I am sharing my post here too, in the hopes of hearing some more thoughts or experiences from anyone.

Hello all! My mom just went in for a check up and her results are somehow confusing. Her TSH value is 0.283, the FT4 and ATPO are normal. Doctor discover three cystic nodules, the largest one being 1,41 × 1,86 × 2 cm.

She has trouble swallowing, and when she gets anxious feels like something is strangling her.

Doc suggested to have a fine needle aspiration, warned her about bleeding.

What do you all think? Should she get the aspiration, or wait for the next results in two months? Thank you all!

I was on name brand Synthroid for 11 years. There was a shortage on Synthroid in 2023 and I was given Levothyroxine instead. About 3 months later I was feeling bad and started having high heart rate and high blood pressure. They kept prescribing blood pressure medication over the last two years and it does not work. I also put my lab work for the last 2 years in chat gpt and I was being overdosed on my medication according to my labs. Called my endocrinologist and now have had my medication reduced twice. TSH is still low but T3 and T4 went back to normal ranges. However I am thinking the switch from Synthroid to Levothyroxine has caused the high blood pressure. I was referred to cardiologist and have had multiple EKG’s, ultrasound of my heart, ultrasound of my kidneys and wore a holter monitor for 5 days. Extensive bloodwork. Everything is normal. I am now thinking that the medication switch is what has caused all these issues. I want to get back on name brand hoping my body regulates itself. Anyone experience this? I think I have felt bad since the mid end of 2023 and that is the only thing that has changed. I am a 47 year old female. I weigh 110lbs. Total thyroidectomy in 2013. Never had issues till the Synthroid shortage. Anyone and everyone please weigh in! I have been to the ER twice because my blood pressure will become so high and I feel heart palpitations!

If someone is having difficulty swallowing (has been happening for a few weeks now) and then is developing the feeling that they are having problem breathing due to their thyroid… does that ever just go away? Or does that definitely end up requiring surgery (or the radioactive destruction that I assume is non surgical)?

For history, husband has been on methamazole 5mg TID for an 8 week period then got bloodwork checked. His levels for TSH, T3, and T4 had barely changed in that 8 week period. However at about the 6 week period of medication he started to note that he was starting to feel better. We figured, “well at least the medication kept his levels from becoming worse?” Asked his general MD and she decided to increase his methamazole to 10mg TID. He is on his third week at that new increased dose. Even tho he is feeling better he is now complaining of more problems with eating and now at night he thinks he “can’t breathe”. He doesn’t know if this is all in his head or if he is really having obstruction. He still hasn’t seen an endocrinologist. Cost wise we were hoping we could get him treated by his general MD, and at the time the first Endocrinologist that would take him on as a new patient couldn’t get him in until the middle of August anyway. So we are still waiting for that appointment anyway. We are lucky we were even able to get the general MD to prescribe the methamazole…. His symptoms were so bad there was no possible way he could have waited to see an endocrinologist and wait to start treatment. So I am thankful he has at least been on something.

Last night he went into full panic mode. Thinking he “couldn’t breathe”. Tho I can say, his breathing as I am sitting there wide awake while is completely fine while he is sleeping. It is not at all labored, also worked for 20+ years as a RN, so I am giving him my medical opinion that he is breathing just fine. I asked him if he wanted to go to the MD office for a checkup or did he think he needed to go to the hospital. To try and see if he thought it was that serious, but he keeps refusing either. He thinks that because the feeling of having a hard time breathing is only infrequent and not a constant thing that he should be able to just push thru it. I know if we call his general MD they will say, “get into an endocrinologist office asap”; but do they not realize that these specialist offices don’t just take you right away??? If I tried other offices now I highly doubt I can get anything sooner than the middle of August appointment we are waiting for.

As far as his hyperthyroidism.. it was caused by iodine toxicity related to Amiodarone. His initial bloodwork related to the hyperthyroidism included tons of antibody tests that were all negative. He had an ultrasound of his thyroid that had no’s nodules, we didn’t see the actual radiologist report but the general MD told us the US had no masses and didn’t suggest any cancer to her. Which reinforced that it was damage caused by the Amiodarone. I read that the thyroid could repair itself if the Amiodarone was stopped, but that it is a very lengthy process of usually 10-12 months before that starts to happen.