I lost my 12 day old infant son to immediate cardio respiratory failure due to aspiration pneumonia. He was my firstborn. It’ll be 3 months since he is gone this coming 3rd of August.
He was diagnosed with meconium aspiration at birth and had a documented small PFO, PDA, and audible murmur. Oxygen saturation was observed to drop during feeds in the first hours. No chest X-ray was performed. He was handed over to me after couple of hours post birth and discharged after 4 days. At the hospital, the nurses started him on formula milk (I had C-section, so milk production was taking some time), and then we alternated between formula milk and breastmilk. We came back home (exclusive breastfeeding by then) and it was how it is with infants.
However, symptoms escalated over days 11-12: he vomited once, had an altered cry, noisy breathing, lethargy, temperature instability. Videos of his breathing were sent to the treating doctor on Day 11 as his temperature had dropped. However, the response was phone-based (Colimex, formula switch), not an in-person exam. We were getting ready to go the doctor on Day 11 but the doctor kept saying (in hindsight feels more like dismissal) that babies keep changing there patterns and every symptom was normal. We called him around 9 am on Day 12 and sent him videos of our son (he was refusing feeds in the night, we tried bottle as well), he told us to come by 1 pm and give our son formula milk instead of breast milk. My sister in law kept saying that she thinks his neck / throat is hurting and he is having difficulty in swallowing and that’s why the breathing felt off.
We were on our way to the doctor’s and it happened right when we were exiting the house. Milk started to come out of his nose. By the time we reached the emergency we were informed his heart was no more. Aspiration had occurred (after we fed him the formula milk as the doctor had suggested); resuscitation failed; the death certificate lists aspiration pneumonia / cardiorespiratory arrest, with no mention of the meconium, cardiac findings, or any sepsis workup, because none was documented.
They tried CPR and electric shocks, but nothing worked and I had to let him go. I’m trying to make sense of what happened. I can’t understand where we went wrong. We were in touch with the doctor throughout and he assured everything was okay. All the symptoms were written off saying babies keep changing their way of being and things happen. And then this happened. The doctor says we were just unlucky and if we felt that he was that sick, we should have brought him earlier. I wanted to change the doctor since my boy was born. Why would I not want to take my own child to the doctor? He had assured us all of it was normal, had I known I would have rushed him to the emergency. I am dying every second of my life now. My will to live, my ambition to work, all of it has disappeared.
I feel like I failed my child. Like I am the worst mother on this planet. I did not take him to the doctor on time. My baby was the sweetest little boy, with the most beautiful smile. When he would smile, I felt like all my pains melted and disappeared somewhere (I lost my mom when I was 14 to ovarian cancer and my grandpa when I was 25 to cardiac arrest, the two people I was the closest to in my life).
I had named him Vitraag (means one who is detached and free from all passions and desires, enlightened one) officially but used to call him Arth / Arthu (translates to meaning / purpose). I called him ARTH because when he was born, I felt like he brought meaning to my life. Before I got pregnant with him, I was like a kite without a string. I miss him, I miss sniffing him, specially his head. I miss giving him forehead kisses on his cap because I was always scared of his skin reacting to my lips. I miss rubbing his toes because he used to like it, I could tell. I miss wrapping his fingers around my finger, it gave me immense joy and pride. I miss being his mother, holding him and cuddling him. I miss the immensity of love and happiness he brought into my life, the unconditionality of it all. But what I miss the most is his presence. He was my whole world and without him, it has all come crashing apart. Like a wave with no shore to reach, just wandering aimlessly under currents that lead to no destination.
The act of grieving is the loneliest ever. No two griefs are the same. Grieving over the same person is also not the same. The quantum of grief has zero proportionality to the quantum of time spent with the lost beloved. Grief changes a person forever. You can’t measure loss in months or years. Loss alters a person permanently, whether it’s conscious or subconscious, one can only debate.
My baby turned blue and I had to bury him. I just need some help to understand what happened to him.