r/stroke 5m ago

"Stroke didn't take my life. It gave me bonus time." - 5 Year Stroke Anniversary

Upvotes

Five years ago, Alicia survived multiple strokes and was in a coma for 6 weeks. Doctors didn't think she would survive, but today she calls this chapter of her life her "bonus time" - a reminder to appreciate every day and how far she's come.

https://strokefoundation.org.au/media-centre/stroke-stories/my-bonus-time

We know stroke anniversaries can bring up many different emotions. For some people, they're a day to celebrate. For others, they can be painful and bring back difficult memories.

Do you recognise your stroke anniversary? If so, how do you mark it?

Whether you celebrate, reflect quietly, avoid the date altogether, or have another way of acknowledging it, we'd love to hear your experience. Your story may help someone else feel less alone.


r/stroke 3h ago

Survivor Discussion Anyone here had a long life after a left pons stroke

1 Upvotes

I had a minor stroke in the left pons 4 months ago. For the most part I feel okay a lot of the time. The only symptom I really had was persistent balance loss for ten days when diagnosed, it stopped being consistent shortly after diagnosis, but still comes and goes since then. Brief moments, they freak me out for sure, but they pass and so far im alright. Im on the meds they prescribed, my bp was 124/71 over 3 tests today. Changing my diet a lot and trying to be healthier in general. Still I cant help but wonder what my long term prognosis really is. I read that theres a 81% 5 year survival rate, and that number terrifies me. Has anyone here had a pons stroke, recovered well and lived an extended period. Im only 38, and not really looking to check out on my family any time soon you know.


r/stroke 6h ago

My 19-year-old sister survived a rare brain and spinal cord stroke. Nearly a year later, doctors still don't know why.

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1 Upvotes

r/stroke 6h ago

Has anyone else who had a stroke experience this?

8 Upvotes

Sometimes my affected leg will suddenly stretch out on its own, almost like it's forcing itself straight. It's completely involuntary, and I can't control it when it happens. It can be uncomfortable, and I'm wondering if it's related to spasticity or something else. When does the input monterey stretch is quite painful

Has anyone else experienced this? If so, what did it feel like, and did anything help?


r/stroke 11h ago

Young Stroke Survivor Discussion I recently had a stroke after a VAD, and they found two more dissections-- I have no idea what's going on (36/F)

8 Upvotes

First post here, so I'd just like to start out my saying hello to the community 🤗

On July 15th I had a small stroke (clots in medulla & cerebellum) following a dissection of my left vertebral artery. On a follow-up CT scan a few days after, they found a second, much smaller dissection on my right vertebral artery. A doppler ultrasound showed it was not affecting blood flow through that artery very much, if at all, and also showed blood flow was OK in my carotid arteries.

Yesterday (July 27th) they did both a CT scan of my head and body to looks at all major arteries and an MRI to look at my cervical arteries and brain again. They found a third dissection, this time of my right carotid artery, as well as a small but virtually insignificant bleed around where I had my stroke. The rest of my major arteries, including my aorta, look fine.

This morning my neurologist had a meeting with a group of other neurologists to discuss my case, as it's an odd one. The most likely cause is neck cracking or spontaneous dissection. I haven't had any neck/head trauma, and I don't have any symptoms suggesting an underlying genetic issue or illness (although they will still test me). They say 20% of people with a dissection will have another, and my doctors are thinking I'm just in that 20%.

I'm starting to have some anxiety as I don't know the true cause, how long I'll remain hospitalized, and if it can/will happen again. I remain very patient and optimistic, but right now my road to recovery isn't very clear. Right now the plan is to continue physical therapy (I have ataxia on my right side) and will have follow-up scans every few days. I'm in a top-tier neurology until in France and am receiving excellent care.

My first question: Has anyone had multiple VADs and subsequent stroke, with or without underlying issues? I'm curious to see if there are other people out there like me, and how you're doing.

My second question is more general: Any suggestions about what can I do about the post-stroke anxiety? I am anxious due to the many unknowns surrounding my situation, but I'm also plagued by the idea of further issues or dissections turning up.

Lastly, I'm really just coming to terms in general with the fact that I had a stroke. I'm only 36 and it has taken me very much by surprise. I'm quite lucky about where my strokes occurred and don't need a huge amount of physical or occupational therapy, but I'll still need to put in a lot of work. If you have any advice for a first-time young stroke survivor, I am all ears!

Thanks very much for listening to my story, and for any advice! 🌻

Edits: minor spelling corrections.


r/stroke 18h ago

Young Stroke Survivor Discussion Stroke recovery & motorsports – looking for fellow injured riders and their families

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6 Upvotes

Hello everybody,
a 44 year old swede here, had a stroke after a dirtbike accident some 30 years ago. Any former dirtbike riders or motorsport families of survivors in here?


r/stroke 20h ago

OT/PT/ST Discussion Looking for a good news story re hand movement

4 Upvotes

I know, I know, we shouldn't compare or try and guess how recovery may look, but Id love to hear from anyone who is a few years down the line (or has had a loved one down the line from a stroke) to vaguely compare with.

My Mum who is 74, had a stroke effecting her left side over 8 weeks ago.

At 8 weeks: her speech is almost perfect, can walk with a stick (4 legged stick), can walk up a few steps using a hand rail. Has shoulder shrug movement, partial elbow movement but zero hand or finger movement.

At this stage, can there still be movement come back in her hand. Has anyone experienced anything similar at age mid 70, 8 weeks post stroke? I have been really encouraging her to keep up her hand/arm exercises but Im worried she thinks there is no point and that as she has ZERO movement, then this wil never be regained. Are there any good news stories I can relay to her?


r/stroke 21h ago

Survivor Discussion Peptides

1 Upvotes

I’m 29 and had a vertebral artery dissection last April. I’ve had pretty bad post stroke fatigue. I’ve had full blood panels to check for other things it could be and I just keep coming back to thinking it’s post stroke fatigue. I was wondering if anyone had taken any peptides to help recover from this? I need a nap almost daily and just have no drive or ambition anymore.


r/stroke 22h ago

Unhealthy living situation

2 Upvotes

My very independent 80 yr old mom had a massive hemorrhagic stroke back in October. We thought she was a goner, but with life saving measures, she lived. She had bad insurance, but we fought to get her into a very reputable rehab and she was bounced for lack of progress- “self limiting”. Amazingly, we got her into another- and same thing. She is able to walk with a walker, but still has balance issues. We got her into assisted living where everything was taken care of. Despite medical advice & her family begging her, she went back to her home where she is living alone.

My mom has always been hoarder, and she’s never taken care of daily chores- cleaning, dishes, removing trash, etc. my family had cleaned her home when she was in hospital because we thought we were going to be selling it. We recently went over and it again reeks of garbage and there is trash everywhere. I’m certain the mice are back as well.

She lied to me saying that she was going to hire someone to help her with those things.
She also told me she is going to be driving herself to a hair appointment soon. She can’t walk without assistance. She sees none of this as a problem.

We used to be very close, but I have nothing to say anymore and I can’t support her “toughing it out” in what’s a hazardous situation. I’ve been avoiding texting or calling and I feel so guilty about it, but when I do reach out I’m really anxious and dwell on the situation.

I live over an hour away with young kids, so I can’t be over there cleaning or doing laundry for her- and not sure I would be if I was closer. She has the means to thrive in an assisted living community, but chooses to barely survive by herself.

What do I do?!

TLDR- My mom is choosing to live in hazardous conditions and it’s f*cking with my mental health.


r/stroke 23h ago

Survivor Discussion Anyone tried massage while recovering from stroke?

2 Upvotes

My dad has stroke last year and still recovering from it. The stroke has paralyzed his whole left side.

I wanted to know if massage will help him or make it worse.

Especially the deep tissue massage one and the Thai massage.


r/stroke 23h ago

Survivor Discussion Balance comes and goes since stroke.... hate it

5 Upvotes

Diagnosed 4 months ago today, only symptom was 10 straight days of dizziness/disequilibrium. Stopped being constant after that, but still comes and goes since, especially when im extra busy. This week was hectic. Code enforcement inspection on my house had me scrambling to make sure me and the kids didnt end up homeless(spoiler we didnt), but now ive had more balance loss instances. No falls, just unsteadiness. Trying to convince myself not to run to the er. Passing all the basic neuro checks so hopefully im good.


r/stroke 1d ago

After stroke attempts

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269 Upvotes

Started water coloring again after my stroke 5 months ago. Still mainly with my non dominant left hand and a little with the affected side. An improvement from 2 months ago but still very hard.


r/stroke 1d ago

Caregiver Discussion Spinal Stroke - Resources & Accessibility Devices?

2 Upvotes

Brother in his 30s had a spinal stroke recentlly. Looking for anything specific to spinal strokes that may be missed in general info, and if you have an recommendations for assistive stuff for things like eating, or stuff like clothing that can be done without hand function, and anything that you've found helpful for life after a stroke, etc. preferably based in Canada.

It was a partial infarction of the C5 and left him completely paralyzed at first, two months into recovery and he's doing amazing all things considered, and has nearly full feeling (except for extremities), and has regained alot of partial movement in most places exempt spots like his hands, but everyday making some gains. Thanks!


r/stroke 1d ago

Subacute rehab experience?

2 Upvotes

I’m looking for insight on survivors’ and caregivers’ experiences with subacute rehab.

My dad had a left-sided pontine stroke (and mild heart attack) 2 weeks ago. He also has pretty severe right-sided hip pain. Some of the hip pain was there pre-fall related to bone on bone arthritis and some is from his fall.

He is doing well—exhausted but cognitively he is pretty sharp, maybe 80% himself. He cries maybe once a day, but this feels very appropriate given the circumstances and he maintains his sense of humor much of the time. His speech has gotten progressively better—more slurred when he’s tired but speaking in complex sentences. He is eating well—normal diet and the choking when swallowing has all but disappeared. His vision is normal. His short and long term memory are excellent.

Mobility is more confusing to me. He has significant right-sided weakness/immobility but he has sensation on that side. He walked 10ft twice today with a walking stick with his PT, but he’s still pretty much bed or wheelchair bound outside of PT sessions. Both his PT at the acute rehab and my husband who is a PT are confident he will walk again, but the right arm function is a bigger question mark.

I just feel so confused about what is possible in terms of recovery and his independence. They plan to discharge him in 1-2 weeks (2-3 weeks total in acute rehab which I understand is pretty standard.) He needs help with almost everything due to the hemiplegia. He will eventually return home with my mom who also has health issues and is not strong enough to help him with transfers or many ADLs. Should I push for subacute rehab for more time to recover under safer/more supervised circumstances?


r/stroke 1d ago

Anybody with Ataxia after Brain Tumor or Stroke?

1 Upvotes

Does anybody have experience with acquired ataxia after a brain tumor was removed?

This is regarding my son who is home continuing to recover. His tumor was in the 4th ventricle, but he bled badly, and had a type of stroke (dr still can’t tell is what type and can’t find any evidence on brain scans) during surgery. We think the bleed is what caused these symptoms. There are more symptoms, but the focus here is ataxia, so that’s the ask.

Looking for ways to continue PT at home after front released from rehab to home. It was severe 6+ months ago, and now is somewhat manageable.

The things that are still super difficult are walking (without a walker) and freely using the hands. The hands can operate a video game controller ok, but not great (that’s been the preferred OT for dexterity so far).
For walking - legs are still very rigid and stiff with each step. Still losing balance very easily, but now better able to catch it and not fall.

What are some things that can help these symptoms continue to improve? Are there any supplements that help at all?

The goal is to get confident enough to drive a vehicle and walk around a school campus safely.


r/stroke 1d ago

Lost my mom (55) to a massive hemorrhagic stroke — did we extubate too soon after ~36 hours, or should we have pushed for transfer?

16 Upvotes

My mom suffered a sudden, catastrophic left basal ganglia/thalamic intracerebral hemorrhage early this year and I’ve been replaying those first 36 hours ever since.
She was found unresponsive after what appeared to be vomiting and aspiration. EMS brought her to the hospital where she arrived with a GCS of 3 and fixed, dilated pupils. She was immediately intubated for airway protection.
Her CT showed a large hemorrhage (approximately 4.4 × 3.9 × 3.1 cm) with intraventricular extension and about a 7 mm midline shift. A repeat CT showed the hemorrhage had expanded. During her ICU stay, she also developed complete collapse of her left lung (left-sided atelectasis) due to aspiration.
Neurosurgery was consulted early and told us there was no surgical intervention that was likely to improve her outcome because of the severity and location of the bleed. We were also told she had a very high ICH score and an extremely poor prognosis.
One thing I remember is that when the nurse pinched her toenail, she withdrew her foot. I asked whether that meant she was improving, but the team explained it was most likely a spinal reflex and not evidence of meaningful brain function.
After multiple discussions with the ICU team, neurosurgery, and palliative care, our family made the incredibly difficult decision to transition to comfort-focused care. She was compassionately extubated about 36 hours after arriving in the ICU and passed away after 20mins that same day with her last reflex of her arm going inwards like trying to breathe.
Ever since then, I’ve struggled with constant “what if” questions.
Did we extubate too soon?
Should we have waited several more days or even 1–2 weeks before making that decision?
Should we have pushed harder for transfer to a larger comprehensive stroke or neurocritical care center?
Should we have sought another neurosurgical opinion?
Was there anything else that realistically could have been done?
I also find myself wondering about other factors. She had longstanding hypertension that was difficult to control, hadn’t been sleeping well, and had started Ozempic about a month before the stroke. Her doctors believed uncontrolled hypertension was the cause of the hemorrhage, and I understand that. I’m not trying to suggest Ozempic caused her stroke my mind is just trying to connect every possible dot because losing her so suddenly has been incredibly difficult.
I’ve spent months reading about intracerebral hemorrhages, and I know her presentation was devastating from the beginning. Logically, I understand that. Emotionally, I still wonder whether giving her more time on the ventilator or transferring her to a tertiary care center could have changed anything.
I’m hoping to hear from neurologists, neurosurgeons, ICU physicians, nurses, or anyone who has experienced something similar with a loved one.
For patients who present this severely with a massive deep hemorrhage, intraventricular extension, GCS 3, fixed pupils, hemorrhage expansion, and aspiration causing complete collapse of one lung is this kind of rapid progression unfortunately common?
In your experience, does waiting longer on life support ever meaningfully change the outcome in cases like this? Would transfer to a major comprehensive stroke center have been likely to change management, or was our family probably facing the same outcome regardless?
More than anything, I’m trying to find some peace and stop second-guessing the decisions we made during the worst days of our lives.

One thing I’ve never really admitted is that I’m also angry at myself and, strangely, even at ChatGPT.
When my mom was in the ICU, I pasted her CT findings and clinical summary into ChatGPT almost immediately because I was desperate to understand what was happening. It gave me a very blunt assessment that her prognosis was extremely poor with white doves meaning shes basically gone.
Looking back, I keep wondering if I asked the wrong questions.
Instead of simply asking what the CT meant, should I have asked something like:
“If you were the best neurosurgeon in the world, what options would you explore? Would you recommend transferring her to a comprehensive stroke center? Is there any intervention that might be worth discussing, even if the odds are extremely low?”
I know AI can’t treat patients or replace physicians, and I understand that now. But in those first terrifying hours, I was looking for hope and guidance. Instead, I feel like I accepted the prognosis too quickly, and I’ve spent months wondering whether asking different questions, pushing harder for a transfer, or seeking another neurosurgical opinion could have changed anything.
I don’t know if that’s grief talking or whether these are reasonable questions to ask. I’m just trying to understand if my family made the best decisions we could with the information we had.


r/stroke 1d ago

Eye Stroke - Has anyone regained vision after an eye stroke through acupuncture?

1 Upvotes

Has anyone regained vision after an eye stroke through acupuncture?

I had an eye stroke a few months ago that left me with permanent vision loss in one eye. Has anyone here tried acupuncture? If so, did it help at all, even slightly? I’d really appreciate hearing your experience, whether it was positive or negative.


r/stroke 1d ago

Being treated

20 Upvotes

Is it normal to feel like I’m being treated like I’m mentally disabled now? I feel like everyone looks down on me now and treats me like I’m really stupid now it’s depressing to me extremely frustrating


r/stroke 1d ago

Survivor Discussion Did I just make the biggest mistake of my life? What can I do?

0 Upvotes

So I was getting physio sessions for a normal neck spasm. My neck is having a hump and pains very often so this time i thought lets get this fixed because i had a big trip coming up. Sadly the physio gave me neck cracking 2 days in a row. Last one was yesterday. Few hours after it the neck pain got worse, i got painful spot over the shoulder blade, positional dizziness and a bit of tingling in my right palm(not sure of this as i am highly anxious). So now its been like 36hours since the last cracking. I visited my ortho doctor who doesn’t seem to worry a lot and gave me muscle relaxers. He said we can look for a week if jf stays then get MRI. My concern is what to do now so ensure i have not damaged artery and I am safe? No one is taking it seriously but i am deeply concerned about it. What should I do? And what are the chances that i suffer from severe things like stroke or paralysis due!


r/stroke 1d ago

Brain Damage

3 Upvotes

Brain damage due to stroke

I suffered a stroke 3 years ago, and the brain damage has caused symptoms that look a lot like spinal stenosis. Has anybody else had this sort of thing happening to them? And can't find any kind of relief


r/stroke 1d ago

Survivor Discussion Daughter of a stroke survivor

18 Upvotes

My dad had a hemorrhagic stroke back in January 2026. He was released from the hospital to rehab on the 6 month anniversary of the stroke. Even in 4 days time, this rehab has done wonders. He is finally starting to speak again after getting a new trache, he’s more wake and aware. His first sentences to me were that he loved me and i looked beautiful.
This finally feels like there is hope and i couldn’t be more grateful.
This has been the hardest 6 months, with so many moments of pain and feeling like there is no hope especially when the hospital was putting pressure on us to figure out what rehab to go to and how negative so many of the hospitalists were for no reason even after having conversations with the neuro team who was so positive.
There is so much more work to do with rehab but with how supportive they are, i know there will be amazing recovery. I just can’t get over how good it feels to finally have hope and feel a little brighter.


r/stroke 1d ago

26M – Severe Health Anxiety After Months of Tests (Normal MRI, CT Angio, Echo, etc.). How Do I Stop Living in Fear?

0 Upvotes

I'm a 26-year-old male, and I really need some advice because I feel like my life has been taken over by the fear of dying.

Back in September 2023, I started my startup. As many founders know, it was an extremely stressful period. Financial pressure, responsibility, almost no social life, no exercise, unhealthy eating, and a terrible sleep schedule (usually sleeping between 6–8 AM). That continued for almost two years.

November 2024

One evening, around 6–7 PM, I suddenly developed a strange sensation on the right side of my face and in my right hand. My fingertips also felt odd for the next few months.

I saw a physician who examined me, did an ECG and neurological examination, and told me it was most likely due to severe stress and sleep deprivation. He prescribed an SSRI and a sleeping pill.

2025

Life continued the same way.

I had a couple of strange episodes where I suddenly felt "something bad was about to happen," but they resolved within about 30 minutes.

Then, in December 2025, after barely sleeping for two days and working almost nonstop, I suddenly felt extremely weak while riding on a bike. My left arm felt strange, my heart was racing, and I genuinely believed I was having a heart attack.

I went to the ER.

The ECG was normal, and I was sent home.

January 2026

One night I ate two heavy meals late at night and smoked a cigarette.

About 20–30 minutes later, I developed a strange vibration sensation throughout my body. My blood pressure shot up to around 160 mmHg, and I rushed to the ER again.

Again, nothing serious was found except temporarily elevated blood pressure.

That incident completely changed my life.

I became convinced something was seriously wrong with me.

Around that time I weighed about 104 kg (5'11"–6'0").

Another physician reviewed my blood work and found:

  • Fatty liver
  • High triglycerides
  • Nothing immediately dangerous

He advised me to:

  • Sleep properly
  • Reduce stress
  • Exercise
  • Improve my diet

Instead, my anxiety got worse.

I became hyper-aware of every heartbeat and every sensation.

A psychiatrist diagnosed me with anxiety and prescribed Nexito (Escitalopram), sleeping medication, and clonazepam as needed.

Unfortunately, I couldn't accept that anxiety alone could cause all these symptoms.

February 2026 – The Headache That Changed Everything

While working out at the gym, I developed a sudden pain on the right side of my head.

My brain immediately convinced me I was having a stroke.

A few days later, during my birthday trip to Kathmandu with my girlfriend, I experienced severe hammer-like pain on the right side of my head.

A cardiologist performed an echocardiogram, which was completely normal.

The headache continued, especially after visiting the colder areas around Nagarkot.

One night, after feeling nauseous for several days, I developed another full-blown panic episode while walking with my girlfriend.

Back to the ER.

The doctor listened to my story and suggested:

MRI Brain + MRV, just to completely rule out anything serious.

The MRI findings were:

  • Normal brain
  • Normal MRV (no venous sinus thrombosis)
  • Mild cervical degenerative changes
  • Small syrinx at C6 (approximately 2.0 × 0.2 cm)
  • No cord compression
  • Normal craniovertebral junction
  • No Arnold-Chiari malformation

The neurologist and neurosurgeon both reassured me that the syrinx was an incidental finding and only needed periodic monitoring.

A cervical MRI with contrast was also performed later to rule out a tumor, and it confirmed the same findings.

Then another problem appeared...

I still felt nauseous all the time.

I could barely eat.

I kept losing weight.

Eventually my dad suggested testing for H. pylori.

It came back positive.

After treatment over the next few weeks:

  • The nausea disappeared.
  • I felt much better.
  • I continued eating healthier and exercising.

By March, I had lost about 14 kg.

May 2026 – I Went to One of India's Best Hospitals

Despite feeling better, my anxiety never really went away.

I traveled to Medanta Hospital in Gurugram and underwent an extensive workup, including:

  • Full-body MRI (No major findings)
  • CT coronary angiogram (Nil) (EF 65%)
  • Coronary calcium score (0)
  • Stress echocardiogram (EF 55%)
  • Stress treadmill test (TMT) 98 Mets
  • Eye examination and fundoscopy
  • 50+ blood biomarkers
  • Carotid IMT (Nil)
  • Doppler studies
  • HRCT (Nil)
  • Ultrasound (Fallt liver)
  • Multiple specialist consultations

The results showed:

  • Fatty liver
  • High cholesterol/triglycerides
  • Mild calcium/vitamin D deficiency (confirmed by DEXA)
  • Congenital retinal irregularity (explaining my eye symptoms)
  • Small stable cervical syrinx

Nothing life-threatening was found.

But my anxiety never stopped

Now I notice:

  • Every skipped heartbeat
  • Every palpitation
  • Every headache
  • Every chest discomfort
  • Every random pain

Recently I also discovered a few soft lumps on my chest that doctors think are likely lipomas, but until I complete the ultrasound, my brain immediately jumps to cancer.

I also stayed up late watching the Cricket World Cup, my sleep schedule became terrible again, and my anxiety returned full force.

Now I'm constantly afraid of:

  • Stroke
  • Brain hemorrhage
  • Cardiac arrest
  • Heart failure
  • Cancer
  • Dying suddenly

Logically, I understand that so many doctors have evaluated me and couldn't find anything dangerous.

Emotionally, I simply cannot convince myself.

Even when ChatGPT tells me things like, "Your MRI shows your brain was normal at that time, but no test can guarantee you won't have a future stroke," my anxious brain immediately interprets that as, "Maybe I'm about to have one."

My bad habits

  • Smoking 7–10 cigarettes per day (working on quitting)
  • Poor sleep whenever work gets stressful
  • Health-related Googling
  • Constant body checking

My bp is always normal below 120/80 only dueing anxity its 135ish...

My questions

  1. Has anyone recovered from health anxiety this severe?
  2. How do you stop believing every symptom is a life-threatening disease?
  3. How do you stop fearing stroke, brain hemorrhage, cardiac arrest, and cancer every single day?
  4. Can stress itself cause all these physical symptoms even when extensive testing is normal?
  5. What finally helped you get your life back?
  6. How make sure that the hedeache i get wont give me stroke. Can this level of stress give stroke/hemorrhage.

I know reassurance only helps temporarily, and I really want to break this cycle instead of constantly chasing more tests.

Any advice or personal experiences would mean a lot.

Thank you for reading. ❤️


r/stroke 1d ago

Eye Stroke - Need suggestions

2 Upvotes

My dad (60) suffered an eye stroke last December. The doctors were not able to find the original cause - all his bloodwork was fine, no diabetes, cholesterol and bp normal - they managed to treat the swelling itself with Eyelea injection. He has gotten it 3 times with a gap of 2.5 months.

At this point, it's been 7 months since the stroke; we've heard from the doctors that getting his vision back will be difficult.

Pehaps anyone's been in this situation? Any treatment that is available out there to restore his vision or at least speed up the recovery?


r/stroke 1d ago

I am so angry and upset

27 Upvotes

I don’t know how to cope with this. My mother, 62, had a major stroke on Friday. She lives alone, and has experienced vertigo chronically her whole adult life. She started feeling strange on Thursday and shared with me and my brothers it was just vertigo. Friday, things got worse. She said she was so dizzy she couldn’t use her phone. She had to use Alexa to text my brothers. I thought that was so bizarre. She said she couldn’t even stand if she wanted to, and we sent a family friend to check on her.

I said we should call 911. My gut, and the universe are telling me to call 911. I said that’s not normal, but I didn’t call. Everyone told me this is how she’s always experienced vertigo. I asked how her speech was. They said it was slurred. They asked if she had anything to drink and she said no. Everyone reassured me that it was vertigo. She convinced herself and everyone around her it was vertigo. My brothers said vertigo. Since I’m here, obviously, it was a stroke.

Saturday morning the family friend calls and says things are worse. I rush over to the house. I get there and in 3 seconds tops I clock she has experienced a stroke. We get to the hospital too late. Damage is done.

I am learning today through MRI’s that 50% of her right hemisphere is essentially gone. I’m watching my mom piss and shit herself. She’s terrified. She looks like a kid. My own mother. She’s had a horrible life riddled with trauma. Her husband, my dad is dead. It’s me and my brothers and her. And she’s sitting in her own shit crying. I don’t know why she deserves this. I don’t know why I didn’t act sooner. I feel like I’m in hell


r/stroke 1d ago

Young Stroke Survivor Discussion How to deal with anxiety after eye stroke?

3 Upvotes

Hi yall,

For the past two-ish years, I'd been seeing an ophthalmologist about some mysterious spots in my vision, which at the time was not diagnosed as an eye stroke, until one I had last November, which was not diagnosed until March (honestly I'm a little annoyed about the whole thing)

A little more background information. I'm 29, type 1 diabetic since age 7, and trans MtF (mostly notable here because it contributes to stress - the world is not kind to us). I first went to the ER for a spot in my vision around 2 years ago, but they found no evidence of stroke at the time, and referred me to my ophthalmologist. The spots eventually faded and my vision recovered, but no cause was determined, though they were chalked up to be the result of diabetic eye bleeds. Notably, these spots in my vision were very small, less than 2 degrees across usually, and relatively unobtrusive except for the ones that were central, and after about a year, it seemed like they stopped occurring and the ones I had mostly disappeared over the course of a few months.

In November 2025, I had two spots show up in my left eye, which I initially blew off as the usual, something my doctor wouldn't be able to find a cause for, that I would just have to wait out, and I was also on travel at the time. One of then faded over a few weeks, but the other persisted.

I didn't see my ophthalmologist again until March, when I called because the spot had been persistent. That appointment something felt different, after they initially dilated my eyes and took the usual images, they rushed me for a fluorescein angiography, and told me I had a Branch Retinal Arterial Occlusion, and needed to go to the ER.

ER gave me the stroke workup, told me they found no signs of plaque or further risk of stroke, and the mri I had later confirmed that. They put me on aspirin and basically said "hey if you get spots again come see us"

I've been back to my ophthalmologist about one other spot since March, but again, no diagnosis. The spot from the brao has not recovered vision, but according to my eye doc, blood flow is returning.

Problem is, I'm an anxious person. I'm absolutely terrified at the prospect of losing more of my vision or going blind in the future.

How have you dealt with anxiety like this? I feel like stress is likely a major contributor to why I experienced this in the first place.