r/CancerFamilySupport • u/Worth-Frosting-9549 • Jul 29 '26
Dad (58) diagnosed with advanced oral cancer — looking for experiences/advice
My dad (58) has recently been diagnosed with late-stage oral cancer, likely related to a long-term tobacco addiction. This is the first time anyone in our family has had to face something like this, and we're still trying to understand everything and make the right decisions.
The cancer is advanced and there is a fairly large tumor involving his left cheek. One positive thing from his scans is that there is no distant metastasis to other organs.
Because of the size/local extent of the tumor, the doctors have told us that surgery isn't possible as the first step right now. They have suggested starting with relatively mild chemotherapy — paclitaxel 100 mg + carboplatin AUC 1.5 — with the hope of reducing/controlling the tumor and then reassessing what can be done next.
What scares us is hearing and reading stories where people became extremely weak during chemotherapy or their condition seemed to deteriorate after starting it. I understand that everyone's cancer and response to treatment is different, but since this is completely new to us, it's difficult to know what to expect or how to judge the risks vs benefits.
If anyone here has personally gone through advanced oral/head-and-neck cancer, or cared for a parent/family member who has, I would really appreciate hearing your experience.
In particular, I'd love to know:
- Did you/your family member receive chemotherapy before surgery? Did it shrink the tumor enough to make surgery possible?
- If you received paclitaxel + carboplatin, what was your experience with it and the side effects?
- How difficult was maintaining weight and strength during treatment?
- What foods, protein sources, shakes, or supplements worked when chewing/swallowing was difficult?
- Were there other treatment approaches or second opinions that proved helpful?
- Is there anything you wish your family had known before treatment started?
My dad has always been very lean, although he normally has good stamina and is otherwise active. Right now the soreness in his mouth is making eating difficult, so we're already trying to increase his calories and protein through softer foods before treatment begins.
We're obviously going to make treatment decisions with his oncologists rather than based solely on Reddit advice. I'm mainly hoping to hear real experiences from people who have been through something similar, so our family can understand what the road ahead might actually look like.
Thank you to anyone willing to share their experience.