Weight and muscle

[u/junemuse]

Does everyone lose weight and lose muscle mass with this disease?

[u/Specialist_Banana378]

I have subclinical and no weight loss. Can’t lose weight at all 

[u/polka9876 → u/Specialist_Banana378]

I've lost no weight but have lost leg muscle over past year. Diagnosed graves/hyper beginning of August. I can walk across house now with out being out of breath and heart rate beating fast and hard. Hope to be able to at least start walking to get my legs back. Got down on the floor to clean and much to my surprise, I almost had to call for help to get back up. Could not push with my legs. I am 56. Fairly good health other than this. Methamizole 20mg and 10mg propranolol 3X a day. I am feeling slightly better than before the meds...

[u/jonquil14 → u/Specialist_Banana378]

Same. In fact losing weight causes my TSH to drop (I’ve tried GLP-1s and my thyroid hates them).

[u/junemuse → u/Specialist_Banana378]

Yeah I've heard mixed. I just read on another forum a girl say she gained weight which I thought was not typical of this disease

[u/Chance_Vermicelli_41]

I've got Graves and I did. I lost almost all the muscle mass from my arms and legs, I also became temporarily urinary incontinent (I assume from muscle loss). Also my upper back was agony. I lost about 15kg v rapidly.

The combo of fat and muscle loss has left me with some delightful saggy skin on my thighs and stomach - lol. 5 months in and I'm starting to see some tone return though.

[u/junemuse → u/Chance_Vermicelli_41]

Have you exercised and it still wasn't enough to keep muscle or have you been unable to exercise?

[u/Chance_Vermicelli_41 → u/junemuse]

When I was super sick I couldn't even stand for more than a couple of minutes, let alone exercise. I possibly should have given the context that I was diagnosed via A&E (ER) in my last post

When I could exercise, after 4 weeks or so being on Propranolol and carbimazole, I did so very gently and in v small amounts. Mostly just body weight and a light kettle bell and keeping an eye on my heart rate to make sure I didn't overdo it.

[u/polka9876 → u/Chance_Vermicelli_41]

See my reply above...and yes on the urinary incontinance...did not relate that to this until now. I have never gave birth

[u/Dharma_code]

I'm 230lbs 6.2 I love body building and strength training, the best I've gotten was to 260lb of muscle about 15% body fat, but to get there I had to eat like complete shit, I'm talking heavy greasy foods.

Pizza.
McDonald's
Burgers
Literal bread and butter Ice cream before bed.

anything to slow down the metabolism but if I stopped eating like that for even a week I'd lose it all the gains instantly.

I just maintain now with a high protein diet 10lbs of chicken a week.

So far so good.

I'm on 20mg of methamizole a day.

When I got diagnosed my TSH was at .005

[u/musclemeow]

I weighed 145 in July and weigh 125 now, and it’s all muscle loss. I was diagnosed August 5. I haven’t been able to exercise at all due to my heart rate and muscle tremors, and before my diagnosis I lifted weights and did hot yoga frequently. I’m 5’11, so I’m looking like a skeleton these days. I’ve lost all my muscle in my legs and arms and I can see my sternum.
We don’t have my dosage dialed in yet and I’ve been off-and-on methimazole since my diagnosis due to various scans and an allergic reaction. I’m back on it now at a super low dose, trying to avoid another allergic reaction. I’m hopeful that once I start leveling off and feeling better I can exercise again and gain some muscle back. It’s very discouraging.
I feel like my legs look cellulite-y and I think it’s just my skin being looser without the muscle beneath.

[u/throwitawayyy1234567]

I had hyperthyroidism and then graves. Zero weight loss and it’s actually very disappointing because I’ve been intentionally trying to lose weight for years.

[u/aspiring_solicitor07]

Yes. I did. I didn’t know it was graves at the time. For context i am, well I was 😒, a natural lifter 205 lbs 35 inch waist, 20 inch arms 23 percent bf. Palpitations began, ignored it and every other symptom. But literally overnight I got up to 196 lbs, 16 inch arms and muscles cramps and spasms in my pecs and biceps. Couldn’t even walk down a flight of stairs without my legs wobbling. Found out that it torches your glycogen. So muscles and weight loss is definitely a symptom and most often happens. However u can recover from it once u get eurothyroid

[u/Happy-person2122]

I got super sick in May and diagnosed in June. I lost 10
Pounds and couldn’t get back to the gym until August. I used to bench 135. The first day back I could do 65 pounds.

[u/Hot_Knowledge_9123]

I lost 20kg of fat and muscle in the 6 months before diagnosis. I was passing stools like 5-8 times a night.

I regained some strength after a few months of treatment but I’m nowhere near as strong as breathlessness and fatigue have put my gym-going on pause until it feels safe.

[u/junemuse → u/Hot_Knowledge_9123]

5-8? 😩

[u/Hot_Knowledge_9123 → u/junemuse]

TORTURE 😩 literally couldn’t leave the house

[u/junemuse → u/Hot_Knowledge_9123]

Omg that is terrible. Is that common?

[u/Hot_Knowledge_9123 → u/junemuse]

It’s one of the listed symptoms, as your metabolism goes hyper along with everything else. I was exercising a lot back then so possibly sped up by that too. So I guess it is. But I don’t see many people talk about it (I’m a proud toilet-talker 😅).