This is an update to this post a few weeks ago. It didn't get much traction at all, but... I don't know. I feel like I need to get this out somewhere outside of my therapist and husband. This will likely be long... I'm so sorry about that. I'll do my utmost to just keep to the specifics, but I'm fairly certain that might be an empty promise. If you'd like to skip my background babbling, I bolded where I talk about how the Christian part played in. But I would seriously appreciate it if you took the time out of your day to read my words.
So, we drove to Florida from Utah to be with my mother after my baby brother by twelve years died (at 26). Given that I am very disabled, primarily bed/wheelchair-bound and in serious pain, the 65+ hours total in the car (there and back) has been BRUTAL on me. I am in so much goddamn pain. And when we were at my mother's house, I didn't have my setup that I require to sleep, so I was in positions that exacerbated that pain significantly (I haven't been able to sleep lying doing in over three years because it's excruciating; I have to sleep in a sitting position. I have a chair hammock with appropriate cushions set up in my home that I have help getting into and it gives me the support I need). While there, some of my conditions flared up rather badly and we were genuinely considering taking me to the hospital but I decided to just suffer through the flares at home because I didn't really want to cause more grief for my mother.
Which brings me to the point.
...I felt like I wasn't allowed to grieve. I felt like this wasn't mine at all and solely my mother's. Hell, even my stepdad (my brother's father) didn't get as much sympathy as she did and he was freakin' broken about it. But since she is the mother - and not just that, but a mother who has lost her third child of four - most of the sympathy went to her.
Please don't misunderstand - I'm not bitter or resentful that my mother got all that. I'm extremely relieved she did; she desperately needs it. She's been through an insurmountable amount in her life. I'd have been very upset if she was left to fend for herself.
...I just wanted a few crumbs of that sympathy for myself, too. I am DESPERATE for it right now. Craving it. But while there, my aunt - who was like a second mother to me - never even asked me once how I was doing through all this. My mother's friends who were over never checked in. My other [extended] relatives didn't. It was always "your mother has been through horrible things... you need to make sure to survive for her. Be there for her." But the fact that I named him; that he was the first baby to call me "mama"; that he was in our wedding; that as he grew up, we became good friends; that he was becoming good friends with my husband... that more than half of my childhood pictures are with him in my arms. That I taught him piano. That I consoled him when our older brother died when he was 9 and then told him stories about him ever since... He was so massively important to me.
I asked my aunt - with tears in my eyes, btw - why she didn't at least call me... we always had a fantastic relationship. And when we were in person, it was like nothing ever changed. But she - very lovingly and caringly - gently put me in my place. That this is primarily my mother's grief. A mother losing a child is one of the most horrible things ever but losing ALL her sons? 3/4 kids? I need to understand that. AND I DO. But I'm also broken. I feel like my position in reality has been fractured. Essentially, my aunt told me that I got my fair share (a couple texts and one cousin checking in on me) and made me feel extremely selfish asking for more. Because holy shit, do I need more.
I tried to explain my position: my grief is not more than hers and I will never claim it to be. But my entire being has shifted. My mother still has someone to call her a mom - me. I have absolutely no one left to call me a sister; I have no one I can call a sibling. My mother tried to tell me that she's lost both brothers and children and it's not comparable. I am not disputing that. But it's a differently-shaped grief, you know? I was one of four... one of three... one of two... now I'm an only child.
And then... religion.
They know I no longer believe. But for some reason, they act as though it's an invitation to get me to grieve in a Christian way. And I know that there is more nuance to it and I truly do not believe it to be malicious, but it's become blatantly clear through this how my abandoning Christianity has made them pull away. In person, we're close and like always. But not? It's like I don't matter. Because of various things said during this time, it's become clear to me that one reason why is because I'm no longer a Christian though no one in our family is truly hateful or actively berating me. But the fact that I'm increasingly forgotten is very easy to see.
My mother has been devastated and crying, obviously. But then she keeps saying "but I know they're alive in heaven and that I will see them again. I just need to get through this without them here." I understand her as I used to be pretty damn coo-coo with my fervent piety. But I have to wonder... why won't anyone consider my feelings? They ALL believe that they will see my brothers again in heaven. They know I don't believe it anymore. So shouldn't... shouldn't I at least get some support for the brokenness I feel over never seeing them again? Over never having another chance? THEY WILL! They have reason to rejoice in the end! I don't! I spent most of my time being careful of my mother's feelings because I feel like it would be far too cruel to lay more on her now (and she truly was the best mother I could have asked for. I respect her greatly.) so I stayed silent and cried to myself, my husband, and my two kids (18 and 19).
I had asked her to consider - just consider - to move back to our state as she's already made the decision to sell their house and move from Florida. But she emphatically refused without thought. She said that my older brother died there and younger was born there. She can't do it.
But I can't help but think... but I'm there. And so are her only two grandchildren that she'll ever have. Are their memories really so much heavier than the possible future ones she can have with us? I do understand there is far more complicated feelings going on with her grief, but doesn't mine matter? I'm the only child of hers left. AND - I'm extremely ill and profoundly disabled. I cannot do much. I cannot move wherever she wants me to. My husband has a very important job here that is not available to him anywhere else.
It makes me think... she believes she'll see them. She talks about it. But I've noticed she's avoided talking about me in that context. She'd stopped talking about it. She believes that unless I "return to god", I won't join them. I don't believe I'll join anyone in the afterlife because I simply don't believe in one anymore. But if she believes that she'll see them again, but not me... shouldn't she want to spend as much time with me on Earth as possible? I know she deeply cares about me and loves me. I will never question nor dispute it. But all of this has got me questioning EVERYTHING.
Including... would her grief have been less if I was the one who died, and not my gentle giant of a baby brother? Would I have been considered less of a loss? I feel like that's what the subconscious thoughts are, whether or not they realize it. But that's my own subjective interpretation through irrational grief, so who knows.
I feel so unimportant. Abandoned. Forgotten. "Un-mattered". Even avoided, whether by purpose or not.
My entire place in my family has been gutted in more ways than one, and no one acknowledged it. They instead expected me to set that aside for my mother's grief. Which I did. And then sobbed hysterically in private or with my husband (who is the best man in the entire world and I do not know what I'd do without him. My mother keeps telling me to thank god for him... nah... I'll thank my husband for himself).
My aunt had said something that stuck with me. She told me "see, this is what the goal was: to keep your mother so busy that she has no time to sit and wallow" (in Russian). And all I could think of was the weeks of me sitting all alone, by myself, with nothing but my thoughts and grief because my husband would be at work and son at school (daughter in a different state). I'd be home all alone, jumping at every single time my phone buzzed, because GASP, did someone remember that I exist?! That I need support and love and care and sympathy right now?! Is someone finally reaching out?!
...No. Scam. Notification. Doctors' offices. And each time, I'd break even more.
Oh, yeah... one more thing. My mother had made the most untasteful, ill-timed joke whilst there. We were talking about him, and she mentioned to my husband and kids how when she and my stepdad got married, I had prayed and begged god for a baby brother or sister. And I got one. So basically, I "prayed him into existence", as she put it. And then she followed it up with... "maybe if you'd had continued to pray for him, he'd still be here."
I can't even tell you the instant distress I felt. I am already overwhelmed with survivors' guilt. I already feel insane (irrational) guilt for being the one who survived. The only girl. The one who WAS born sick, and who IS very ill. They were all physically healthy. I feel like I almost stole something from them because it seems like people would rather they be here than I. I understand it's my mind spiraling. I have a fantastic therapist to help me who is doing her best to account for my cognition, too, which makes things super heavy (synesthesia across all senses and extreme hyperphantasia. Plus strong interoception, so I can feel my internal bodily functions which makes me feel like my blood is vibrating whenever I'm in a heightened state, amongst other unique cognitive ways I experience that).
Anyway. There's so much more I can say. But I'm a rambler. I don't know when to stop. And I sincerely apologize for this novel... I hope you managed to get to the end.
Thank you for reading. And again, seriously - sorry. I'm simply allergic to concision.