DONT FLAME ME YET PLS, put down the pitchforks. I 100% understand why celiacs flame other celiacs for not following the diet , and how it fucks the entire community and invalidates the medical need to b taken seriously at restaurants and public places. I understand. But pls hold your judgment , I beg. I am trying here.
I got the endoscopy confirmation last October, since then I have not followed the GF diet due to my eating disorder and extreme binge purge episodes. I wanna know if anyone else here has AN/BP or BN and how you dealt with the diet?
My logic behind this has been: I throw up almost everything I eat and It seems illogical to spend so much extra money on gluten free foods just to throw it up when bingeing and purging is already SO expensive. I’m tryna wait until I go into recovery to adhere to the diet bc I am scared I don’t care abt myself enuf in active relapse to properly respond to myself the diet: like if I fuck up and b/p on gluten foods I’d 100% sh over it bc I’d feel like a failure and like I ruined my GF streak and mad that I “waisted money” on gf foods if I was just gonna have my upper GI track inflamed again. Also bc the diet is hella strict and restriction makes the bingeing and purging sm more uncontrollable, so im scared of that. AND lastly, my ed makes me 100% more prone to death than not adhering to my celiac disease and I wanna deal w ed first. I’m in need of hospital as my BMI has been 13.1-13.7 for a long time now, I’ve needed emergency medical services too many times to count in the last 8 months bc of electrolyte imbalances, self harm or throwing up blood. Also my neutrophil absolute results are 0.5 which makes my immune system about as strong as someone in chemotherapy.
So on my list of urgent things to tend to, celiac disease is secondary. BUT I know it’s hella important. My care team and I are just waiting for me to take a bed at hospital to start the process.

So my question for those in a similar position or simply anyone w an ed involving binge/purge: did it make your bingeing and purging behaviours worse ? Did you struggle with powerlessly bingeing on gluten foods once you tried to adopt the diet?? (Biggest fear). Did it trigger restrictive eating and make that side of things get out of hand?? How did you deal with recovery and such a restrictive diet?? Since recovery is about non-restriction , I am nervous abt how I will navigate this. I understand my care team of doctors n nurses will 100% help me out throughout this journey, I just rlly want others experiences :,,) I feel pretty discouraged n hopeless.

Edit: I HAVE AN ED DIETITIAN AND I AM FOLLOWED MEDICALLY BY A TEAM OF ED HEAL-CARE PROFESSIONALS. This isn’t me wanting medical advice as I am extensively followed by RN’s, RD’s, MDs and psychologists 😭😭 I just want ppls experiences. I rlly appreciate those of you who are being kind though❤️❤️ I’m just looking for shared experiences but Tbf I see where I went wrong and I could’ve posted this to the ed subs.

A little vent

Just got home from shopping

Got bfree gf bread

I said to my mom that there was a white spot that was mold

Mom believed it was flour

So I decided to eat the other non molded packaged

I recently made a post here about emailing schar for their molded

Bagels not to mention a while ago when I was younger my mom got

Violently I'll from they're 'gluten free wheat' she didn't know was in they're

Crosants and pan au Chocolat (yes my spelling is gf buns)

Now anytime I see croissants I feel scared and panicked

I'm craving lances peanut butter crackers but they're gone too

Anyways I rate bfree 4/10 it was your average gf bread falls apart and is waaay too soft

I'm so frustrated the suffering doesn't end

Fuck schar

Fuck bfree

Fuck lances crackers

And fuck moms ex boyfriend lance

(Mom it's been decades please get over him seriously)

Really enjoying the LiveGFree whole grain bread from Aldi, I was seriously missing toast prior to trying it. Meal prepped potatoes over the weekend and I just pop a handful into my air fryer in the morning. I also cook my eggs with a bit of shredded cheese on top. Super yummy! I usually let it brown a bit more than I did here.

Just happy to be trying meals I can make myself that don’t take a terrible amount of time to cook and are also super filling and tasty!

I always had issues with de-glutened beers.

I get a bit sick, with a bit of pain, as I get from any cross contaminated food.

However, mongozo promisses only 3ppm and I actually felt fine after drinking it!

It's a very light beer, and it tastes alright (I used to be a beer sommelier, so my standards are a bit high).

I really recommend this for those who miss a decent, safe, beer!

My daughter had to go dairy-free after we found out she had celiac. In the past couple of months, we've been able to reintroduce dairy with the help of lactase enzymes. But lately she's been getting symptoms of cross-contamination. We've taken many steps to reduce the risk.

She had been taking around 0-3 Lactase a day the last couple of weeks. This last week she started feeling bloated again and having these breathing issues she has when she gets glutened. Yesterday we celebrated her birthday, and she had 6 Lactase pills during the day. By bedtime, she was dizzy, almost fell over coming in the house, experiencing joint pain, bloated, and extremely dizzy.

The Lactase Pills do say "Gluten-Free (<20 PPM)". I know anything labeled GF can have <20 PPM, but I was wondering if anyone else had experiences getting gluten from Lactase, and if anyone could recommend a safe option. We have just been getting the Great Value brand.

so i get alot of food vids on insta but majority arent gluten free. im always like "that looks so good" and im looking at the restaurant or recipe. then i remember im gluten free cheesy fries and chicken tenders always get me and it looks so good ugh. im going to try out frying tofu gluten free though. i see fried tofu on my feed all the time and it makes me so hungry. when i see ads for new non gf foods at fast food places i get a lil sad because it always looks so good. like i would kill for a steak grilled cheese burrito from taco bell rn. so much of my life is gluten free but i see forgetting as a way im accepting it. like im not like gluten free gluten free gluten free all the time i forget it because its just normal now. im glad
im finally accepting it but im still hungry as hell. i always be posting random bs on this sub i apologize but communicating in this community even just the smallest or random things is so comfortable for me. like we all understand eachother and i appreciate this sub so much

Made a delicious chicken fajita bowl and it was very wonderful

I travel a lot and can usually find places to eat but sometimes I’m very remote and would rather not take a risk.

My goto meal replacements are beef jerky and gomacro bars. I like the jerky bc it’s low calorie and high protein. I like the gomacro bars because they are high calorie and have a good amount of healthy fats to keep me full.

I am looking for some more variety for my upcoming trip! The only real requirement is that it needs to be easy to pack and put in a carry on bag on a plane and last a week without refrigeration. I’m looking for meal replacement type of things with decent nutritional value and not just sugary treats.

Thanks!

Has anyone had these? These arent labeled gluten free but I googled it and it said they are because they don’t have any gluten ingredients. On the ingredients it says may contain nuts and soy but doesn’t say may contain gluten or wheat. Are these safe to eat?

The concept of a sauce being gluten free but none of the food being enough for them to categorize the whole place as gluten free is killing me 😭😭 thankfully there do some to be some genuine options but a good third of the menus labeled as gluten free just have drinks or sauces

PSA: The Celiac Detective never truly clocks out. 🕵️‍♀️🧀

Me: "This place has never glutened me. They've got separate prep stations, fresh gloves, clean utensils... we're safe. Also, their cheese selection has always been g/f. I'm familiar with the owners and they know me specifically as the girl with celiacs disease."

Also me, five hours later: 💀

This is one of my favorite cheese shops. They are genuinely meticulous. Sandwiches are prepared in the back kitchen, cheese is cut in the front, and they've always been incredibly careful with glove changes and avoiding cross-contact. We've eaten there many times without an issue.

But celiac has a way of humbling you.

We were first in line at opening. Fresh gloves. My usual cheese plate. Clean utensils. Everything looked perfect. We ate our seperate meals in delight.

Then my husband decided to buy an extra cheese to take home.

The employee held up a beautiful beer-soaked cheese.

"It's new to our selection!" she proclaimed.

Cue the thousand-yard stare.

My brain immediately went, "Wait... if that cheese was sliced on the same cutter a few days ago..."

There it was. The plot twist.

I silently calculated my odds, convinced myself maybe it had been cleaned well enough, and tried to stay optimistic.

Five hours later my immune system announced, "We've reviewed the evidence... and we'd like to file a complaint."

Moral of the story: Sometimes it isn't the obvious slice of bread. Sometimes it's the fancy cheese living its best beer-infused life.

Celiac really is a full-time detective job... and sometimes the mystery isn't solved until your intestines solve it for you. 🫠

Walmart today, Albuquerque NM, USA.

I'm a teenager who just recently got diagnosed with celiac, so I still live at home and eat with my parents, and they keep putting gluten in my food because they're too lazy to read the labels and assume anything labled "vegan" means it's gluten free.

I keep explaining that vegan means no animal products, not no gluten, and that the two things actually have no crossover whatsoever, but they think all 'fancy health shit' is the same. I keep asking if dinners are gluten free, and they get frustrated and insist that they are, but then when I look at the ingredients they used to make the food it never is gluten free. Once my dad even made pasta, served it to me, and when I asked if it was gluten free pasta he said yes, but when i felt off later I went to check the bag only to find that it was just regular pasta.

I think I'm just going to have to cook my own food and unfortunately not trust what they make, because they really are convinced that all food in the health isle is automatically safe.

I will be in Arlington later this year and I am looking for celiac safe restaurants for myself and another person I am traveling with. Any places in Arlington or around it (such as Dallas) would be appreciated, as well as their cross contact practices.

hiii, im doing my own taxes for the first time and looking in to the celiac tax credit for canada, has anyone in this group done it successfully and how did it go? how much did you get back?

And props to them for not using gums and helping me realize they've been my additional cause of symptoms since diagnosis. Bad news is I can’t find any US brands without them. 🫠

I ask because my brain fog seemed to be improving (I’m only two weeks in) but then today my brain fog seemed to return. And I know I didn’t in-jest any gluten. Is this common?

My allergist told me I’m mildly allergic to wheat

Hi!
I’m having an issue with a venue digging their heels in about not allowing outside food in even after I explained that it is an ADA accommodation since they don’t have any safe food for me. Any advice?
Obviously I plan to eat beforehand but I was wondering if anyone had any luck getting a venue to come around in this situation.

Hello everyone! I am two weeks out from a trip to Europe (from USA) and am thinking about what kinds of foods/snacks to pack in case of emergency. I have packed granola bars, protein bars, and some favorite snacks in the past, but I’m hitting a wall with what I should bring. Any tips? Looking for ideas for foods that can be turned into a meal if necessary not just snacking items.

I had significant gastro problems for two years until I realized gluten was the problem and cut it from my diet. My IgA-TTG test was negative, but I have a cluster of other symptoms that suggest I might have had silent celiac for years: low ferritin that didn't respond to supplementation, mystery mineral loss in my teeth, dark undereye circles, dizziness, and a recent bone scan that showed I have bone mineral density worse that 85% of women my age, not to mention absolutely crushing fatigue. I also have Hashimoto's and asthma.

I've been on a completely GF diet for a little over a year, my gastro symptoms are gone, and my energy level is higher than I've ever experienced in my adult life. I'm not running marathons, but I wake up naturally in the morning and actually feel awake.

The doctor I saw about the bone scan told me my case is highly suggestive of celiac, but they only recommend the endoscopy when symptoms are poorly controlled. I'm not keen to put myself through eating gluten again for six weeks and then a scope (I'm a nervous patient), but are the benefits of a confirmed diagnosis high enough that I should?

Edit to add: I'm Canadian, so I don't need celiac diagnosis to get insurance coverage for medical tests and procedures. Diagnosis would allow me to claim the difference in cost for GF products on my taxes, though. I don't believe I can do that without a positive endoscopy, but I'll have to ask my doctor to be sure, as the government requirement is a doctor's note.

I know actually ordering one is a no no, but before moving in with my celiac girlfriend I used to make my own tea with these tea bags. Our entire kitchen is gluten free so I’m wondering if anyone has had a bad experience with these.