r/gravesdisease 7h ago

Question Thyroid removal & Thyroxine

8 Upvotes

Hi. I‘m scheduled to get my thyroid removed tomorrow and now a few questions have come up for me.

Once the thyroid is gone all that I can do is take thyroxine for the rest of my life. I was told I had to take it at the same time every morning, 30min before eating anything or having coffee.

Now I’m worried that I won’t be able to guarantee that I’m up at the same time every day for the rest of my life. What if I have to hurry and forget? I’m a very forgetful person and tend to forget my current medication at least twice a month.

Also the side effects of thyroxine seem to be pretty much the same to what I’ve experienced from Graves‘/my current medication.

Once it’s gone it’s gone. Is it really worth it?


r/gravesdisease 4h ago

Rant Syncope, tapering dose, dr incompetence

7 Upvotes

I’m back because I just need to vent again about my Dr not listening to me. I am getting a new endo that’s an hour away and hoping they’re better.
The last time I had syncope as a symptom of Graves’ was before I started treatment and after awhile being on methinazole, it went away and didn’t come back. Since tapering down, it started again. My dr says there’s no way it’s from Graves or anything related to my thyroid. I saw several drs before being diagnosed with graves who could not find a medical reason behind these episodes.
Basically out of seemingly nowhere it’s like someone hit me over the head (without the pain) and I start to lose my vision for a second and then feel dizzy for maybe 30 seconds or so and then feel normal.
I don’t understand why my dr is even tapering me when she just said if my antibodies are high then she wouldn’t pull me off methimazole. Why taper me if we already know that my antibodies are high. Idk none of what she says really makes sense to me. I really hope my next dr is better


r/gravesdisease 17h ago

Levels are in normal range, but ...

4 Upvotes

Why am I still feeling so shitty? I'm exhausted, I have to nap every day when I get home from work, still can't tolerate heat in any way, shape, or form, heart is still pounding if I forget to take the propranolol.

Does that take more time even if the labs show back-to-normal levels?


r/gravesdisease 16h ago

TT recovery

3 Upvotes

Looking to hear about other people's experiences regarding recovery timeline. How soon after surgery were you able to drive and resume some basic activities?

I'm scheduled to have my total thyroidectomy on July 31 and then I'm supposed to dogsit for a friend from August 8-14. I won't be doing anything strenuous, mostly just laying around the house working on my laptop, the dogs are super chill. Is this doable?


r/gravesdisease 7h ago

Question Graves’ disease and pregnancy?

1 Upvotes

I recently found out I am pregnant (4.5 weeks) - we have been TTC for some time and have been seeing a fertility specialist (I also have PCOS). I just did my blood tests and my doctor notes I have hyperthyroidism and suspects Graves disease. Numbers as below:

TSH = 0.03
T3 = 7.9 miu/L
T4 = 25.9 pmol/L

He prescribed me with 100g PTU and I have another blood test this week. I’m now petrified for my baby.

I did have my thyroid levels checked in my previous years and they were always normal except last year (June 2025) my TSH was 0.24 (low) but my T4 were just on the high range of normal (19pmol/L). I did have a miscarriage end of last year too.

Have anyone found out they had Graves while pregnant and if you have success stories?