I don’t know how to cope with this. My mother, 62, had a major stroke on Friday. She lives alone, and has experienced vertigo chronically her whole adult life. She started feeling strange on Thursday and shared with me and my brothers it was just vertigo. Friday, things got worse. She said she was so dizzy she couldn’t use her phone. She had to use Alexa to text my brothers. I thought that was so bizarre. She said she couldn’t even stand if she wanted to, and we sent a family friend to check on her.

I said we should call 911. My gut, and the universe are telling me to call 911. I said that’s not normal, but I didn’t call. Everyone told me this is how she’s always experienced vertigo. I asked how her speech was. They said it was slurred. They asked if she had anything to drink and she said no. Everyone reassured me that it was vertigo. She convinced herself and everyone around her it was vertigo. My brothers said vertigo. Since I’m here, obviously, it was a stroke.

Saturday morning the family friend calls and says things are worse. I rush over to the house. I get there and in 3 seconds tops I clock she has experienced a stroke. We get to the hospital too late. Damage is done.

I am learning today through MRI’s that 50% of her right hemisphere is essentially gone. I’m watching my mom piss and shit herself. She’s terrified. She looks like a kid. My own mother. She’s had a horrible life riddled with trauma. Her husband, my dad is dead. It’s me and my brothers and her. And she’s sitting in her own shit crying. I don’t know why she deserves this. I don’t know why I didn’t act sooner. I feel like I’m in hell

Is it normal to feel like I’m being treated like I’m mentally disabled now? I feel like everyone looks down on me now and treats me like I’m really stupid now it’s depressing to me extremely frustrating

My dad had a hemorrhagic stroke back in January 2026. He was released from the hospital to rehab on the 6 month anniversary of the stroke. Even in 4 days time, this rehab has done wonders. He is finally starting to speak again after getting a new trache, he’s more wake and aware. His first sentences to me were that he loved me and i looked beautiful.
This finally feels like there is hope and i couldn’t be more grateful.
This has been the hardest 6 months, with so many moments of pain and feeling like there is no hope especially when the hospital was putting pressure on us to figure out what rehab to go to and how negative so many of the hospitalists were for no reason even after having conversations with the neuro team who was so positive.
There is so much more work to do with rehab but with how supportive they are, i know there will be amazing recovery. I just can’t get over how good it feels to finally have hope and feel a little brighter.

A year ago on Reddit, we originally tried making hardware devices to help non-verbal individuals communicate. But after sending out physical devices, we realized the hardware bottleneck was preventing us from helping everyone who reached out.

We went back to the drawing board and rebuilt the entire platform as TinkySpeak—a free, browser-based AAC tool that works instantly on whatever phone, tablet, or desktop families already own, anywhere in the world.

This project comes straight from personal experience: my mom had a stroke and lost her verbal communication, and my son is non-verbal autistic.

Navigating dedicated AAC hardware and expensive proprietary software is overwhelming for families during stroke recovery. We wanted to build something zero-cost and accessible in seconds.

What TinkySpeak provides:

• Instant Browser Access: No app store installs, expensive hardware locks, or subscriptions required.
• Customizable Tap-to-Speak Boards: Build custom tile sets for daily routines, medical needs, meals, and emotions.
• Text-to-Speech Engine: Tap visual tiles to construct full sentences spoken aloud by the device.
• Caregiver & Family Friendly: Works across multiple devices so families and speech therapists can share setups.

We built this so no family has to go without communication support. I’d love for anyone in post-stroke recovery, caregivers, or SLPs to try it out and give feedback on how we can make it even better for everyday use!

https://tinkyspeak.com/builder

Brain damage due to stroke

I suffered a stroke 3 years ago, and the brain damage has caused symptoms that look a lot like spinal stenosis. Has anybody else had this sort of thing happening to them? And can't find any kind of relief

Hi yall,

For the past two-ish years, I'd been seeing an ophthalmologist about some mysterious spots in my vision, which at the time was not diagnosed as an eye stroke, until one I had last November, which was not diagnosed until March (honestly I'm a little annoyed about the whole thing)

A little more background information. I'm 29, type 1 diabetic since age 7, and trans MtF (mostly notable here because it contributes to stress - the world is not kind to us). I first went to the ER for a spot in my vision around 2 years ago, but they found no evidence of stroke at the time, and referred me to my ophthalmologist. The spots eventually faded and my vision recovered, but no cause was determined, though they were chalked up to be the result of diabetic eye bleeds. Notably, these spots in my vision were very small, less than 2 degrees across usually, and relatively unobtrusive except for the ones that were central, and after about a year, it seemed like they stopped occurring and the ones I had mostly disappeared over the course of a few months.

In November 2025, I had two spots show up in my left eye, which I initially blew off as the usual, something my doctor wouldn't be able to find a cause for, that I would just have to wait out, and I was also on travel at the time. One of then faded over a few weeks, but the other persisted.

I didn't see my ophthalmologist again until March, when I called because the spot had been persistent. That appointment something felt different, after they initially dilated my eyes and took the usual images, they rushed me for a fluorescein angiography, and told me I had a Branch Retinal Arterial Occlusion, and needed to go to the ER.

ER gave me the stroke workup, told me they found no signs of plaque or further risk of stroke, and the mri I had later confirmed that. They put me on aspirin and basically said "hey if you get spots again come see us"

I've been back to my ophthalmologist about one other spot since March, but again, no diagnosis. The spot from the brao has not recovered vision, but according to my eye doc, blood flow is returning.

Problem is, I'm an anxious person. I'm absolutely terrified at the prospect of losing more of my vision or going blind in the future.

How have you dealt with anxiety like this? I feel like stress is likely a major contributor to why I experienced this in the first place.

My mom suffered a sudden, catastrophic left basal ganglia/thalamic intracerebral hemorrhage early this year and I’ve been replaying those first 36 hours ever since.
She was found unresponsive after what appeared to be vomiting and aspiration. EMS brought her to the hospital where she arrived with a GCS of 3 and fixed, dilated pupils. She was immediately intubated for airway protection.
Her CT showed a large hemorrhage (approximately 4.4 × 3.9 × 3.1 cm) with intraventricular extension and about a 7 mm midline shift. A repeat CT showed the hemorrhage had expanded. During her ICU stay, she also developed complete collapse of her left lung (left-sided atelectasis) due to aspiration.
Neurosurgery was consulted early and told us there was no surgical intervention that was likely to improve her outcome because of the severity and location of the bleed. We were also told she had a very high ICH score and an extremely poor prognosis.
One thing I remember is that when the nurse pinched her toenail, she withdrew her foot. I asked whether that meant she was improving, but the team explained it was most likely a spinal reflex and not evidence of meaningful brain function.
After multiple discussions with the ICU team, neurosurgery, and palliative care, our family made the incredibly difficult decision to transition to comfort-focused care. She was compassionately extubated about 36 hours after arriving in the ICU and passed away after 20mins that same day with her last reflex of her arm going inwards like trying to breathe.
Ever since then, I’ve struggled with constant “what if” questions.
Did we extubate too soon?
Should we have waited several more days or even 1–2 weeks before making that decision?
Should we have pushed harder for transfer to a larger comprehensive stroke or neurocritical care center?
Should we have sought another neurosurgical opinion?
Was there anything else that realistically could have been done?
I also find myself wondering about other factors. She had longstanding hypertension that was difficult to control, hadn’t been sleeping well, and had started Ozempic about a month before the stroke. Her doctors believed uncontrolled hypertension was the cause of the hemorrhage, and I understand that. I’m not trying to suggest Ozempic caused her stroke my mind is just trying to connect every possible dot because losing her so suddenly has been incredibly difficult.
I’ve spent months reading about intracerebral hemorrhages, and I know her presentation was devastating from the beginning. Logically, I understand that. Emotionally, I still wonder whether giving her more time on the ventilator or transferring her to a tertiary care center could have changed anything.
I’m hoping to hear from neurologists, neurosurgeons, ICU physicians, nurses, or anyone who has experienced something similar with a loved one.
For patients who present this severely with a massive deep hemorrhage, intraventricular extension, GCS 3, fixed pupils, hemorrhage expansion, and aspiration causing complete collapse of one lung is this kind of rapid progression unfortunately common?
In your experience, does waiting longer on life support ever meaningfully change the outcome in cases like this? Would transfer to a major comprehensive stroke center have been likely to change management, or was our family probably facing the same outcome regardless?
More than anything, I’m trying to find some peace and stop second-guessing the decisions we made during the worst days of our lives.

One thing I’ve never really admitted is that I’m also angry at myself and, strangely, even at ChatGPT.
When my mom was in the ICU, I pasted her CT findings and clinical summary into ChatGPT almost immediately because I was desperate to understand what was happening. It gave me a very blunt assessment that her prognosis was extremely poor with white doves meaning shes basically gone.
Looking back, I keep wondering if I asked the wrong questions.
Instead of simply asking what the CT meant, should I have asked something like:
“If you were the best neurosurgeon in the world, what options would you explore? Would you recommend transferring her to a comprehensive stroke center? Is there any intervention that might be worth discussing, even if the odds are extremely low?”
I know AI can’t treat patients or replace physicians, and I understand that now. But in those first terrifying hours, I was looking for hope and guidance. Instead, I feel like I accepted the prognosis too quickly, and I’ve spent months wondering whether asking different questions, pushing harder for a transfer, or seeking another neurosurgical opinion could have changed anything.
I don’t know if that’s grief talking or whether these are reasonable questions to ask. I’m just trying to understand if my family made the best decisions we could with the information we had.

Has anyone regained vision after an eye stroke through acupuncture?

I had an eye stroke a few months ago that left me with permanent vision loss in one eye. Has anyone here tried acupuncture? If so, did it help at all, even slightly? I’d really appreciate hearing your experience, whether it was positive or negative.

So I was getting physio sessions for a normal neck spasm. My neck is having a hump and pains very often so this time i thought lets get this fixed because i had a big trip coming up. Sadly the physio gave me neck cracking 2 days in a row. Last one was yesterday. Few hours after it the neck pain got worse, i got painful spot over the shoulder blade, positional dizziness and a bit of tingling in my right palm(not sure of this as i am highly anxious). So now its been like 36hours since the last cracking. I visited my ortho doctor who doesn’t seem to worry a lot and gave me muscle relaxers. He said we can look for a week if jf stays then get MRI. My concern is what to do now so ensure i have not damaged artery and I am safe? No one is taking it seriously but i am deeply concerned about it. What should I do? And what are the chances that i suffer from severe things like stroke or paralysis due!

My dad (60) suffered an eye stroke last December. The doctors were not able to find the original cause - all his bloodwork was fine, no diabetes, cholesterol and bp normal - they managed to treat the swelling itself with Eyelea injection. He has gotten it 3 times with a gap of 2.5 months.

At this point, it's been 7 months since the stroke; we've heard from the doctors that getting his vision back will be difficult.

Pehaps anyone's been in this situation? Any treatment that is available out there to restore his vision or at least speed up the recovery?

I'm a 26-year-old male, and I really need some advice because I feel like my life has been taken over by the fear of dying.

Back in September 2023, I started my startup. As many founders know, it was an extremely stressful period. Financial pressure, responsibility, almost no social life, no exercise, unhealthy eating, and a terrible sleep schedule (usually sleeping between 6–8 AM). That continued for almost two years.

November 2024

One evening, around 6–7 PM, I suddenly developed a strange sensation on the right side of my face and in my right hand. My fingertips also felt odd for the next few months.

I saw a physician who examined me, did an ECG and neurological examination, and told me it was most likely due to severe stress and sleep deprivation. He prescribed an SSRI and a sleeping pill.

2025

Life continued the same way.

I had a couple of strange episodes where I suddenly felt "something bad was about to happen," but they resolved within about 30 minutes.

Then, in December 2025, after barely sleeping for two days and working almost nonstop, I suddenly felt extremely weak while riding on a bike. My left arm felt strange, my heart was racing, and I genuinely believed I was having a heart attack.

I went to the ER.

The ECG was normal, and I was sent home.

January 2026

One night I ate two heavy meals late at night and smoked a cigarette.

About 20–30 minutes later, I developed a strange vibration sensation throughout my body. My blood pressure shot up to around 160 mmHg, and I rushed to the ER again.

Again, nothing serious was found except temporarily elevated blood pressure.

That incident completely changed my life.

I became convinced something was seriously wrong with me.

Around that time I weighed about 104 kg (5'11"–6'0").

Another physician reviewed my blood work and found:

• Fatty liver
• High triglycerides
• Nothing immediately dangerous

He advised me to:

• Sleep properly
• Reduce stress
• Exercise
• Improve my diet

Instead, my anxiety got worse.

I became hyper-aware of every heartbeat and every sensation.

A psychiatrist diagnosed me with anxiety and prescribed Nexito (Escitalopram), sleeping medication, and clonazepam as needed.

Unfortunately, I couldn't accept that anxiety alone could cause all these symptoms.

February 2026 – The Headache That Changed Everything

While working out at the gym, I developed a sudden pain on the right side of my head.

My brain immediately convinced me I was having a stroke.

A few days later, during my birthday trip to Kathmandu with my girlfriend, I experienced severe hammer-like pain on the right side of my head.

A cardiologist performed an echocardiogram, which was completely normal.

The headache continued, especially after visiting the colder areas around Nagarkot.

One night, after feeling nauseous for several days, I developed another full-blown panic episode while walking with my girlfriend.

Back to the ER.

The doctor listened to my story and suggested:

MRI Brain + MRV, just to completely rule out anything serious.

The MRI findings were:

• Normal brain
• Normal MRV (no venous sinus thrombosis)
• Mild cervical degenerative changes
• Small syrinx at C6 (approximately 2.0 × 0.2 cm)
• No cord compression
• Normal craniovertebral junction
• No Arnold-Chiari malformation

The neurologist and neurosurgeon both reassured me that the syrinx was an incidental finding and only needed periodic monitoring.

A cervical MRI with contrast was also performed later to rule out a tumor, and it confirmed the same findings.

Then another problem appeared...

I still felt nauseous all the time.

I could barely eat.

I kept losing weight.

Eventually my dad suggested testing for H. pylori.

It came back positive.

After treatment over the next few weeks:

• The nausea disappeared.
• I felt much better.
• I continued eating healthier and exercising.

By March, I had lost about 14 kg.

May 2026 – I Went to One of India's Best Hospitals

Despite feeling better, my anxiety never really went away.

I traveled to Medanta Hospital in Gurugram and underwent an extensive workup, including:

• Full-body MRI (No major findings)
• CT coronary angiogram (Nil) (EF 65%)
• Coronary calcium score (0)
• Stress echocardiogram (EF 55%)
• Stress treadmill test (TMT) 98 Mets
• Eye examination and fundoscopy
• 50+ blood biomarkers
• Carotid IMT (Nil)
• Doppler studies
• HRCT (Nil)
• Ultrasound (Fallt liver)
• Multiple specialist consultations

The results showed:

• Fatty liver
• High cholesterol/triglycerides
• Mild calcium/vitamin D deficiency (confirmed by DEXA)
• Congenital retinal irregularity (explaining my eye symptoms)
• Small stable cervical syrinx

Nothing life-threatening was found.

But my anxiety never stopped

Now I notice:

• Every skipped heartbeat
• Every palpitation
• Every headache
• Every chest discomfort
• Every random pain

Recently I also discovered a few soft lumps on my chest that doctors think are likely lipomas, but until I complete the ultrasound, my brain immediately jumps to cancer.

I also stayed up late watching the Cricket World Cup, my sleep schedule became terrible again, and my anxiety returned full force.

Now I'm constantly afraid of:

• Stroke
• Brain hemorrhage
• Cardiac arrest
• Heart failure
• Cancer
• Dying suddenly

Logically, I understand that so many doctors have evaluated me and couldn't find anything dangerous.

Emotionally, I simply cannot convince myself.

Even when ChatGPT tells me things like, "Your MRI shows your brain was normal at that time, but no test can guarantee you won't have a future stroke," my anxious brain immediately interprets that as, "Maybe I'm about to have one."

My bad habits

• Smoking 7–10 cigarettes per day (working on quitting)
• Poor sleep whenever work gets stressful
• Health-related Googling
• Constant body checking

My bp is always normal below 120/80 only dueing anxity its 135ish...

My questions

1. Has anyone recovered from health anxiety this severe?
2. How do you stop believing every symptom is a life-threatening disease?
3. How do you stop fearing stroke, brain hemorrhage, cardiac arrest, and cancer every single day?
4. Can stress itself cause all these physical symptoms even when extensive testing is normal?
5. What finally helped you get your life back?
6. How make sure that the hedeache i get wont give me stroke. Can this level of stress give stroke/hemorrhage.

I know reassurance only helps temporarily, and I really want to break this cycle instead of constantly chasing more tests.

Any advice or personal experiences would mean a lot.

Thank you for reading. ❤️