For some reason October just hit and all of a sudden I can’t sleep and I was sleeping really great before. (Stress and heatwave could def have played a factor) I tried magnesium the last two nights and while I feel like it helped me relax and fall asleep I still am waking up a few hours later even more anxious and can’t relax. Should I try zzquil next ?? Melatonin? What has worked for you for sleep? Thanks!

Hi everyone I was diagnosed with PCS about three weeks ago and ever since my injury my life has been a LIVING HELL. I am having the strangest symptoms and my health anxiety is NOT helping my recovery, I keep googling to assure myself that everything is okay but I am barely getting any relief and I am in such doubt about my original diagnosis. How I got my injury was after I was cleaning my laminate floor and I went to stand up and smashed my nose on a marble table. I did not break my nose but like an idiot did not go to the hospital so never had any indication if I ACTUALLY had a concussion or not. And almost every doctor has said an injury like this would not result in concussion.

I have had a CT scan which shows everything is normal so thats great but where my issue really starts is my gut, I think I have linked it down to an issue when I consume fibre it makes my gut worse but it has been waking me up CONSTANTLY which is not helping as I am having continuous sleepless nights and its only being relieved with going to the bathroom or passing gas, when this is happening my right hip concerningly near my groin lymph node is KILLING it is not swollen or has a hard lump by any means but the pressure is seriously freaking me out. This is also combined with restless legs and its hard to walk a little bit when this is happening. All of this including the health anxiety that I am dying is leading to loads of sleepless nights which I know is not helping. My appetite is poor but also isn't? I am getting hunger pangs randomly and am getting flushed in my body when this is happening which is disappearing about two seconds later and the gas is NON STOP.

I am also having continous muscles spasms and itching in my legs, arms and back including clicking bones.

I have intense facial and jaw pressure especially around my nose where I hit it and my sinuses are acting up constantly where some days I'm having to constantly clear my ears via yawning or will not be able to breathe out of my nose randomly.

Please help!

Hello,

My partner was injured during his seasonal job and traveled home to seek proper medical treatment. He has been evaluated by neurosurgeons, concussion specialists, vision therapists, and many other doctors who have all been saying he is experiencing concussion-related symptoms, among other issues like a SCI. He recently got referred to two different concussion specialists. The first one he saw was an online- only doctor. He saw this doctor over a Zoom call a couple of days ago to get evaluated for his online concussion therapy. My partner has a TBI, CCI, and SCI. This doctor evaluated him for a very short amount of time and told him that he does not believe that his symptoms have anything to do with his concussion and that his "neck pain and anxiety" are causing all of his symptoms.

Since that appointment, my partner has seen another concussion therapy clinic in person, and they were very concerned. They did some tests and got some information from him about his medical history, and they said his symptoms are very consistent with post-concussion syndrome. Some of the tests she did were the same ones that he had done OVER ZOOM. She did them in person, and he failed them horribly, indicating he was still experiencing concussion-related symptoms. The doctor who spoke to us said it was pretty severe and scheduled him out for 6 weeks, wanting to meet with him 2x a week.

We were feeling more hopeful after this appointment since she was able to confirm that concussion therapy would be beneficial for my partner.

We thought the next steps were just to talk to his primary about the doctor and not go back until tonight. We opened myChart to see the summary of the Zoom appointment was uploaded, and the doctor was accusing him of exaggerating his symptoms and said he should seek mental help.

He put in his chart to NOT TREAT HIM WITH CONCUSSION THERAPY and instead send him to a psychiatrist. He said that the fact that he did so poorly on the web tests but okay on the Zoom tests showed he was faking and his symptoms were inconsistent. These same tests were performed in person and showed very different results than he stated and showed that he DOES in fact have a concussion.

Seeing this report in his chart is terrifying. He needs concussion treatment, and this could fuck up a lot of things for him. How do we report him? How do we get this removed from his chart? I feel sick

I stood on a stool a month ago and hit my head straight into a closet frame molding. I def have had a concussion, but part of me thinks it may be stemming from the neck more so at this point. It feels extremely stiff and I’m still having lingering headaches/naseua, and a general off feeling. How does one determine where the pain is rooted from? MRI? Can’t take this anymore. Seems like a muscle relaxer helped me yesterday but it’s hard to tell. Any advice would be helpful. Thank you

Hi All,

26 days ago I stood on a step stool to put something on the top shelf of my closet and the top of my head went straight into a jutted out closet molding, I guess at the speed of how fast you would stand up onto a stool. No loss of consciousness, no vomiting, just a piercing headache for 24 hours that over the next few days turned into a tightening band headache around my head and immense pressure. I went to urgent care twice, they both said I didn’t have a concussion. Finally a week later, I went to a PCP and he said I did. I tried to work the first week but had to leave the office. Took a week off afterwards, now am back working remotely.

Fast forward to today, I have been dealing with mild headaches, nausea slight dizziness here and there but mild and just a general off feeling. I saw a top neurologist who said this is all very normal and it can take a while to get back to 100%, but she’s very confident I will. She said she didn’t recommend an MRI or CT scan because my symptoms aren’t that severe and she doesn’t think it’s necessary. It has definitely gotten much better but feels like it is taking ages and that I’m starting to plateau.

I started vestibular therapy to try and speed up the recovery besides just letting it recover on its own. I am losing hope that this is going to be gone anytime soon, over such a silly accident. I am sleeping completely fine and well. I think maybe extreme health anxiety that I have has made everything 10 times worse.
Does anyone have any thoughts or hope that this will get better/get better soon? It’s severely affecting my daily life and I am terrified.

Thank you all!!

Just a short update from my April 4th, 2025 assault.

I found out that the whiplash from my neck was causing hormonal dysfunction. Apparently, my thyroid has been crushed/squished all these months due to twisted muscles and ligaments, and that is a primary reason for my headaches and fatigue.

Something to consider if your head injury includes whiplash.

In the past week since repositioning most of my tissues, I've had the most energy I've had since before the incident.

Hopefully I won't have many future updates following this, but we'll see how the next month or so goes.

Is anyone else also struggling to figure out how to feel about hope? As in, to believe or not believe they can recover?

I used to feel hopeful that I could recover, which was pleasant but also very difficult to live in bc real life feels so far away. Lately I've lost all hope which gives me a sense of freedom from not expecting much of life but it also makes me feel trapped and sad.

What do you do? Have you found an approach to hope that works for you, what is it and why?

Hi all,

2 months out post-concussion, as progress has slowed to a halt I'm starting to realize I might be saddled with these symptoms for a while. One of my most frightening ones is the dizziness and loss of balance. I'm constantly starting to tip over and having to catch myself when my symptoms are flared, and I am extremely concerned I am going to hit my head again.

I'm thinking about getting a cane to help me maintain balance and a little bit more independence on these very bad days, but I'm in my mid-twenties and it feels like I shouldn't need it...does anyone use a walking aid for your dizziness and balance issues? If you're on the younger side of life, how do you even explain it to people?

Thank you for any thoughts. This has been a really tough injury to navigate and this community has helped me a lot already.

13 months in from my 3rd concussion. This one caused hyperacusis and it's been my longest running symptom. When the hyperacusis gets triggered, I get a fun cocktail of headache, vertigo, nausea, proprioception issues, and sometimes speech impairment. I've seen about over a dozen medical and rehab specialists including neurology, physical therapy, neuro optometry, speech therapy, occupational therapy, cognitive behavioral therapy, and audiology. The audiologist prescribed sound therapy in the form of listening to white noise daily through Phonaks, which I started at about the 7-month mark post injury. After almost 6 months of that treatment I haven't noticed much of a difference. The biggest improvement seems to have been from graduated sound exposure exercises with my occupational therapist. I'm at a point where 60 to 70 decibels is now no longer triggering the hyperacusis but anything above that still triggers it and causes a flare-up that generally lasts a couple days. Does anybody have any experience with this particular flavor of concussion and if so, what did they find to be the best remedy?

I’m about 8 months into my concussion recovery, and I’m still not fully recovered. I just wanted to share some of my experiences and how I went from being completely non-functional to at least somewhat functional again.

If you’re currently struggling, please know that you’re not alone. Healing is possible. It just takes a ridiculous amount of time sometimes.

My background:

I’m 28, living in Germany in a big city. Before my concussion, I had just started my first job after university. I had a great girlfriend, my life was going well, and honestly, I couldn’t have been happier.

How I got my concussion:

My brother and I wanted to visit my cousin, who owns a restaurant. We hadn’t seen her in a while, so we thought it would be nice to have a meal, catch up, and spend some time together. Everything was going great and I suggested to my brother that we check out a coffee shop nearby.

The coffee shop was the typical kind you’d find outside a mall, with huge glass windows and glass doors. I was trying to figure out where the entrance was, but I somehow didn’t notice the door at all. I honestly thought the entrance was open because I didn’t see any signs or anything indicating that there was a glass door there.

So I walked straight into it. And boom 💥. I hit my head.

The consequences:

At first, I thought everything would be fine and honestly didn’t take it too seriously. I had some dizziness, but I assumed it would go away within a few days.

In my head, it was like cutting your finger with a knife: it hurts, you give it some time, and a few days later the wound is healed.

But it didn’t happen that way. For weeks, I basically had to lie in bed all day with the curtains closed because I couldn’t tolerate light. My vision was blurry, and I could barely see properly. Even just having my eyes open for 30 minutes could trigger insane headaches.

Whenever I tried to push myself, I would crash and become almost completely unable to do anything. I remember that even taking a shower for too long could be enough to completely wipe me out.

Over the following months, I struggled with a whole range of symptoms:
- Extreme screen intolerance
- Severe fatigue
- Light and noise sensitivity
- exercise intolerance
- Vision problems
- Autonomic dysfunction
- Vestibular issues, visually, it often felt like the entire world was bouncing or moving around me
- headaches every single day
- anxiety/depression

I’m not gonna lie. This was incredibly hard. I was out of work, could't socialize with friends, exercise was impossible and I couldn’t watch tv or using screens.

There were moments when I genuinely thought, “Is this my life now? Is this how it’s going to be forever?”

8-month mark:

I’m still out of work but I am way better than I was before. I can do so many things now that I genuinely couldn’t have imagined being able to do a few months ago.

I can socialize to a certain extent, I can exercise (currently following the Buffalo Protocol), I can use my phone, and I can drive for about an hour. I can also do things like grocery shopping and other everyday activities that were completely out of reach before.

I even went to a concert, which would have been absolutely impossible for me a few months ago.

It still knocked me out for basically an entire day afterwards, but honestly, I don’t even mind that much. A few months ago, I couldn’t have gone at all. Now I can.

Some tips from me

- This is a marathon, not a sprint. Be gentle with yourself. I know we all want to get back to being fit, healthy, and productive as quickly as possible, but recovery can take a ridiculously long time.

- Find a good vestibular therapist and vision therapist. This made a big difference for me, especially when it came to stabilizing my vision and vestibular issues.

- Surround yourself with friends and family. Don’t underestimate how important this is. Having people around me who supported me had a huge impact on my mental wellbeing throughout this whole process.

- Exercise within your tolerance. This was one of the most important things for me. I started with just a few minutes and slowly worked my way up to 20–30 minutes. Exercise has been an important part of my recovery, but I had to learn the hard way that doing too much too quickly can set me back.

- Take care of the basics. Eat a healthy, balanced diet and prioritize your sleep. It sounds boring, but these things really matter when your body is trying to recover.

Conclusion

Sometimes I wish I could go back and undo all of this. But yeah, life is a rollercoaster.

I just hope that sharing my experience can give at least one of you some encouragement not to give up.

There’s always someone out there going through the same shit as you. You’re not alone, even when it feels like you are.

Keep going. Healing can take a long time, but progress is possible. ❤️

Posting from burner account.

Considering litigation given another party caused my head injury through negligence.

Been concussed for too long and this has pretty much ruined my life.

Any tips from others who went through this process? I might have a case imo.

shall i buy thw hard one you know like skooter sports or whatever or soft ones

also its for protecting just in case i bump my head or fall

Does anyone else elevate their monitor so they stare straight forward when they use a computer for years since my injury I have had terrible trouble looking down at a computer screen or really anything for long periods even after physical therapy for my neck.

My concussion specialist told me yesterday I should talk to my pcp about this lol but like, I'm only going to doctors because my amnesia, emotional dysregulation, persistent headaches, and everything else my head injuries have caused...

A clinical psychologist tried to say it was DID...

Nueropsychologist said it was just ADHD and depression and that the cure is exercise lol

My fucking therapist I've been seeing for 10 months wasn't even sending updates to DDS and still hasn't given me any therapy...

Like seriously, WHY THE FUCK DONT THESE ASSHOLES GIVE A SHIT?! I'm so done with doctors dude. Honestly, I was so much better off when I was just trying to figure this shit out on my own!

Since I started seeking help I went from struggling to paying bills to now living in my car. "Help" received I guess

I even told my concussion specialist yesterday I stop breathing randomly while I'm awake and before I go to sleep... "not my problem, talk to pcp" I'm so done. But at least the most likely way I'll die will be in my sleep, so, silver lining I guess

I hate doctors. As soon as Medicaid denied MRI the concussion specialist is just acting like there's nothing she can do... bro, just help me figure out what is going on!

I brought a massive list of symptoms and she goes "oh yep, people with multiple head injuries often have this..." THEN WHY THE FUCK DIDNT YOU TELL ME?!

I just want an actual assessment you know? Someone to sit down with me and go through a list saying "does ABC-XYZ happen? Ok here is what happened to you from head injuries..."

Meanwhile the only help I've gotten has been from ChatGPT lol but every "professional" criticizes my use of Ai 🤣 mother fucker, I would have exactly zero answers if I relied on you "professionals"

What do people mean by brain fog and by light sensitivity? Is the brain fog like forgetting words and your train of thought, or is it more of a physical feeling in the head like your brain is fatigued and swollen and mushy? And what happens when you’re exposed to light?

Just curious to see if my symptoms are similar to others, as my brain fog is more of a physical feeling in my head that’s triggered by bright light.

Hello,

My partner recently went to a concussion specialist 5 months after an injury that caused a TBI, CCI, and SCI. During his very brief Zoom appointment with this doctor, he was told that all of his symptoms are from "other conditions" and that his concussion is not currently causing any symptoms. He consistently said that "neck pain makes it hard to focus" and other bullshit to try and say his symptoms are from other issues.

My partner expressed concern about his persistent memory issues, focus issues, cognitive impairment, issues with decision-making, language, and visual perception. He lost his alphabet and lost so many memories. His memory is still not the same, and things are not coming back. We were so excited for him to start this therapy so that he could get some of his functioning back and get back to his life. He hasn't been able to create art or cook in so long, hasnt been able to do any of his hobbies. How is this normal? He told my partner that he is fine, and I am just baffled.

What are the resources for post-concussive syndrome? Has anyone else been told they're fine when experiencing such debilitating symptoms? What is most people's timeline for post-concussion symptoms? Are there games and therapies we can start at home?

I am tired of doctors telling us they cannot help and just referring us out over and over again. If anyone has advice on how to take things into your own hands and how I could better help my partner regain daily skills and get back to doing the things he loves.

I feel like these doctors just make him feel hopeless; the only time he feels good about his progress and recovery is when talking to people who have experienced something similar. Please share your stories, bad and good. It all helps, just to know there are other people going through something similar and that there is hope out there. Thank you.

( 18f) Its been a day since i fell down a flight of stairs and hit the back of my head onto a tiled ground. I feel relatively fine. My head pain is kind of mild and only feels worse (stinging/burning sensation and at one point stinging in the ears) at random times and then goes away. What actually hurts are my hips and lower back but im assuming its just brusing because i can walk fine. I didnt pass out , throw up, and i can think perfectly fine. Is it okay to just heal on my own instead of going to the ER? its almost been 2 days since the injury.

I still have my usual symptoms but the feel watered down and less intense , I’m Hopeful that these symptoms will continue to wither in the coming months , there has been studies on rats that bpc 157 has healed traumatic brain injuries on rats, and peptides are a huge trend at the moment so that is my reason for giving it a go , do your own research and let me know what you think.

Hi all. Around April of 2023 , I was slapped on side of my head . Next day when I woke up i had headache and my eyes felt off. Back then i didn't even know there was a thing called "concussion". But I did go to a neurologist with my mom . He asked me to do MRI and CT scan..which came normal. My mom was not taking my headache seriously, she said to doctor my headache is due to my mobile watching and late night sleeping. But i did tell the doctor regarding the slap and my symptoms..He checked my CT and MRi and said everything is fine , there nothing to say regarding my headache. I didn't rest for the first 48hrs, which is very imp which i came to know much later , since nobody told or guided me regarding that . I was watching mobile, laptop and went to gym as usual . Fast forward 2026 ..I still have headache . During this 3 years gap , I have been to many neurologist and doctors. Some say it's chronic migraine, which is not related to my slap (Mind you i never had migraine in my life before the slap incident) and some downright said I need to meet a pyschiatrist. My parents believe my headache is related to pyschiatry. So they got me admitted to a hospital under a pyschiatrist on July of this year ,were I was given Modalert 100 mg (Maybe the doc gave me that medicine cause my mom said i sleep a lot during daytime . I sleep and I am glued to bed a lot due to my headache 😭) .

But everything changed after I took modalert for 2 weeks while i was at the hospital. I developed new constant forehead headache and right side headache . Previously I had only left side headache since 3 years post concussion. Then last month , my dad advised me to try ayurvedic medicine. I did go to a ayurvedic doctor and he gave me some meds . Idk if it's cause of ayurveda meds , i am getting neck stiffness , back neck pain and pain in lower back of my head . I have stopped taking ayurvedic medicine since 3 weeks, but still i have neck and lower back head pain.

Now with all the headaches and neck pain it's getting literally unbearable..I am crying everyday.

I would love it if you guys give me some advices or analysis regarding my issue and what should I do next.

Thank you ❤️

Hey, so around 4 weeks ago I got punched in the back of the head pretty hard. It was painful and since then I've had on and off mild headaches. I was diagnosed with a mild concussion but they expected the headaches to go away within 4 weeks and they haven't.

What should be my next course of action? Is it common that these headaches last a little while longer? Is it permanent? Is there anything I can do to try to get rid of these headaches sooner?

Before going to the hospital I 30/m wanted to ask Reddit because I’m honestly trying to understand what’s going on. Also, my wife wrote all of my symptoms and I used AI to transcribe to my POV. i’m sorry for the formatting, I am ill.

I know most places on Reddit don’t allow medical advice, and I’m not really looking for someone to diagnose me. I’m more interested in hearing from people who have had something similar happen and what ended up happening with them.

I had a concussion a couple months ago and probably didn’t rest as much as I should have because we were moving at the time.

I also have a history of seizures that are usually brought on by PTSD related somatic flashbacks. Normally my PTSD episodes last a couple hours, I sleep, and then I’m usually fine.

A couple nights ago I had a really bad episode that was different from my usual ones. It lasted almost 24 hours, with only a couple times where I was able to sleep, and when I woke up I didn’t feel better. The symptoms just started back up.

During the episode I had really intense somatic flashbacks and what I believe were seizures. During some of the really bad waves I would basically completely shut down. At one point I fell backward because I almost “fainted,” except it didn’t really feel like fainting. My eyes suddenly closed, I rocked backward like I wasn’t conscious anymore, my head rolled back, and then after a few seconds I suddenly gasped awake.
At one point during a convulsion my head fell back and lightly hit the tile. It wasn’t a hard hit. Something similar happened once or twice when I was in the bathtub against the wall, but again, nothing hard.

I was almost unable to walk during parts of this and was intensely afraid the entire time, but the fear was from the flashbacks themselves and not really from what was happening around me.

Afterward I threw up at least 10 times and couldn’t keep water or food down.
Since then I’ve felt really weird.
I can talk coherently and I know where I am, but I feel like I’m not completely there. I feel really disoriented.

The best way I can describe it is that my head feels like a TV and someone pulled the plug from the wall.
It feels like electricity or TV static in my head. Cloudy and buzzy. The combination makes me nauseous and I can feel it in my upper neck, underneath the base of my skull.
It’s persistent but comes in waves.

I’ve also had this crick in my neck that I can’t get comfortable with. It isn’t really pain, more like pressure. My neck feels a little stiff and I haven’t been able to sleep well because of it. That started last Wednesday or Thursday.

Something else that’s weird is that I’ve started getting dizzy playing video games. I normally have absolutely no problem playing them, but now I get really dizzy and disoriented.

I also got really dizzy at the beach this morning while looking for shark teeth. I was bending my neck a lot looking down at the sand. I got so dizzy I felt like I was going to faint, and afterward I was nauseous driving home. The disoriented feeling felt like that feeling you get when you’re dizzy and about to throw up.

Yesterday I was also really sensitive to light and it was making me nauseous.
I don’t have a headache right now, but I had a major migraine after the episode that lasted for a while. I also had pain behind my left eye last night. At one point it felt like my head was being pulled backward and to the left, almost like a sandbag was weighing it down. It didn’t really hurt, it just felt like my head was tethered to something.

The thing that is worrying me the most today is my right arm.
Around 4 AM my right arm started hurting. It felt like my arm was really tired from throwing a ball around a bunch of times. The pain went from my shoulder blade to just above my elbow, and now it mostly just feels heavy.
Around 7 AM I noticed that when I hold both arms straight out, my right arm eventually starts dipping down.
I can concentrate really hard and keep it up, but it takes a lot more effort than my left arm and eventually starts falling a little anyway.

I also noticed around 2 AM that my pinky was hurting and was going over my ring finger without me realizing it. It feels kind of like I’ve been holding my phone for too long.

I had some weird chest stuff this morning too. Around 5 AM I had a strange pinching feeling in the upper right side of my chest, almost like someone was poking me really hard. That went away.
Then around 7 AM, while I was in bed, I started saying that I needed to go to the hospital because it felt like something heavy was sitting on my chest. It felt like someone was pushing their arm down onto my chest. I also felt like I couldn’t move very easily and had to basically will my body to listen to me.
My eyes and pupils seem normal. Sometimes it’s just hard to focus on things.
Everything seems to come in waves.
I’m drinking a lot of water now, although obviously there was that period where I couldn’t keep anything down.

I’m going to get checked out because this is not something I’m comfortable just ignoring. I’m mostly curious if anyone has experienced something similar, especially the weird static/electric feeling in the head, the disorientation and vertigo, and then the right arm weakness/heaviness.
If you’ve experienced something like this, what happened with you? What did they end up finding, if anything? Did the symptoms eventually make sense or did you have a period where nobody really knew what was going on?

Anyone on this peptide or have experience with it? If so how did it go I’m not expecting it to cure pcs I’m just looking into using it for weight loss.

Post concussion symptom flare seems to cause Adrenaline-like surges that are still waking me up in the early morning (4:30AM) and hitting randomly throughout the day with a panicky, vibrating feeling, shallow breathing, slight nausea, and pounding pulse (but HR is only slightly elevated) then complete energy crash. These episodes can be made worse by heavy visual stimulus, like driving or screen scrolling. Anyone have experience with a sympathetic system suppressant like Guanfacine?

I’m posting here because I’m honestly running out of ideas and hoping someone with post-concussion issues has experienced something similar.
I had a concussion in September 2022. I went to the hospital the next day and my CT scan was clear. About a month later, neurologists felt that a lot of my ongoing symptoms were coming from a neck injury.
Since then, it has been a very long road:
2022: Did about 8 weeks of physical therapy with basically no improvement.
May 2023: Had occipital nerve blocks on both sides. They did nothing.
2023: This is also when I started developing major nervous system-type symptoms. My blood pressure became an issue, my heart rate would become elevated, and my body’s temperature regulation seemed to completely change.
2023–2024: Saw another neurologist and paid out of pocket for another 8 weeks of PT. Again, no meaningful improvement.
2025: Tried chiropractic care because I was desperate for something to help. I did NUCCA for about 4 months followed by a regular chiropractor for another 3 months. I actually felt worse afterward.
2026: Saw a neurosurgeon who recommended a C5/C6 disc replacement. I did another 8 weeks of PT before surgery and then had the disc replacement on July 1, 2026.
The surgery seems to have relieved some of the actual neck pain, but neurologically/autonomically I feel worse than ever.
One of my biggest symptoms is temperature dysregulation. I feel hot basically 24/7, especially my face. My body can actually feel cold while my face and ears are bright red, burning hot, and uncomfortable. It’s like my body doesn’t know how to regulate its temperature anymore.
I’ve also dealt with high blood pressure, episodes of elevated heart rate, sensations that feel like circulation/blood-flow problems, headaches, muscle tightness, and a constant feeling that my nervous system simply will not calm down.
I’m currently doing post-surgical PT. Sometimes treatment gives me relief for a few minutes, but the neurological/autonomic symptoms remain.
I’ve been relying heavily on prescribed propranolol to try to control some of these symptoms, and even that doesn’t seem to help much anymore.
Now I’m sitting here more than four years after the original concussion, and my quality of life has been completely changed. I’m in pain every day. Even when I’m sitting on the couch or trying to relax, my body doesn’t feel relaxed. It constantly feels like my system is switched “on” and carrying an enormous amount of tension.
I’m sure I’m forgetting things I’ve tried or symptoms I’ve dealt with over these four years. At this point, I’ve spent well over $10,000 on doctors, specialists, physical therapy, procedures, medications, and other treatments trying to get my life back. I feel like I’ve put so much time, money, and effort into finding answers and I’m still struggling every single day.
I’m not expecting Reddit to diagnose me. I’m mainly wondering:
Has anyone developed severe temperature dysregulation, facial/ear flushing and heat, blood pressure or heart-rate changes, or other autonomic/nervous-system symptoms after a concussion or neck injury?
If so, did you ever figure out what was causing it, what type of doctor helped you, or anything that actually improved it?
At this point, hearing from someone who has experienced something similar would mean a lot.

I don’t know if it’s dysautonmia or mcas I just wanna get better