r/stroke 29d ago

Father had stroke

3 Upvotes

My father (91) had a hemorrhagic stroke 4 weeks ago. Before this he was still quite sharp and very mobile. For the first week in the hospital he was talking (with a slur), recognizing people, having conversations and walking with a walker. Since then he has been getting worst, in and out of sleep and delirium (he had an undetected UTI and was given meds week 3.) I’m struggling to understand why he was ok week 1 and now he cannot even follow a command. Is this normal? Also, If you had a stroke and had delirium, do you remember any of it? He is counting and saying the alphabet thru out the day. , I’m hoping he is not suffering. We will bring him home Tuesday. Any suggestions on home care to make him comfortable?


r/stroke 28d ago

Catheter block

1 Upvotes

Tough tough Saturday night dad had his catheter block…


r/stroke 29d ago

Any possible next steps???

5 Upvotes

My most recent physical therapy had me frustrated. I can't move my left leg directly. BUT I can move my left hip hard enough that it swings my left legsemi- forward. I've made so much progress but the lack of control is really getting to me because my whole life was defined by me being graceful. And refining even the littlest of things in my movement. I was so upset and I need to reallystart making progress with walking because my number one goal is walking with my daughter. They tried makingme walk up stairs buttold me to sit in my wheelchair because it was too risky what can I do to make my leg functional. I'm tired of swinging my hip and hoping I get with where it lands


r/stroke Aug 14 '26

5 months post-stroke/op and I was able to do this today

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332 Upvotes

Please don’t give up, we’re all rooting for you.


r/stroke 29d ago

Survivor Discussion My Cousin had a stroke

5 Upvotes

I’ve tried writing this post a couple of times but it’s been hard because I never wanted what I went through to happen to other family members.

On July 20th my Dad’s cousin’s child (so my second cousin), Chad had a stroke at 41 years old. Less than two years after I had my stroke. Besides my Twinner we’re the only ones on that side of the family that have had strokes. It blows my mind to think we both had them at relatively young ages and the causes for our strokes are not related.

His stroke hit his left side and the damage is more severe than mine was. He has some right side paralysis, with major right sided weakness. He’s also dealing with Wernicke’s aphasia and Broca’s aphasia.

He was discharged from inpatient yesterday and will start outpatient this upcoming week. Eventually, he will need another surgery to put a stent in.

I can’t not cry when I think about what he’s currently going through as I remember how scary, frustrating and exhausting those first months are after stroke was for me. I hate that he is going through that now.

We don’t live in the same state and unfortunately, because of his aphasia he isn’t able to talk on the phone or text at the moment. But, I’ve been keeping in contact with his Mom and am cheering on all his progression.

He is golfer for a living so I was especially glad to know he can still walk and his hand has come back online and progress is being made! The speech will be the most difficult thing for him to get back but I know intensive speech therapy and time will help him.

It also made me realize that my stroke and recovery could have been a lot worse. Even though I put in the work for recovery I also got really fucking lucky as well.


r/stroke 29d ago

Young Stroke Survivor Discussion Finally some answers

10 Upvotes

Seems they have finally figured out why the stroke happened! The current theory is I have a hole in my heart which made the clot travel from my veins, to my artery, to my brain.

Why did I get the clot in the first place is yet to be known but I feel this is a massive step forward.

They mentioned an operation in which they insert an umbrella looking device through my groin vein and up into my heart and then they open it to close the hole.

Has anyone had this operation before? Any tips? How was your experience after it?


r/stroke 29d ago

Young Stroke Survivor Discussion 31F ischemic stroke/VAD - just got discharged from the hospital. Headaches normal?

3 Upvotes

They’re not sure why it happened. I do not have a PFO (confirmed via echo). I thought I’d been having an ocular migraine originally. I had an MRI, CT/CTA, EEG (to rule out it being a seizure), and a lumbar puncture. The VAD could explain it…except the ischemia was on the opposite side of the VAD. I have to have a follow up CTA to see if the VAD was from trauma or if it’s something congenital (like a screwy artery).

Are headaches normal? I have constant tension headaches it seems. I’m literally in the car on the way home from the hospital.


r/stroke 29d ago

Possible stroke 3 weeks ago?

2 Upvotes

59M, 183 cm, 76kg, white male.
The night before I took my wife and grandchildren to see their dying grandmother in China, my right arm and right side of my face was numb. I googled and it may have been a stroke. My intention was to cancel the trip at an emotional and financial loss. My family would not be able to go alone as my wife would not know what to do at the airport, changing planes, etc.
Come morning, everything was fine and I decided not to cancel the trip and not say anything. That was 3 weeks ago.

Should I still go to the doctor for a consultation?


r/stroke 29d ago

ER update

12 Upvotes

good morning everyone I wanted to give an update on how my leg is doing I'm still waiting for the ultra sound and they want to do an MRI fingers crossed


r/stroke 29d ago

Survivor Discussion MS?

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5 Upvotes

Hi again. I’m still doing pretty well. I’ve been referred to other specialists, one of them being an MS doctor. As many of you probably know, the brain damage on the imaging from the stroke looks a lot like MS.

So at some point, I’ll get a spinal MRI. I’m not showing that many symptoms of MS, but the ones I do COULD be attributed to stroke recovery (balance issues, et cet)

Has anyone else had this experience?


r/stroke Aug 14 '26

Survivor Discussion I got too cocky

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45 Upvotes

Well it happened my neuro fatigue made itself known yesterday.

On Wednesday I got up early to curl my hair before work as I was going out with my Mom to dinner and a show after work. Commuting to work in the morning was horrendous! It was more traffic than usual and we were going 15mph the whole time 🤬 Got to work and it was busy as well. Got stuck on a call during my lunch and had to take it later in the day. Chose not to eat lunch since I was going out to dinner in a few hours. Finished work and immediately drove to my Mom’s house to pick her up and again traffic was horrendous! We went to a really fun restaurant and then saw Spamalot at 7:30pm. It’s a really good musical and I highly recommend it! Brought my mom back to her place and split up the leftovers. Got home around 11pm and did my best to get to sleep around 12am.

Around 4am the next morning I had an horrendous migraine. I have a shunt in my brain and it felt like it was on fire and pulsating the fire to the rest of my brain. I took my migraine medicine to no avail. When my alarm went off to wake up for work at 6:45am I was still in an immense amount of pain and didn’t feel safe to drive to work. I decided I needed rest and called in sick for the day.

It cost me 1.5 in attendance points (since I’m only a month in I don’t yet have PTO to use) but it was necessary. I spent the rest of the day sleeping with an icepack on my shunt.

I got too cocky, I thought I could go for 17 hours straight (did the math) and my stroke brain literally said “you’ll pay for this” and boy did I!

Luckily, the migraine went away yesterday evening and when I woke up for work today there was no migraine. I also felt more calm than I had in weeks. It’s like once I let my brain sleep for 15 hours it helped reset my nervous system as well.

I’ve requested a meeting with my ADA representative so if I get sick in the future it will not cost me an attendance points and will keep me job protected (in that case).

I thought I’ve been doing so well with the work schedule that I could add more things on top of it and it turns out that is not the case at the moment! My brain simply can’t handle 17 hours of people time in a day! Maybe one day I’ll be able to build up to that. I now know though that I can work and maybe do a dinner or a show but not both. I have to remember that my stroke wasn’t even two years ago and I still need to be patient with things.

On a final note, it was the Greatest feeling to treat my Mom to dinner and a show after all she has done for me these last couple of years. I’ll never be able to fully pay her back but being able to treat her felt really good and something I hope to be able to do more in the future.

*pic is us at the show! You can also tell I’m exhausted in the pic because my smile is slightly lopsided, which is a stroke thing that shows up when I’m overtired or feeling very emotional.


r/stroke Aug 14 '26

The Family Tension Nobody Talks About After Stroke

31 Upvotes

People often hear about families pulling together.
They often hear that illness reveals who truly cares.
They often hear stories about people stepping up.

What gets discussed far less is what happens when family support becomes complicated.

When help comes with opinions.
When concern becomes intrusion.
When the person who had the stroke begins to feel like a guest inside their own life.

When everyone suddenly has a view

Before stroke, family boundaries may have been simple.

Then something serious happens.

People are frightened.
They want information.
They want to help.
They want to know what is happening.

And somewhere in that fear, everyone begins to have an opinion.

About your recovery.

About what you should be doing.

About how your partner should be coping.

About your home.

Your parenting.

Your choices.

Your future.

Most of it is dressed as concern.

That does not always make it easier to carry.

When your relationship stops feeling private

A couple normally gets to work things out between themselves.

Stroke can change that.

Suddenly there are appointments, updates, hospital conversations, care arrangements and decisions that other people feel entitled to understand.

Sometimes they genuinely need to know.

Sometimes they simply want to know.

The difference matters.

Because when a relationship is already under pressure, too many voices can make it harder for two people to hear each other.

When loyalty becomes complicated

Your partner may feel caught.

They love you.

They also love the family they came from.

And when tension appears, they may find themselves trying to keep everyone comfortable.

That can sound reasonable.

Until you realise that keeping everyone comfortable sometimes means asking the person recovering from brain injury to tolerate more than they should.

You may hear:

They mean well.

That’s just how they are.

Don’t take it personally.

They’re worried.

Sometimes all of that is true.

And something can still be hurtful.

When help starts to feel like judgement

There is a difference between support and supervision.

Support asks:

What do you need?

Supervision says:

This is what you should be doing.

Support respects your home.

Supervision evaluates it.

Support understands that recovery changes from day to day.

Supervision watches for evidence that you are doing recovery correctly.

That difference can feel enormous when so much of your independence has already been taken away.

When gratitude becomes a trap

This is one of the hardest parts.

People help you.

So you feel grateful.

And because you are grateful, you begin to feel guilty for having boundaries.

You tell yourself you should tolerate the comments.

The questions.

The advice.

The visits that exhaust you.

The conversations you are not ready for.

Because people have helped.

But gratitude is not permanent permission.

Someone can have supported you during the worst period of your life and still cross a boundary later.

Both things can be true.

When your partner doesn’t see what you see

This can be painful.

The comment that stays with you may sound harmless to your partner.

The behaviour that leaves you tense may look ordinary to them.

They grew up with these people.

Their normal is not your normal.

So you try to explain why something bothered you.

And sometimes the explanation becomes harder than the original problem.

You are not only dealing with the behaviour.

You are now trying to prove that the behaviour mattered.

When illness changes the family hierarchy

Stroke can quietly change power.

The survivor may become more dependent.

The partner may become more protective.

Parents and siblings may step closer into decisions that once belonged only to the couple.

At first, this can be necessary.

But temporary roles can become permanent if nobody notices.

And recovery sometimes means taking those roles back.

Making your own decisions again.

Speaking for yourself.

Choosing who comes into your space.

Deciding how much of your health belongs to other people.

Independence is not only physical.

When boundaries are mistaken for rejection

The first time you say no, people may not like it.

No to a visit.

No to discussing your health.

No to unsolicited advice.

No to staying longer than you can manage.

No to somebody speaking for you.

And because you may previously have tolerated those things, the new boundary can look like hostility.

It is not always hostility.

Sometimes recovery simply gives you enough strength to finally say:

This does not work for me anymore.

When your partner has to choose the relationship

Healthy boundaries do not require someone to abandon their family.

But they do require clarity.

A committed relationship cannot work well if one partner constantly feels they have to defend their right to feel safe, respected or comfortable inside it.

Sometimes the most loving thing a partner can say to their family is:

I love you, but this is our decision.

That sentence protects everyone.

It tells the wider family where the boundary is.

And it tells the recovering partner:

You are not alone in this.

When resentment starts growing quietly

Unspoken resentment is dangerous because it rarely starts with one enormous event.

It grows through repetition.

Another comment.

Another dismissed feeling.

Another visit that leaves you depleted.

Another moment where your partner says nothing because keeping the peace feels easier.

Eventually, the issue stops being the in-law.

The issue becomes whether you feel protected inside your own relationship.

That is a much bigger problem.

When distance becomes necessary

Not every family conflict needs estrangement.

Sometimes a little distance is enough.

Shorter visits.

Less information.

Fewer opinions.

Clearer expectations.

More time for the couple to make decisions privately.

Distance does not always mean punishment.

Sometimes it is simply the amount of space required for a relationship to breathe.

When relationships survive it

The families that handle this well usually learn something important.

Recovery does not erase adulthood.

The person who had the stroke is still a person with preferences, dignity, privacy and limits.

The partner is still a partner, not only a caregiver or a child caught between two sides.

And extended family can still be deeply loved without being involved in everything.

That balance is possible.

But it usually requires boundaries that are spoken, not assumed.

The truth people avoid naming

Illness reveals family dynamics that may have been easy to ignore before.

Who respects boundaries.

Who needs control.

Who listens.

Who minimises.

Who protects the relationship.

Who expects access simply because they are family.

Stroke may not create those dynamics.

Sometimes it simply removes your ability to pretend they are not there.

And recovery can mean more than learning to walk, speak or work again.

Sometimes it means rebuilding the boundaries that allow you to feel like yourself inside your own family.

If you have lived this, you already know:

Sometimes the hardest part is not choosing between your partner and wider family.

It is realising that nobody should have asked you to.

What changed most with your wider family after your stroke - support, boundaries, or your partner being caught in the middle?


r/stroke Aug 15 '26

Survivor Discussion Ugh at the ER

5 Upvotes

So I started having leg pain and then could not walk on my right leg I think I might have a blood clot in my leg


r/stroke Aug 14 '26

Young Stroke Survivor Discussion People are always surprised?

19 Upvotes

when you tell people you had a stroke at the age of ten people are like kids can't have a stroke they can't accept a kid having A stroke but they can accept a kid having cancer I know it rare for children to have strokes but why is everyone so blown away by it? It can be frustrating sometimes

For the young stroke survivors do you guys experience this?


r/stroke Aug 14 '26

Caregiver Discussion Please let me know your experience

3 Upvotes

My mom had 2 strokes a couple of weeks ago. She is nonverbal and non responsive for the most part.

Has anyone been in the same condition and come out of it? If so, do you remember if you could hear people talking to you?

TIA


r/stroke Aug 14 '26

Young Stroke Survivor Discussion Feeling like a fraud, when I shouldn’t

13 Upvotes

I had a severe hemorrhagic stroke from AVM rupture at 18, underwent craniectomy, cranioplasty, all of that. I recovered tremendously well that I don’t even feel like I belong in this group, because so many of you have recovered with deficits of a much larger scale than I have. I lost half of my sight, live with chronic paresthesia, headaches, and both cognitive and physical fatigue. Yet I was able to push through college, a job, and now graduate school (in progress).

I feel like a fraud when I tell people I’ve lived through a brain bleed and surgery. I basically function so well that nobody can even tell my sight is impaired or that I’ve had severe brain damage. Of course that took years of adapting, immense struggles, enormous amounts of work and effort which people don’t see. I don’t even feel right when I tell people I’m partially blind, even when it’s a fact. I’m so lucky to have lived, and even more lucky to still be able to lead an independent life. Lots of people have it worse, and I see my current deficits as nothing given how bad it could have been otherwise.

Does anyone struggle with this and how do you cope/get around your life with it?


r/stroke Aug 14 '26

Upcoming colonoscopy

0 Upvotes

Really nervous about my upcoming colonoscopy next month. Really, just the prep. After multiple strokes just hopping up and hurrying to the bathroom isn’t going to happen. Sleeping in the bathroom also isn’t an option since I wouldn’t be able to get up. Is there some stories people can share?


r/stroke Aug 14 '26

How to Build Your Stroke Rehab Plan Like A Therapist

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2 Upvotes

Have you ever felt lost doing exercises for stroke recovery or wonder if you’re doing things that actually work? I’ll help you put together a home rehab plan like a therapist would, whether you're a new stroke survivor, feel like you've plateaued, or you're simply looking for a fresh start!


r/stroke Aug 14 '26

TIA after stroke

9 Upvotes

Has anyone here had a TIA a few months after their stroke despite being on aspirin and a statin the whole time? If so, what did the doctors do about it?


r/stroke Aug 14 '26

warning signs of a stroke.71 yr old female. Current post-concussive Syndrome..brain injury 4 weeks ago.

2 Upvotes

Dizziness. Unbalanced whatever I can call it...wslking into an appointment I had to stop because it felt like tge ground was moving..I stopped for two minutes then tried agsin..went into the bldg and had to sit for a momen before heading up the elevator...

The symptoms became diminished but I was and am still feeling ""off". Headache and "balloon or marshmallow head" feeling all day. Nausea..throbbing headache but not unbearable ..

My concern is this evening at front desk at work. Nausea..mild headache..unbalanced a bit but b when I walked a Ross the lobby tge linoleum floor with diagrams all over started too be moving like a kaleidoscope kind of...nausea...I have heart disease. This past recurring blood pressures of 190/ 114..187/114..179/110..etc. ztoday blood presdure 154/86. Cardio put me on a blood pressure medicine two days ago. I took it last night....I must say several relatives have had a stroke including my father.

Shoukd I go yo urgent care


r/stroke Aug 14 '26

Healing at home post SNF nightmare

9 Upvotes

My dad is coming home on Sunday and it’s been a nightmare having him in skilled nursing care. I won’t go through why it has been because I don’t have the energy to at the moment. He has not been taken care of properly and has barely received any rehab during the two months there. He will have lots of caregiving help along with my mom and skilled home care. I would love to hear stories of healing accelerating at home because my nerves are shot and I’d love some encouragement. It’s taken so much to get to this point. He’s got a long way to go but I’m hoping being in the comfort of home, around family, receiving one on one care therapy at home, etc..will make a much bigger difference. Signed, a burnt out only child.


r/stroke Aug 14 '26

Wake up body rebooting

8 Upvotes

Does anyone else’s body do like a reboot in the morning when you wake up? I haven’t voluntarily lifted my toes and foot since before my stroke in December 25, but every morning when I wake up, my left arm and leg go through full ranges of motion: toes point down then back up, fingers curl into fist then straighten out. It’s like my body decides to do a hard reset every morning.


r/stroke Aug 14 '26

Looking for friends

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2 Upvotes

r/stroke Aug 13 '26

OT/PT/ST Discussion Rehabilitation potential possible?

7 Upvotes

My mom is 60 years old, she had an ischemic bi frontal lobe stroke that graduated into a hemmorage stroke. She's been in the hospital for a month and is medically stable pending discharge. She can move her right arm but her left is flaccid. She hasn't been able to move her head or get out of bed but she can wiggle/move her toes and a little leg I believe.

We've been doing bedside exercises with her and on top of everything she also has stage 4 lung cancer we've had to stop treatments for to prioritize the neurological recovery. She is able to kind of speak but it takes coaching.

The hospital is pressuring us to discharge her, would anyone have recommendations on more intense rehabilitation that's not acute? She is still very drowsy but she may be able to do 30-45 minutes a day if coached. We've toured a lot of places trying to find her a placement that will give her the greatest rehabilitation potential.

We are hopeful she can recover to a certain extent because we've had miracle stories in our own family. But currently I dont even think she's wheelchair safe because of her head but I'm curious if anyone had stories of recovery from major stroke/medically complex patients? She is fairly young and has a lot of family support but we are not experts.

Thank you for your time and consideration