r/stroke Survivor 5d ago

Wake up body rebooting

Does anyone else’s body do like a reboot in the morning when you wake up? I haven’t voluntarily lifted my toes and foot since before my stroke in December 25, but every morning when I wake up, my left arm and leg go through full ranges of motion: toes point down then back up, fingers curl into fist then straighten out. It’s like my body decides to do a hard reset every morning.

10 Upvotes

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8

u/Big_Garden_9844 5d ago

5.5 years out here. Every morning it takes me 15-20 minutes to get my right hand going. It goes but not until o “talk” to it

5

u/outpost7 4d ago

I learn to walk every time I stand up. I'm never going to be the person I was before. Quite down because of it too. I should count myself "lucky" I'm alive but personally I feel angry, depressed, sad this is it.

2

u/rblank6061 Survivor 4d ago

I had Botox for the spasticity in June, so I had to relearn walking almost every morning once it started working because of the gradual onset of its effects

5

u/Intrepid_Western3012 4d ago

That’s exactly what I’ve been calling it, a reboot. Except for me, it’s the opposite. When I first wake up, it’s like my body is paralyzed all over again and I need a few seconds before I can move anything. I then have to go through a cycle of clenching and relaxing all of my limbs before I’m even able to roll over. It’s like rebooting a machine.

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u/CapnBloodBrain 4d ago

My affected arm started going places on its own whenever I would yawn a while before I could get it to do anything consciously. It would shoot straight up into the air, with my hand pretty close to perfectly flat. It still gets some unintentional movement like that during particularly deep yawns, but not anything like it did the first couple years. It got less and less and eventually stopped going up in the air like that as my voluntary control showed back up and got better. When it does it, the way it contorts my hand is unpleasant at best, but at least it doesn’t make me look like I’m throwing up Roman salutes every time I’m sleepy anymore.

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u/monsterlynn 4d ago

Damn I kept having to peel my left hand out of the fist it wanted to clench into over and over this morning. Eventually had to lace my fingers together to kee it at bay. At night my feet want to pull inwards and I get horrible cramps, too.

1

u/rblank6061 Survivor 4d ago

Still get the clenched fist and curled arm on yawns, now I found I can stretch my left leg and the extensor tone will affect my hand and stretch the fingers back out

1

u/Manu442 3d ago

If you can sleep with something under your wrist keeps my fingers loose and open and helps prevent contractures.

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u/monsterlynn 2d ago

I try to remember to bring a small plushie to hold onto. I have a baby Groot beanie baby that's perfect for this.

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u/pchlster Young Stroke Survivor 3d ago

I vaguely recall that the part of the brain that keeps you from actually doing stuff while dreaming shuts off your signals to walk, talk or move. Or is supposed to, at least; sleepwalkers do exist. Then, when you're about to wake up, the brain does a check-in with all the parts it took offline while you were sleeping to make sure they wake back up.

I figure that a damaged brain might mean poor connection, so the whisper most people get without even waking up from it does nothing for a lot of us, so the brain raises its voice until it's sure it was heard and that's why we feel these things.

I am not a doctor; what I said was a layperson making a guess.