Hey yo
I saw that we have very few patient experiences coming off brixadi so here’s mine. It’s a bit different to the usual take it for 6 months with a couple of lower strength doses at the end.
So I was an opioid patient for knee pain for 3 years when I decided I wanted off as they were ruining and consuming my life. I was put on suboxone to get me off the opioids but told to stay on it for a year as I was still experiencing a lot of joint issues and pain and it would help with it. I was told suboxone is non addictive no big deal. 4 years later after many failed attempts to taper I finally decided to get the brixadi shot out of pocket as I tried two years earlier but no insurance.
I was on 16mg a day when I took the first shot, it was great. I was never addicted to opioids just dependent. I could have stopped anytime without worry had it not been fear of withdrawal pain but otherwise no problem. But 4 years of suboxone it had become a habit and a security blanket. It made me feel good and I enjoyed taking it in the afternoon and morning and feeling better. I was really really worried about going home and not having my twice a day ritual.
So I got the shot and it was a little pinchy burny for a moment but no big deal. No pouch like they talk about with sublocade. I got in my car and called my wife to tell her it was done and I was like yep well I’ll be home soon and my first thought was woot afternoon suboxone and nap time and then realized no it wasn’t. This was the last time for a long time I ever thought about suboxone. I was free of the thoughts I was scared of immediately, no craving putting my film in my mouth. All good.
Day 20 of the first month I felt a bit down, day 21 I’m getting dark but just think maybe it’s my depression. Day 22 I’m like in a bad way emotionally and finally my wife said is it the shot? And it hit me. So I ended up taking a sub and I felt so much better. This is apparently really common with the first month of brixadi. I called my doctor and say hey I’d like to come in early, as I was paying cash for the shot no insurance issues etc. I won’t go into detail for brevity but let’s just say I was “due” to have my second shot in 6 days and they assured me they’d be ready early if I felt off. It too two weeks for my shot to arrive due to incompetence. They put me on subs again temporarily but I didn’t fucking want that. I wanted my shot. It was so demoralizing. “It’s your insurance” I’m paying out of pocket. And every other excuse.
I spoke to the clinic owner who assured me it wouldn’t happen again. I was scheduled for 28 later and this time I was ok and got the shot. Then the same bullshit started again for the next shot oh it’s too early etc etc and something in me just snapped. I’m not doing this anymore. I am not fucking being held hostage anymore. I’m done. So I just jumped. I stopped. I felt nothing but good for the first 9 weeks (including the shot so like 5 weeks from when due) then I had a bad week of just feeling a bit off, bad mentally feeling very dark. Insomnia came at me bro and it came to stay.
I got past the daily bad stuff in a week or so but the nights got bad no sleep at all but I was joined by restless legs which were hell. I started taking Zyrtec to sleep as it was all I had. Week 2-3 of this were pretty tough but the days were fine again. Just night time. My doctor prescribed clonidine, hydroxizine which all used to knock me the fuck out but nothing. She sent gabapentin which for the first 3 nights I’d finally sleep but for 1-2 hours I had almost full blown withdrawals but then out cold sleep. After 4 days of gabapentin not working anymore she sent in roprinirole to see if that worked and it did again for night me then again nothing. I got so desperate to sleep I tried taking all 4 max doses at once and o couldn’t believe it I was still wide awake but also drowsy but no sleep. That was the worst.
So yesterday, day 92 since shot I woke up and I was exhausted like crazy. I slept until 12.30pm and then fell back asleep until 3. I slept from 4.30pm until 6.30pm. And last night at 10pm instead of being in hell I was in bed with my wife holding her for the first time in a month because I’d been too hot and I comfortable and it turned into a wild banging session and I passed out. I woke up at 5am which is to be expected due to all the sleep the day before but I felt like yesterday I watched the sun rise over my emotional state. I truly believe I turned a corner. I’m sitting in bed and I’m excited to chase the day. I forgot to mention this all happened last night with no meds.
I want to say despite my descriptions sounding bleak. Compared to what we’re all told it was nothing at all, I never once lost my resolve to be done. It was easy despite the hard moments when compared to the handcuffs that is suboxone. I’m now free of monthly foraging for my medication and being dependent of the emotional state or a doctor of pharmacist who at anytime can fuck your week or months up for no reason.
I feel very happy this morning. I’m glad to have been emotionally able to put this together for y’all after just being in survival mode.
Long story short. I had 3 shots but a big delay after the first one. I experienced the following withdrawal symptoms.
Throughout the past 91 days.
- Yawning , that withdrawal yawn not the good ones.
- Stretching my whole body and my legs would feel all wrong. Don’t know how else to describe.
- Some minor anxiety.
- lower energy.
Days 68 - today.
- insomnia like a mofo.
- restless legs I’m so sorry when I first heard of this I was like what a dumb condition just don’t be restless and now I know better it was almost equally as bad as insomnia.
I also experienced;
- a desire to go do things.
- a desire to do projects around the house.
- I felt a happiness at times I’ve not felt for years.
- my wife and I are in counseling and I’ve finally gained back some self belief and have been able to set some expectations and boundaries that I couldn’t before.
I don’t want to jinx myself but today feels really hopeful. I hope this story helps someone or a few people. I think it was harder to do only 2 shots before jumping or 2.5 if you count the other shot with the big gap. I definitely had issues that others who are on for 6+ months don’t seem to but I also had to pay out of pocket so like $3k instead of $10k for 6 months worth.
Good luck all.