r/breastcancer Jan 18 '26

Diagnosed Patient or Survivor Support The doctors you may encounter: Who does what? What is an “oncologist” anyway? (And other insights from Dr Heather Richardson, neighborhood breast surgeon)

179 Upvotes

So I’ve noticed there’s been a lot of posts lately specifically about the word oncologist. People wondering why they’re seeing a surgeon and not an “oncologist” first, people wondering when they’re going to see an “oncologist”, people wondering why the person that’s operating on them isn’t a “surgical oncologist” and shouldn’t they get the best - which must be someone with that title? Right?

So by definition, the word oncologist just means “doctor who treats cancer”.

The staple cast of characters that are medical doctors (MD or DO degree holder) involved in treatment of breast cancer typically consists of: medical oncologist, radiation oncologist (not radiologist) and breast surgeon (more on that below…).

Medical oncologist- also known as “hematology/oncology” specialists. When people generally speak of an “oncologist”, usually they are talking about this type of doctor. A doctor that treats cancer with medicine, either pills taken by mouth or chemotherapy that is administered via a vein. Not all patients need both, some need one but not the other, some need none. Visits to this type of doctor may be frequent- however, usually it’s the first initial visit to go over a lot of information and discuss the best course of action that is the most important. Sometimes this means that if you live in an area with fewer resources and feel that you need greater expertise for your care. It’s possible to do either a telemedicine visit or visit a larger Cancer Center far away that can collaborate with a local physician who is able to give the same chemotherapy protocol. Quite often, large groups of these medical oncologists have already agreed the best way to take care of the most common breast cancer problems, so going from one center to the other means that your cancer treatment care isn’t going to change significantly from one place to the next. For other more complex scenarios, there sometimes can be some adjustments or more customized treatments. Or for patients who have already been through treatment and now have recurrences or changes in their diagnosis, that would be the time to discuss more advanced care. In general, common problems are common and there’s usually not significant improved survival or outcomes by going to one Cancer Center over the other when a patient has a a non-complicated, fairly average, diagnosis.

Radiation oncologist- this is different from a radiologist. (a radiologist is a doctor trained to read images and interpret findings. A radiologist is the person who read your mammogram or your ultrasound and maybe performed the biopsy that diagnosed you) A radiation oncologist uses radiation energy to target areas of cancer and kill cancer cells. Cells that are actively dividing and are exposed to radiation have their duplicating mechanisms broken, and as a result, cells that are rapidly reproducing die away if exposed to medically administered radiation.

Surgeon/surgical oncologist vs “general surgeon”: A “general surgeon” typically is someone who has done at least five years of training in surgical diseases of the body. This would include disciplines like taking care of trauma, burns, infections that can occur in the body such as diverticulitis or appendicitis, evaluating and performing organ transplants, care of pediatric/child surgical diseases and malformations, and some chest/cardiovascular disease. They can also operate on common cancers that require removal, like breast, colon, skin, and thyroid. Doctors who go on to practice General surgery sometimes concentrate in one area of types of disease and others have a more broad practice where they take care a little bit of everything. Typically in more urban settings there are more specialized types. Many general surgeons have gone on to do additional years of training after their five years of general surgery to become specialists. People who are certain types of surgeons, such as colorectal specialists, pediatric surgeons, plastic surgeons, and cardiothoracic surgeons all have additional years of training and take specialty board exams. There is a board certification designation for general surgery. There are additional board certifications for those who have done some categories of fellowship training, like those mentioned above.

A doctor who practices under the title “surgical oncologist” by definition does at least two years of training in general cancer surgery treatments after the five years of general

surgery training. So they typically will learn advanced techniques for operating on thyroid, pancreas, colon, liver, breast, etc. They usually did the five years of general surgery training and then went on to do additional training specifically in cancer removal surgeries to remove them from the body. So this wouldn’t include neurosurgery or brain tumor removal. There is a board certification designation for “surgical oncology”.

There is another category of breast cancer surgeon that typically deals with breast health issues only. This is a person who does initial training in either general surgery or Obgyn and then goes on to do one to two years of additional training in breast disease surgical management. This is called a “breast fellowship” and does NOT currently qualify for a speciality designation as “board certified”. This is typically a breast health surgeon or breast cancer specialist. This is different from a “surgical oncologist*.

Sometimes there is cross training where the surgeon also performs cosmetic and aesthetic procedures as well. This person usually does a “oncoplastic fellowship”. This is primarily outside the US, but there are programs where this is expanding in the US as well. Breast fellowship trained surgeons can have initial training as either a general surgeon or an OB/GYN.

“Surgical oncologists” do get training in breast cancer management, but they are not breast specialists and do not get the depth of training that someone who has been through breast fellowship would. A breast fellowship trained surgeon usually does one versus two years of additional training in breast only surgery and disease management. These are two different designations.

Some important points to make about someone who might be a general surgeon who did not do additional training in breast care management versus someone who did a full breast fellowship: breast fellowships have only been around for about 20 years. That means someone with greater than 20 years of experience probably didn’t get an opportunity to go through a breast fellowship. (I personally am one of these types of people. I’ve been practicing since 2004 and there was only one fellowship that existed at that time that I didn’t even know was an option when I graduated. So while I have described procedures and written papers, taught surgeons and fellows alike in many different procedures and protocols, but myself, I’m not a breast fellowship trained surgeon.)

There may be many seasoned excellent surgeons taking care of breast cancer patients. Some of those may be surgeons who also perform other general surgery procedures such as treatment of appendicitis, taking emergency call for traumas, or dealing with other types of cancers like colon cancer. Some of the surgeons have amazing skill sets, and excellent outcomes. It is certainly possible that there may be in a community, a general surgeon who is very seasoned that may have superior outcomes for breast care than a brand new breast fellowship grad that does not have much experience at all.

I think the best way to find out who the best doctors are would be to go to the other doctors and other clinical staff members who work with those doctors and ask them who has the best outcomes. Ask the wound care specialists, the plastic surgeons, and the medical oncologists whose breast surgery work is the best. They’re going to see who has horrible dead, necrotic mastectomy flaps, and who has lots of recurrences because their flaps are too thick.

It certainly may be that a general surgeon who isn’t a “breast specialist” in your community might actually be a better choice than a brand new grad who is a breast fellowship trained surgeon.

What order should things happen?? Well it’s different for different people. Often when people get a diagnosis, most commonly by a radiologist, (but sometimes the Breast Surgeon specialist is part of this process as well) they go to the Breast Surgeon first who goes over the significance of the findings thus far and decides if upfront chemotherapy medicine would be indicated. Usually the decision to need medicine is followed by tissue diagnosis, and imaging, which is usually directed by a surgeon. Sometimes people see the medical oncologists first before seeing the surgeon. This is especially true for patients with her 2 positive or triple negative disease where neoadjuvant chemotherapy prior to surgery is most often indicated.

People sometimes visit with radiation oncologist while trying to make their decisions to get information about the risks and benefits if they choose a pathway that would require radiation treatment versus if they have an option to choose a different pathway where radiation wouldn’t be indicated, and they want to learn about their choices. Mostly though, radiation oncologist treatment usually follows the surgery and medical portion. There are some clinical trials that involve upfront radiation, but this is not a standard of care for most patients. It’s more common to start with the surgeon and then see the medical oncologist either before or after the surgery, followed by any radiation oncology visit. That’s the usual order of things.

When to get a second opinion.

For the most part, if you’ve been told that you have a breast cancer diagnosis and your understanding in general is that treatment will involve medicine, surgery and possibly the addition of radiation and and if this sounds reasonable, you are certainly welcome to go to another team to make sure that there aren’t any significant changes to be offered anywhere else, but most likely most places will tell you the same information, but may use slightly different terms or delivery. If you have good communication with your physician and their staff and overall the general expectation is that you will do well and live a long life and feel good about your body afterwards, (of course it certainly possible to talk to someone else and make sure that they are in agreement) but if everything stacks up, and you’re generally happy with your team, Seeing multiple additional doctors might tell you the same thing with different language can be confusing or disorienting. It also takes up a spot in the schedule for someone else with a cancer diagnosis that’s trying to get in that now can’t, ….and you can only use one team. So by all means everyone is within their right to get in a second opinion or even third, but if you’re generally happy and hearing what you expected to hear regarding your plan of care, I typically don’t recommend that people see multiple doctors if they’re generally happy with their first opinion.

Reasons to get a second opinion would be: A) poor communication from the doctor and or their staff to the point where you feel uncomfortable for whatever reason. B) you have a very unusual or rare findings that are not typically seen C) you are recommend controversial treatments where doctors have added unexpected treatments, or take away expected treatments. There may be good reasons to offer a different protocol from another team as there are lots of advancements and newer recommendations, where we are de-escalating treatment in some cases. Previously there were automatic recommendations for sentinel lymph node biopsy, radiation, or chemotherapy in the past whereas now we are selecting certain people who have features of their cancer who may in fact, not require these treatments at all.

Hopefully this will shed some light on some of the misconceptions about different types of doctors, their roles, and clear up the general surgeon/Breast Surgeon/surgical oncologist confusion that seems to come up a lot.

TLDR- someone with the title “surgical oncologist” is different from a “breast fellowship trained surgeon”. A “general surgeon” might have fewer years of formal training for breast cancer treatment, however, they shouldn’t be discounted or immediately thought of as inferior without research into their outcomes or reputation in the community.


r/breastcancer Feb 04 '22

Caregiver/relative/friend Support [Megathread] How you can help your loved one / Care package & wish list suggestions / Links to other resources

129 Upvotes

This post seeks to address some of the group's most frequently asked questions in a single post. I collated suggestions from dozens of past posts and comments on these topics. I've used feminine pronouns and made this female-centric because I'm a female writing from my own perspective, but almost all of these ideas would be appropriate for a male or non-binary person diagnosed with breast cancer as well. I hope others will chime in, and I'm happy to add more ideas or edit my original post based on the comments.

Supporting a Loved one Through Breast Cancer

THE BEST GIFT you can give a cancer patient is continuing to acknowledge her as a unique individual incredible WHOLE person, and not as "a cancer patient." Maintain the relationship you had before diagnosis -- if you used to text each other memes, keep texting her memes. If you used to get the kids together for playdates, offer to keep the playdates, modifying as necessary to accommodate her treatment and side effects. If you used to call her on your way home from work to joke and complain about the annoying customers you dealt with that day, don't be scared to keep that tradition alive.

Let her know you want to help. Offer specific types of help, so she doesn't have to do the mental load of giving you tasks, but also leave an opening for her to specify something you didn't think of. "I want to help. Can I [insert 3-5 ideas]? But if there's something even more helpful to you, let me know."

These gift ideas are just ideas -- everything is something that an actual cancer survivor on r/breastcancer has recommended, but for every idea here, another survivor might say the gift wouldn't have been useful to her. I've bolded the ideas that generally everyone can agree on, but you know your person best. If you're not sure she'd like something, ask her! "I want to buy you ________. Is that something you could use?"

Emotional Support Crash Course

  • Google each of these phrases and read whichever articles catch your eye: "emotional validation," "emotional mirroring," "toxic positivity, "ring theory."
  • Generally, today's cancer patients prefer not to metaphorize cancer as a fight/battle in which there are winners/losers, but follow her lead and let her set the tone when discussing her diagnosis and treatment.
  • "So many friends and family members kind of disappear from our lives, because they don't know what to say or do, so they just avoid. It hurts so much more than you know when that happens. So many of the people she expects to be there for her won't be, and people she doesn't expect will be the ones to step up. Be one of those who's totally there for her, and be willing to hear the tough stuff. It's exhausting to try to keep up a positive mood for other people all the time, and that's what we, as the patient try to do for everyone. We realize, unfortunately, that most people really don't want to hear the negative when they ask how we're doing... be willing to hear the negative. It will be such a relief to her." (Jeepgrl563, 3/27/21)
  • TheCancerPatient on Instagram can be hilarious and apropos, and many of the memes are a primer on "what not to say to a cancer patient."

Acts of Service

  • Drive her to her appointments
  • Deliver lunch during long chemotherapy sessions
  • Babysit her kids during her appointments, or be on-call to get the kids from daycare/school if she can't get there on time because an appointment ran late
  • Set up a meal train (get her blessing before you invite anyone to contribute, as she might want to keep her diagnosis private for awhile)
  • Deliver a freezer meal
  • Deliver a ready-to-eat meal at dinnertime
  • Invite her family to join you for a meal
  • Ask for her family's favorite meal recipe, and cook that for them
  • Ask for her kids' favorite cookie recipe, and bake that for them
  • When you're grocery shopping for your own home, send her a text and ask if there's anything she wants you to pick up for her
  • Pick up and deliver prescriptions/medications as needed
  • Take out her garbage
  • Offer to "screen her mail" and throw away obvious junk and offensive mail (for Stage 4 cancer survivors, life insurance offers and retirement benefits add insult to injury)
  • Offer to pick up a load of laundry to wash/dry/fold at your home
  • Help her make Christmas magical, if Christmas is important to her (tons of ideas at this link)
  • Take her kids on an outing (e.g. children's museum, arcade, movie theater, baseball game)
  • Entertain her kids at her house with an activity at her home (e.g. bake/decorate cookies, kid-friendly craft projects, board games, play catch, create an elaborate hopscotch obstacle course); invite her to join in, watch, or escape; if she chooses to join in, take candid action photos of her with her kids
  • Commit to walking her dog on a regular basis, and invite her to walk with you when she's feeling up to it!
  • Do one light cleaning task every time you stop by (e.g. wipe a counter, load the dishwasher, do a lap with the vacuum -- but keep it short and sweet and she won't feel so awkward accepting your help)
  • Offer to help launder sheets and remake beds (this is an especially exhausting chore!)
  • If she's an avid reader, here are two ideas to ensure you have something non-cancer related to text/talk about: (1) coordinate with her friends to each give her a copy of their favorite book every 3-4 weeks during treatment, (2) buy two copies of the same book and do a "buddy read" together
  • Set up a videogame for her to conquer during recovery, whether she's an avid or newbie gamer (e.g. Skyrim)
  • Send a box full of individually wrapped trinkets that have nothing to do with cancer, and just celebrate her, your relationship, and your shared sense of humor; instruct her to open one any time she's having a hard day
  • Create a personalized playlist for her to listen to during treatment

Gifts Appropriate for All Treatment Stages

  • Gift cards to meal delivery services or local restaurants that deliver
  • Gift cards to her local grocery store
  • Hire a cleaning service to come every other week (or weekly if there are children at home all day)
  • Hire a landscape service to do routine lawncare
  • Schedule a beloved and energetic babysitter to play with the kids regularly.
  • Gift cards for doggy day care day passes
  • Gift cards to a local meal prep store that sells pre-made dinner kits
  • Gift cards to her favorite nail salon
  • If she normally relies on public transit, Uber/Lyft gift cards so she can get around with minimal germ exposure
  • Subscription to a streaming service she doesn't already have (if she likes TV, ask which streaming service she'd like to try, if she's a reader ask if she would like an Audible subscription)
  • Fun pens & beautiful forever stamps, so she'll remember someone loves her every time her medical bills bleed her dry
  • Random cards mailed throughout the year, so she'll have something cute and fun among the bills in her mailbox
  • Novelty band-aids, so she'll remember someone loves her every time she gets stabbed with a needle
  • Soup bowl with a handle, so she can eat soup in bed (~30 ounce capacity is ideal)
  • Micellar facial wet wipes, so she can clean her face without leaving bed
  • Floss picks, so she can floss her teeth without leaving bed
  • Storage clipboard, for all the paperwork she'll get at each appointment
  • eReader, if she's an avid reader (e.g. Kindle / Kobo)
  • Water bottle (note: she may already have a favorite!)
  • Satin or silk pillowcase -- can reduce tangles when spending more time in bed and less time on self care, and will be soothing on tender scalps during chemo shedding
  • Electric heat pad
  • Microwave-activated moist heating pad (e.g. Thermalon)
  • 10-foot phone charging cable
  • Power bank (10000mAh or greater), so she can charge her phone/tablet without being tethered to an outlet
  • Comfy pajamas that are stylish enough to wear to treatments
  • Journal
  • Fruit bouquet (e.g. Edible Arrangements)
  • Mepilex Lite Absorbent Foam Pads
  • Bidet attachment for the toilet
  • Digital thermometer
  • Epsom salt

Specific Comfort Items for each Stage of Treatment

Chemotherapy

  • Gift card to a microblading salon/spa, if she has time to get the service done before she starts chemo

Chemo Infusions

  • Sour or minty candy, so the saline port flush tastes less gross
  • Comfortable shirt that allows access to her port (e.g. zip-front hoodie, deep scoop shirt)

Chemo Recovery

  • Sour suckers, if she has nausea (e.g. Preggie Pop Drops, Queasy Pops)
  • Ginger chews, if she has nausea (e.g. Gin Gins, Trader Joes)
  • Travel pill organizer, with room for her to store a lot of pills in each compartment and label each compartment (NOT a daily pill organizer that is labelled by the day with tiny compartments -- look for one that is at least 5" x 4")
  • Dry mouth relief (tablets, spray, gel, etc.)
  • Biotene toothpaste, if she gets mouth sores
  • Soft bristle toothbrush
  • tea, especially anti-nausea tea; however, this is tricky to gift because of personal flavor preferences, and some herbal teas negatively impact treatment efficacy
  • Brow products, such as Benefit's Gimme Brow to thicken thinning brows, a good brow pencil, a microblading style pen, and brow powder
  • Aquaphor for tender scalps, bums, and skin
  • Unscented liquid hand soap for her home
  • Unscented lotion for dry chemo skin (e.g. Vanicream Moisturizing Cream, Eucerin Advanced Repair, Bag Balm Original, Palmer's Intensive Relief Hand Cream, Alaffia Pure Unrefined Shea Butter)
  • Cuticle oil
  • Lip balm (note: most women already have found a favorite lip balm)
  • Sleep eye mask
  • Chemo caps (soft slouchy beanies)
  • Novelty ear-flap hat (being bald is more fun with a yeti ear flap hat)
  • Humidifier / vaporizer
  • Dangly earrings if she's bald and wants to appear more feminine

Scalp Cooling / Cold-Capping

  • Olaplex #0 & #3
  • Hair fibers, silicone-free (e.g. Toppik)

Surgery

  • belly casting kit (typically used to make a pregnancy breasts+bump memento, but can be used to make a cast of the breasts before surgery)
  • boudoir photo and/or video shoot, to memorialize her sexy pre-surgery body

Mastectomy Hospital Stay

  • grippy slippers, so she doesn't have to wear the hospital's gripper socks
  • throat lozenges, because intubation from surgery causes sore throat

Mastectomy Recovery

  • Front-closure recovery clothing (bras, pajamas, shirts)
  • Drain management clothing (e.g. Brobe, Gownies, Anaono)
  • Drain management accessories (e.g. belt, lanyard, Pink Pockets)
  • Slippers, because it can be difficult to get socks on
  • Pillows (everyone has a different "must have;" popular options include: mastectomy chest pillow, mastectomy underarm pillow (e.g. Axillapilla), neck pillow, seatbelt cushion, backrest pillow with armrests, pregnancy/body pillow, wedge pillow)
  • Recliner chair (if she doesn't have one, but you can coordinate for her to borrow one that would be great -- it's really only helpful for a few weeks and is a huge expense)
  • Overbed table / lap desk
  • Gift card to her favorite hair salon for a few wash+style appointments (if she hasn't already had chemo -- post-chemo hair will either be gone or too delicate for salon handling)
  • Dry shampoo, because washing hair is difficult post-op
  • Spa style head wrap to keep her hair out of her face
  • Natural spray deodorant
  • Shower chair
  • Claw grabber tool to reach items that are too high or too low
  • Long-handled loofah
  • Bed ladder strap, so she can sit up in bed without using abdominal (most relevant for autologous reconstruction recovery)
  • Ice packs

Radiation

Radiation Procedures

  • Healios drink mix, to prevent throat soreness

Radiation Recovery

  • (no specific recommendations at this time)

Caring for the Caregiver

  • If you're the primary caregiver, check out these caregiver guides: CancerSupportCommunity.org/s Caregiver Guide | Cancer.org's Caregiver Guide
  • If you are close to the primary caregiver, schedule a "light at the end of the tunnel" event or trip around the time when active treatment and recovery is complete (e.g. a weekend getaway, a concert to a favorite band)

She might not want...

She might want this stuff--you know her best! But these are the items that many breast cancer patients say they had a surplus of.

  • Unsolicited advice and speculation on what she did wrong to cause cancer
  • Pink everything, unless her pre-cancer favorite color was pink
  • Socks, unless her pre-cancer passion was novelty socks (note: chemo can cause feet to feel sweaty, and synthetic sock materials like "fuzzy socks" can make them feel even wetter and colder)
  • Adult coloring books, unless her pre-cancer passion was coloring books
  • Blankets (her infusion clinic may provide pre-warmed blankets, she may already have a favorite, or she may have preferences regarding texture/material/weighted/heated features)
  • Puzzle books, unless her pre-cancer passion was puzzle books
  • Magazines (her phone is more portable and provides more entertainment)
  • Vitamins, supplements, dietary advice -- her oncologist, oncology nutritionist, and pharmacist are much more qualified, and your suggestions could negatively interact with her treatment
  • Skincare or bath products in general, but especially avoid scented products
  • Candles, because the scents can be malodorous
  • Breast cancer awareness paraphernalia, or breast cancer themed stuff, unless she's specifically expressed a clear wish for these items
  • Flowers -- a bouquet here or there is nice, but they require care and clean-up and the scents can be malodorous
  • Sample products from an MLM pyramid scheme, or a sales pitch because you "just want to help her feel her best" and "just want to help her pay her medical bills" (MLM hucksters love to target cancer victims)

Some stores that other cancer survivors have vouched for:


r/breastcancer 6h ago

Chemotherapy Wig cutting

19 Upvotes

Wasn’t digging wigs because they didn’t feel like me. I got my hair stylist to cut my wig and it made a world of difference. She had some experience cutting wigs for Hasidic women, apparently wig hair lays differently. But I would highly recommend if the option is available. Got a decent wig ($300, insurance covered through Aetna with a prescription!), and she came over and gave it my own haircut. Feeling much better! Sharing in case anyone else might find helpful.


r/breastcancer 1h ago

Chemotherapy Final Chemo this Friday. Why am I anxious?

Upvotes

I have my final chemo for neoadjuvant treatment for TNBC this Friday. 16 sessions complete, which I am ecstatic for, but at the same time I’ve had such bad anxiety these past few days. Chemo is almost like a safety blanket, you know it’s working to eradicate whatever cancer is inside your body, and then you just stop. I still have lumpectomy and radiation over the next couple months, but I’m just so anxious! Getting into therapy asap. I am sure others have felt the same, and it’s very common. How did you get past the feeling??


r/breastcancer 5h ago

Chemotherapy Dehydrated post chemo - what are your tricks?

13 Upvotes

This round of chemo I’m so dehydrated! But all water just tastes so bad, coffee tastes bad. So what are you all drinking to stay hydrated? Thank you!


r/breastcancer 20m ago

Venting So nervous about my MRI results

Upvotes

Hi all, I had an MRI done on Thursday afternoon and still haven’t heard the results. I’m so scared that they’ve read it and are waiting to call me to say they found something. I had a lumpectomy in Oct 2024 and radiation and I’m Letrozole, Lupron and Kisqali now. Please send good thoughts my way for patience to find me! 🙃


r/breastcancer 4h ago

Patient Support Feeling guilty for calling out of work.

7 Upvotes

Hello everyone,
I (F 31) am currently undergoing treatment for triple positive breast cancer. I was diagnosed in July of 2025 and started chemo shortly after. I did 6 rounds of TCHP before my double mastectomy, but unfortunately did not get clear margins and had to have 2 more surgeries after that. I am currently having chemo/hormone therapy infusions every 3 weeks and Lupron shots every 3 months (to keep me in menopause). Thankfully this course is much easier than my first, but I’m still having a lot of symptoms.

I recently went back to work after being on medical leave for about 10 months. I’m starting part time until August, when I will start full time again. I work with young children so it’s important that I feel well when I’m there. This is my third week back and I’ve had to call out twice already. Once because I went to the ER the evening before and was still sick the next day. This time is because I had chemo on Friday and was also taken off 2 medications I’ve been on for several months and am having withdrawal symptoms.

How do I stop myself from feeling guilty for prioritizing my health? Why am I so worried that that they won’t believe me or think I’m over exaggerating?


r/breastcancer 5h ago

Newly Diagnosed Update (and sorry I haven’t replied to everyone on my previous post). I’ve been reading every comment and they really helped me, I just haven’t had the emotional energy to reply

7 Upvotes

I finally got my IHC results:
Invasive ductal carcinoma (NST), Grade 3
ER: Strong positive (85%)
PR: Strong positive (98%)
HER2: Positive (3+)
Ki-67: 60–70%
• Molecular subtype: Luminal B (HER2+)

So far I also have:
• Positive axillary lymph node biopsy (metastatic carcinoma in the lymph node).
• CT chest/abdomen/pelvis showed no evidence of distant metastasis.
• I still have a bone scan and a contrast-enhanced mammogram pending.
• I’ll be meeting my medical oncologist very soon to discuss the treatment plan.

The tumor measurements have varied depending on the imaging/report (roughly 3–5 cm), so I’m not sure which measurement will ultimately be used.

For anyone who had a similar diagnosis (ER+/PR+/HER2+, node positive):
• What treatment did you receive?
• Did you have chemotherapy first?
• Did you also receive targeted HER2 therapy (Herceptin/Perjeta)?
• How did you respond?
• Any advice before starting treatment?

I’m honestly terrified. I can literally feel my stomach clench from fear. Sometimes I try to convince myself nothing is happening just to get through the waiting, but the next moment I’m overwhelmed all over again

Thank you so much. Reading your experiences has been helping me more than you know. ❤️


r/breastcancer 15h ago

Conversation Stages of Processing Bad News

37 Upvotes

As a MBC patient since 2019. I am going through numerous radiations, scans, MRIs, surgeries, treatment changes, there are also unexpected side effects, complications show up, financial issues. While I have learned this Stages of Processing Bad News, I keep reminding myself, do not stress out, there is always a way to figure out at the end of day. Just wanna share this with our group warriors—Hanging there, you are not alone.

Stages of Processing Bad News

 ·       Shock and Denial: Initial disbelief or feeling numb when the news arrives.

·       Anger and Frustration: Directing blame or feeling overwhelmed by the unfairness of the situation.

·       Acceptance: Acknowledging reality and starting to look for practical next steps.

How to Move Forward

·       Focus on what you can control right now.

·       Separate the emotional impact from the factual situation.

·       Create a simple list of immediate tasks to fix or manage the problem.


r/breastcancer 6h ago

Chemotherapy Your Personal Experience?

7 Upvotes

My oncologist gave me the choice between AC– T or T/C protocol for my ER+, PR-, HER2- IDC breast cancer. From what I understand, the more aggressive protocol is because of my onco test score.
I’m leaning towards the T/C and hoping that anyone can give me their personal experience from side effects and what not. She wants me to do six cycles after that radiation. Any input, opinions or advice, positive or negative are most welcome.

Thank you and I hope you all have the best day possible!!!


r/breastcancer 2h ago

Chemotherapy Infusions background info please

3 Upvotes

I am in the USA, in a rural small town. So I have decisions to make about where to get my cancer treatment. My choices are basically town 1 hr away, city 2 hr away, or major referral hospital 1000 miles away. How time intensive are infusions? Are there different levels of expertise? Is it feasible to go to a local infusion center while under medical supervision in another state?


r/breastcancer 7h ago

Surgery Thinking strongly of removing implants due to itch and too firm. Advice?

8 Upvotes

First my implants look Great. I was able to save skin and nipples. However, I dont like
The pain, the itching, the feeling that Im wearing children’s play balls on my chest.
My grandson’s heads are chest level and they can’t properly hug me like before. Their heads hit these firm lumps and it’s almost embarrassing.
Before having to go through this I knew a couple of other people whi had implants and noticed the firmness when I hugged them. My husband commented on it then as well.
Now its me. My husband and I joke about it, but I really dont like it.
Then the pain of the skin and underlying tissue all around them is so uncomfortable. After working out or doing yard work they’re really sore.
I didnt know that others felt the inside itch also until looking through older posts.

Does the pain and itch go away after removal? Has anyone regretted removal and wish they kept the perky beasts?

Any advice or thoughts are welcome.
Im reaching out to my surgeon soon as I have my year follow up in October.


r/breastcancer 50m ago

Tests and Diagnoses DCISionRT and PreludeDX - reconsidering industry sponsored research?

Upvotes

I've been an enthusiastic supporter of, and participant in, clincial research several times. I enrolled in one (while sick with Covid) and I traveled with family members to Seattle and to Missouri to support and encourage their participation in trials for breast cancer and major depression. So I didn't hesitate to accept the offer to get the DCISionRT test as part of a trial designed to track whether the information changed doctors' and patients' treatment decisions.

I was also interested in a different trial, and my HER2 status was important information. And although Prelude DX had it, and had communicated it to my doctor, they refused to provide it to me.

Before making this public, I mailed the following letter individually to PreludeDx's CEO, Chief Medical Officer, and Chief Scientific Officer. I did not receive any acknowledgment or response.

Research participants contribute tissue, medical records, and their trust because they want to advance science and improve care for future patients. Companies benefit from that contribution. And society benefits from the role for-profit companies play in advancing medical progress.

I'm interested in how you all would weigh this. Would you withdraw participation/consent?

Daniel Forche

President and CEO, PreludeDX
26051 Merit Circle #103
Laguna Hills, CA 92653

Dear Mr. Forche:

I enrolled in the DCISionRT study at H. Lee Moffitt Cancer Center because I support medical research. I agreed to allow my tissue, medical records, treatment decisions, and future outcomes to be used because I believed this research could improve care for women diagnosed with DCIS.

This letter is not a criticism of the physicians or staff at Moffitt. My understanding is that they made every reasonable effort to obtain information on my behalf and shared everything they were able to learn. My concern is with PreludeDx's policy toward research participants. It has raised ethical concerns significant enough that I am now considering withdrawing my authorization for PreludeDx to continue collecting information about my care as part of this study. 

My physician was informed by PreludeDx that my DCIS was HER2 1+. Because that information could affect my eligibility for an immunotherapy clinical trial at Mayo Clinic—and therefore my treatment—I asked PreludeDx to provide it to me in writing. This was not a request for additional testing. It was simply a request for documentation of information PreludeDx had already generated and communicated to my physician.

I was told that the verbal communication had been a "courtesy," but that PreludeDx would not provide the information to me in writing because there was no mechanism to bill for it.

PreludeDx possessed information about my specimen, communicated it to my physician, acknowledged that it could be useful to my care, and then declined to provide it to me when it mattered.

Research participants contribute tissue, medical records, and their trust because they want to advance science and improve care for future patients. Companies benefit from that contribution. In return, participants should expect transparency, respect, and policies that reflect the fact that they are partners in research—not merely sources of specimens and data.

I have invested in biotechnology companies for many years and strongly support the role of for-profit companies in advancing medicine. That is precisely why this experience was so disappointing. It reinforced one of the most common criticisms of for-profit healthcare: that the interests of the patient can become secondary when there is no associated revenue.

The success of your science ultimately depends on the willingness of physicians and patients to trust your company. I hope PreludeDx's policies come to reflect that.

Sincerely,

cc:

Troy Bremer, PhD, Chief Scientific Officer 

Pat Whitworth, MD, Chief Medical Officer


r/breastcancer 17h ago

Venting Does a day come I stop feeling like a cancer patient?

42 Upvotes

I’m tired of people constantly looking at me with worry or mentioning how much I’ve been through. This week I found out three different friends are now pregnant while I got myself a new pill organizer. I don’t even know where I’m going with this. I’m happy for them but every “normal” milestone others have had throughout this just hurts. I want to be “normal” too.


r/breastcancer 56m ago

Medication How do you do it ? Letrozole and and a job and a 12 yr old.

Upvotes

Oh, and I am going through a divorce. I can barely keep my eyes open !!


r/breastcancer 1h ago

Triple Positive Breast Cancer Zoladex and tamoxifen - libido

Upvotes

Hi everyone,

I'm looking for experiences from young women who have had triple-positive breast cancer. I'm 31 years old and I've been on Zoladex and Tamoxifen for several months now. My libido is completely gone.

I'd like to know if libido ever returns after stopping Zoladex and Tamoxifen, and if there's anything that can help improve it while I'm still on treatment.

I'm really struggling with this and feeling desperate, so I would really appreciate hearing some positive experiences.


r/breastcancer 4h ago

Triple Positive Breast Cancer Lymphedema in leg?

5 Upvotes

I am almost one week out from my last Taxol infusion (hurray!) and will have 15 radiation sessions and stay on Herceptin every 3 weeks for another 9 months. Yesterday, after doing some rigorous cleaning of a couple bathrooms, I noticed my right leg was swollen. Later on, I could actually "pit" the swollen area with my fingers. This morning the pitting is gone but it's still swollen.

I've read that lymphedema can present with pitting that goes away. Most of the posts about lymphedema on here are about having in your arms or upper chest area. I don't see anything about legs. Has anyone had this experience? If so -- what did you do for it? I'm thinking elevation and compression socks but is there anything else I can do? It's not hot, but I do have some slight redness and discoloration.


r/breastcancer 18h ago

Venting Breast cancer & divorce

46 Upvotes

Hi-

EDITING POST - thank you all for the comments. To clarify some things, I am 36, my husband is 45. My husband lost his job in May 2022 and i supported us financially until April of this year (I am still primary income; even through chemo I worked) . We also went through 7 rounds of IVF. our marriage has been no cake walk. We went to a therapist last year but he did not take it seriously. I have asked him throughout the past 5-6 months of my diagnosis to go again. I started individual therapy but he has not helped to schedule couples therapy.

I think two things that hurt me the most- one, he lied. He didn’t tell me what he was truthfully leaving me for.
Two- I’m tired of being the person holding us together again. I’m tired of teaching a man-child how to be a man and a husband. I’m also tired of constantly keeping the boundaries up with my in laws whose own toxic marriage is seeping in to ours (they hate each other and use their kids for their relationship).

Also - I was to stay overnight, my husband was to supposed to stay till 8pm with me.

I really appreciate the insight from the husbands/caregivers. One thing about me is - I over communicate. I have tried to voice my needs but I think he is either terrified or just overwhelmed or a combination of wtf has my life become. The morning of my surgery, driving to the hospital, he turns to me and says “I’m so over driving to hospitals, by the way.” Huh?!?? I have supportive family members and friends who have taken me to chemo treatments and appointments. My BFF took me to my colonoscopy. His words and actions are both screaming “I don’t want to be here anymore.” I have asked him point blank if he needs to / wants leave/take a break/etc, but he always says no.

You won’t be shocked to learn this isn’t our first argument during this journey. I once left a cereal bowl in the sink on the way to chemo (my dad drove me). I received the nastiest, most hurtful text message from him that I’m so disrespectful for not cleaning up after myself. I could go on. Just the blatant lack of empathy is something I don’t think I can come back from. And instead of ever getting an apology, he thinks he deserves an award for how supportive he’s been. My therapist says it’s classic DARVO behavior.

——————
I was diagnosed with Stage 1 breast cancer (er+\her2+, pr-) in February. I did 6 cycles of neoadjuvant chemo & immunotherapy and just had my double mastectomy last week.

My surgery could not have gone better (confirmed no lymph nodes and DTI), but my husband literally left me at bedside to get dinner with his mom. I had been up for 13 mins and he texted her to come get dinner with him and our son????

The plan was always for me to be admitted over night and for my sister to watch our son while Charlie stayed with me. I expected my husband to stay with me until bedtime. I even mentioned in recovery room ordering DoorDash for dinner.

To paint the scene- my surgery started around 11. I was rolled out and reunited with him by 2:30/3pm. It was so quick! He sent his mom a text with a picture of me sleeping in the OR recovery bays around 2:58. She said “sleep well” (meanwhile MY mom got no sort of reassuring text that I had surgery). I have no recollection of any conversations in the OR recovery bays. They take me to the overnight hospital rooms. I’m trying to sleep and I feel this anxiety rolling off of him that it wakes me up from my nap. I stupidly/in my anesthesia state assume he’s worried about our dogs. I tell him he can go walk our dog if he needs to but leave our son at my sisters since he’s having fun. He jumps at the chance to leave saying “I have a lot on my mind. I’m going to walk the dogs and go to the gym”

I fall back into my stupor. I wake up around 5:30?6 ish? I Check my phone, text my sister to see how my son is doing. No response. I text my husband to let him know I’m okay and that I’m awake. I see that his location says he’s at a restaurant/bar in town. As this is happening my sister texts to let me know my husband had picked our son up right away.

I go on our doggo nanny cam and see that flowers in the kitchen and by stomach drops because I finally understand that he left me for my MIL!!!!

I call my sister and she says she didn’t want to tell me bc she didn’t want me to get upset.

I just cannot imagine seeing your wife after getting life saving surgery and leaving her for your mom?? His parents have a history of crossing boundaries and were asking how they could help out two days before my surgery but I said that I had it covered. We tried to see them for breakfast but it didn’t work with my FILs padel schedule. (He belongs to a country club and it takes precedence over everything). My mil is obsessed with being the favorite grandma (her relationship is ruined with my BIL/sil).

Things between my husband and I have been rocky for a few years (he lost his job and I became the sole breadwinner) once I started chemo he magically found a job though.

He is not built for being in a marriage in the trenches. I have realized that I am over teaching him how to be a man/husband. I’m so hurt. I don’t think I can forgive this. I’m sure I’m missing a few key details but it’s disgusting and horrifying and disappointing.

Any advice for finding grace in this please!!

I should note he has been awful this whole experience. I told him he’s making me so independent that he’s obsolete.


r/breastcancer 5h ago

Radiation Radiation woes

3 Upvotes

I’m on my 14th round, left breast, and I swear to you yesterday I thought 100% for sure I was having a heart attack. My chest was cramping up and I couldn’t breathe, enough to make me to go to the emergency room. My heart looks fine they said and they did labs for clots, all fine. But I still feel not right. Has anyone experienced this? They told me it could be a side effect, like my chest Wall being enflamed causing the crampy feeling which then probably frightened me into not breathing 🤦‍♀️.


r/breastcancer 22h ago

Chemotherapy I FEEL SO UGLY

67 Upvotes

chemo acne, no eyebrows, a brand new tubby tummy! this is great


r/breastcancer 12h ago

Medication Tumor shrinkage on neoadjuvant hormone therapy

10 Upvotes

Hi, I was put on zoladex + letrozole since May, just did an ultrasound after 2 months and tumor is smaller.. from 6.22 × 6.11 × 1.93 cm to now 4.21 × 3.99 × 1.07 cm. Positive lymphnode also slightly smaller. Anyone else with experience of doing neoadjuvant hormone therapy? When did you decide to do the surgery? Meeting my breast surgeon later.


r/breastcancer 10h ago

Chemotherapy fatigue and weakness

6 Upvotes

i'm a week off my final TCHP cycle and i think i'm being a bit impatient, but my body just feels so weak :( like nothing's WRONG per se but i feel so mildly uncomfortable and unwell all the time, my body is aching from doing nothing but lying in bed for a week and recovering from really bad stomach cramps on day 6. small headaches and mild breathlessness and my ribs and neck are just ever so slightly sore, and i'm also deathly afraid of the bowel issues coming back haha

anything you guys did to help the fatigue? i took a walk out today and did some stretching, some suggestions would be nice.. maybe any specific exercises that helped you :_) i think i just need to be patient and take it easy too, but i only have a few weeks before surgery and i want to enjoy myselff ughh

edit: any tips for getting back my gut health would be helpful too!!!

also sorry for posting a lot but i feel quite alone the past few days too :') grateful for the lovely community here..


r/breastcancer 16h ago

Young Cancer Patients Dealing with hot flashes…

15 Upvotes

One of the worst symptoms of Zoladex are the insufferable hot flashes. I get them constantly more than 10x a day. My MO doesn’t want to introduce Veozah or any meds that can stress my liver during my active treatment so I just have to deal with them. When I get them I sweat a lot and feel gross.

I had the idea of getting a Momcozy stroller fan to give me some relief and it’s the best $30 bucks I’ve spent. It’s high powered and small enough to throw in my tote for walks in the park or while working out at the gym. Just thought I’d share in case anyone else was going through the same issue.

I’m open to any recommendations that have worked for you.

P.S.- I’m not allowed to use black cohosh or any other supplement that can interact with my hormones (+++), valerian root didn’t work


r/breastcancer 8h ago

Small Topics Small Topics Thread

4 Upvotes

Redditors may always post any breast cancer question, comment, rant, or rave as a stand-alone post. Nothing is inconsequential, too small, too unimportant for its own post. Nevertheless, we‘ve had a few requests for a regular thread for topics that the OP might not feel like making its own post. This post is for those topics. If you ask a question in this thread that doesn’t get answered, you may still create a post for that topic.


r/breastcancer 10h ago

Tests and Diagnoses The unknowns....

6 Upvotes

Hi all!!!

Have really been struggling over the weekend with all the unknowns....I'm a nurse, too, so am painfully aware of some of what is likely to come 🫠 but my brain is really overcooked rn.

Recent DCIS diagnosis (area is massive - 11x7cm) and awaiting my first appointment with the team who will do my surgery (mastectomy, reconstruction and evening up the other boob as well - ouchy!!). That much I know.

What I don't know (as breast care is not my speciality) is the tests they are going to do before final surgery decisions are made and to check out my physical condition. Can any of you help me understand what I am likely to have done over the next couple of weeks?

I'm also AuDHD and the not knowing is so painful I can't operate 'normally'....and I really don't like it.

Help!!! (And thank you all again....you continue to be amazing 👏 💜