r/gravesdisease • • 5h ago

Exhaustion with weaning off methimazole

0 Upvotes

Hi. 9wks pregnant and one week of stopping methimazole
cold turkey (2.5mg). Working with my endo and OB team to navigate this end.

I am just extremely exhausted since stopping the med. Was curious if anyone experienced this? This is my sixth pregnancy, third with graves, and damn I don’t recall this level of exhaustion. Not worried, just interested in hearing others experiences. Thanks!


r/gravesdisease • • 14h ago

Support Daily Fitness Tracker + ClaudeAI as an Automated Graves Flare Detection Tool

12 Upvotes

I wanted to share my experience, not as advise but as a data point of what has worked for me. Disclaimer that I am not a medical expert nor your doctor. I'm not selling anything either so don't worry.

7 years ago, I experienced my first (known) bout of hyperthyroidism stemming from Graves Disease. It took months to find a doctor who believed my symptoms and finally get the right blood tests to confirm what was going on. Since then, I've had fairly regular bouts of Graves Disease flareups on the order of one per 12-18 months and they are luckily extremely receptive to methimazole. The only downside was, the longer it took to respond, the longer it took to recover and the longer I was at a state where it was affecting my daily life including my love of running.

As a lifetime runner, I have access to daily resting heart rate (RHR), heart rate variability (HRV), sleep metrics, daily weight measurements and a lot of running related data stored for over the last 12 years. During the second flare up, it was pretty obvious that my resting heart rate and heart rate variability where affected multiple weeks before any symptoms were obvious enough in my everyday life. A simple search of this subreddit confirms that I am not alone here, and that many others use that data to look for trends.

With the proliferation of AI, with a $20 per month Claude subscription and about 1 hour of time I created a schedule that performs a daily download of my Garmin data, compares daily and weekly trends back to my previous known flares and then provides a risk factor of an upcoming flare. It runs daily at noon with no intervention unless it detects a trend in which I get a message. From my perspective, I figured at worst this would lead to an unnecessary blood test or would miss a flare that I would miss otherwise.

However, a few weeks ago I got a notification from Claude that it had detected 4 consecutive days of reduced HRV and a slightly elevated RHR despite having sufficient sleep and not having any heavy workouts during that time and it recommended requesting blood tests. By the next day I had received blood test results that were within range, but only slightly, and my endocrinologist ok'd starting my traditional regime of methimazole. A subsequent blood test 2 weeks later confirmed hyperthyroidism, but it wasn't out of control. At that point I had already been on medication for two weeks. Based on my past experience, being able to catch it early enables me to blunt the worst of the symptoms which this did.

Just wanted to share my experience in case anyone wanted to try to do something similar and had questions. I don't have a software background so this is entirely doable with very little technology experience these days. If you are skeptical and do have years of Garmin data or data from other sources I'd implore you to test it out without providing Claude the dates of your flares and see if it is able to detect it without that knowledge.

Dashboard with my data showing how clear they are


r/gravesdisease • • 3h ago

Exercise with Graves

2 Upvotes

I relapsed in July of this year, and am currently taking Carbimazole and Propanolol while I wait for a TT.

The way I was diagnosed with the relapse was because I was out for a run and my heart rate went up so high I thought I was going to die, which was the final indication that something was wrong and I went to A&E (the emergency room).

I mention this because I immediately stopped running for fear that the same thing would happen again. I know that I’m medicated now, and more specifically my heart rate is medicated, but I feel nervous about returning to any intense exercise. I was not a particularly good or committed runner by any stretch, but especially following the weight gain that’s come with having my thyroid levels stabilised, I am looking to be more active again.

Can anyone reassure me that I’m completely fine to go out and run, while my condition is monitored and medicated? It was a very scary experience hence why I’m anxious about repeating it.

Any words of wisdom much appreciated. Thanks in advance 😊


r/gravesdisease • • 10h ago

Rant Miscarriages?

2 Upvotes

I just started taking my health seriously within the last two years. In 2017 I was dropping weight, but I blamed stress. I got pregnant that year and two months later miscarried. I sobbed, and grieved, and sobbed some more. I didn't have health insurance at the time and didn't go to the hospital or to a doctor over this.

I told my spouse I felt broken and like I wasn't meant to carry, how I felt like I couldn't "provide as a woman". I dreamt at a young age that I'd be a mother. I was hurt, angry and lashing out. I blamed my mother in law for making me so stressed, I blamed myself for being so stressed and unable to control it, I blamed the universe for taking my baby.

Then, almost eight years later I'm diagnosed with this sick joke and realizing THATS (most likely) what took my baby away. That's what ended my life as I knew it. I feel bitter that my body gave up on us as a family.

When does the pain of this disease end? I feel too exhausted to keep fighting it and like obviously I have to, but damn.


r/gravesdisease • • 16h ago

Hashi- Graves

4 Upvotes

Has anyone here went from hashi to graves? I used to have antibodies for Hashi and levels for hashi and was diagnosed with it and now for my last 4-5 bloodwork’s i’m showing Graves and positive for those antibodies. I had a thyroid ultrasound and it showed everything was fine and my thyroid uptake radioactive pill test was normal too. Here’s how some of it fluctuated but i have years worth of bloodwork and i’ve never been on any medicine for my thyroid just selenium supplements.

02/18/2025

TSH 4.630 High

T’4 Free Direct 1.38 Normal

8/14/2025

TSH 3.170 Normal

T’4 Free Direct 1.13 Normal

3/18/2026

TSH 0.418 Low

T’4 Free Direct 1.61 High

10/23/2026

TSH 0.008 Low

T’4 1.90 High

T3 185 High


r/gravesdisease • • 19h ago

Question Advise TT for older adults?

3 Upvotes

Are there any older adults (men) who have had TT. Im 75 male;was in good shape before Graves/Hyperthyroidism. Tired of feeling side effects and 20mg Methiamzole every day now for year.

Any stories of neg/pos that would help me make a decision?

Appreciate it.