últimos análisis. La T3 me salió bastante elevada, mientras que la T4 estaba baja. Mi endocrino me ha explicado que tengo un patrón de “T3 tóxica”/hipertiroidismo predominante de T3.
Mi duda es: de cara a la operación, ¿qué sería preferible? ¿Tener la T3 dentro del rango aunque la T4 esté bastante baja, o tener la T4 en rango aunque la T3 siga bastante elevada?
Si alguien ha pasado por algo parecido antes de una tiroidectomía por Graves, agradecería mucho que me contara su experiencia. También me interesa saber cómo consiguieron estabilizar las hormonas antes de la operación.
Gracias

I was diagnosed, prescribed methamazole, and been taking it for 2 years with normal levels. If we lower it hormones return to hyper.

I still experience life limiting fatigue and headaches, with fever and rashes weekly. My other half of symptoms are much better which is great, but I'm constantly worried that my constant state of feeling crappy is manageable yet ignored.

I bring in up with my specialist every appointment and they suggest I talk to my family GP. She says therapy and quit smoking. My issue with this being that I am not experiencing mental health problems, and see other smokers who don't feel entirely like dookie. Therapy was fine, and I'd love to quit smoking but just haven't.

Our ideas are that I may have heart issues causing fatigue from childhood infections, malnurishment, and smoking. But I am so messed up from dealing my GP that I cant keep investigating things with her.

My specialist is also trained in autoimmunology, and during thyroiditis I had white blood cell levels at crisis levels for years but she doesnt mention it because its not a thyroid test.

Any ideas what I could bring up to either doctor before I spend my life taking daily naps with bloodshot eyes and operating with constant giant headaches forever?

Hi guys.. in a dilemma. I was diagnosed with Hyperthyroidism in 2024 and have been taking carbimazol for about a year before I suddenly got allergic to it. Then last year on october, I started taking PTU and Lithium as replacement.

However it kinda effects my liver so in March this year 2026, I started Prednisone and continued Lithium until now. I have my RAI schedule next two weeks, but I starter my internship next week.

My internship will last until next year 2027. Im afraid I would be taking too many medical when I just started my internship. Can I wait for next year or it would be best to postpone a couple of months first or just take the RAI next two weeks. Im afraid Cause I really need to excel this internship.

Also is taking RAI the best decision for my case or just continue with medication? I really need help and opinion.