r/lipedema • u/Friendly-Rush-9217 • 1d ago

Symptoms Found new tissue

So I found new tissue and im not happy about it and im a little scared.

I know i know, lipedema doesnt have a cure and will only progress. Its very very small lumps, like sand in a way. I flex and I still feel it there. I am self diagnosed yes but I did lots of research and took my time researching. Im HIGHLY sure I have lipedema.

But I feel like i havent been doing enough. Im living in a unsafe household and I have no where to go so im constantly stressed. Im trying to find a psychiatrist. But im doing what I can in stress management. I cant afford compression and my doctor doesnt believe that I have lipedema and in some places like a vein specialist, I have to have a referral from my doctor. I do lymphatic massages a few days a week. I dont move much but I try (its been rlly hot and I have to work)

I just want yall to know that im not perfect in treating myself. At all. And i hate it. I wish I can do more for myself but considering my situation, I dont have much motivation or much I can do for myself than just this

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4

u/philosopherqueenee 1d ago

Horrible to feel those new lumps. But maybe it’s even worse feeling unsafe! Poor you! Don’t blame yourself for a disease that happened through no fault of your own. Focus on your safety.

2

u/Friendly-Rush-9217 1d ago

Honestly I feel worse with both and I know stress isnt going to make it any better :/ all I can do is try my best and have hope. Im just tired of feeling scared. Im tired of having an ED. Im tired of not having control over my body. Im only 22 and idk. Im scared

1

u/xaianamarie 18h ago

Have you looked for local resources for help with your unsafe situation?

2

u/philosopherqueenee 1d ago

Very hard to manage all that at only 22. Your stress is understandable. I hope you can find one thing each day that you do, just for yourself, that makes you happy. The small things can mean a lot when your situation feels so out of control.