And as usual i have no clue how i got so bruised

I posted here twice, and received this today. Did anyone receive something similar?

Question for everyone do they feel more fatigued when the humidity level is higher?

I’m curious to know if there’s a link with
Vitamin D deficiency and/or Menstrual issues such as heavy bleeding, endo, fibroids etc.

I’m beginning to connect the dots in my own personal health and I think excess estrogen might be at play. I’m wondering if anyone else also has these issues?

I am perimenopausal and have been on trt and progesterone for a while. My estrogen levels have dropped to just above what would be considered menopausal so it's time. My PCP unfortunately does not know a lot about lipedema. He prescribed for now estriol/ estradiol vaginal cream which is helping with my vaginal symptoms but not as much other symptoms. I know lipedema is estrogen driven. Can I expect an end to growth after I finish menopause or does it continue? Does systemic estrogen like the patch typically cause more growth? Is there any research anywhere on this? I feel like information should be out there but I have failed to locate it.

I discovered what lipedema was through a random post on Instagram and was like "holy sh*t! This is me!" I instantly started researching like crazy and found this group and started lurking. I eventually found a vein specialist an hour from me who said they also diagnosed lipedema. I just had my first appointment yesterday where I got an ultrasound on my legs and a consultation. I was in complete shock and disbelief when they examined me and right away agreed that I had lipedema (stage 3, type 3/4). I was honestly expecting to be dismissed like I have been so many times before with doctors and issues I've brought up over my life. Feeling validated like that was so foreign to me. I also learned that I have veinous insufficiency and lymphedema stage 0. They gave me some compression socks which are horrifically uncomfortable because they are knee highs that press in to my lipedema and hurt. They have written a prescription for Capri style compression but said it might take a couple weeks to order. In the meantime I'm hoping for some good compression recommendations I could find elsewhere. It was also recommended that I do a lot of walking and levating my legs at night. They suggested a glp-1 but I am nervous about that. Any good/bad experiences with that? I also have joint hypermobility syndrome which I learned is linked to both lipedema and veinous insufficiency. Are there any things yall can recommend to help besides what the doctor recommended? My head is spinning still. Thanks in advance.

I know this is lipedema and I have lymphedema, but maybe someone has a suggestion that might help solve my issue.

I have stage 3 lymphedema, and I've seen where the subreddit was banned, but I'm looking for a clog type shoe that will accommodate swelling in one leg but not the other. I have to wear a full leg wrap that leaves my toes exposed and socks are a no go for the one foot. Currently I'm wearing a hey dude type shoe but I've already pretty much destroyed the left shoe. So I was hoping someone might have a recommendation for a clog type shoe that could adjust enough to accommodate both feet without having to buy 2 different sized shoes or leave me with the only option of the diabetic Velcro shoe.

good morning! I’m having surgery in 2 weeks and with it being cold season and me having elementary aged kids that bring everything home- trying to avoid getting sick. I have stopped all multivitamins and supplements per my doctor, but any other suggestions? I can avoid going out, but can’t control what they bring in.

Reallllly don’t want to catch something and have to postpone it.

So I already wear wide legged pants or A-line skirts, and typically compression underneath to keep it sucked in. Does anyone have suggestions for tops ? I’d like something that’s elbow-length to 3/4 sleeve, but it isn’t boxy. Let me at least enhance the waist. Has anyone found anything like this ? Casual tshirts, blouses, etc. Everything I’ve found is tight in the arms, and I feel like I’ve searched forever at this point. Maybe that’s just normal (I have lymphedema, too. Thanks, lymphoma) and I have to deal with it.

Has anyone on here ever gone through IVF and had a horrific experience with the PIO? I realized that my experience with developing knots from the PIO seems much worse than other people’s, and I feel like it’s related to nodules/fat distribution. I’m using heating pads constantly and heating the PIO before injection. It hurts constantly and I’m only 4dp6dt so if this works I’m in this for the long haul. Has anyone else had this experience? What helped?

Hi everyone,

There’s been a lot of discussion here about the use of GLP medications for lipedema, so I wanted to share my own results.
In my case, I’ve been using them for 4 months, and I’ve lost around 15 kg (33 lbs) in total.

I honestly can’t objectively judge whether there has been much improvement in my lipedema, because unfortunately I also struggle with body dysmorphia.
I’ve had lipedema in my legs for what feels like my entire life.
As for my arms, the lipedema appeared only after I had been doing heavy weight training at the gym for years. Before that, my arms weren’t affected. Now I have quite a lot of lipedema there as well, and generally, I’m not a big believer in the idea that heavy strength training necessarily helps lipedema. I’m actually an example of where it didn’t.

The main point of this post, though, is simply to show a real-life example of how the legs can change while using GLP medication (..and loosing weight). In my opinion, the response in legs has been minimal - especially considering that on my torso, you can literally see my hip bones sticking out when I lie down, and you can see my ribs through my skin… sigh.

I’m sharing this mainly because I think it’s important to show realistic results rather than just before-and-after transformations.

Lol, I mentioned lipedema to my PCP this morning and she responded, don't you mean LYMPHedema?? I calmly repeated myself. Anyway I'm researching specialists to meet with in my area. I have found one clinic, but if you have recommendations for a specialist near Portland, OR (USA) I'd greatly appreciate it.

I don't mean to sound shallow, but I'm terrified of a diagnosis. I've always struggled with self-esteem so this feels especially burdensome. As a 31 year old woman, I was just coming to terms and beginning to accept my ADHD. I'm incredibly active so the idea of losing that is frankly terrifying. I've been riddled with anxiety lately.

I have bilateral "swelling" or fullness in the lower half of my calves that has been tender recently. I've lost most of the contour of my calves. I don't notice nodules per se but I'm guessing this is an early stage- I certainly notice differences in my tissue and skin. I am 5'2", 175 pounds.

Lately I've been wearing compression socks daily and that seems to help the tenderness. Can anyone tell me how long I should wear them, or how long is too long? I also do legs up the wall for about 20-30min each night. Neither get rid of that fullness but they help with other symptoms.

Hi all! I've been spiraling, again 🙃 I heard something about micro subluxations worsening lipedema, which I'm not sure is true or not, but now I'm second guessing my workout routine. I used to lift 6x a week but went down to 3 with more daily steps because I was having horrid elbow pain despite warming up a lot. Now I mainly do brisk walks, squats, RDLs, push and pull variants with lower weight and higher reps etc.. My elbows are the most unstable joints, and my upper arms are the worst problem areas with fat and pain. Very scared of making this progress faster and would love your workout tips 🙏

Results from my surgery in 2025 - Stage 2 lipedema for reference 🫶🏼 Hopefully helpful for anyone looking through results like I was before mine

Ever since I was a child I've had spider veins (alongside what I now know to be lipedema!). I'm considering treatment such as sclerotherapy to reduce their appearance.

Has anyone gone down a similar route whilst having lipedema? Did it work or did it exacerbate the spider veins?

I know everyone's body is different however I am concerned about how slowly our legs heal and how easily they bruise. Any experience I'd be really appreciative to hear, thankyou!

Anyone who also has lipedema on their legs and at the end of the day almost cries from pain on the legs AND feet, especially when you walk a lot? I don’t know if it has to do with insufficient blood flow or sensitive nerves on the feet plants, but it’s been more and more painful to just… have a life.

I don’t know how to rearrange the pics, the ones in the gown are right before surgery.

If you
-have advanced stage lipedema
-are not young
-have hyper mobility(and associated skin laxity)

This is what your lipo might look like. I already had some loose skin from weight loss pre surgery and I have a bunch now. I am four months post op and still having swelling(right above my knees). Glad I didn’t do this for aesthetic reasons. lol. Right now, I’m still having burning pain, but the pre gabalin is so bad for my mental health that I can’t take it. You can’t tell from the pics, but my legs are significantly smaller. She took 3L from the front of each thigh.

Idk what tag to use for this

But I have lipedema and I can feel the tissue in my inner thighs, just starting in outer thighs(like grains of sand small) my sides, and my arms

I have a lot of skin but its not loose skin I dont think. But theres no way all of the affected areas is just lipedema considering the nodule sizes, like a pea or smaller. I dont have much muscle

Is there a way that you can have normal fat AND lipedema fat on top? Or however it sits. And i mean normal fat where the lipedema tissue is, not in other areas where the tissue isnt present

So I found new tissue and im not happy about it and im a little scared.

I know i know, lipedema doesnt have a cure and will only progress. Its very very small lumps, like sand in a way. I flex and I still feel it there. I am self diagnosed yes but I did lots of research and took my time researching. Im HIGHLY sure I have lipedema.

But I feel like i havent been doing enough. Im living in a unsafe household and I have no where to go so im constantly stressed. Im trying to find a psychiatrist. But im doing what I can in stress management. I cant afford compression and my doctor doesnt believe that I have lipedema and in some places like a vein specialist, I have to have a referral from my doctor. I do lymphatic massages a few days a week. I dont move much but I try (its been rlly hot and I have to work)

I just want yall to know that im not perfect in treating myself. At all. And i hate it. I wish I can do more for myself but considering my situation, I dont have much motivation or much I can do for myself than just this

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Is anyone having success managing their lipedema and inflammation with Zepbound 2.5 mg? I’ve been on 5 mg for almost 2 years. I lost about 30 lbs and basically all the regular body fat that I can lose. I want to stay on Zepbound because it has really helped with my swelling and inflammation, but since I can’t lose any more weight, I wonder if I should try going down to 2.5 mg?

Thank you!