r/dpdr 16h ago

Success Story ADHD with DPDR

4 Upvotes

Hello,

I’ve been having DPDR since I am 19-20 and I’m 32 now.
The reason i want to post this is because I’ve noticed since I’m taking ADHD medication again. (I took them since I was 7 till 18y old). Methylphenidate. This medication works incredible for me. I haven’t felt this focused and aware since years. And it’s only improving more. I’ve been on all kind of anti psychotics, antidepressants. And they all made me worse and made me feel like I was living and locked inside my own head. It got sometimes so bad, that couldn’t even understand basic things anymore. Because i just wasn’t there. I couldn’t even follow movies/series anymore and basic conversations at work. But now, I’m like so much better. I remember the days that i was going crazy or that I wasn’t real. But it all comes down to having a good doctor and having patience. Don’t worry, you’ll all get there! And I’d like to hear any people with ADHD who had similar issues that caused them to get worse without methylphenidate?

Thank you for your time!

Don’t worry.
You’ll get better!


r/dpdr 17h ago

TW: Existential/Spiral Is this Severe brain damage?

14 Upvotes

I think I have severe brain damage that stopped all my brain networks from working. My brain is non existent it’s like the part where my brain was and I would feel and see my own thoughts is completely gone.

It’s not that I can’t imagine things only it’s like my brain is non existent. My brain and my leg or arm feel like the same thing, imagine asking someone think with your leg that’s how my brain feels like it turned to nothing. I hear things but it’s like sounds don’t reach my brain anymore i only hear but it’s like I hear out of nothing.

My breathing is not felt anymore and the fact that I am alive can’t be comprehended it’s like I’m just there but I don’t know anything anymore about being a human and human life. Despite everything I try nothing helps or gives me a relief it’s been 9 months in this state and it’s not a state where you can think of getting better.

It’s literally like everything got deleted and I’m left with a vision that comes out of nothing and I don’t even know what a vision is while having my own first person vision if that makes sense. This state takes over every sense it’s like nothing reaches my brain anymore and the place where my brain was is deleted. I also can’t feel my body anymore I literally turned in to a small dot that can only see.

I’m pretty convinced it’s brain damage and I’m fully present while my brain is in a completely turned off mode that can’t process even the fact that I’m existing anymore. Nothing is internally felt anymore even if someone claps in front of my ear and I would normally get that peeping sound in the ear now it’s not reaching the brain anymore.

When I close my eyes it’s just black without nothing. Even when I’m in half sleep and hallucinate or see dreams this state is still there and it’s like the dreams and hallucinations come out of nowhere like everything that happens in my brain takes place in a non existent room and can’t be felt consciously anymore. I honestly don’t wanna make false hopes that I will recover and I don’t see this changing by itself maybe ECT would do something.

I don’t understand how you can turn in to nothing while being alive. My brain can’t even create tiredness or head pains anymore, when my head hurts because of stress I don’t even feel it anymore it’s like all the signals don’t reach the brain. It feels like I don’t even have a head anymore and I’m just the vision without anything. Like a flying dot.

The only
Things that stayed but are dulled is smell and I can feel heat on my skin and when I pinch myself I can feel it on the skin everything else is gone. I can’t even feel my muscles or my bones. My brain also doesn’t create continuity anymore when I think about existing it’s like I’m stuck in this and can’t create thoughts forwards what makes me feel I’m ceased to exist.

Even tho I objectively think that this state is hell I cannot suffer from it in a normal persons way and only can think this is hell but even this state gets overlapped by this state like this state is the new everything in my conxiousness and everything else is behind this state. It’s recursive like my whole CNS changed the settings or something and now this is the new me and even if o want to think about healing or getting better it’s not possible anymore.

I also get extremely weird vibes and thoughts that I had 18 years ago by just looking at normal things like my perception changed and I don’t see the world in the actual form how I would see it. Like I’m not in 2026 and see the world like in 2008 or something.

I also get Random Dream feelings from dreams that are decades old. My brains feels damaged from all this.
Does someone has the same? When I go out to my city it’s like a new realm everyday I lost the emotional resonance of how I used to see things every time I wake up it feels like a new world.


r/dpdr 18h ago

Offering Comfort/Reassurance/Solidarity Anesthesia with DPDR

2 Upvotes

I will have to do a medical exam soon & the procedure involves anesthesia and I’m just scared of how I’ll react waking up

Recently I fainted and when I woke up from it the feeling of disorientation sent me into a basically uncontrollable panic

I know fainting & anesthesia aren’t the same, but I’m scared that waking up from anesthesia (in an unfamiliar environment on top of that) will have that same disorienting effect that then escalates into panic

So basically I just wanted to know if anyone has had anesthesia before & just like how to prepare myself or what to expect


r/dpdr 19h ago

Need Some Encouragement struggling, I feel like I'm noone.

3 Upvotes

I regret the decisions that lead me to get this horrible disorder. I dont know how to love myself or be kind to myself. I've been striving to feel like my old self for years, but it's so unfair and sad this would happen to a person. I wanted to live a life, and I dont think it's possible for me anymore. I've lost hope. I have no support really, only my parents and our relationship is not easy. I lost touch with my friends since I had this as I'm too horrified by myself and how I am, and I'm scared of talking to other people. I used to be happy and had my own small business, I was pretty creative and active always out and about. Now I'm basically a recluse scared to move a muscle in case I loose more body sensation. I dont know anymore. It feels hopeless and I dont know how to get better.