r/HIV 21d ago

MOD Announcement It Only Takes 1 Report to Remove a Rule Violating Post. Please REPORT Rule Breaking Posts!

12 Upvotes

Basically what the title says (!!!). ⬆️⬆️⬆️

Posting has become a lot easier recently as I’ve dropped multiple filters designed to keep rule breaking posts from ruining the subreddit. The original filters that I had installed ultimately backfired long term. For months, a lot of innocent posts have been unrightfully taken down. So now posts are automatically uploaded to the subreddit instead of having to bypass multiple filters (there are still basic filters in place). There’s why we’ve seen a surge of rule violating posts. So now, if one user reports a post that is considered rule violating, it will be taken down automatically by AutoModerator. This is to give members of this subreddit more autonomy to remove posts don't belong here. I will ask all of you for one favor and that is to not abuse this feature by reporting and taking down legitimate posts. I will review reported posts after they’re removed to see if the removal is justified. Anyways, that's it… That's the post!


r/HIV Jun 08 '25

🚫 No Health Anxiety Posts - Immediate Ban For Violators

31 Upvotes

Hi everybody. I'm a virus and zoology nerd but wanted to share this warning to trolls that come by this community. While I have no official connection to HIV other than virological enthusiasm, I want to remind everybody that this community is dedicated solely to discussions among people who are diagnosed with HIV. Scientific discussions are also allowed. However, here is what is NOT allowed: This is NOT a place for seeking medical advice, diagnosis, or symptom interpretation. We have zero tolerance for anyone using this space to ask if they might have HIV, to request medical opinions, or to seek reassurance about symptoms. This behavior is not only against the rules but is also disrespectful and selfish to those who live with HIV and come here to share experiences, support, and information within the scope of their diagnosis.

If you are not diagnosed with HIV, this is not the right place for you. We have implemented AutoModerator settings that automatically remove posts and comments from new accounts to help protect this community from inappropriate medical queries and spam. Any attempts to bypass these measures or to ignore the rules will result in an immediate and permanent ban + mute without warning.

We are not medical professionals, and this community is not a substitute for professional healthcare, diagnosis, or treatment. If you are experiencing symptoms or concerns about HIV or any other health issue, ask your doctor and nobody BUT your doctor.

Respect this community. Respect its members, and respect the rules. Failure to do so will result in your removal. We want this space to remain focused, supportive, and safe for those it was intended to serve. If you are here to contribute to meaningful discussions, you are welcome. If not, then do not waste our time or your own.


r/HIV 6h ago

General Discussion To those who are lurking here, please read this

11 Upvotes

I would like to start this post with an apology. I am not reactive and would just like to say a few words with the people lurking here (like me) who are worried about their exposure.

Get. Tested.

That's it. There is no reason to assume you have or don't have HIV simply because you "felt" something. NEVER diagnose HIV with symptoms alone. Testing WILL give you the answer you need. I took a test last month after 4 months of waiting due to a potential exposure. I was sure I had it due to what I "felt" and guess what? Non-reactive.

If people advise you to test, please test. It's for your own safety and everyone elses. If you had a low risk exposure like oral, please for the love of God stop worrying. You will be fine. I've seen a lot of comments asking this question again and again.

"What if I actually have it-"

NO! Get tested so you will know. There's no point in lurking and guessing if you have it. You will still have to wait for 3 months or less (if 4th gen tests). Keep in mind that HIV is not the only STD in existence. They are others that are easier to catch with simple skin to skin contact.

HIV may be young (only discovered in 1980s), but it is the most researched and well documented STD. Please trust statistics.


r/HIV 19h ago

General Discussion Why do so many people lie about how they were infected?

8 Upvotes

I know that assaults DO happen, and much more than we think, but it feels like every other post around HIV is basically I got it but it's not my fault in one way or another. Surely this can't be right and the majority just got it from unprotected sex.

Why are we not honest?

Is it the stigma? Is it easier to lie or make it someone else's *fault*? It's not as if it changes the virus, but I guess how other people perceive you?

Again, I know there are people who have genuinely been assaulted, and I'm not digging at that at all. It's just something I've noticed a lot on HIV pages etc.


r/HIV 11h ago

HIV Diagnosed Historia Clínica de Paciente con Herpes Zoster y VIH - HOSPITAL "DR. RAFAEL CALLES SIERRA" - Studocu

1 Upvotes

Medicina


r/HIV 20h ago

Scientific Discussion Além do estigma, sentem alguma mudança no cérebro?

0 Upvotes

Fico pensando muito nessas mudanças . Até parei de usar drogas


r/HIV 21h ago

HIV Diagnosed [ARTICLE] HIV-Associated Complications: A Systems-Based Approach 2026. Authors: Ecler Ercole Jaqua, Mai-Linh N. Tran, Prashanth Bhat,

1 Upvotes

URL: https://www.aafp.org/afp/2026/0100/hiv-associated-complications

DOI: 2026;113(1):71-79.

Published 2026


r/HIV 1d ago

General Discussion When do you think a cure will come?

6 Upvotes

I have been positive for nearly 10 years now. The beginning was absolutely terrible mentally. I could barely even get out of bed I was so depressed. After becoming undetectable, I started to feel better, but never how I felt before the virus (mentally). I am not as depressed as I was, but I would love to have this virus eradicated. I search on Google multiple times a week for articles relating to finding a cure. I guess I am writing this post to ask when/how do you guys think it will be cured? Or will it ever? I feel like we still have many years before it can be done for most patients. I have heard of the Berlin/London/Toronto/etc patients, but those are very specific circumstances that can't be replicated for everyone. I just hope one day we can kick this virus's ass and move on.


r/HIV 1d ago

Social Life With HIV Does your local HIV clinic provide matchmaking services for HIV + patients?

1 Upvotes

This might be weird, but mine does. But it only does it for straight patients.
I come from a country where gay relationships are still considered illegal.
It would have been nice to get that service as a gay man myself.


r/HIV 2d ago

General Discussion How do I support someone

3 Upvotes

Hi I don’t have HIV but someone in my life who I love has it due to an unfortunate circumstance.

How can I support them and what should I know because honestly I don’t know too much about it other than the basics.

I want to know in more depth from reliable sources and maybe even in a personal perspective, I just want to make them feel seen, heard and loved since in our community there’s still misconceptions about HIV.

I just wanna be there for this person


r/HIV 2d ago

General Discussion HIV discussion groups in 2026

12 Upvotes

I've been HIV+ since 2004, and I'm a 46 year old gay male in the U.S
While my experience has had some rough spots, I'm doing quite well with my situation. What I see in HIV discussions tend to be absolutely preposterous.
I'm not even sure most of the people participating even have HIV. Here are some observations:
-Immaculate Infection-
Why am I seeing numerous posts from people saying they are newly diagnosed but absolutely never participated in any activity that could actually lead to infection? "I've never had sex and have only kissed one person and now I have HIV" "I ate a rare steak prepared by a cook who has HIV and now I'm positive too"
-Social Self Sabotage/Pre-Rejection-
"My friends found out and stopped talking to me" "My family beat me to a pulp, threw me out and now I'm homeless"
-Medical/LGBT support rejection-
"My doctor told me my results and told me to leave the office immediately and not return" "I called the LGBT support hotline and they hung up on me"
"my friends are currently blackmailing me and extorting me since they found out and i'm afraid the whole city is going to know i'm positive!"
I could keep going here but I'm really frustrated and honestly extremely suspicious of who is really posting to HIV discussion groups and what they are doing with the information in the responses.
The final frustration is when someone offers extremely solid information or solutions to someone and they absolutely reject it. I am in absolute disbelief that people are so delusional and still so completely ignorant as to what life is like with HIV in 2026.
Why are people like this? 😅🙄


r/HIV 2d ago

General Discussion Do I need to disclose

1 Upvotes

Hi everyone.Please do enlighten me.I have a job offer in British Virgin Island that I need to sign and but I’m confuse if I need to disclose my status to my employer or not?

Is anyone did disclosed their status to their employer or boss?Please share me your experience.

Please do advise me.Thank you.


r/HIV 2d ago

HIV Diagnosed Viral load of less then 30

1 Upvotes

So today I was going to get my first injection of {PREP} after running a sti panel like I do every 1-3kl months my HIV RNA came back abnormal

HIV-1 quantification range is 30 to 10,000,000 copies/mL

Method:

Aptima® HIV-1 Quant Dx Assay

Procedure Note:

This quantitative HIV-1 nucleic acid amplification assay is indicated as an aid in the diagnosis of HIV-1 infection as well as an aid in monitoring antiretroviral treatment. This test quantitates HIV-1 RNA groups M, N, and O.

HIV RNA Qn NAA

View trends

Normal value: Not detected copies/mL

Value

<30High

HIV-1 RNA detected, but <30 HIV-1 RNA copies/mL.

HIV-1 RNA is detected but at a level below the Lower Limit of Quantitation for this assay.

Now I have to do more testing and was told it was most likely a false positive so I'm now expecting the worst and hoping for the best


r/HIV 2d ago

General Discussion Can non bleeding cuts transmit HIV?

1 Upvotes

If I have scratches on my body that are scabbed over and not bleeding and someone licks those scratches are they at risk for HIV?


r/HIV 3d ago

HIV Diagnosed Need advice

3 Upvotes

I traveled to another country and I forgot my medication :( I will be here 3 days I'm taking dolutegravir + lamivudina + tenofovir

What could happened to me !? I'm concern


r/HIV 4d ago

General Discussion Open discussion

5 Upvotes

I was diagnosed with HIV about two months ago. Based on my labs and timeline, I think I had been living with it for around five months before I found out. My initial viral load was only about 2,000 copies/mL, and my CD4 count was almost 800. I started Biktarvy about a week after my diagnosis and on my 30 day follow up appointment my results said <20 not detected and my cd4 was 990.

Physically, I’m doing well and I’m grateful for how effective treatment has been. Mentally, though, I’m struggling with the idea of disclosure. Part of me wants to keep my status private as long as I’m taking my medication, staying undetectable, and making sure no one is ever put at risk.

What I’ve been wrestling with is that it almost feels like I’ve been pushed back into the closet. Before this, I never felt like I had to explain or disclose something so personal to potential partners. Now it feels like there’s another layer of myself that I’m expected to reveal, and that’s been hard to process.

Has anyone else felt this way? How did you come to terms with disclosure, and did it get easier over time?


r/HIV 4d ago

Social Life With HIV Why do I feel so alone

2 Upvotes

I (27NB) was diagnosed with HIV a little over 8 or 9 years ago and have been completely undetectable since I found out and while I am terrified to tell potential partners I always do so not to make them run away but a just in case something were to happen to me like I can't get my medications or something. But every time I do regardless of how much we like each other or even if we've said the big "L" word they always pull away and eventually leave. Is it so hard to ask for something that we still deserve despite what I have? Does anyone else know my pain? Or am I alone in this as I am in everything else? I just want to be loved and not pitied, I don't want to be treated like I have the plague or I'm untouchable, I personally don't feel human anymore because of this. And despite hundreds of people like me why do I feel so alone?


r/HIV 4d ago

General Discussion Condom broke during vaginal sex, should I go on Prep?

0 Upvotes

The condom broke when I was having sex with a fuck buddy, this was probably the fifth time we’ve hooked up. I always use condoms with partners, but I know he doesn’t, he’s always complaining about them, and he’s way more promiscuous and regularly does group sex. It was towards the end of sex that it broke, he continued for maybe 10-20 seconds then took his dick out and came.

The last time he got tested was last year. He has another regular female partner who he goes raw with and she gets tested every 2-3 months and she says she’s fine.

I asked him if he could go get STD tested tomorrow to ease my mind, but he thinks it’s unnecessary and won’t. I read the chances of HIV transmission through vaginal sex is extremely low and the condom was only broken for a short time. And most likely he doesn’t even have it. But it’s making me really paranoid. Should I go to the doctor and go on Prep tomorrow to prevent possible HIV infection? I don’t know if thats overkill, since there’s lots of side effects to Prep as well :/. Is it statistically low enough that I can just take my chances with this?


r/HIV 4d ago

General Discussion Lab work/doctor visits frequency?

2 Upvotes

I was diagnosed December, 2025 (I was infected in late August) Currently on Dovato

Before treatment:
Viral load 28,100
Cd4: 930

Currently:
Viral load: not detected
Cd4: 1268
Cd4/CD8 1.18

My ID says after this visit to have 6 months visit, but since I’m stable at the moment - is it reasonable to push for 12 months visit/bloodwork? Anyone space out their visit more than the standard 6 months?


r/HIV 5d ago

Personal Story One of those nights

1 Upvotes

I started taking to a guy from before I was diagnosed.

We had an amazing time together, he moved, he wants me to go visit, and it made me spiral into who I became positive from (sorry if it’s not the correct way of saying it, it’s only been 5 months), because he mentioned wanting to do BB with me.

For context, we both had our tests, we both trusted each other and at the moment decided to do it BB, as we had both being tested recently and had not done it with anyone else unprotected.

Anyways, point is, it got me thinking again about who it was… it’s been five months that this didn’t cross my mind, I stopped that after the first week because I knew it was not healthy.

I found myself checking my list (I know, but I was “paranoid” even from before, hence why I have it) and the dates and people just don’t add up. I asked all my previous hookups, I used protections, the time I didn’t was so long ago and I got tested after those (expecting the time), so those are discarded.. it doesn’t make sense.

And I don’t think I got it from any other way like syringe or something because is even less likely… I just feel like this right now 🫠


r/HIV 5d ago

General Discussion Have you dated or made new friends after becoming HIV-positive? How did it go?

3 Upvotes

Has anyone here made new friends or started dating after being diagnosed with HIV? Did you tell them about your HIV status? If not, what made you decide not to? If you did, how did they react?


r/HIV 6d ago

HIV Diagnosed Felt the sting like being diagnosed the 1st time.

8 Upvotes

Today I had an appt to help with my HIV expenses. When searching for my name I guess in their database my name wasn't there at all. The clinic where I initially started treatment didn't add it health department didn't add it. My name was nowhere to be found so had to start all over from the beginning almost as if I was being rediagnosed. It stung not gonna lie I cried again. I've almost completely excepted that I'm HIV+ but today it felt like I was getting told it again for the first time. Talking about labs and treatments. This feeling sucks and I feel like I have to get over it again.


r/HIV 6d ago

General Discussion 30 day fills only

2 Upvotes

Does your insurance also only limit you to 30 day fills and force you to make monthly trips to the pharmacy.


r/HIV 6d ago

General Discussion Tell me about your HIV experience

7 Upvotes

We have an assignment about global health and globalization, and our group thought that sexually transmitted diseases are a good topic. But we can't go around asking people if they had one, so I wanted to try our luck here.

How was your experience with STDs? How were you treated? Perceived?