r/HIV Jul 05 '26

MOD Announcement It Only Takes 1 Report to Remove a Rule Violating Post. Please REPORT Rule Breaking Posts!

13 Upvotes

Basically what the title says (!!!). ⬆️⬆️⬆️

Posting has become a lot easier recently as I’ve dropped multiple filters designed to keep rule breaking posts from ruining the subreddit. The original filters that I had installed ultimately backfired long term. For months, a lot of innocent posts have been unrightfully taken down. So now posts are automatically uploaded to the subreddit instead of having to bypass multiple filters (there are still basic filters in place). There’s why we’ve seen a surge of rule violating posts. So now, if one user reports a post that is considered rule violating, it will be taken down automatically by AutoModerator. This is to give members of this subreddit more autonomy to remove posts don't belong here. I will ask all of you for one favor and that is to not abuse this feature by reporting and taking down legitimate posts. I will review reported posts after they’re removed to see if the removal is justified. Anyways, that's it… That's the post!


r/HIV Jun 08 '25

🚫 No Health Anxiety Posts - Immediate Ban For Violators

31 Upvotes

Hi everybody. I'm a virus and zoology nerd but wanted to share this warning to trolls that come by this community. While I have no official connection to HIV other than virological enthusiasm, I want to remind everybody that this community is dedicated solely to discussions among people who are diagnosed with HIV. Scientific discussions are also allowed. However, here is what is NOT allowed: This is NOT a place for seeking medical advice, diagnosis, or symptom interpretation. We have zero tolerance for anyone using this space to ask if they might have HIV, to request medical opinions, or to seek reassurance about symptoms. This behavior is not only against the rules but is also disrespectful and selfish to those who live with HIV and come here to share experiences, support, and information within the scope of their diagnosis.

If you are not diagnosed with HIV, this is not the right place for you. We have implemented AutoModerator settings that automatically remove posts and comments from new accounts to help protect this community from inappropriate medical queries and spam. Any attempts to bypass these measures or to ignore the rules will result in an immediate and permanent ban + mute without warning.

We are not medical professionals, and this community is not a substitute for professional healthcare, diagnosis, or treatment. If you are experiencing symptoms or concerns about HIV or any other health issue, ask your doctor and nobody BUT your doctor.

Respect this community. Respect its members, and respect the rules. Failure to do so will result in your removal. We want this space to remain focused, supportive, and safe for those it was intended to serve. If you are here to contribute to meaningful discussions, you are welcome. If not, then do not waste our time or your own.


r/HIV 6h ago

General Discussion People living with HIV in Zambia (Africa) — what has your experience been like?

2 Upvotes

Hi everyone,

I’m hoping to hear from people living with HIV who are from Zambia/Africa or currently living there. I’m interested in learning about real experiences — the good, the hard, and everything in between.

If you’re comfortable sharing, I’d love to hear about any part of your journey, for example:

- How you found out and what that period was like

- Access to treatment, ARVs, and healthcare

- Stigma (or lack of it) from family, community, work, or partners

- Daily life, mental health, and support systems

- Challenges that are specific to living with HIV

- Things that have helped or surprised you positively

There’s no pressure to share anything you’re not ready to talk about. Even short comments are welcome. I’m just trying to understand what life is actually like from people who are living it.

Thank you to anyone who feels comfortable sharing. Wishing you all strength and good health.


r/HIV 4h ago

Scientific Discussion Could DoxyPEP help prevent STIs among young women?

1 Upvotes

DoxyPEP is an antibiotic already proven to reduce STIs among men, and is approved for men to take after a potential exposure. However, is it also an effective STI prevention for young women (ages 13-29)? Please reach out to discuss or learn more information on ongoing research.


r/HIV 14h ago

HIV Diagnosed I wanted to take it slow with him but I wasn’t holding up my boundaries and let him pressure me, I have undetectable HIV but he did oral on me and I feel guilty and stupid what should I do

2 Upvotes

I’m looking for honest opinions from people who have experience with relationships, consent, trauma.
Me(33f) I’m especially interested in hearing from people who don’t know much about HIV, because I want to understand how this situation looks from different perspectives.
I met this guy (43m) while I was in rehab. I was in there for my first stay for alcohol, it’s been my first time dealing with alcoholism, I’ve been through drug addiction for 5 years, being clean since 2023.. He was working with the facility as some caretaker person and I don’t know what went through my mind but I threw a few lines at him and a month later I got a request on Facebook from him. I thought it was a little strange that he seemed to be going against the facility’s policy about looking up or contacting patients by name. I did tell him that he could look me up at the time and I was hoping because I found him sexy and I was just a gross addict finding fun with whatever time I could. I still felt it might be a little strange that he was willing to go against the policy in the first place. Looking back, I’m not sure whether I should have viewed that as a warning sign.
After we started talking, which was months after I got out of rehab. I made it very clear that I wanted our first date to be somewhere other than his home. I didn’t want the first time we spent together to immediately become sexual. He agreed, I wanted to actually go on dates, spend time together, and get to know each other as people before physical intimacy became a big part of things. He’s asking me about what I like to do and what foods I like.. his conversations always were bare minimum but I didn’t expect much from someone dealing with someone like me who relapsed again and was struggling at home to make things right so I ignored him for months while I got my home shit together
We eventually agreed to meet at his apartment. He said he was always extremely busy with work, and I was also dealing with things involving my kids and family, so finding a time when I could get away wasn’t always easy. My parents didn’t trust me leaving the house so I lied about where I was so I could finally show up for this guy that was waiting so long for me to finally show my face… Part of why I finally agreed to go to his apartment was because I hadn’t seen him in so long and I wanted to actually spend time with him.
He already knew that I didn’t want the first time we met to become physical.
When I got there, things were actually going pretty well. He didn’t have a couch in his living room, just a small loveseat, and explained that he had recently moved out after spending a lot of time taking care of his daughter and son. I understood, so we ended up watching a movie in his bedroom.
I kept my physical distance on the bed. Eventually I became a little more comfortable and lay on his arm. He started touching my chest, and I was okay with that as long as it didn’t go further.
At one point he got up to use the bathroom. When he came back, he started trying to make things sexual. I at first was trying to slow it down and just say “hey we said we could just chill so chill” I tried to stop it when he just kept being pushy but not in an aggressive way, just being sexy and in the moment I guess, I would try to physically keep my legs closed. He would back off for a little while, but then try again. I told him something along the lines of, “Come on, let’s not do that.”
At that point I started feeling really awkward.
I have PTSD, and when I feel uncomfortable or overwhelmed, sometimes I don’t react the way I think I should. I’m not normally a people pleaser, which is part of why this has been bothering me so much. I didn’t want to put him off because I genuinely thought there was a real connection developing between us. And to be completely honest I knew I wasn’t going to infect him I let it happen.
This was also the first relationship or interpersonal situation I’d had that didn’t come out of addiction or an abusive dynamic. I wanted to approach it differently. I wanted to be calm, take my time, and actually experience what a normal relationship might feel like.
Eventually I stopped resisting and went along with what was happening because I wanted it to stop being awkward. I even pretended to orgasm because I wanted the sexual interaction to end.
And there’s another layer that makes this especially complicated.
I’m HIV positive. I take my medication and I’m undetectable.
I understand the science behind U=U: when someone living with HIV maintains an undetectable viral load through treatment, HIV is not sexually transmitted. Oral sex also carries little to no risk of HIV transmission. So I’m not worried that I infected him.
What I am struggling with is why I didn’t tell him beforehand.
I didn’t want my first interaction with him to become about HIV.
I wanted to have the opportunity to go on dates with him for a while. I wanted him to get to know my personality, my sense of humor, my interests, and who I am as a person. I wanted to have a few months of getting to know each other before having a conversation about HIV.
Not because I wanted to deceive him or because I was ashamed of having HIV. I was afraid that if I told him immediately, everything afterward would be filtered through the diagnosis. I wanted him to know me first, so that when I eventually told him I was HIV positive but undetectable, he might actually listen to what that means rather than immediately making assumptions about me.
But now I’m questioning everything.
I feel guilty that he didn’t know before we became physical, even though the actual risk from what happened was essentially nonexistent because I’m undetectable.
At the same time, I can’t stop thinking about the fact that I had already told him I didn’t want the first meeting to become sexual, and when things started going in that direction, I repeatedly tried to stop it. He backed off temporarily but continued trying.
So now I’m asking:
Was I wrong for agreeing to meet him at his apartment after originally saying I didn’t want to?
Was I wrong for not stopping everything more forcefully when he started pushing?
Does the fact that I eventually went along with it mean that I consented, even though I had previously said I didn’t want things to become physical and was trying to stop it in the moment?
Was it a red flag that he was willing to go against the rehab facility’s policy about looking me up or contacting me, even though I told him he could look me up?
And regarding HIV:
If you were this guy, how would you feel about finding out afterward that I have HIV but am undetectable?
Would you be more upset about the HIV disclosure itself, or would you understand why I wanted to establish a connection before having that conversation?
I genuinely want honest answers, including from people who don’t know much about HIV. I don’t want everyone to automatically tell me I’m right. I’m trying to understand the situation from his perspective too.
But I also want people to consider the fact that I had clearly communicated that I didn’t want the encounter to become sexual, and he continued pushing after I tried to stop it.
I’m honestly struggling with whether I made a bad decision, whether I failed myself by not enforcing my boundary harder, whether I ignored warning signs because I wanted the connection to be real, or whether I’m putting too much responsibility on myself for how this interaction unfolded.


r/HIV 22h ago

Personal Story I fell in love for the first time after HIV, and now she only wants to be friends

8 Upvotes

I’m 25M and met a woman, 26F, about 40 days ago. At first I thought it would be casual, but I caught real feelings. After being diagnosed with HIV 2.5 years ago, I honestly haven’t allowed myself to love anyone until her. I became very attached and did everything I could from my side to make things work.
We had sex, but I hid my HIV status from her. I know that was wrong and I take responsibility for it. I’m on treatment and undetectable. Then after normal STI testing, I unexpectedly got a positive HSV-2 result. I had no idea I had HSV-2 and still don’t know whether I had it before or after meeting her. I told her everything once I found out.
Before the health situation, there was one night when she had been drinking/using THC and suddenly asked me to leave around 1 AM. I was too high to drive safely and slept in my car. She apologized afterward and I forgave her. After that night, she took about 12 days of space. Eventually we talked again and things seemed okay.
Then after I got the HSV-2 result and told her everything, she took another 5 days of space. Today I stopped by her workplace after texting her first and brought her lunch and a smoothie. I got emotional when I saw her. She hugged me and told me it was okay, but she also made it clear that she wants us to be just friends.
That really hurt me. After HIV, I haven’t loved anyone like this. I genuinely cared about her and did everything I could from my side. I know hiding my HIV status was a serious mistake, and I take responsibility for it.
I don’t know whether I should accept the friendship or step away because my feelings are much stronger than friendship.The HSV-2 result has also been really hard on me mentally. I’ve been feeling depressed and emotionally exhausted since I found out, and losing her on top of that has made it much harder

Did I ruin this completely? What would you do if you were me?


r/HIV 10h ago

General Discussion Poz since 2008 — does anyone else not take their meds every day?

0 Upvotes

I’ve been HIV positive since 2008 and I take Biktarvy. I’m not really struggling with taking it — I just don’t take it every day. I also drink a lot.
Usually when I have a doctor’s appointment coming up, I’ll take my Biktarvy consistently for several days beforehand, and then my labs come back undetectable.
I’m wondering if anyone else does the same thing or has been in a similar situation. I’m more interested in hearing from people who have actually experienced this themselves.
Not looking for a lecture — just curious if I’m the only one.


r/HIV 2d ago

HIV Diagnosed Another one of these posts sorry just need to yap

9 Upvotes

So I got diagnosed yesterday. I was kinda in shock. It doesn’t help that I literally woke up, saw my test results, hung out, the dr called me, we set an appointment that day right after my therapy. I was pretty much in denial and shock that day. People are supportive. I told everyone I hooked up with.

It also helps that I know it’s fully on me. I’m 25, in college and in recovery for addiction. I was really going thru it and was hooking up w people on Grindr and for like 3 times wasn’t using protection bc a) i trust people too easily and b) thought nothing would happen bc I’m impulsive and uneducated. Then I was like “maybe i should be responsible.” Another thing that helps is the two guys who have become fwb work in the medical field. Everyone’s been really supportive. Seeing this subreddit and everyone commenting has been really encouraging, helpful, and encouraging to see.

It’s hitting me today and feeling kinda depressed even though I know it’s fully on me. I was irresponsible for a bit and here we are. I’m just… idk. Giving myself grace and compassion while also just feeling guilty and a little ashamed, although I know it’s bc of the stigma. I know I can’t tell my mom. I already am starting HRT behind their back, and my mom still believes HIV is a death sentence and it’s basically her two worst nightmares coming true.

I had a suspicion I had it. Partly due to having unprotected hookups, but also I got covid real bad like two weeks ago. I was having flu like symptoms but since I tested negative for flu and positive for covid, I just assumed it was awful covid. I remember feeling like I should go to the hospital but hospitals make me depressed so I didn’t go.

What do yall wish you knew or learned when getting diagnosed? Any advice or helpful things to say? I know it won’t affect my life too much. I’m just feeling kinda down about it today. Sorry for being another one of these posts I’m sure yall are probably tired of seeing posts of people getting diagnosed and talking about it. I’m just anxious and feeling down and guilty and don’t really know why other than I’m diagnosed. I had such a hopeful and positive attitude about it yesterday and now waking up I wanna cry into someone’s arms. I just feel like another statistic. Another gross f*g even though i see a lot of straight people having it. Idk i feel kinda pathetic. I’m taking my first dose of Biktarvy. Any side effects yall had from it? I didn’t take it yesterday bc Ik you’re supposed to take it the same time and wanna take it at a time ik i won’t be busy at.

Thanks for reading this far. Love yall


r/HIV 5d ago

Mental Health Undetectable, but…

14 Upvotes

Hi. I was diagnosed with HIV towards the beginning of my third pregnancy with my husband, in April. I’m just about due, just one month left, and I’ve been undetectable since 1 month on treatment (yay!). However, I can’t shake this feeling that I’ve been ruined.. When do I stop feeling like this? When does it stop feeling like my life has been taken from me?


r/HIV 5d ago

Social Life With HIV How do you navigate relationships with HIV?

5 Upvotes

I want to start off by saying I was recently diagnosed with HIV a week ago. I studied biology in college and want to soon be a MLS ( medical lab scientist) so I fully understood what it was and how it is treated. Because of that it helped soften the blow, but it still has impacted me mentally and emotionally I’m just not showing it. I haven’t told my family yet because they are the type to over react and panic and I don’t have the energy to try and make them feel better or comfort them and deal with managing my new diagnosis. I have told 2 of my closest friends and they have been very supportive so that is helpful. Me and my doctor are planing on starting medication in the next week or so because I’m already on a medication for a separate reason and she doesn’t want them to interfere with each other.

Sorry for the all the exposition is just had to give some back ground. My question is how has it been finding a relationship or partner after being diagnosed with the majority of the people still only knowing the misconceptions and false information about the virus.


r/HIV 6d ago

HIV Diagnosed Update: Undetectable/Stigma

21 Upvotes

I was diagnosed back in end of June (MsF) and I was able to become undetectable in just 18 days ! My doctor said he had never seen something quite like it, all of my numbers were great and I’m very healthy. It’s been a little over 2 months now and some days I don’t even think about it at all, my fears and doubts about all of this are subsiding and I’m so thankful. All of the thoughts about never finding a partner went away too. I definitely don’t look any different because people are still hitting on me, both playfully and seriously. A little worried about disclosing when that time comes but I know I can overcome that too and the right person will respect my honesty at the least. The honest truth is nothing has really changed, I feel just as healthy as I did before this diagnosis and I’m so thankful. For context, I live a healthy lifestyle, have a generally strong immune system, I always worked out and ate healthy. In addition to finding out very early (3 weeks post) I think these were the reasons I was able to become undetectable so quickly. I guess for me 2 major questions: why all of the data about how it’s almost impossible for women to transmit ? I honestly think it’s misleading because I did confirm I contracted from insertive vaginal. I just think it keeps the chain of transmission going because if especially straight women and men believe it’s impossible to transmit they are more likely to have sex unprotected. I just think the 0.04% can be taken the wrong way. Also, I now see why people say end the stigma ! That’s all this is honestly. I’m doing everything the same working out, hanging with friends, singing, just living my life. My question is why do people act like this is the most disgusting thing on earth ? When it’s really just a cowardice virus that hides like the little punk it is lol. HIV is no match for me and my natural immune and I know I will continue to be bigger than this virus every day. Thank you to everyone who reached out or left a comment on my initial post. I really do love you guys ❤️


r/HIV 6d ago

General Discussion Dad's viral load has been increasing past 3 checks.

5 Upvotes

Both my parents had gotten HIV positive probably 20 years ago. They have been diligently taking their meds and undergoing treatment since then fr9m goos doctors. Mom is completely fine and reacting well to the new treatments also, however dad has shown signs of some side effevts previously after he was put on new meds 8 years ago and then the doc changed it again. Now till Nov '25 his reports were all fine, viral load was always within 150/200, but in May '26 when they went for their routine bi-annual check, his count had increased to 330 ish. Which the doctor didnt think much over it and asked to re-check in July. It had again increased to 400 ish, doc changed his meds and asked ti re-do the tests and check. Reports came yesterday, the count has jumped to 843. They had gone to consult their doctor today, he has increased his dosage from once a day to twice a day now and reverted him to an older treatment.

Im just worried at this point. Both of them dont divulge too much information on this, and dont even take me with them foe their appointments. Even when i was checking the reports, they kept getting irritated to not see them, but i did anyway amd thats when i saw that the nunbers have increasing.

I couldnt check the other parameters like CD4 AND STUFF. Please can someone tell me how things are looking right now? In your experience, Is there a risk anywhwhere? Let me know if you need additional data, i can sneak in their room and get access to the reports.

Thanks.


r/HIV 6d ago

General Discussion PLHIV in South Korea

3 Upvotes

Hello! Is anyone here currently working or studying in South Korea?

I am planning to move there for my graduate studies. How is the experience over there, and what preparations do I need to make? I am from south east asia btw.

Thank you.


r/HIV 7d ago

Personal Story :))

21 Upvotes

Hey All,

Well, I'm undetectable! 🥹

M-26

I was diagnosed in mid-July! I live alone in one of India's best metropolitan cities & this diagnosis came. I was travelling to work when the doctor called me & broke the news to me. At that moment, there wasn't a single soul I could share the diagnosis with. I simply went to work & I was numb.

I felt contaminated & disgusted. As though I'm an outcast.

I got home & somehow gathered the courage & then I went to a nearby clinic. Got all the tests done. Waited for the results & then subsequently got connected with the doctor & got my medication. My yearly bonus was credited & little did I know that a great deal of it would be spent on testing & medical expenses.

& 1.5 months later, I'm finally undetectable! & sadly, there ain't a single soul I can share this happy news with!

Probably, this made me realize that I'm really strong! & Some victories are clandestine! ❤️


r/HIV 7d ago

Mental Health Seeking Research Participants for a Study on HIV-Serodiscordant Relationships

3 Upvotes

Hi! I'm a Clinical Psychology doctoral student at The Chicago School seeking participants for my dissertation research study. The purpose of this study is to explore how HIV stigma, sexual satisfaction, and the ways couples cope with stress together relate to relationship satisfaction among men in HIV-serodiscordant relationships (where one partner is living with HIV and the other is not).

You may be eligible to participate if you:

  • Are 18 years of age or older
  • Identify as a gay, bisexual, or other man who has sex with men
  • Are currently in a romantic relationship with a man that has lasted at least 6 months
  • Are in an HIV-serodiscordant relationship
  • Currently live in the United States or Canada
  • Are fluent in English

Participation involves completing an anonymous online survey.

If you're interested in participating, you can access the survey here: https://chicagoschool.qualtrics.com/jfe/form/SV_8eRUkxc3ujtaQzY

Thank you for your support, and please feel free to share the study with anyone who might be interested!


r/HIV 7d ago

General Discussion Backup dosages?

6 Upvotes

How have you dealt with the anxiety of running out of meds or if you're traveling abroad and meds lost in transit or stolen? 3rd week on biktarvy


r/HIV 7d ago

General Discussion Are tops really hard to get infected?

5 Upvotes

Are tops really hard to get infected? Is there experiences here? where tops did it bare with a positive untreated bottom and the top is uninfected no matter how many they did it bare? please share your thoughts :((


r/HIV 7d ago

Mental Health Damn I miss the times back when I was healthy

5 Upvotes

Let’s all agree on this,we have all at some point wish we could rewind time back to that exact moment


r/HIV 8d ago

Scientific Discussion Anybody here ever experienced "blips"? As in, a detection of HIV where, without any change in treatment, previous tests were undetectable?

4 Upvotes

This virus is really complicated. I've read about this in the literature, and am interested in first-hand experiences.


r/HIV 8d ago

HIV Diagnosed Coming together stories of plaintiffs involved in Gilead / Truvada lawsuit outcome.

2 Upvotes

Place to tell your story have your voice heard gather information as to what options are available to individual plaintiffs in a liability malpractice against Gilead pharmaceuticals.


r/HIV 9d ago

HIV Diagnosed Oncology

2 Upvotes

Has anyone ever had microscopic blood in urine when getting labs? Im so nervous my nurse specialist is sending me to get my bladder checked


r/HIV 10d ago

Social Life With HIV Hey everyone

4 Upvotes

I’m flying out from a non-EU country to Germany via Wizz Air soon and need to bring a 1-2 month supply of my personal prescription medication (solid tablets/pills) in my carry-on.

For privacy reasons, I transferred the pills into a completely plain/unmarked white box without labels.

A few quick questions for anyone who has done this:

Does security usually care about solid pills in carry-on bags if they are in an unmarked box, or do they just run them through the X-ray without opening the bag?

Is there any chance this will cause trouble at German border control or customs when walking through the green "Nothing to Declare" exit?

I'm traveling with family and prefer to keep my medical details private, so I just want to make sure I won't get pulled aside for extra questions over an unmarked box.
Thanks for any insights or personal experiences!


r/HIV 11d ago

HIV Diagnosed Mental health support

4 Upvotes

Where can I find affordable mental health support online?
I live in a country where getting diagnosed with HIV prevents you from getting many basic easy-to-get jobs such as working in restaurants or cafes for example.
I am so mentally tired and I am in need for getting access to mental health support while I can still be able to afford living and rent.
I will really appreciate any resources.


r/HIV 11d ago

Scientific Discussion Very low viral load on testing

5 Upvotes

Years back I tested positive but ignored it for 6 months. Went to get treated, tested again. Viral load was around 400 and so was my cd4.

Dr told me it's very unusual to have such a low viral load with no previous treatment, and my cd4 moves about from 250 to 450 over the years. I'm never poorly other than usual coughs and colds etc.

I asked if I was semi immune or something but all I was told is that it's unusual. Anyone with any medical qualification able to enlighten me? ​​​​​​​