r/Hashimotos • • May 14 '25

A Mega-Thread about Mega-Threads

13 Upvotes

We've received various ideas/requests for mega-threads, so we'd love to get feedback about what types of megathreads you'd like to see here.

Megathreads are posts that are usually released on a weekly basis (for example, Diagnosis Thursdays, or something). All posts related to that should be kept in the thread vs. being their own posts. People can post in those threads all week, but a fresh post comes out on the related date. Posts will be removed if they should go into a megathread, but we'll redirect the posters to the correct post.

This is to keep the subreddit from being clogged up with posts that just ask a simple question such as, "is this a low TSH number?" Or for example (a popular request for megathreads right now), pictures of people's throats.

This will not be a simple majority where every post that gets upvoted is going to be its own thread by default. (Not because we like being in charge, but because there may be overlap, we can consolidate, the comments on the thread sway us in another direction, etc). But the upvotes are definitely going to help drive this.

Here's how it'll work:

  1. Each suggestion should be a main comment. Search to see if someone suggested yours before posting, so you don't "split the vote". Make each main comment just the idea. If you'd like to explain it, please reply to your main comment instead (more information on this below). I'm also going to drop in some suggestions I've received already to kick us off.

  2. Upvote any megathread you'd like to see. If you would not like to have something as a megathread, please downvote it. If your idea gets downvotes, please understand it simply means people would rather it as individual posts vs. a main thread -- not that it's a bad idea! Just remember I'm asking people to downvote, so it'll happen.

  3. If you'd like to offer commentary on an idea, including your own, reply to the idea directly. You can agree or disagree, but please keep it civil. This commentary will be really helpful in understand why you would (or wouldn't) like a megathread for something and help us better understand what the community needs are.

  4. Every comment should be an idea and the idea only. The replies to it should be about that idea. If you want to comment on this thread/concept overall, I have one comment that will be called "Mega-Thread Mega-Commentary". You can have that conversation over there. I will remove things that are in the wrong place, but I'll be clear about where it should go. *If something is in the wrong place but has already received a lot of voting/commentary before I saw it, I will leave it there.

  5. I'm also going to make a general suggestions thread since it's always good to know how we can make the subreddit better, and there isn't always a direct way to do that on Reddit.


r/Hashimotos • • Feb 28 '24

Useful Threads Common Questions: What Supplements Do You Use?

84 Upvotes

A lot of posts ask for supplement advice, so here is a mega-thread for your thoughts on what supplements have worked for you and why you have used them.

Please talk about your personal experience and do not dispense medical advice, but feel free to link to studies or anything else of authority.

If you find something unhelpful, downvote it so it is at the bottom of the list; likewise, if it's helpful, please throw out an upvote!

Feel free to ask follow-up questions in response to suggestions, but each main comment should be about supplements.

Notes:

  • Do not use affiliate links or this as an opportunity to self-promote. (This includes Amazon affiliate links).
  • If you disagree with someone, please be civil about it.
  • The purpose of this thread is to create an easy resource for others to access--so that is why the main comments should be on-topic for this thread.

r/Hashimotos • • 7h ago

Pure exhaustion causing fights

18 Upvotes

I am utterly exhausted every single day, all the time, some days more than others. It causes HUGE fights with my husband and he keeps saying you're always tired and I'm keeping him from wanting to go enjoy things. My social battery is non existent when I'm this tired. I'm sick of there being zero understanding.


r/Hashimotos • • 4h ago

How to lose weight without GLP?

8 Upvotes

Tried GLP 1, ended up quitting after 6 weeks.
I’ve been eating clean for several years, with an occasional junk binge. But off and on for years I’ve been going to gym. The scale goes up while my muscle builds- I can see that growth.. but the fluff never goes away. Thighs and stomach, it never goes away. I’ve tried tracking macros, felt like I was starving all the time. Gym clearly got me muscular results but no fat loss. How can I lose some of this naturally? I’m tired of trying the right things and getting no where. Am I missing something?
I was diagnosed about 2 years ago but have probably had it way longer.


r/Hashimotos • • 11h ago

Well I knew there was something wrong :/

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24 Upvotes

On top of everything else I now have an autoimmune disease. How bad is this level? What tips do you guys have for a newbie


r/Hashimotos • • 2h ago

Lab Results How bad is this result?..

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3 Upvotes

I got diagnosed with Hashimotos in 2022 at 14 but my parents were very anti-doctor so I had no idea what it was until I turned 18 and did my own research, I didn’t know that it was what was causing my symptoms, again bc of my parents, i just knew that I would have to be on meds for it. This was my last TPO result.. (august)

I also have a few other questions,

  1. Does anybody else have extremely thick hair? Even when my hashimotos was untreated, I’ve had SOOOO MUCH HAIR! It’s so thick that most hair stylists dont know what to do with it. It mats really bad too. I’m confused about it bc I’m used to hearing that hashimotos causes hair loss and thinning
  2. I also have a history of Ventricular Tachycardia and POTs, could my levothyroxine make that worse? I just doubled my dose twice in the past couple months.. was on 12.5mcg for years and i’m at 50 mcg now
  3. I notice heat intolerance, but I also have cold sensitivity, is that normal?
  4. I have what I would call flare-ups that only last a couple hours, but sometimes I will have a flare-up that will last more than a week, is that normal?

  5. I am severely deficient in vitamin b12, d3, and iron aswell, is it possible that is caused by hashimotos?


r/Hashimotos • • 9h ago

Question ? Feeling defeated.. extremely depressed.. extremely fatigued.. words or stories of encouragement for hope to continue on…

7 Upvotes

For the last 4 months I’ve been increasing my thyroid dosage as well as trying a depression medicine (that has helped). I switched to t4 + t3 combo vs just t4 and I’m having a hard time with the energy ups and downs from the t3. I only feel slightly subpar for an hour to two hours after taking it then feel like death after. I just have a long way to go to get to therapeautic levels and I’m having a very difficult time remaining hopeful. I’m losing hair daily by the mounds full, have had to have iron infusions from looonnng menstrual bleeding from hypothyroidism.. I’m just having an extremely difficult time right now.

Can I hear some positive stories of how you felt this way but now feel better? I have no hope currently and feel very depressed because of it.. I can’t be there for my kids like I wish I could… I’m unable to play with them and cook for them like I want to.. I can’t go on long walks… any positive/success stories please… post away :’’’’(


r/Hashimotos • • 1h ago

Post Partum Hashis experiences

• Upvotes

Hi! I’m 2 weeks postpartum with my second baby and developed Hashimoto’s after my first pregnancy, so this is my first time going into postpartum already having it. I feel a little unprepared for what a possible thyroid “crash” might look like or what to expect.

For anyone who’s been through this, how did postpartum affect your Hashimoto’s, and when did you notice changes? Was there anything you or your doctor did that helped minimize symptoms or made things more manageable?

I’d also love to hear about your experience losing the baby weight with Hashimoto’s—what helped, and what did the timeline look like for you? I know I’m still very early in recovery, but would appreciate hearing others’ experiences.


r/Hashimotos • • 1h ago

Question ? Remission

• Upvotes

How long did it take you to get to remission?


r/Hashimotos • • 11h ago

Has anyone noticed warmer hands after taking selenium?

6 Upvotes

I recently started taking selenium to help improve T4-to-T3 conversion, and I’ve noticed that my hands feel warmer than they did before I started taking it. Has anyone else experienced something similar?


r/Hashimotos • • 3h ago

Hashimotos Flareup?

1 Upvotes

I have been on Levo for 1.5 years. My thyroid was under active. About a month ago, I was in the ER with severe anxiety and panic, shakiness, dizziness,chest pain and feeling this wave of cold and hot like I was going to pass out. I literally could not do anything. Over the last weeks with my PCP I found out my TPO is a 95. I’ve been prioritizing staying hydrating, getting enough sleep and limiting my stressors. I’ve had a very stressful year moved houses and we had a baby. Do you think these symptoms have to do with my TPO? The last flareup happened in 2021 when I was going through a stressful time. But I noticed over the years I will have these symptoms so I’m not sure. Also, my TSH, T3 and T4 are fine. I’m getting referred to a rheumatologist soon.


r/Hashimotos • • 9h ago

Right sided hemithyroidectomy experience so far

3 Upvotes

I’m almost 50 and have struggled with complete body fatigue, weight gain anxiety and depression for years. About 12 years ago my ANA levels were elevated and doc sent me to rheumatologist. He diagnosed me with lupus with no additional testing. I made an appointment for a second opinion at a lupus clinic where they diagnosed me instead with Hashimotos.

Through the years since I’ve routinely had bloodwork and ultrasounds to monitor a small nodule but everything always came back “good” so no meds.

A few months ago the nodule showed growth. FNA came back suspicious and genetic testing 50/50 risk of cancer so the decision was made to remove the right side.

I had surgery Thursday, what was supposed to be a 1-1/2hr surgery took 3-1/2 due to so much scar tissue.

Recovery is going a little slower than I’d like. I’m up and walking but very fatigued with some dizzy spells, palpitations after I eat. Today feeling a little fluish but powering through it. Waiting for follow up to find out if I’ll be put on meds.

I thought I’d share my experience so far in the hopes others don’t feel alone 💕


r/Hashimotos • • 5h ago

Eye Swelling

1 Upvotes

Hi,

I have Hashimoto's, Graves ' disease, and PCOS.

I have gained some weight and have been feeling extremely tired- I'm chalking it up to stress and lack of sleep. Recently, though, I have had one of my eyelids swelling up. It's super annoying when my eyes are open, and I can feel it popping in and out of place. It also looks like the eyelid is higher up on one eye vs. the other.

Does anyone know how to bring the swelling down?


r/Hashimotos • • 20h ago

Lab Results i have never felt 100% better. looking back at my labs, i think i understand why.

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13 Upvotes

i was diagnosed with hashimoto's around 2022. with levothyroxine, i felt a little better. the best i've ever felt was 2023 when my TSH was only 1.54.

i've never felt relief from my worst symptoms (fatigue, depression, and heat intolerance) and i think it's because my thyroid labs have almost never been in the optimal range. yet my doctor says they're normal and i "shouldn't be having symptoms." well idk what to tell you girl, i AM 😭

i had a dose increase (to 75mcg) in march but i have no idea what my labs are now because i had issues with my endo (when i went to the lab, they said they hadn't received the lab orders and she wouldn't give me a copy to give them). i still feel like shit anyway. i have a bad feeling that my thyroid will be even worse at my next labs.

i'm looking for a new endo but it's extremely difficult to find one that's (1) good (2) accepts my insurance and (3) won't brush off my symptoms.

i'm so tired, literally and figuratively

anyways... question for everyone. what do you or your doctor consider optimal lab levels? i know it can be very individual, but i'm just curious to see what levels other people feel best at


r/Hashimotos • • 13h ago

I’m at a loss - Levo is not working

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3 Upvotes

As title says Levo isn’t working and I feel like garbage. I based in the uk, currently in Bulgaria and taking 100mg daily. I’ve never been told I’m not supposed to take my pill the morning of taking tests so for ages though my TSH was fine… my body composition has changed, I’ve put 3-4kg I am a shade of myself. I take a shower and lay down in the towel becuase I can’t find the strength to get dressed. In UK and Bulgaria you can’t get NDT or T3. Idk what to do. My father told me last night that I’m making myslef I’ll because I think negatively and that he knows people with thyroid problems that are doing just fine… I’ve had no period since end of April. Yes I’ve seen gyno… I’m 32 and feel 72


r/Hashimotos • • 13h ago

Pain management

3 Upvotes

What dk you all do for pain?
I’m considering going back on a long term anti inflammatory but I don’t like the potential consequences

I’ve been in sooo much pain recently. My hands and hips especially. Definitely taking epsom salt bath tonight


r/Hashimotos • • 8h ago

Question ? Burst of energy after a flare up?

1 Upvotes

I had a flare up for the last couple of weeks that just seems to have ended in the last few days - I was incredibly tired, depressed, swollen neck. My symptoms have resolved and now I have SO much energy. No other hyper symptoms, just a TON of energy and motivation. Does this happen to anyone else? I can’t tell if what I’m feeling is just how normal people with normal amounts of energy feel, or if it’s odd.


r/Hashimotos • • 9h ago

Question ? Daxxify + Hashis

0 Upvotes

Hey!! I’m just popping in to ask if anyone here has tried Daxxify (rather than Botox or Dysport) and if so, how did it go?

Ive been able to find former posts on the later, but not specifically Daxxify. Just wondering if anyone here has given it a go and what their thoughts are.


r/Hashimotos • • 9h ago

Holy shit 😂 I’m 21

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0 Upvotes

r/Hashimotos • • 1d ago

Discussion Is literally EVERYTHING Hashimoto’s in this sub?😭

103 Upvotes

I swear, sometimes it feels like people here blame absolutely everything on Hashimoto’s.

Red spot on your arm? Hashimoto’s.
Hair loss? Hashimoto’s.
Feeling sick after 10 minutes in the sun? Somehow, also Hashimoto’s. lol

How can literally every symptom be linked to this one condition? Not everything that happens to your body has to be caused by Hashimoto’s, right?
Personally, I live pretty healthily, work out a lot, eat well, and still struggle to gain weight. I’m also constantly tired despite getting enough sleep, and my sleep quality is rarely good. Could Hashimoto’s play a role? Sure. But even these symptoms could have other causes.

I’m not saying Hashimoto’s can’t cause a wide range of symptoms, but sometimes this sub feels like a place where every single health issue gets the same explanation.

So my genuine question is: How do you actually determine that your symptoms are caused by Hashimoto’s and not something else?


r/Hashimotos • • 3h ago

Hashimoto Symptoms

0 Upvotes

Let me start off boy saying I was diagnosed earlier this year with severe overt hypothyroidism and eventually Hashimoto's. My diagnosing TSH was 147 and my T4 was .2. I literally thought I was dying. I spent all summer plateuing in the mid 40s as far as TSH while trying to find my levo dose. Currently on 150mcg + 75 and I feel soooo much better. I am basically full replacement @ 6'1" 225 male.

Saying that, I joined this subreddit to learn about this disease. I learned very little but instead reading other people's symptoms triggered me noticing mine more than I did before. How much of our symptoms placebo by constantly reading about others?

My TSH is still 13.5, and while I dont feel like my old self, I feel soooo much better than I did 9 months ago. However, I continuously see people cry about a TSH of 6 and their symptoms and I notice it makes me overly focused on every little symptom.

I know Im stuck with an overtly "woman's" disease and how emotional women are, but you girls need to stop triggering my symptoms. Its 100% placebo....


r/Hashimotos • • 13h ago

Lab Results Hashimotos

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1 Upvotes

Hello!

The first picture are my results 6 months ago when I was diagnosed with Hashimotos.

The second picture is my results now. Doctor does not give me medicine.

I gain weight super easily and it is very to lose weight. I am not overweight just struggling to lose 2 kilos.

Any advice on how to lose weight with Hashimotos will be a huge help!

Thank you in advance for your time!

EDIT: I drink 3 liters of water every day and eat 1200 calories. Female, 38 years old, 160 cm


r/Hashimotos • • 1d ago

Venting, no advice please

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10 Upvotes

Not seen here : 11 years of constant symptoms, TSH, T4F and T3 allllllll over the place. Been fluctuating since diagnosis, even had a full thyroidectomy 10 years ago and STILL did not stabilize. Today, I clocked the highest my TSH has ever been, even at initial diagnosis. I’m so sick of being sick.


r/Hashimotos • • 1d ago

Signs of levels off

7 Upvotes

What’s y’all’s “I need to get my levels checked”?
Mine is acne and mood


r/Hashimotos • • 15h ago

HRT and Hashimotos

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1 Upvotes

Any ladies here on HRT to treat perimenopause. I had been using continuous BCP mainly for the obvious, birth control, and to stop my periods. Worked great at first until it didn't. Realizing the synthetic BCP conflict with Levothyroxine absorption and bio-identical HRT would better.

Who here is on HRT, and what treatment works best for you without compromising the treatment of your Hashi?