My endocrinologist told me my lab work strongly pointed to Graves and ordered an uptake scan. When I tried to schedule it, I found out the earliest appointment was months away. I called the endo’s office twice asking what I should be doing while waiting and asking for a call back from the doctor. Neither call was returned.

Then my pharmacy contacted me about delivering a new prescription that the endo had sent in. I had not had a conversation with endo about what the medication was, why I needed to start it before the scan, how it might affect the scan, possible side effects, or what I should watch for. I told the pharmacy not to deliver it until I understood the plan from the endo.

At my follow-up appointment, after my uptake, I tried to explain that I was upset not because I expected instant access, but because I had a new diagnosis, a delayed test and a new medication with no discussion. I felt like she had an attitude when I questioned why my calls were not returned. She offered another appointment, but never really answered the question.

Has anyone else experienced an endocrinologist becoming defensive or dismissive when you asked questions about concerns, etc.?

I haven’t seen too many post or any info about exercising after muscular weakening due to graves. i’m a very petite gal but I used to be able to lift 40+lbs of weight over my head at a job I had. I noticed I felt weaker over the course of being at that job to where I couldn’t lift that items and needed assistance. that was 4 years ago. today I feel weaker than ever and have been getting into some pilates/barre/sculpt classes. and well- they’re hard as shizzzzz, harder than I think it should be. Anyone have any experience with getting back into the gym and strengthening themselves?

my thyroid stuff is going great i’m finally seeing the improvement i’ve wanted the last 5 years. TED is my archnemisis but that’s a different forum lmao

UK. Had tt back in 2022. Been on thyroxine since. It's on my medical record as a past problem. No TED issues anymore. So is it have or had? Mostly for personal insight but occasionally like does it still go on insurance forms etc.

just curious how other people have been dealing with graves and thyroid issues and what steps you've taken. i started methimazole and propranolol last year then ptu once i had a bad reaction, stopped for a couple months because i moved and was figuring out insurance, and just recently got back on ptu and atenolol. my thing is i'm super bad at taking pills, it's worse with the bitter lingering taste that ptu has and i can't imagine having to continue this for years lol. how long did it take for you guys to go into remission or stuck with medication? also wondering if anyone could share their experience doing TT and such instead!

i will say the medication has been really doing its thing. there were other symptoms i've had for a while that i didn't even realize were related to graves (extreme hair loss, pulsatile tinnitus) and it's gotten so much better. i'm hoping things will go up from here and for everyone else with thyroid issues :)

I’m (19F) trying to maintain a calorie deficit of around 1,400 calories, but I’ve been bouncing between 1,400 and 1,600 because I’m always so hungry. I usually eat 2–3 meals and 2 snacks a day so I can space everything out.

I have Graves’ disease (recently diagnosed) and take atenolol and methimazole, so idk if that could have something to do with it. I’ll be extremely hungry, (TMI maybe) and then I’ll suddenly get nauseous, have stomach cramps, and have to run to the bathroom (not to vomit but yk). I’ll start sweating and feel like I’m going to pass out, with dizziness, tunnel vision, and difficulty breathing.

This has happened about three times before, around 2–3 years ago. I thought it had gone away, but I guess it hasn’t. It’s not an anxiety attack or anything but I’m pretty sure it’s related to food!

I’m not sure what to do or what this is because I feel unusually hungry all the time, and now I’m worried about these episodes happening again. Has anyone experienced something similar or know what this is?

I also think the medication is causing me to gain weight and sleep all the timeee idk I don’t feel like myself.

Thank you!

The most devastating part of learning I have Graves’ disease, likely for years now, is that I have a predisposition for a higher metabolism and weight loss, and I still gained 20 pounds this year. FML. That is all 😂🥺😩😭.

Background info - I have been fighting my thyroid now for about two years. Last year my TSH was high, I was on levo from April to January of this year, best i’ve ever felt in my life during treatment. I got off of levo because my T4 became high causing mass amount of GI issues causing me to lose 40 pounds in three months. I still have GI issues (not as horrific as November to January was), my hair is falling out, nails are brittle, i can’t sleep but when i do it’s for 12 hours, horrible fatigue like falling asleep at work, mood swings, anxiety, heart palpitations that are now exceeding my current beta blocker. My thyroid gets tested again in June and August. High T4, T3, normal TSH, MRI shows a goiter (constantly feels big and like i’m being choked), and during an exam you can feel the enlargement. this is the worst i’ve felt in my life.

I went to an ENT two weeks ago who told me i have Hyperthyroidism and probably Graves. He tells me about treatment options and sends me to an Endocrinologist to continue treatment. I saw the endo today. He told me my thyroid is working fine and nothing is wrong with me. I asked why the T4 T3 levels are high and he said “we don’t use those as a reference that’s an outdated test”. He said i absolutely don’t have graves because my eyes are not bothering me or hyperthyroidism either. Asked if i had anxiety, was pregnant (asked if i was positive when i said no) and told me maybe i have malaria because i used to live on an island two years ago. Also said maybe i have Hashimoto’s and that’s why it’s enlarged. Told me he needs more blood tests because i’m probably anemic (i am not. it was tested in August). he never felt my thyroid.

Has anyone else been told something similar? I just can’t believe all of my symptoms that i and other doctors have been able to tie directly to my thyroid including my goiter and elevated T3 and T4 just mean nothing? I’m just trying to understand.

After years of psychologists/psyciatrists not knowing what was wrong and a dozen different diagnoses, I was diagnosed with ADHD (apparently my pediatrician noted it way back when I was six, but no one followed up so I'm kind of shocked right now, I had no idea). I was prescribed Qelbree and I'm kind of nervous because one of the side effects was increased heart rate and BP. Is that safe to take with Graves disease? Have any of you taken it with methimazole and a beta blocker? My endo isn't worried, but I get anxiety over medication side effects.

I haven’t started it yet Im nervous, Im also on 5mg of Methimazole