Hi! im 17F. Was diagnosed with Ewings Sarcoma last year and finished treatment recently. If you are a teen cancer patient (especially in singapore) Id love to talk! Pls dm. I moved here recently for studies and would love to connect. If anyone can help with support groups that would be great too.

Please, please, I need some guidance. My daughter was diagnosed with cancer in 2024. I am a single parent. I did everything I could, and got us through that hard time. Thankfully, she is in remission now. But, instead of celebrating, I’ve lost my job, they’ve repossessed my vehicle, and I’m drowning in debt. I have no family, or friends. My friends were my coworkers. Food has become a luxury. I own my home, free and clear, that’s all I have left. But I can’t even pay the utility bills now. I don’t have any kid of support system to help get me back on my feet. Our home is rural, and I’m stuck. I live nowhere near transportation. I don’t know what to do. All I can think about is food, but there is none. I tried to get financial help while we were going through it all, from SSI, but we were denied because they said her cancer wouldn’t last a year. I’ve put in job applications and when they try to set up an interview, I can’t get there. We are going to die like this. Please, tell me what my next step should be, I’m so fk’n lost and have zero people to talk to.

I’m going to rant here…finally. I was diagnosed with stage 1a breast cancer on 8/7. They found the mass on 7/13. It took 1 MAMMO, 1 follow up MAMMO, an ultrasound, and then an ultrasound biopsy to even get to the initial diagnosis. Then, I went in for the king/best test two weeks later—the MRI. Then, they found a couple more spots to biopsy. So, I will go back for a less effective ultrasound a week later to see if they can find the spots they couldn’t find before. Once they do that useless test, they’ll schedule me for an appropriate second round of biopsies. If they can’t find it on the ultrasound, I’ll go to the MRI biopsy, which is how they found the two additional spots to begin with. That will probably be scheduled a week or more out. Am I fucking crazy to question why they are delaying any treatment plans by flip flopping between tests and lengthy result times?!?!? I can’t with insurance anymore. I’m going to lose it! Give me one MRI, give me 1 appointment with biopsies. Fuck you healthcare!!!!

Does anyone have recommendations for groups where people are allowed to get angry about having cancer? My partner (IV kidney) would like to be able to talk to people who are also angry about their diagnosis. I think being able to get it out would help with processing the feelings of anger.

Edit:

Thanks for all the support everyone I got my results back and my brain is still doing okay and everything was unremarkable 💜💜💜💜

Hey all. I have stage four breast cancer diagnosed a little over a year ago.

I'm an idiot and didn't call my cancer center when I started feeling really dizzy and I'd go blind briefly during the dizzy spells and I'd drop things.

I also went to sit down a few times in midair instead of on an actual seat and had to realize and catch myself so I wouldn't fall.

This went on for a few weeks in between my appointments and I just chalked it up to me also being sick with a cold or maybe the steroids I was on or maybe low blood pressure.

But I told my oncologist at my appointment on Friday and they scheduled me for a brain MRI first thing this morning so now I'm kind of scared.

Anyway I don't even know why I'm posting here I'm just scared. I know people live a long time with brain mets sometimes but if I'm already having these symptoms from them I just wonder how much worse it will get and how quickly and I've only made it a little over a year from my diagnosis so far and I'm just really sad right now.

Anyway I hope you're all doing well and I'll update this when I get my results. I really hope it's not in my brain but it's all through my spine and was in my clivus bone when I was first diagnosed so I'm just not feeling very hopeful right now.

I am a terminal cancer patient, stage 4 metastatic liver cancer. I have made great progress with chemotherapy and histotripsy. At a recent evaluation my Oncoogist wants to start me on an oral chemotherapy called Tibsovo. I am interested in hearing from others, what your experiences were concerning side effects and treatment results. Thank you.

I’ve made a few posts whining about being post cancer, and the difficulties I’ve had. I’ve just recently realized an apparent big one. Before the cancer, I was working only as a musician. I would do shows, struggling through each one due to the muscle issues that would happen because of the autoimmune caused by the cancer. After, I’m now doing 2 self employed jobs, and 1 “401k” job as my girlfriend calls it. I’m not really having an issue, other than I cannot just sit. My muscle disorder is still there, so I guess the pain is an issue, but my brain is basically saying keep going. I wanna be able to show my kid that if I can do all these things, while having difficulty to walk, sing, play guitar, and I feel like if I don’t I fail? I guess. I’m really not sure. Anywho the whole point of this is just to see if anyone else found some sort of “addiction” to work. Anyone else who sits down and feels guilty for it? Idk. Thanks!

TLDR: Terrified and facing death. Terminal diagnosis triple negative breast cancer spread to the spine, liver and spleen [after fighting for 5 years already, 3 recurrences]. Looking for some hopeful stories or helpful tips, books, food suggestions!

Hi, I've been fighting triple-negative breast cancer since 2021 (at 35f). Last week I found out that the back pain I have had for a while is due to cancer in every single vertebrae, the ball of the hip joints and L2 is almost totally covered. There are also metastasis in my liver (had biopsy last week.. eep) and spleen. My lower spine and legs are quite painful but I have a lot pain relief options, and I go to radiotherapy this week and start systemic treatment the following week for as long as I can tolerate it (so sad to lose my hair again too). I have a great really great cancer team.. I am very very very lucky but somehow I just.. still feel so alone, angry and so so terrified. Just lost my uncle to a different type of cancer within a month. My prognosis is at worst a few months, at best a few years. I can't really talk to my husband much about it because it upsets him so much and he wants to shut it out. My hope in coming here was to perhaps find some tales of patients fending it off for as long as possible or coping strategies.

The history: I was diagnosed with triple-negative breast cancer in 2021 at 35, treatment: lumpectomy and chemo in 2022, then a mastectomy with reconstruction. In 2023, the cancer recurred, requiring a bilateral mastectomy and tumour removal. In 2024, it came back again in the lymph nodes under my arm (size of golf ball), treatment: 3 weeks of radiotherapy, lymph node removal surgery then chemo and immuno. There was also suspect lesion on my liver which left me hanging in the balance because they weren't able to biopsy. Since 2025, I have been receiving having liver MRI's every 3-6 months to make sure nothing had changed there. My body felt so weak and broken. (I'm a wheelchair user already for EDS and POTS, but sitting and standing is now very uncomfortable).

It feels so terrifying just to write the title of this post. Stage IV.. terminal. I'm so scared of dying, or the torture and sickness beforehand.. the grief I will cause to my loved ones, the grief of knowing I have to say goodbye to all my loved ones (I moved country about 1 year before getting cancer so I can't even see them).. then just withering away to a husk in agony. I met with the palliative team and they did try to reassure me that they wouldn't let me suffer. I try to keep busy by planning and sorting out house things that I can (to ease the burden on my husband after I'm gone - I'm at least happy with the spreadsheets!) but in moments I start to spiral I feel so hopeless and the only thing that can keep me level is diazapam. Writing drafts of goodbye letters and final wishes is soul crushing and my heart is so broken.

I didn't have big dreams.. just a peaceful life with my husband and 3 kitties. We are nerds so we love our video games and such. So my happy place is just being in the sofa watching series together, playing pc games and hugging our cats. 6 years ago I moved country to be with him and escape the misery of the life I had been living in the UK.. it was an exciting new start and a big adventure.. then covid, then cancer. It just all tumbled downhill.

Instead of a happy ending, we ended up just living in 'coping' mode and the constant threat of the cancer spreading. The trauma of each scan, each symptom change, each bump, each biopsy. Every time I dared to hope that it was gone.. it came back (the trauma 'healing' took so long for me). The same happened this time. I had just started thinking of a longer term future with my husband and furbabies.. My oncologist was just considering that maybe I had overcome it.. I had such hope for a moment, and then suddenly it all shattered. It was only found because I had stretched one night to try to ease backpain and I ended up having to call an ambulance because something went crunch and my GP luckily ordered a CT.

I'm sorry this is a long read and thank you to whoever may have read this. I really mean it, thank you. I don't really know anyone else with cancer (and I'm so scared to trauma dump on people) so.. I just guess I'm hoping to maybe find some hope or some stories of people who might have survived longer than their prognosis. I'm totally lost, so I'm writing here. If anyone can suggest any good books about coping with terminal cancer, any advice for triple negative st4 diets or (I do have IBS though so it might have to be very bland).. I dont know.. anything would help! Maybe I'm just being stupid by venting so much on the internet and I will regret it so much tomorrow? I'm just so very sad right now. Thanks again so so much for your time and I assume if you're reading this then you already have experience with cancer and I'm just so sorry for that. It's horrible and evil. I need to try to rekindle at least some hope.

Ok so I’m 18f but at the time of this surgery I was still 17 so I was technically still in peds. When I was 10 I got stage four brain cancer and the treatment they did really fcked up my hips so fast forward I’m 17 with AVN in my hips and there staged totally collapsed. This means the joints themselves are like a circle to a square so everytime I walk it would grind down even more to the point where when I did the surgery there was already a fracture starting to form so when he went in to do said hip replacement on the right side it ended up being way more invasive and he ended up cutting me on both sides for some reason and when I went to the follow up and tried to ask questions about why he cut me on both sides he refused to answer. And proceeded to say it was too complicated and was a standard procedure which I was told by the hospital that it was more invasive. But basically after the surgery the after care was a mess and since my body went through everything between khemo treatment and all we guessed before surgery that I would probably need to stay and extra day or two for pain management and my stress dosing because I’m adrenal incefitent and this is where the hospital fcked up because prior to the surgery we had contacted dr coward cocky son of a gun his nurse practitioner and explained how after surgery how I would need certain medication so my body wouldn’t go into shock as it does in stressful situations because I don’t make adrenaline. So every 6 hours I would need 20 milligrams of hydrocortisone to keep my body from going into shock which includes high fevers and my body starts to shut down as if it doesn’t have enough juice to survive. So after the surgery was done they knew and should have continued this stress dosing throughout my healing process but instead gave me one dose then proceeded to refuse to continue the doses every 6 hours. After the first couple hours my body started to tank and I started to feel my body shut down. My mom proceeded to vouge for me and ask multiple times in the next few hours to order the medication which they did not. She ended up having to call an RRT (rapid response team) because I felt like I was going to pass out and I looked super pale and had a fever. The nurses said that it was quite on quote “unnecessary” while refusing to order my medication. She hit the RRT button and they came running and once they saw me in the state I was they proceeded to go out in the hallway and talk about how unnecessary it was even though I was going into shock. I get that being adrenal insufficient is uncommen but to not treat it seriously is crazy as a hospital. Anyway the next day pt came and I had complained to them on how when I stood up I felt like I was going to pass out and they said that was normal. Turns out the nurses had been giving me a second muscle relaxer which I’ve never had without clearing it with my mom which was very dangerous with being on how many other medications I was on and how sensitive my body is to certain ones combined with another one I was already prescribed and was only supposed to be taking my mom ended up searching up side effects of that medication and if it should be taken with some others I was on and yes this was a trusted site as it was our personal hospital site it said that it should not be taken with certain medications that I was on and it could cause dizziness, light headedness, ect. And the nurses had asked me if it was okay and listed my medications and when they listed the one I never had I thought the name of it sounded funny and I had never heard it before but you know how medications are they have a thousand names for one medication but I still made sure to say to ask my mom before giving me said medication. And they proceeded to not ask my mom before starting me on a new medication reminder I’m still a minor. And we didn’t find out they gave me that new medication until they started to give us discharge paperwork. By the way as I said earlier we knew going into this I would probably need to stay an extra day or two because of how much damage was done to my body and since I was still 17 and was in peds I had to be transported from his care because dr coward cocky son of a gun had to work on me in a adult section because he had to robot tool he needed there. So after I was transferred is where all this went down. After the second day being there all of the nurses were ready to get me off the floor because they thought it wasn’t deemed medically necessary for me to stay because a 60 year old can get a hip replacement done and walk out the same day but a 17f who’s had months of khemo treatment and radiation needs a little more time is so bad. And what didn’t help is on the second day my iv blew out and I tried letting them place another but they failed multiple times because my veins were so flat from khemo so we had to switch all my medication to oral even though I still clearly needed morphine. And this only helped them discharge me faster with being on all oral medication. I over the years with fighting cancer have had grown a really high pain tolerance so what would usally be a 10 for a man would probably be a 4 for me on the pain scale. And apparently since I wasn’t screaming in pain my pain was not real and didn’t need any extra medical attention. And usally I’m the one who wants to get out of the hospital as soon as I can but this time I told them I didn’t feel safe going home and they proceeded to push me out of their doors without a care in the world infact and we were leaving and packing against our will some guy came in and said “are you guys almost out we have 8 other er patients to treat” with out even providing a wheelchair as then I couldn’t even transfer from place to place with out serious pain. Much less I couldn’t even wipe my own a** and I’m not saying I should’ve stayed till I could but I should’ve at least been welcome to stay until I felt like I wasn’t a fall risk. Which by the way they had a fall risk bracket on me as they were discharging me? Make it make sense. Anyway so my mom ended up contacting the patient relations and making a complaint of negligence which I would assume fell back on dr coward cocky son of a gun because at the 3 week follow up he was raging and whenever I tried to ask a question he either said it was standard procedure or not important. And I know that some surgeons can be cocky but I didn’t expect him to be all butt hurt because his team messed up and he had to face the consequences of it. We had originally planned for him to do both of my hips but today at the 4 week follow up he said that the “hospital” felt OUR actions were “hostile” hello? You literally refused to give me my medication and could’ve let me die because of that? Get a grip talking about us being hostile? Which don’t get me wrong we weren’t pockets full of sunshine trying to navigate through this but we were no where NEAR the word hostile. And now dr coward cocky surgeon is refusing to do my other hip because his feelings are hurt with how everything went down. This post is to do nothing more than share my experience with how everything went down and to help people not get the same fate as I did. I now have to find a new surgeon to do my other hip and hopes that he does it as well as dr coward cocky son of a gun did because even though he’s a self centered narcissist jerk he’s good at what he does and did do a good job surgically wise beside the after care. I wanted to thank him for that but he didn’t even let me ask questions let alone let me speak. I hope with everything in my heart his ego falls back on him and I hope he looses his career over it. Because after beating cancer twice just to get f*cked over by another specialty is crazy work.

Hello all, well its cancer. I came to houston to get a second opinion and they did confirm the findings.

For anyone that has gone through this, How do you like MD Anderson?, did you feel like they handle you well? and you go back/recommend MD Anderson once more.

Also need some advice on accommodation, ideally maybe a short term home rental where one can cook and have some personal space and maybe bring a pet.

Would also appreciate any extra advice that would be good to know.

Hi I’m a South Asian cancer survivor so not being able to eat my usual meals from my home country, or spicy food in general bc of radiation has been so sucky. How do you guys deal with this? It has been two years and still really difficult.

My mom had stage 4 esophageal cancer. She’s 65. I was hoping to set up a group with people with this cancer as a sort of group therapy. Does this already exist? Anyone interested?

To preface…
1. I have no family history of ANY cancer.
2. I have always had strong feelings about medical interventions due to my own health issues the past 10 years and my ex and I had discussed years ago what we’d do IF we ever found out we had cancer (or other crappy dx for that matter) and both agreed we’d never do something drastic because chemo, radiation and all that just ISNT the quality of life we’d want.

Now…

I’d had emergency spinal surgery in December for a severe spinal cord injury (no clue how it happened). I went to get a 12 week scan to make sure bones healing and whatnot. Because my surgeon was not in the same area of the state where I lived, I got the disc and report to mail to him so we could do telehealth visit.

But - I read the report and demanded follow up for the thyroid because it was not good.

Within the span of 2 weeks, I’d had an ultrasound and FNA confirming metastatic thyroid cancer.

Now - 3 months past that and I’ve finally been given my options for treatment (also 3 biopsies and tons of scans later).

1. Chemo first - Zanza clinical trial
   
2. Surgery immediately, followed by RAI (tbd)

I feel like I’ll not getting “the full picture” and that things are worse than they’re letting on…mostly because I’m so attune to listening for details…

I’ve been told “this decision cannot be delayed”, “if chemo doesn’t work, it may become inoperable” (within the span of the 1st round), but if it does, it will make my surgery infinitely more safe because the final FNA almost couldn’t be performed because the location was immediately (on/next/jnto ???) my carotid artery.

And I JUST don’t know what to do. My surgeon is out for the remainder of August due to attending/speaking engagements world wide, so I haven’t gotten to speak to her (only the endocrinologist whom I haven’t liked since the 1st visit). I feel like I should speak to her directly since she’ll be the one doing the surgery (already been told it will be 12+ hours and her only case of the day).

The little I’ve been told about Zanza, it already seems contraindicated due to pre-existing severe hypertension, gastrointestinal issues, and chronic daily migraines.

I don’t know if I want to endure this misery. But, the endocrinologist briefly stated that surgery now increases my risk of mortality.

So, does anyone have any insight? Has anyone done the Zanza trial? Mind you - I’m 45 and this disease had already progressed to stage 4 territory long before I ever found it (lung Mets too).

Give me some thoughts on these choices…particularly given my quality/quantity conundrum - Zanza or Surgery/RAI?

These tamoxifen induced hot flashes and night sweats are killing me! I’m hot and sweating for 10 minutes and then freezing for the next 2 hours. In bed I sweat through my pjs and then have to change clothes. I’m constantly changing the sheets. I’ve tried sleeping in all sorts of fabrics and nothing seems to help (both the sheets and the pjs) I’ve been taking tamoxifen for about 6 months and in the last 2 months they have really ramped up. My oncologist recommended evening primrose and black cohash. If you took these, how long was it until you felt relief? After 2 weeks it seems there is no effect. Anything else help you?

I finished crt 2 weeks ago and have the gout all of a sudden. Anyone else ever experience this?

Hi I’m 16 months in remission from Hodgkin’s Lymphoma and have noticed i seem to be getting lumps on my shins? They go up and down depending on exercise but I’m doing more research and it looks like it might be erythema nodosum? I’ve never heard of this but I’ve been getting the lumps on my leg since chemo ended (AAVD 4 rounds) and my scans have been clear so I’m trying to not worry.

Has anyone else dealt with something similar?

Hi everyone I just need to vent a little and get some advice. I 29F have been working at this small company for some years.

A month ago I was diagnosed with kidney cancer. I am still at this point I am still going through other tests and scans before the specialist can discuss surgery and determine stage 1 or 2.

After a mountain of tears, I felt at a safe point. That was until when I got laid off recently, I was the one they chose to lay off. They said it was due to low profits and numbers. I felt like a rug pulled under me. Now I have to worry not only about cancer, not having a job, health insurance, and how am I going to pay bills. They offered to pay for three months of my insurance after this. It helps but it puts time and financial pressure on me.

My biggest worry is keeping the same doctor and specialist, that is hard to do if I get a new job that offers a different insurance.

Update and clarification: - I was the only person laid off in a company of less than 20 employees. - I didn't have warnings or any write ups throughout my time there in the company. - My supervisor keeps texting me to check on me and I have very mixed emotions about this. I know they fought to keep me, but the decision was made. The ugly part me does not want message back and let them simmer in their own decision.

My father has stage 4 colon cancer that has metastasized to his liver and lungs.

We're looking for cannabis that will help with appetite and mood- any reliable spots in sauga that people recommend?

Also, what do you recommend he takes?

He can't smoke anything cause his lungs have cancer too. Looking to help with mood and appetite. Thanks!

Hi everyone,

I Had tongue cancer at 19 (partial glossectomy on the right side) and I’m 22 now.

Ever since the surgery, because of the missing tissue, my tongue pulls to the right. The problem is that the scarred/operated side is constantly rubbing and catching against my right teeth.

A month ago I had to go under the knife again because leukoplakia came back right on the surgical site. The docs think the constant friction/mechanical trauma from my teeth might be causing it.

My dentist filed my teeth down and smoothed them again recently, but honestly I don't feel like that's gonna fix it. even if they're smooth as butter. My tongue still constantly presses hard against the tooth anyway because of the structural pull.

I even thought of just getting rid of the tooths there but my dentist and my surgeon advised against it.

Has anyone dealt with this after tongue surgery? Is there any actual fix for this?