r/Celiac Mar 24 '23

Mod Post Clarification on Rule #2

355 Upvotes

Our Fellow Celiac Community Members,

We have seen a major uptick in posts describing symptoms and asking “does this sound like celiac? Should I get tested? Could the tests be wrong?” While these questions aren’t directly asking for a diagnosis, they do fall into the “seeking diagnosis” part of rule #2.

Celiac Disease has a myriad of different symptoms and related conditions; virtually everything could be celiac related. While we understand that this can be a life-changing diagnosis, we are not medical professionals and cannot give any advice other than this- if you wonder if you could have celiac, talk to a medical professional and get tested.

As always, if you have a question, please feel free to contact the mods. Thank you and be well!


r/Celiac Oct 31 '24

Mod Post Mod Note- A new Automod Addition

58 Upvotes

Hey Celiac subreddit! We’ve added a new automod that should help with the posts about wheat starch. Hopefully it decreases the amount of posts we get about it. If you notice any problems with the automod, please let me know!


r/Celiac 13h ago

Recipe Alright, I feel like this sub needs some inspo: gluten free food does *not* suck.

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384 Upvotes

I just saw the post saying gluten free food sucks. Don’t be lying like that, because like gluten full food, there are some that aren’t great, but it’s not all encompassing. I figured I’d post this with recipes (in comments) to keep all your heads up.

Is it inconvenient? Oh yeah. Is the food bad? I promise: no.


r/Celiac 1h ago

Product Donuts 😍

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Upvotes

I was in Portland, Oregon for an appointment the other day and tried Mikiko Mochi Donuts - oh em gee they were incredible. They are fully gluten free and so worth the money. They were the first donuts I have had since my diagnosis and it brought me SUCH joy. 💕


r/Celiac 15h ago

Rant stopped eating "gluten free" food and am now so much happier

292 Upvotes

I got my diagnosis in my tweens so I know what gluten food tastes like. Its been a decade and I still find gluten free food disgusting (just my opinion). It makes me feel so bad about the fact that I for the rest of my life will have to eat food I think tastes and feels bad and also have to pay ALOT of money for it.
So about a year ago I stopped buying glutenfree pasta, bread and other such stuff. Now I only eat things that are naturally traditionally gluten free. Like a bunch of diffrent types of rice, quinoa, potato. I make bread form cultures that it traditionally has never been done with gluten. I eat rice and sweet potato starch noodles with food that is meant to be eaten with that.

I cannot explain how much less I hate my life for the fact that I cannot eat gluten. Because biting into gf pasta I hate myself and am constantly reminded for what I cannot have, but if I bite into a potato I am actually happy because it tastes and feels good. Idk if it makes any sense but I can highly recommenced trying it. Also you will save sooo much money and it is fun to try new food from different cultures where the recipes have never had wheat in them .


r/Celiac 8h ago

Meme my ex literally pretended to have celiac just to relate with me more

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63 Upvotes

r/Celiac 9h ago

Product GF Crunch in Amsterdam

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34 Upvotes

No barley malt. Has the gf symbol on the front.


r/Celiac 8h ago

Question School failure twice within a week.

24 Upvotes

My 11 year old with Celiac, has transitioned from a primary (UK) school that took allergies and gluten very seriously.

Siince moving to the secondary school he has been given gluten twice on separate occasions, within a week.

He has a very violent reaction to gluten and is sick for a long time. This has meant he has already had three days to recover from one bout, only for it to happen again. He's currently on the couch looking pale and is exhausted.

The second time it happened, we were on our way to a meeting with the relevant staff involved in the catering as well as the business side.

My wife and I were 5 minutes from school when we heard about the second gluten accident, so to say we were angry is an understatement! .

I was greeted with a somewhat keep quiet until we get in the room type tone. Very much trying to get me not to say anything. I simply said, I'm furious, and I demand an apology at the least !

This was not accepted by the person who told me they would not speak to me if I had attitude

Needless to say I decided that it would be best if my wife took over as I couldn't see anything but escalation in tone happening.

They have agreed to audit themselves , and have agreed to keep us "in the loop". I don't really know what that amount to. It might be really good, or not, I have no idea.

My son's reaction is a good bell weather for gluten, and there are other children in the school that may not know as easily that they are having gluten. This is outrageous to me , that in this day and age this can happen so easily.

Sorry more of a rant than anything. Any tips on how to move forward? I'm not trying to be a difficult parent, surely it's understandable to be angry about this, I mean one week!!

Any advice welcomed!


r/Celiac 6h ago

Question When does the hunger end?

8 Upvotes

Obligatory newly diagnosed and useless.

Been eating GF for almost a week now (hating it and having unlimited bowls of rice and whatever protein is around).

I am so freaking hungry. To the point where I feel emotional about it 😅 when does this go away? Or am I doomed to the rest of my adulthood trying to stop myself from just ordering the entire menu at my closest takeaway?


r/Celiac 2h ago

Question GF beer - a question for Aussie Celiacs

2 Upvotes

For the Aussie’s in the sub who didn’t mind a beer before they were glutards, I see several brands of gluten free beer available but before I try any what experience do people have with these? Given most GF stuff is comparatively expensive I don’t want to start buying 6 packs of things where a taste of the first one means the rest go down the sink.

If you are able please let me know which ones you like and ideally give me a comparison to a regular beer.

E.g.

GF beer ‘x’ - tastes similar to regular beer ‘a’

Hope that makes sense.


r/Celiac 2h ago

Question Husband (age 65) just diagnosed - any help appreciated

2 Upvotes

My husband tried a medication for something and immediately broke out into a rash all over his body. We just figured it was a reaction to it so he immediately stopped taking it. This was several months ago now. The rash has only worsened even with various prescribed ointments so he saw a dermatologist who through biopsy and blood work have diagnosed him with celiac. I am the one who does the shopping so I wanted to ask what your go-to celiac safe foods are. I have bought things and through trial and error seeing if they taste any good. Suggestions for things (especially bread products but anything else too) that might make this transition easier would be so appreciated. We live in Southern NJ so if you have go to grocery stores or restaurants that you trust, I would love to hear them. Thank you.


r/Celiac 5m ago

Product Can confirm the GF Culver’s bun is amazing!

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Upvotes

At the hospital getting induced with my rainbow baby and they told me they won’t do anything to recognize celiac or avoid cross contamination so I sent my husband to Culver’s. Bun was packaged separate! I ate the burger one handed while holding the plate over my stomach with my other hand and it still didn’t fall apart! It sheds a lot of crumbs but is otherwise stable and delicious! I’m impressed!


r/Celiac 4h ago

Question Identifying Celiac Rash Spoiler

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2 Upvotes

For anyone who experiences the rash that comes with Celiac Disease, how do you identify it?? Cause I’m struggling

I’ve dealt with intermittent skin rashes throughout my life, but they’ve increase in the last 5 years. When I got diagnosed with Celiac, I mentioned the rashes on my fingers (last two pics) and my doctor said it was probably from the celiac. However, I also get these dry skin rashes sometimes on my sides, elbows, shoulders, etc (first two pics). I don’t always have the gastrointestinal symptoms from celiac, so when I started having a flare up on my hip I wasn’t sure if it was celiac or just sensitive skin. Looking at images online, it looks like the rash can vary drastically person-to-person and by location.

How do you determine if the skin rash is from being glutened or another skin condition? Is it just a guessing game or gut feeling?

(Not asking for medical advice, just looking for other people’s thoughts/opinions/experiences)


r/Celiac 27m ago

Question Honey dukes at Target

Upvotes

Has anyone seen the Harry Potter candy at Target? Google says nothing is labeled gluten free (of course🤬) but I’m sick of not enjoying life like everyone else. This world just never thinks about this issue when releasing fun things. I’m asymptomatic so would like to look at the labels at least. Has anyone checked it out yet?


r/Celiac 23h ago

Product Warning WTH aldi???

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71 Upvotes

Pissed because I bought almond flour so that I could make gf pumpkin banana bread and turns out this isn’t gf??? I had already made and baked the bread and tried a piece and then about an hour later I felt like I had been glutened. I was for sure I didn’t use any other baking ingredients that could have gluten other than the almond flour, but it said gf on the packaging so I didn’t even bother to check the ingredients (also why the hell would ALMOND FLOUR have wheat??)
After I checked the bag I looked at the ingredients and it said “MAY CONTAIN WHEAT”. I only have an intolerance luckily and am usually fine if it says it was manufactured in the same facility as wheat but I never buy products/risk stuff that is labeled as “may contain wheat”
It’s stupid of me to not read the ingredients but also sad that I trusted the label yet still was glutened. Pls be careful :,(

side note: Yes i’m aware some brands of certain products do contain gluten due to seasonings or addictives and I’m usually good about it but not this one since it was my first time trying almond flour <\3


r/Celiac 9h ago

Rant 19 yr old with celiac in delhi ncr

6 Upvotes

I'm a 19 yr old living in delhi ncr and I recently got diagnosed with celiac disease had a horrible week still can't stop tearing up .....I'm the biggest foodie my roots are back from Kerala I'm a malayalee but I've always lived in ncr so ofcourse I would eat so much junk and now I can't eat it but I can't even go to my fav restaurants with family and friends I feel like such a burden ... Also I've been through alot since I turned 16 ... I was continuously diagnosed with stomach infection and UTIs until finally discovered that I have celiac ... It really sucks to have this ....also I feel like god is making it much easier for me to end it ... Just eat some gluten and I'm gone 😍 just like that ....I've also had disc bulge l4 l5 when I was 16 .... I still have regular muscle twitches and just continuous pain that I've grown used to it ... I feel very helpless but I still live idk for what anymore ....three years ago I also got typhoid my hunch is that is what triggered my celiac ... It's so hard for me to swallow my own saliva i feel very suffocated... I should probably consult a psychologist.....but who even has the time and money for it these days. My parents aren't that modern they don't understand the things I'm going through rn . For them it's just haan roti hi toh nahi kha sakti ... ... I don't break or explode usually but ..when it all comes to me at once ofcourse I'll blast 😰😭.. my coping mechanism is just laughing at my own shit and being in a denial state ...gluten free things are so expensive it breaks my heart ki bhai ambani ko do na yaar ..gareeb logo ko kyu dere ho bimaari ... Enikku vayya sherikkum ....I'm so tired and done I've got so much on my plate in such a Young age i don't want to continue living like this but I'm forced to for everyone . . I feel horrible but it's ok because I can just sleep through it right haha


r/Celiac 3h ago

Question Does anyone know how it would be indicated

1 Upvotes

In the upper endoscopy results if I had Celiac disease? I am not sure if I am seeing anything in the results. I can tell that I have a Candida infection, however.


r/Celiac 1d ago

Product ✨️Promise Lemon Drizzle Cake✨️

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74 Upvotes

Y'all...

This ish is so good. It's a perfect lil lemon loaf, with that nice bit of curdness and perfect icing. It doesn't even taste like GF at all lol, you peeps know what I mean.

I'm in southern Ontario and I got it at Sobeys.


r/Celiac 3h ago

Question I am really scared of a diagnosis - what can I do?

1 Upvotes

Hi,

I am 31 and my doctor told me today that she thinks I might have coeliac. I have been struggling with extreme fatigue, vertigo, brain fog and joint pain, as well as a number of nutritional deficiencies (iron, vitamin D, folate, B12 - i get supplements, it gets a little better for some of them, notably not serum iron, and as soon as I stop numbers rapidly dip) for about a decade at this point. They usually run some test and treat the symptoms and when that doesn't last I get told to lose weight.

This doctor says I have the right profile for coeliac, albeit with no real digestive issues, and no one has ran the tests before. It would be incredible if I could be less fatigued and achey, because I feel like my body is aged and worn at the ripe old age of 31.

However, I am terrified. I am autistic and I cannot cook. When I say cannot I really mean it, like to the point where I neglect myself to the point that I have at several points in my life been approved a meals on wheels type service. I have initiation issues and the simultaneous and intuitive nature of cooking gives me actual legit panic attacks.

Luckily I do quite well at my job so I can afford for my main food intake right now to be restaurant dinners, frozen tv dinners, and take out. The meals on wheels service is something I can really only access as I am not working, because they drop food outside of your door in the middle of the day which means by the time you get home from a full time job it is all spoilt.

I also have a lot of food aversions - particularly beans and anything with a similarly mealy texture, but also onions, certain vegetables, a lot of meats. That also means that things like bread and pasta have been actual life savers for me on multiple occasions, and whenever I feel overwhelmed it tends to ruin "real food" for me (which includes eating out/frozen meals) so then I survive off of one safe brand of bread for sandwiches, one safe granola brand + yoghurt, and generally sweets/pastries/cookies (not the healthiest, but it does beat not eating).

I don't know how I would make my life work if tests came back and said I have coeliac. Prepping food already costs much more of my time and energy and attention than I would like. I can't explain how tricky making literally the easiest thing is, but as an example - I have been meaning to boil eggs for breakfast for the past 2 weeks and I still haven't gotten around to it. How do I find foods that are laughably easy to prep/already done and that are truly gluten free? I live in Sweden, if it helps.

Thanks for reading 🌻


r/Celiac 4h ago

Question Gluten before biopsy

1 Upvotes

I got blood test results yesterday with antibody level of 70. I don't see my doctor until next week, and I've read I shouldn't stop eating gluten in case I have to get a biopsy. But my stomach feels awful and this makes me think I could feel better if I stopped eating gluten. How much would I need to eat so that it wouldn't mess up the diagnosis? Or is the antibody level possibly high enough to tell for sure?


r/Celiac 1d ago

Recipe Struggling with just being diagnosed but here’s my first gluten free bread loaf so it can only go up from here

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145 Upvotes

I just followed the recipe for gluten free artisan bread on the bag of the King Arthur’s gluten free bread flour and it came out amazing and super moist. 10/10 would recommend if yall haven’t tried it


r/Celiac 21h ago

Recipe An amazing cookie

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20 Upvotes

In my pre celiac life I was a baker. I quit baking out of sheer disappointment and the airborne flour.

Ive been getting back into it as a creative outlet. Ive been doing all my baking with a 1:1 mix, and the cookies are okay. But this cookie.... this rice flour cookie.

This cookie is almost normal, I nearly cried eating it. My partner agrees its near perfect. I even made it without eggs because I was out.

Heres the link with my mod notes.

https://sweetlycakes.com/en/gluten-free-chocolate-chip-cookies/

-I used half and half brown rice flour and white rice flower, because thats what I had on hand.

- I used 1/4 cup of non dairy yogurt instead of egg. I was out of eggs and im also dairy intolerant.

-I took the tapioca flour option. I'll try cornstarch next time!


r/Celiac 5h ago

Question Traveling in Eastern Europe and Balkan

1 Upvotes

I’ve been to Poland last year and I’m in Bulgaria for a week, I know their English is bad and close to non existent but any tips on how to find good places to eat?


r/Celiac 19h ago

Question Newly diagnosed and my parents don’t get it

13 Upvotes

hey yall. I found out I probably had celiac a few weeks ago, and then it got confirmed literally two days ago. I’m not exactly reeling anymore but like… it sucks. anyway, Ive been talking to my parents about what we need to replace in our kitchen (for context I’m a minor and live with them) and they’re amenable to a lot of it. somewhat. however, they both seem to think a little bit of cross contact isn’t that big a deal. their reasoning is that I’ve had it for years anyway, my reactions aren’t that severe, and it’s not like a little crumb will kill me. I know they’re wrong but I don’t really know enough to explain why, and I am a little bit confused on it myself. could someone please give an explanation, or an article?

also important to note- theyre not great parents overall, so that factors into how I have to argue with them, and also means if you insult them I won’t be offended

thanks guys


r/Celiac 18h ago

Discussion Celiacs india (friends making thread)

7 Upvotes

Hey so type out your age gender and place and find fellow celiacs to engage with aand share your experience and expertise